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B1 Thiamine
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Blood results
Hi can anyone tell me what this means. My THS came back as 14.80 but my free TT4 Is saying normal range 17.3. My B12 is fine 409 and so is my cholesterol. If my T4 is fine do I need to put my dose up? I am just starting to feel a bit better. They haven'haven'done my T3 yet
Hi can anyone tell me what this means. My THS came back as 14.80 but my free TT4 Is saying normal range 17.3. My B12 is fine 409 and so is my cholesterol. If my T4 is fine do I need to put my dose up? I am just starting to feel a bit better. They haven'haven'done my T3 yet
Timmyroo
in
Thyroid UK
5 months ago
sourcing b12
I’ve been unable to get hold of my usual panpharma b12 for SI. What alternative do you use? Hoping to stay injecting hydroxocobalamin as my body hates change. Thanks, Cx
I’ve been unable to get hold of my usual panpharma b12 for SI. What alternative do you use? Hoping to stay injecting hydroxocobalamin as my body hates change. Thanks, Cx
Pepperpots302
in
Pernicious Anaemia Society
5 months ago
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Hypothyroid symptoms but Dr says normal
Hey! So my recent bloods show; Tsh 0.01 T4 11 (range 9- 19) T3 ( 4.5) (range 3 to 7) Dr says normal but I'm so fluid. My legs swell all the time and make indents in my leg. Confused. Legs are tingling due to water being so bad. I drink alot of water daily as I'm active but the retention is getting
Hey! So my recent bloods show; Tsh 0.01 T4 11 (range 9- 19) T3 ( 4.5) (range 3 to 7) Dr says normal but I'm so fluid. My legs swell all the time and make indents in my leg. Confused. Legs are tingling due to water being so bad. I drink alot of water daily as I'm active but the retention is getting
jparsss
in
Thyroid UK
5 months ago
Metatrexate
I am now back on 15 mil of Metx injection with 20m Pred. followed by folic acid 2 days later.and all seems to be going well and not affecting my blood sugar levels so badly. My B12 was very low so also had a course of injections it seems to be a fine balance between blood pressure, blood sugar levels
I am now back on 15 mil of Metx injection with 20m Pred. followed by folic acid 2 days later.and all seems to be going well and not affecting my blood sugar levels so badly. My B12 was very low so also had a course of injections it seems to be a fine balance between blood pressure, blood sugar levels
Doublef
in
PMRGCAuk
5 months ago
Informing GP of sourcing own supplies
Hi, as some of you are aware I am in the process of writing to my GP and my MP. My GP does not know that I source my own supplies of B12. I was going to put this in my letter so that she, and my MP, can see the lengths people have to go to have any hope of recover. As B12 is not available over the counter
Hi, as some of you are aware I am in the process of writing to my GP and my MP. My GP does not know that I source my own supplies of B12. I was going to put this in my letter so that she, and my MP, can see the lengths people have to go to have any hope of recover. As B12 is not available over the counter
BeachArt
in
Pernicious Anaemia Society
5 months ago
levo increase!
Hi all about a month ago I increased my levo from 100mcgs to 112mcgs daily as per body weight thing! I am unfortunately 100kgs 😟 I am feeling a bit tired again sleeping a lot and not having much energy! I am doing something wrong? 😑 PS still have the ongoing saga with the deficient B12 and folate
Hi all about a month ago I increased my levo from 100mcgs to 112mcgs daily as per body weight thing! I am unfortunately 100kgs 😟 I am feeling a bit tired again sleeping a lot and not having much energy! I am doing something wrong? 😑 PS still have the ongoing saga with the deficient B12 and folate
Doris11
in
Thyroid UK
5 months ago
ferritin high
hello. I’m new to the group I’ve had under active thyroid for approx 2 years diagnosed during covid. I was just told over the phone you need thyroxine it’s sent to the chemist and that’s all the info I got. I’ve had another blood test as my shoulders and hips are in almost constant discomfort all that
hello. I’m new to the group I’ve had under active thyroid for approx 2 years diagnosed during covid. I was just told over the phone you need thyroxine it’s sent to the chemist and that’s all the info I got. I’ve had another blood test as my shoulders and hips are in almost constant discomfort all that
Puglady1981
in
Thyroid UK
5 months ago
on b12 treatment, when start folic acid?
