Fibro-Fatigued-Fed up!!!

[Loulou1800]

I have suffered with fibro now for the past three years. I feel like I’m one of the lucky ones as I started symptoms at 42. I’m reading a lot younger people and I feel really sorry for you.

my sister also suffers with fibro a lot worse than me and she’s had it a lot longer. My mum also.

So between us. We have tried quite a lot of medications that the doctors have prescribed, but the side-effects are either feeling more tired or weight gain or they just don’t agree with us.

I am on 150/300 mg of pregablin per day which doesn’t help with the pain, but it just helps me sleep through the night which is great for me as it really did interrupt my sleeping for awhile, but I do wake up feeling unrefreshed and fatigue hits straightaway.

I’ve been to the doctors numerous of times and they suggest exercise and talking therapies but I keep telling them it’s like a vicious circle. I’m too tired to exercise when I do exercise. I’m so tired after and I can’t walk on my feet or my legs because they are in so much pain, it’s not as easy as it sounds.

I have yet to try the talking therapist as they are just referring me at the moment, but I don’t hold out much hope that it will help with my pain.

So like like many of you I’m turning to self-help, I’m gonna go for a B12 injection. I’m also starting on calcium and magnesium and vitamin tablets. I’ve also started trying L-tryptophan which releases serotonin and melatonin, I’m also going to start trying 5-HTP.

if anybody has tried any of these, I would love to know how you found them and have they helped?

But for now, it’s just about trying to get through every day…. I just feel like there should be more out there for fibro sufferers and even for the fatigue, because that alone is a horrible disease.

[Nevercansleep]

hello loulou 1800, I too was diagnosed in my later yrs at age 50, I’ve had fibro for 10 yrs just about, both of my daughters have had it since they were very young teenage yrs, I do feel for you and understand how debilitating this disease is especially for the chronic fatigue and horrible insomnia as well as pain everywhere it is indeed a vicious cycle as we need full deep sleep restorative for our body’s to try and function and repair themselves and without the sleep everything is exasperated more , I have suffered with many autoimmune conditions my whole life and was already on b12 injections from in my 20’s I have tried a lot of supplements to try and help with the sleep problems including l tryptophan and 5 hrs , I found then a little useful but still would only sleep for about 3 hours and I was already taking sertraline and amitriptyline which affect your seratonin levels so you have to be careful with 5thp as this could potentially cause seratonin syndrome if taken with antidepressants , but each of us has different chemical makeup and metabolises things differently so what may not work on one person could work with another my advise would be to go slow and low on any supplements until you know how your body adapts to it, also I found that 5ths gave me headaches but may not with you ? I now get prescribed melatonin from the hospital as my insomnia was horrendous and went on for ten yrs and I started buying melatonin from America and having sent here in desperation to try and sleep, you can’t buy it in this country, my consultant agreed to prescribe me afterwards as buying online supplements from America they weren’t regulated dosage ect, apologies for the long answer as trying to explain how I’ve tried to combat the same issues you are having with this awful condition, just so you know I have been on pregablin amitriptyline sertraline mirtazapine and tramadol daily for as long as I care to remember and still had to try the supplements you are thinking of as I could not sleep and chronic fatigue and pain, a healthy diet and good vitamins is in my eyes the right foundation but we still need extra help or supplementing sometimes if that alone doesn’t work , a couple of supplements I do feel we need and I take are vit d and very good quality omega 3’s but I am not a health professional and do not have any qualifications to say it’s right for anyone else, they are just things I use along with my meds as my body needs them, another quite good herb for relaxation and possibly help with getting off to sleep is lemon balm and I use this sometimes too , I find it helps me unwind a little , I wish you well in your pain management and battle with the fatigue and good quality sleep which you so rightly need , please update if you find anything that works for yourself thanks 🙏💐

[Yassytina FMA UK Volunteer]

Hello , quite understand about fatigue and you excercise sensible and the fatigue comes back worse , I got diagnosed separately with CFS as although the 2 conditions have similar cross over symptoms I felt had this way before I was diagnosed with Fibro, I used too swim 3 times a week , I even just did 6 medium length s and I still felt the same after , was very hard but I gave up. Have you spoke too your local Chemist and checked everything you are taking is compatible with your meds from the doctor ? I am currently taking Zinc, @a multi vitamin tablet, we do try don’t we. Why made me say this I was taking a B12 tablet for lack of energy and when they did my blood tests I was producing too much B12. I know what you mean I was early 50 s when things changed and got eventually diagnosed, I feel for the younger members here who are only in their 20s. We are allowed too get fed up sometimes, today I am resting so much more , my mind wants too do things and the body says no . Take care , good too chat here always helps to let it out x

[rosewine]

I found taking CoEnzyme Q10 capsules helped with the muscle aches and fatigue on my legs. It took about 6 weeks to really kick in, but I suddenly realised that my legs were far less achy. I wondered whether it was just the placebo effect and decided to stop them and within 2 weeks that horrible feeling in my kegs returned.As far as exercise is concerned even a short walk helps as it gets you outside in the fresh air. I had terrible pain and fatigue and first started gentle stretching exercises 3 times a day just for 5 minutes a time and then slowly built up. It all helps. Little and often tends to be better than doing say a half hour session.

I was hoping that with all the research they are doing for people suffering with LongCovid might help us in the long run as excessive fatigue seems to be one of the main symptoms.

Hooe you find something that helps you.x

[fibo]

Hi I have terrible fatigue and I'm sure it's getting worse I have suffered with it or depending on the interpretation since I had glandular fever when I was 14 symptoms weren't too bad until I hit 40 then the pain started I don't have any answers other than maybe stop the pregabalin I was on gabapenting for a lot of years and it never helped the pain and I also have thought it helped me sleep but I decided to stop it and once it was out my system I felt a lot better I took on strict go to sleep wake up routine what they recommend same time every night alarm clock in the morning and that seems to have worked I will have 8 or 9 hours sleep and wake up exhausted but I know I've been to sleep because my Fitbit tells me take care and good luck