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USA Travel
I’m travelling to the US. Anything I should know about bringing in B12 SI supplies. And can I buy them there? Thanks.
I’m travelling to the US. Anything I should know about bringing in B12 SI supplies. And can I buy them there? Thanks.
MrsTuft
in
Pernicious Anaemia Society
4 months ago
Folic acid and B12 deficiency blood test
Hi I wonder if someone could give me some advice please I tried a vitamin B complex supplement for 3 days I was only able to take it for 3 days as it made me so ill this was about 6 days ago Then today my Rheumatologist decided to take some blood to check if I have a B12 or folate deficiency (I was actually
Hi I wonder if someone could give me some advice please I tried a vitamin B complex supplement for 3 days I was only able to take it for 3 days as it made me so ill this was about 6 days ago Then today my Rheumatologist decided to take some blood to check if I have a B12 or folate deficiency (I was actually
mully
in
Pernicious Anaemia Society
4 months ago
Full list of autoimmune tests I got
This has come up in various threads, so I figure it's worth posting. I got all these in search of severe then-unspecific neuro/immune troubles. There are always more tests, but this covers a good set. -- The ones with ** are esp common rheum tests : ------- PROTEIN ELECTROPHORESIS SERUM CK
This has come up in various threads, so I figure it's worth posting. I got all these in search of severe then-unspecific neuro/immune troubles. There are always more tests, but this covers a good set. -- The ones with ** are esp common rheum tests : ------- PROTEIN ELECTROPHORESIS SERUM CK
EPguy
in
MPN Voice
4 months ago
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Cure for Parkinson's - neverending story
There are thousands of substances with some beneficial effects on Parkinson's, from vitamins, herbs,spices ,minerals,off label medications, types of exercise, or whatever or however you name it.. sometimes i feel lost, exhausted from trying and experimenting, physically mentally and.... financially bankrupted
There are thousands of substances with some beneficial effects on Parkinson's, from vitamins, herbs,spices ,minerals,off label medications, types of exercise, or whatever or however you name it.. sometimes i feel lost, exhausted from trying and experimenting, physically mentally and.... financially bankrupted
realk
in
Cure Parkinson's
6 months ago
Feeling worse
Hi all Hope everyone's had a good start to 2024. I was started on levothyroxine 25mcg on 19th December, after being on it for 2 weeks I did feel a very slight improvement, it only lasted a couple days, and have been feeling worse since. The levo was teva brand. I have collected my new month prescription
Hi all Hope everyone's had a good start to 2024. I was started on levothyroxine 25mcg on 19th December, after being on it for 2 weeks I did feel a very slight improvement, it only lasted a couple days, and have been feeling worse since. The levo was teva brand. I have collected my new month prescription
Cabbages123
in
Thyroid UK
4 months ago
Strange results! Would value opinions.
February 2022 on 125mcg Levo TSH 0.04 (0.27-4.2) FT3 5.22 (3.1-6.8) FT4 19.1 (12-22) January 2024 125 Levo 3mcg Lio TSH 0.0008 (0.27-4.2) FT3 4.7 (3.1-6.8) FT4 18.1 (12-22) After about a year adding Lio why has my FT3 lowered ?! Seems very odd. I mean I do feel quite a bit better. Still a slump
February 2022 on 125mcg Levo TSH 0.04 (0.27-4.2) FT3 5.22 (3.1-6.8) FT4 19.1 (12-22) January 2024 125 Levo 3mcg Lio TSH 0.0008 (0.27-4.2) FT3 4.7 (3.1-6.8) FT4 18.1 (12-22) After about a year adding Lio why has my FT3 lowered ?! Seems very odd. I mean I do feel quite a bit better. Still a slump
SarahJane1471
in
Thyroid UK
4 months ago
Tales from the heart: Fixing flawed ADHD testing
Tales from the heart: Fixing flawed ADHD testing MindTension has developed a direct-to-brain test to precisely diagnose ADHD, removing variables and the fear of imposter syndrome. In Israel, a critical point in the ADHD diagnosis process is the MOXO test: a computerized assessment tool that measures
Tales from the heart: Fixing flawed ADHD testing MindTension has developed a direct-to-brain test to precisely diagnose ADHD, removing variables and the fear of imposter syndrome. In Israel, a critical point in the ADHD diagnosis process is the MOXO test: a computerized assessment tool that measures
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 days ago
Vestibular Neuritis
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Ipsofacto01
in
Pernicious Anaemia Society
4 months ago
At What Level Is Low B12 Treated?