Hi all, I was able to feel better over the last year with the help of this forum, a big thank you. My problem started with neurological symptoms without knowing what was happening! Then with the help of people here and researching I found out I was low in b12 when started treating with folic acid (5mg
Hi all, I was able to feel better over the last year with the help of this forum, a big thank you. My problem started with neurological symptoms without knowing what was happening! Then with the help of people here and researching I found out I was low in b12 when started treating with folic acid (5mg
Kat_88
in
Pernicious Anaemia Society
5 months ago
Results of blood test
Hi, after OH had high Tsh Levels a couple of weeks a go (radioactive iodine 14 tears a go) gp prescribed higher dose of thyroxine - now 175Results from medicheck above Low vit d - would this affect the thyroxine absorption? If he sorts that would it then be sensible to reduce the thyroxine back down
Hi, after OH had high Tsh Levels a couple of weeks a go (radioactive iodine 14 tears a go) gp prescribed higher dose of thyroxine - now 175Results from medicheck above Low vit d - would this affect the thyroxine absorption? If he sorts that would it then be sensible to reduce the thyroxine back down
Vickyswift
in
Thyroid UK
5 months ago
Inflammation and RLS
I have always believed that inflammation was part of my RLS. I believe this because my RLS responds well to ibuprofen. A recent blog was using this study http://www.smj.org.sg/sites/default/files/SMJ-57-514.pdf The study is from 2016. The study proposes to use the neutrophil-to-lymphocyte ratio
I have always believed that inflammation was part of my RLS. I believe this because my RLS responds well to ibuprofen. A recent blog was using this study http://www.smj.org.sg/sites/default/files/SMJ-57-514.pdf The study is from 2016. The study proposes to use the neutrophil-to-lymphocyte ratio
WideBody
in
Restless Legs Syndrome
5 months ago
Prep For Thyroid Blood Test?
Hi folks. I’m sending off a blood test next Monday for FT3, FT4, TSH, anti-Tg, anti-TPO and want to prepare properly for taking the bloods. I’ve taken in doing it before 9am, drink only water. But unsure about vits, I’m taking Fish Oil, magnesium, B Complex, D3+K. I also SI B12. I think I heard one
Hi folks. I’m sending off a blood test next Monday for FT3, FT4, TSH, anti-Tg, anti-TPO and want to prepare properly for taking the bloods. I’ve taken in doing it before 9am, drink only water. But unsure about vits, I’m taking Fish Oil, magnesium, B Complex, D3+K. I also SI B12. I think I heard one
B12again
in
Thyroid UK
5 months ago
Help, upset and confused
Long running saga, GP reduced T4 despite my not agreeing based on results 6/11 TSH 0.01 (0.27-4.20) FT4 21.6 (12.0 - 22.0) no FT3. HbA1c 54. CRP 9 ( 0 - 4) chol 5.14 <5 BH 12/10 TSH 0.02 (0.27 - 4.20) FT4 17.9 (12.0 - 22.0) FT3 4.55 (3.1 - 6.8) HbA1c 54 chol 5.14 <
Long running saga, GP reduced T4 despite my not agreeing based on results 6/11 TSH 0.01 (0.27-4.20) FT4 21.6 (12.0 - 22.0) no FT3. HbA1c 54. CRP 9 ( 0 - 4) chol 5.14 <5 BH 12/10 TSH 0.02 (0.27 - 4.20) FT4 17.9 (12.0 - 22.0) FT3 4.55 (3.1 - 6.8) HbA1c 54 chol 5.14 <
Polo22
in
Thyroid UK
5 months ago
Thyroid results-Hashimotos?
