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Vitamin B12
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Methylfolate dose for B12 injections
Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try methylfolate. However, there seems no information on the recommended dose for supporting injections. Is anyone else on it, and how much do you take
Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try methylfolate. However, there seems no information on the recommended dose for supporting injections. Is anyone else on it, and how much do you take
MindfulSquirrel
in
Pernicious Anaemia Society
7 months ago
Low Iron
Hi everyone, Wondered if anyone has had experience with SVT and low iron? I’ve just found out that I have extremely low iron stores which explains a lot of my symptoms, including a fast heart rate and wondering whether anyone knows whether it could cause atrial tachycardia? I am really hoping once
Hi everyone, Wondered if anyone has had experience with SVT and low iron? I’ve just found out that I have extremely low iron stores which explains a lot of my symptoms, including a fast heart rate and wondering whether anyone knows whether it could cause atrial tachycardia? I am really hoping once
Cookieisland
in
British Heart Foundation
11 months ago
Mast cell activation syndrome is there a link?
Hubby has always had serious allergic reactions from a child and had to have steroid injections in summer as a teen. Is it related? This week the dog has come down with a lump that has tested positive for mast cell tumour. My son also has chronic hayfever and panic attack and anxiety. what is happening
Hubby has always had serious allergic reactions from a child and had to have steroid injections in summer as a teen. Is it related? This week the dog has come down with a lump that has tested positive for mast cell tumour. My son also has chronic hayfever and panic attack and anxiety. what is happening
LAJ12345
in
Cure Parkinson's
1 month ago
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latest blood results…grateful for any thoughts/advice
**** I have posted screen-shots of recent results from Aug 2024 in the comments. Bit of a cock-up with timings - so it was a non-fasting, blood test taken about 7 hours after I’d had my levo (87.5mcg, been on that dose since April 2024. I’m also on HRT Evorel Sequi patches 50) - doesn’t seem to have
**** I have posted screen-shots of recent results from Aug 2024 in the comments. Bit of a cock-up with timings - so it was a non-fasting, blood test taken about 7 hours after I’d had my levo (87.5mcg, been on that dose since April 2024. I’m also on HRT Evorel Sequi patches 50) - doesn’t seem to have
JoJoloveschocolate
in
Thyroid UK
1 month ago
Advice on labs, high RT3, high SBHG, low T
This is my first real post on this forum. I'd appreciate if experienced members could take a look at my labs and history and let me know what they think. I'm a 46-year-old male from Canada but living in France for the past 10 years. I've had deteriorating health issues for close to 5 years (likely longer
This is my first real post on this forum. I'd appreciate if experienced members could take a look at my labs and history and let me know what they think. I'm a 46-year-old male from Canada but living in France for the past 10 years. I've had deteriorating health issues for close to 5 years (likely longer
Oliduder
in
Thyroid UK
1 month ago
Advice on latest blood tests
Hi all, Hoping to get some advice on bloods following my latest tests. Just wondered if it's worth increasing the T4 as it's a bit lower since putting on a little bit of weight. I'm happy with my Vit D, B12, Folate and Iron and hence have not included those results. Thanks in advance
Hi all, Hoping to get some advice on bloods following my latest tests. Just wondered if it's worth increasing the T4 as it's a bit lower since putting on a little bit of weight. I'm happy with my Vit D, B12, Folate and Iron and hence have not included those results. Thanks in advance
Wired123
in
Thyroid UK
4 months ago
sons bloods
my 17 year old son has been very depressed, anxious and suicidal. He has vitiligo Here are his blood results. B12 =226 (201-914) folate =7 ( 3-20) TSH 2.73 ( 0.38-5.53) T4 10.4 ( 7.90-14.40). He probably has undiagnosed autism and has been diagnosed with dyspraxia.He has been struggling with recall
my 17 year old son has been very depressed, anxious and suicidal. He has vitiligo Here are his blood results. B12 =226 (201-914) folate =7 ( 3-20) TSH 2.73 ( 0.38-5.53) T4 10.4 ( 7.90-14.40). He probably has undiagnosed autism and has been diagnosed with dyspraxia.He has been struggling with recall
Hectorsmum2
in
Pernicious Anaemia Society
7 months ago
iron and b12 test results
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
Bearo
in
Thyroid UK
7 months ago
Advice after recent blood test results please
I have been taking Levothyroxine for decades but only recently appreciated, after advice from this fabulous website, the correct way to undertake thyroid blood tests. After decades of iron deficiency I had an iron infusion a few months ago (therefore ferritin now high), I inject B12 regularly for Pernicious
I have been taking Levothyroxine for decades but only recently appreciated, after advice from this fabulous website, the correct way to undertake thyroid blood tests. After decades of iron deficiency I had an iron infusion a few months ago (therefore ferritin now high), I inject B12 regularly for Pernicious
yorkshiregirl4
in
Thyroid UK
4 months ago
Views on my test results
Inflammation
CRP HS 0.970 mg/L (Range: < 3)
Iron Status
