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Neurological Symptoms of B12
Hi, I just wondered if anyone can confirm the neurological symptoms of B12 deficiency for me please. I'm currently fighting with the GP as I think I need more injections (I finished the 6 loading doses on Saturday the 17th) but he's said he's not sure what I'm describing are neurological. Symptoms
Hi, I just wondered if anyone can confirm the neurological symptoms of B12 deficiency for me please. I'm currently fighting with the GP as I think I need more injections (I finished the 6 loading doses on Saturday the 17th) but he's said he's not sure what I'm describing are neurological. Symptoms
Kma123
in
Pernicious Anaemia Society
6 months ago
I know Nitrous Oxide can cause b12 deficiency, but could Nitrogen Dioxide do it too?
I had low b12, took ppi and h2 before Mt body crashed. But I also realised that we did an experiment in the labs I was working in, when my body began to feel awful, around the time I started PPIs (before my body totally crashed months later) I know Nitrous Oxide messes with b12... Does anyone know
I had low b12, took ppi and h2 before Mt body crashed. But I also realised that we did an experiment in the labs I was working in, when my body began to feel awful, around the time I started PPIs (before my body totally crashed months later) I know Nitrous Oxide messes with b12... Does anyone know
Suffering_sunny
in
Pernicious Anaemia Society
6 months ago
Masked pv?
Hi all, latest appointment today with my local hospital and back to the revolving door of doctors.The good news platelets still great 298 liver 's be behaving!!! eyes responding to drops. So problems fatigue and stomach upsets. So we are repeating iron tests and B12 apparently they are a bit low (
Hi all, latest appointment today with my local hospital and back to the revolving door of doctors.The good news platelets still great 298 liver 's be behaving!!! eyes responding to drops. So problems fatigue and stomach upsets. So we are repeating iron tests and B12 apparently they are a bit low (
Spanelmad
in
MPN Voice
6 months ago
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More information on Vitamin D
This article has a lot of reliable information about Vitamin D. It is from the National Institutes of Health.
https://ods.od.nih.gov/factsheets/VitaminD-Consumer/#h3
This article has a lot of reliable information about Vitamin D. It is from the National Institutes of Health.
https://ods.od.nih.gov/factsheets/VitaminD-Consumer/#h3
BettysMom
in
My MSAA Community
6 months ago
Fuming, daughter so ill
So was so hopeful before Christmas when daughters Doc suddenly px'd B12 loading doses and referred to Alder Hey for further investigations to cover all bases. After 6 th jab end December was told she would have to wait till end of March for next jab. I had contacted surgery Monday to ask if her next
So was so hopeful before Christmas when daughters Doc suddenly px'd B12 loading doses and referred to Alder Hey for further investigations to cover all bases. After 6 th jab end December was told she would have to wait till end of March for next jab. I had contacted surgery Monday to ask if her next
Polo22
in
Pernicious Anaemia Society
6 months ago
Dexascan results
Today I received my dexascan results, and they are not looking good-significant worsening bone health! My last scan was in 2021, and I have just compared the results. 2021 Lumbar spine -3.2 Hips -2.0 and -2.1. 2024; Lumbar spine T score -4.1 Osteoporotic L1-L4 bone mineral density 0.687 per sq.cm.
Today I received my dexascan results, and they are not looking good-significant worsening bone health! My last scan was in 2021, and I have just compared the results. 2021 Lumbar spine -3.2 Hips -2.0 and -2.1. 2024; Lumbar spine T score -4.1 Osteoporotic L1-L4 bone mineral density 0.687 per sq.cm.
Purplegloss
in
PMRGCAuk
6 months ago
FUMING, Bloody GP's
posting as otherwise I will wind up having a hissy fit. Not really a thyroid issue but just shows how poor the system is. Had a smear December 14th, had had some niggling worries so thought right sort it out. Phoned GP's to ask for signposting to appropriate service. I was told we'll book you in
posting as otherwise I will wind up having a hissy fit. Not really a thyroid issue but just shows how poor the system is. Had a smear December 14th, had had some niggling worries so thought right sort it out. Phoned GP's to ask for signposting to appropriate service. I was told we'll book you in
Polo22
in
Thyroid UK
6 months ago
B vits pyridoxal-5-phosphate (vitamin B6)
What B vitamins do people take and what brands have pyridoxal-5-phosphate (vitamin B6) in? What else do people take other than potassium rich diet and B vitamins and what form do you take folic acid in? I've heard it should be folate as folic acid isn't very good? Thanks
What B vitamins do people take and what brands have pyridoxal-5-phosphate (vitamin B6) in? What else do people take other than potassium rich diet and B vitamins and what form do you take folic acid in? I've heard it should be folate as folic acid isn't very good? Thanks
Rachael887
in
Pernicious Anaemia Society
6 months ago
Starting medication advice
Hello Long story short, i was diagnosed Hashimoto's 2020, told to wait for TSH to rise before medication. I've been trying to conceive for years so went back to the GP this year when i found out TSH should be below 2.5 for this, not 5. Most recent tests are: 22/02/24: TSH - 5.01 (0.35- 5.50) T4 -
Hello Long story short, i was diagnosed Hashimoto's 2020, told to wait for TSH to rise before medication. I've been trying to conceive for years so went back to the GP this year when i found out TSH should be below 2.5 for this, not 5. Most recent tests are: 22/02/24: TSH - 5.01 (0.35- 5.50) T4 -
katyy94x
in
Thyroid UK