Hello, Looking for some help in interpreting thyroid results. I've been testing privately over the last two years. Does this show Hashimotos and would it be enough for a GP to take seriously? Since having my son three years ago I've had many unexplained symptoms - weight gain, swollen legs, fatigue,
Hello, Looking for some help in interpreting thyroid results. I've been testing privately over the last two years. Does this show Hashimotos and would it be enough for a GP to take seriously? Since having my son three years ago I've had many unexplained symptoms - weight gain, swollen legs, fatigue,
Llan12
in
Thyroid UK
5 months ago
High T4
Hi Greygoose, I've seen your reply to Helen'shubby. Just wondering about my T4 and T3 . I'm awaiting new test results but my last test showed T4 at 22.4 ( 7.5- 21.1) ( 109.56%) FT3 4.9 (3.8-6.8) (36.67%) TSH is always undetectable B12 351 (110- 914.0) I am supplementing now (nature provides 3000mcg daily
Hi Greygoose, I've seen your reply to Helen'shubby. Just wondering about my T4 and T3 . I'm awaiting new test results but my last test showed T4 at 22.4 ( 7.5- 21.1) ( 109.56%) FT3 4.9 (3.8-6.8) (36.67%) TSH is always undetectable B12 351 (110- 914.0) I am supplementing now (nature provides 3000mcg daily
Shellian
in
Thyroid UK
5 months ago
IVF Cycle Failure/Fertility Diet
Hi - my first cycle of IVF has resulted in a negative pregnancy test. I had 10 follicles, 6 eggs retrieved, 3 mature, 2 fertilised & 1 early blastocyst which was transferred. I was on 450iu Meriofert with Ganerilix. If your first cycle failed what did you change for the second? I'm due to go again
Hi - my first cycle of IVF has resulted in a negative pregnancy test. I had 10 follicles, 6 eggs retrieved, 3 mature, 2 fertilised & 1 early blastocyst which was transferred. I was on 450iu Meriofert with Ganerilix. If your first cycle failed what did you change for the second? I'm due to go again
Greenleaves1
in
Fertility Network UK
5 months ago
Fibro-Fatigued-Fed up!!!
I have suffered with fibro now for the past three years. I feel like I’m one of the lucky ones as I started symptoms at 42. I’m reading a lot younger people and I feel really sorry for you. my sister also suffers with fibro a lot worse than me and she’s had it a lot longer. My mum also. So between
I have suffered with fibro now for the past three years. I feel like I’m one of the lucky ones as I started symptoms at 42. I’m reading a lot younger people and I feel really sorry for you. my sister also suffers with fibro a lot worse than me and she’s had it a lot longer. My mum also. So between
Loulou1800
in
Fibromyalgia Action UK
5 months ago
Iron supplementation
Hi I have Hashimoto's - as yet untreated due to fluctuating TSH levels. My symptoms are numerous, and due to low levels of B12 and vitamin D, I am supplementing those. I am gluten Soy and Dairy free. My ferritin has been historically low and the GPs have frequently me prescribed Ferrous Fumarate.
Hi I have Hashimoto's - as yet untreated due to fluctuating TSH levels. My symptoms are numerous, and due to low levels of B12 and vitamin D, I am supplementing those. I am gluten Soy and Dairy free. My ferritin has been historically low and the GPs have frequently me prescribed Ferrous Fumarate.
Justine_Case
in
Thyroid UK
2 months ago
Help with Vitamin K foods
Hello I am from Vancouver Island and had Open Heart Surgery in 2022. After my surgery they put you into this room to watch a video on Warfrin and then that's it home you go. Needless to say when I started taking Warfrin my INR was all over the map and still is but getting a bit better. The thing
Hello I am from Vancouver Island and had Open Heart Surgery in 2022. After my surgery they put you into this room to watch a video on Warfrin and then that's it home you go. Needless to say when I started taking Warfrin my INR was all over the map and still is but getting a bit better. The thing
13131958
in
Hughes Syndrome APS Forum
5 months ago
Blood test results
Repeated blood tests ordered by my GP trying to compare private ones I had a month ago with different ranges,I had both done at 9am and only glass of water can someone help please? 12th February 2024 repeat GP tests January 2024 Medichecks private test B12 344 range (187-883.00ng
Repeated blood tests ordered by my GP trying to compare private ones I had a month ago with different ranges,I had both done at 9am and only glass of water can someone help please? 12th February 2024 repeat GP tests January 2024 Medichecks private test B12 344 range (187-883.00ng
Bluenose69
in
Thyroid UK
5 months ago
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