Ferritin 344.00 ug/L (Range: 30 - 650)
Vitamins
Folate - Serum 33.1 nmol/L (Range: 8.83 - 60.8)
Vitamin
B12
- Active >150 pmol/L (Range: 37.5 - 188)
Vitamin
D 66.9 nmol/L (Range: 50 - 250)
Thyroid Hormones
Inflammation
CRP HS 0.970 mg/L (Range: < 3)
Iron Status
Ferritin 344.00 ug/L (Range: 30 - 650)
Vitamins
Folate - Serum 33.1 nmol/L (Range: 8.83 - 60.8)
Vitamin
B12
- Active >150 pmol/L (Range: 37.5 - 188)
Vitamin
D 66.9 nmol/L (Range: 50 - 250)
Thyroid Hormones
Norash
in
Thyroid UK
1 year ago
small fibre neuropathy
How long does small fibre neuropathy due to prolonged B12 deficiency for many years take to be reversed, if possible ? After 14 months of self injecting daily and pathology results finally returning to normal (holotranscobalamin and serum B12 normal) and taking Lyrica for my neuropathy the past six
How long does small fibre neuropathy due to prolonged B12 deficiency for many years take to be reversed, if possible ? After 14 months of self injecting daily and pathology results finally returning to normal (holotranscobalamin and serum B12 normal) and taking Lyrica for my neuropathy the past six
GoneWithTheWind1972
in
Pernicious Anaemia Society
11 months ago
LVV. GCA part 2
Thank you to everyone who has read and replied with information and tips on helping me come to terms with this condition.I did forget to mention one side effect I had and am wondering if it has happened to anyone else.4 months after starting MTX my GP was worried about anemia and gave me 6 shots of B12
Thank you to everyone who has read and replied with information and tips on helping me come to terms with this condition.I did forget to mention one side effect I had and am wondering if it has happened to anyone else.4 months after starting MTX my GP was worried about anemia and gave me 6 shots of B12
Oxfordboy2
in
PMRGCAuk
11 months ago
B supplement
Please could you advise me if it is OK to take Homocystix Plus as a B supplement? I have been taking Thorne Basic Plus and Nature's Best Vit B 12. However Vit B12 now over 500. I started flushing more and think I'm developing Rosacea . Looked online and found Niacin can be a factor in flushing. Also
Please could you advise me if it is OK to take Homocystix Plus as a B supplement? I have been taking Thorne Basic Plus and Nature's Best Vit B 12. However Vit B12 now over 500. I started flushing more and think I'm developing Rosacea . Looked online and found Niacin can be a factor in flushing. Also
Shellian
in
Thyroid UK
7 months ago
What is a good level of active B12
What level of active B12 is considered optimal with range being (37.5-188). Thank you
What level of active B12 is considered optimal with range being (37.5-188). Thank you
Eton
in
Pernicious Anaemia Society
11 months ago
Dr. Mischley Coaches on data
Curious what others think? Is B12 worth taking? https://vimeo.com/885301763/19b2f9a32a?share=copy
Curious what others think? Is B12 worth taking? https://vimeo.com/885301763/19b2f9a32a?share=copy
stocktiki
in
Cure Parkinson's
11 months ago
Better Understanding
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
Notes to former self
November 2020
IT
is not and never was all in your head. Yes
IT
does get more intense with stress of all types and it is physical. You are according to one hematologist 4 weeks from death and the medics you are dealing with have no clue what to do for you but very confident in that what
November 2020
IT
is not and never was all in your head. Yes
IT
does get more intense with stress of all types and it is physical. You are according to one hematologist 4 weeks from death and the medics you are dealing with have no clue what to do for you but very confident in that what
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Medicheck results
Hello, I have read many helpful and sage replies over the past few years but never posted before and wonder if you kind people would review yet another set of results. I have wondered over the years if I'm borderline hypothyroid and have had 3 or 4 TSH blood tests with nhs GP ranging from 4 to 6 (after
Hello, I have read many helpful and sage replies over the past few years but never posted before and wonder if you kind people would review yet another set of results. I have wondered over the years if I'm borderline hypothyroid and have had 3 or 4 TSH blood tests with nhs GP ranging from 4 to 6 (after
ASW59
in
Thyroid UK
2 months ago
Conjecture
I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this forum it seems to me that of the three forms readily commercially available Methylcobalamin has the most profound effect. As a person who is not
I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this forum it seems to me that of the three forms readily commercially available Methylcobalamin has the most profound effect. As a person who is not
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
B12 injections
Hi,I've been diagnosed with PA since 2021. I was on loading doses, then 3 monthly. This didn't agree with me and I was exhausted so I was moved from 3 months to 6 weeks. I was still finding myself wiped after 4 weeks ish so was moved to 3 weeks. During my 3 weekly treatment I began getting facial tingling
Hi,I've been diagnosed with PA since 2021. I was on loading doses, then 3 monthly. This didn't agree with me and I was exhausted so I was moved from 3 months to 6 weeks. I was still finding myself wiped after 4 weeks ish so was moved to 3 weeks. During my 3 weekly treatment I began getting facial tingling
GranolaLover60
in
Pernicious Anaemia Society
7 months ago
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