Hi! I recently had some blood tests and my B12 came back low at 180, normal range 197-771. My folate was 4.7, normal range 3.9-26.8. Full blood count and ferritin fine, I had iron deficiency anaemia and have been successful treated for that and all those levels looking good. My question is, at what
Hi! I recently had some blood tests and my B12 came back low at 180, normal range 197-771. My folate was 4.7, normal range 3.9-26.8. Full blood count and ferritin fine, I had iron deficiency anaemia and have been successful treated for that and all those levels looking good. My question is, at what
Hidden
in
Pernicious Anaemia Society
4 months ago
update
well after getting my labs back from Dr. Cooper I have to say that I am a little disappointed in the fact that he said my feretin levels were good at 51. I have understood from you guys that it needs to be at least 100 so him saying that 51 is good disappoints me. That being said I received my results
well after getting my labs back from Dr. Cooper I have to say that I am a little disappointed in the fact that he said my feretin levels were good at 51. I have understood from you guys that it needs to be at least 100 so him saying that 51 is good disappoints me. That being said I received my results
6236
in
Restless Legs Syndrome
4 months ago
Vitamins for fatigue?
Another photo of the Whitwell area. On my good days I love to walk alone, with a friend or a group of friends. We go all over the Island, up the downs, along the rivers around the coast. I feel extreme lucky to be able to do this, though It does obviously depend on my energy levels (seems to be getting
Another photo of the Whitwell area. On my good days I love to walk alone, with a friend or a group of friends. We go all over the Island, up the downs, along the rivers around the coast. I feel extreme lucky to be able to do this, though It does obviously depend on my energy levels (seems to be getting
IsleofWight1
in
LUPUS UK
4 months ago
Vitamin D
I have it prescribed once a week D3 ( CLL & Multiple Sclerosis
I have it prescribed once a week D3 ( CLL & Multiple Sclerosis
Marco54
in
CLL Support
4 months ago
supplements
Does anyone on here know if there are any otc vitamins or supplements that increase levels of RLS/Myoclonus.
Does anyone on here know if there are any otc vitamins or supplements that increase levels of RLS/Myoclonus.
soupersuzy
in
Restless Legs Syndrome
6 months ago
A suggestion that is working well, for me at least. AT least for now.
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
lauraflora
in
Restless Legs Syndrome
4 months ago
How quickly would B12 Levels drop post injection?
Hello, I had 6 loading doses of B12 in September following a B12 level of <145 (test doesn’t specify below that cut off) I had some symptoms including muscle aches particularly my legs above my knees, anxiety, panic attacks, fatigue, dizziness and pins and needles on my left hand. No evidence of anaemia
Hello, I had 6 loading doses of B12 in September following a B12 level of <145 (test doesn’t specify below that cut off) I had some symptoms including muscle aches particularly my legs above my knees, anxiety, panic attacks, fatigue, dizziness and pins and needles on my left hand. No evidence of anaemia
Sparkleros
in
Pernicious Anaemia Society
4 months ago
Hello everyone 😊
Hello, I hope no one minds me expressing my fears. What it is I struggle like many to get the same brand of liothyronine or just get any thats available on the nhs at times and wait time at times has been months. Its stressful just going to the chemist and I'm made to feel that I'm difficult
Hello, I hope no one minds me expressing my fears. What it is I struggle like many to get the same brand of liothyronine or just get any thats available on the nhs at times and wait time at times has been months. Its stressful just going to the chemist and I'm made to feel that I'm difficult
Elizajoe102
in
Thyroid UK
4 months ago
Sunlight relief
For the last 4 days I have had no PMR pain or stiffness. Why? I am on St Kitts, where there is abundant sunshine. I'm probably making tons of vitamin D. Although since my PMR commenced in Dec 2022 I have taken a vitamin D pill daily, I can't trace any relief to that. As for "perfect" days, I've had
For the last 4 days I have had no PMR pain or stiffness. Why? I am on St Kitts, where there is abundant sunshine. I'm probably making tons of vitamin D. Although since my PMR commenced in Dec 2022 I have taken a vitamin D pill daily, I can't trace any relief to that. As for "perfect" days, I've had
papadapadoo
in
PMRGCAuk
4 months ago
Marie
My doctors have just done B12 and folic acid blood tests, I was diagnosed in 2002 with pernicious anaemia. I have just been told that both results are high and that a doctor may want to speak to me. There is rumours that the surgery are trying to cut back on prescription and I am worried they will stop
My doctors have just done B12 and folic acid blood tests, I was diagnosed in 2002 with pernicious anaemia. I have just been told that both results are high and that a doctor may want to speak to me. There is rumours that the surgery are trying to cut back on prescription and I am worried they will stop
Royalblue1
in
Pernicious Anaemia Society
4 months ago
Osteoporosis - treatment or not ??
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
mullochs
in
PMRGCAuk
4 months ago
advice on blood results please
Hi Thanks for reading my post I hope you can help me . I am 57 year old woman diagnosed with Hashimos November 2022. At the time I had hyper symptoms HR 120 at rest exhausted weak muscles aching and feeling hot . Doctor insisted it was the menopause , I had already been on HRT for 4 years and had been
Hi Thanks for reading my post I hope you can help me . I am 57 year old woman diagnosed with Hashimos November 2022. At the time I had hyper symptoms HR 120 at rest exhausted weak muscles aching and feeling hot . Doctor insisted it was the menopause , I had already been on HRT for 4 years and had been
Poppygriff691
in
Thyroid UK
4 months ago
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