6 months ago
Rheumy exam/USA major university medical system - disappointed
I have severe RA - much joint damage in hands & feet. Good results with Rinvoq. Yesterday, I visited rheumy for 6 mth visit. I have been suffering with swollen ankles & major chronic fatigue. Tried prednisone, B12 - no relief. Rheumy did no physical exam. I showed her my ankles, hands & feet. She
I have severe RA - much joint damage in hands & feet. Good results with Rinvoq. Yesterday, I visited rheumy for 6 mth visit. I have been suffering with swollen ankles & major chronic fatigue. Tried prednisone, B12 - no relief. Rheumy did no physical exam. I showed her my ankles, hands & feet. She
Hisue
in
NRAS
6 months ago
Carnivore Diet - Can't solidly recommend it
I have been on the Carnivore Diet for 3 months or so, as part of my quest to ameliorate as much of my Young Onset Parkinsons Disease symptoms as possible. I'll sum it up a bit for you. 1. The diet consists of animal products and ideally no plant products. I ate mostly beef, eggs and butter, but
I have been on the Carnivore Diet for 3 months or so, as part of my quest to ameliorate as much of my Young Onset Parkinsons Disease symptoms as possible. I'll sum it up a bit for you. 1. The diet consists of animal products and ideally no plant products. I ate mostly beef, eggs and butter, but
bassofspades
in
Cure Parkinson's
6 months ago
Osteoporosis
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
Urtica
in
PMRGCAuk
6 months ago
Advice on recent tests please
Hi I've just had my results of recent tests back as follows:T4 14.5 pmol/L range 9 - 19 pmol/L TSH 5.3 miu/L range 0.35 - 4.94 miu/L Previous from 4 Dec 2023 T4 10.5 TSH 6.9 Had a text message from the surgery saying thyroid levels are improving test again in 2 to 3 months. Advice on next steps
Hi I've just had my results of recent tests back as follows:T4 14.5 pmol/L range 9 - 19 pmol/L TSH 5.3 miu/L range 0.35 - 4.94 miu/L Previous from 4 Dec 2023 T4 10.5 TSH 6.9 Had a text message from the surgery saying thyroid levels are improving test again in 2 to 3 months. Advice on next steps
Cabbages123
in
Thyroid UK
6 months ago
Folate
I did a full bloods Medichecks test. They have emailed me saying: Unfortunately, they were unable to process your folate biomarker. The results the lab were able to process, will be uploaded once they have been reviewed by a member of the medical team for you. I’m a bit non-plussed as I stopped taking
I did a full bloods Medichecks test. They have emailed me saying: Unfortunately, they were unable to process your folate biomarker. The results the lab were able to process, will be uploaded once they have been reviewed by a member of the medical team for you. I’m a bit non-plussed as I stopped taking
Loafinabout
in
Thyroid UK
6 months ago
Tongue / Graves disease
Can the thyroid affect the tongue? I was borderline again last time and have a blood test end of Feb due to be discharged if ok but I think as I keep being borderline they're not sure what to do with me. As to whether my body is naturally on borderline as I don't really get many of the symptoms Mild
Can the thyroid affect the tongue? I was borderline again last time and have a blood test end of Feb due to be discharged if ok but I think as I keep being borderline they're not sure what to do with me. As to whether my body is naturally on borderline as I don't really get many of the symptoms Mild
kittyelen
in
Thyroid UK
7 months ago
Active b12 levels normal - can it still be PA??
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Suffering_sunny
in
Pernicious Anaemia Society
6 months ago
thyroid and iron panel results
hi All, I would love to hear some comments about my results please. I have been recently diagnosed with Graves’ disease. 27 December (went to the A&E with heart palpitations), no ranges provided, I have just googled what nhs ranges are. I was put on propranolol 60mg. T4 - 19.2 (12-22) T3 - 9.8
hi All, I would love to hear some comments about my results please. I have been recently diagnosed with Graves’ disease. 27 December (went to the A&E with heart palpitations), no ranges provided, I have just googled what nhs ranges are. I was put on propranolol 60mg. T4 - 19.2 (12-22) T3 - 9.8
Kari55
in
Thyroid UK
6 months ago
Association between dietary thiamine intake and the risk of cognitive decline
What to make of this? https://gpsych.bmj.com/content/37/1/e101311
What to make of this? https://gpsych.bmj.com/content/37/1/e101311
Buckholt
in
Cure Parkinson's
6 months ago
GP call
Well quite a good discussion with my GP just now! Reiterated my symptoms of B12 deficiency, Folate deficiency, Hypothyroidism, vegetarian and having a gastric band 12 years ago a lightbulb came on! Oh so yes probably good idea for B12 injections! She said she will write to gastroenterologists (I thought
Well quite a good discussion with my GP just now! Reiterated my symptoms of B12 deficiency, Folate deficiency, Hypothyroidism, vegetarian and having a gastric band 12 years ago a lightbulb came on! Oh so yes probably good idea for B12 injections! She said she will write to gastroenterologists (I thought
Doris11
in
Thyroid UK
6 months ago
Buying Hydroxocobalamin in Spain
Hello, my GP did allow me a prescription (usually an annual one) but this time on 5 ampoules.. oh well. I'm off to Gran Canaria tomorrow, paddle boarding! I wonder if B12 can be bought OTC there? If I don't have enough B12, I become wobbly and fall of my board ;)
Hello, my GP did allow me a prescription (usually an annual one) but this time on 5 ampoules.. oh well. I'm off to Gran Canaria tomorrow, paddle boarding! I wonder if B12 can be bought OTC there? If I don't have enough B12, I become wobbly and fall of my board ;)
pinkpaddleboarder
in
Pernicious Anaemia Society
6 months ago
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