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PA and oral B12 supplements
I have recently been diagnosed with PA and I’ve had an initial booster course of 6x B12 injections with a plan for 3 monthly injections for life (based, I understand, on local UK NHS protocols, or how my GP has interpreted them). I was therefore wondering if there is any benefit in taking oral B12
I have recently been diagnosed with PA and I’ve had an initial booster course of 6x B12 injections with a plan for 3 monthly injections for life (based, I understand, on local UK NHS protocols, or how my GP has interpreted them). I was therefore wondering if there is any benefit in taking oral B12
Pa234aw
in
Pernicious Anaemia Society
11 months ago
Support with Endo review in Nov 2024
Morning I have only posted a couple of times on here, the first in 2017 for my results to be explained to me ie Free T4 14.8 pmol/L 7.5-21.1 TSH 0.21 miu/L 0.35-4.7 TPO Antibodies 42 IU/mL 0-10 Folate 9.9 ug/L 3.1-19.9 Vit B12 282 ng/L 110-914 I received advice
Morning I have only posted a couple of times on here, the first in 2017 for my results to be explained to me ie Free T4 14.8 pmol/L 7.5-21.1 TSH 0.21 miu/L 0.35-4.7 TPO Antibodies 42 IU/mL 0-10 Folate 9.9 ug/L 3.1-19.9 Vit B12 282 ng/L 110-914 I received advice
Risetothechallenge
in
Thyroid UK
2 days ago
Recommendation request for 2nd opinion and interpretation of results
I'm looking for feedback (via private DM please) from anyone who has been seen by Mr Barnes (Endocrinologist) at Tunbridge Wells or a Dr Christine Suppelt, Rose Cottage Clinic also in Kent. Would appreciate any perspectives on either clinician, both of whom I found on the Thyroid UK practitioners' list
I'm looking for feedback (via private DM please) from anyone who has been seen by Mr Barnes (Endocrinologist) at Tunbridge Wells or a Dr Christine Suppelt, Rose Cottage Clinic also in Kent. Would appreciate any perspectives on either clinician, both of whom I found on the Thyroid UK practitioners' list
sisip
in
Thyroid UK
2 months ago
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I’m fine. Really?
Brain fog is a brilliant description that no one can really understand until they experience it. I feel like my brain is surrounded by a thick cotton wool-like layer that makes me want to just lie down and close my eyes - except that makes me dizzy. What the heck is happening to me? I’m 65 and moved
Brain fog is a brilliant description that no one can really understand until they experience it. I feel like my brain is surrounded by a thick cotton wool-like layer that makes me want to just lie down and close my eyes - except that makes me dizzy. What the heck is happening to me? I’m 65 and moved
Ozxpat
in
Thyroid UK
2 months ago
Help me find a post please. Male PA member linked a journal article about his success with an innovative depression procedure.
I thought I saved it for a loved one, but can not find it. The member had a procedure done that involved brain stimulation for depression, that still existed even with b12 supplementation. And he had an article written about how successful the procedure was for him I am on Thyroid UK as well so he
I thought I saved it for a loved one, but can not find it. The member had a procedure done that involved brain stimulation for depression, that still existed even with b12 supplementation. And he had an article written about how successful the procedure was for him I am on Thyroid UK as well so he
Litatamon
in
Pernicious Anaemia Society
11 months ago
Should I be worried about suppressed TSH
I am extremely well and all my bloods seem within normal range to me (but not the GP)! I am 61 years old and was diagnosed with Hashimotos Thyroditis and Chronic Fatigue in 2004. My only health issue is very erratic sleep (one night 8 and a half hours, the next 4) which I handle by resting in the afternoon
I am extremely well and all my bloods seem within normal range to me (but not the GP)! I am 61 years old and was diagnosed with Hashimotos Thyroditis and Chronic Fatigue in 2004. My only health issue is very erratic sleep (one night 8 and a half hours, the next 4) which I handle by resting in the afternoon
YoginiDancer
in
Thyroid UK
4 months ago
Three years in
Today three years ago I walked into a emergency room. I could only walk 60 yards without resting. I had to stop driving 6 times during a 40 minute drive. Luckily I was admitted and luckily my B12 was finally tested and was <150 which is the lowest level that this particular lab tests for. I started
Today three years ago I walked into a emergency room. I could only walk 60 yards without resting. I had to stop driving 6 times during a 40 minute drive. Luckily I was admitted and luckily my B12 was finally tested and was <150 which is the lowest level that this particular lab tests for. I started
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
B12 help
Following on from previous post I have an under active thyroid (Hashimoto’s) and my bloods from October 2021 was MCH 32.8 (27-32) and B12 was 379 (197-771). I read online the MCH this high was macrocytic anaemia but my endo didn’t tell me that. I have been supplementing B complex and sometimes B12
Following on from previous post I have an under active thyroid (Hashimoto’s) and my bloods from October 2021 was MCH 32.8 (27-32) and B12 was 379 (197-771). I read online the MCH this high was macrocytic anaemia but my endo didn’t tell me that. I have been supplementing B complex and sometimes B12
Denny39
in
Pernicious Anaemia Society
11 months ago
Help with test results
Hi,I'm hoping to get insights into my latest test results and symptoms I continue to have. I had my thyroid out in 2012 (Graves), I'm located in Australia and currently taking 100mcg of Eltroxin and 16mcg of slow release (compounded) t3 daily. Around 2yrs ago I got quite sick, I had extremely heavy fatigue
Hi,I'm hoping to get insights into my latest test results and symptoms I continue to have. I had my thyroid out in 2012 (Graves), I'm located in Australia and currently taking 100mcg of Eltroxin and 16mcg of slow release (compounded) t3 daily. Around 2yrs ago I got quite sick, I had extremely heavy fatigue
Miso_soup
in
Thyroid UK
23 days ago
Having trouble ordering b12 as there is apparently a shortage in Australia. Help!!
I am in New Zealand but ordered my B12 from Australia. Without warning, I have just discovered there is a shortage that may go on to as far off as March next year. I am really stressed. Can anyone help with alternatives? I was told Germany did not send to Australia and wondered if NZ was the same. Thanks
I am in New Zealand but ordered my B12 from Australia. Without warning, I have just discovered there is a shortage that may go on to as far off as March next year. I am really stressed. Can anyone help with alternatives? I was told Germany did not send to Australia and wondered if NZ was the same. Thanks
brenanddave
in
Pernicious Anaemia Society
11 months ago
Buying T3 privately
Can I have some help with sourcing T3 privately. I am UK. Endo has me on 10 mcg of T3, morning dose, for the last 9 weeks. I feel that this should be upped, but I do not see him now for another 2 months. I would like to be able to adjust my T3 in increments as my hypo symptoms are back. They were
Can I have some help with sourcing T3 privately. I am UK. Endo has me on 10 mcg of T3, morning dose, for the last 9 weeks. I feel that this should be upped, but I do not see him now for another 2 months. I would like to be able to adjust my T3 in increments as my hypo symptoms are back. They were
Katherine123
in
Thyroid UK
11 months ago
Blood test results
Hello, I have my blood test results from Blue Horizon Vitamin D (25 OH) 47 (50-200) -2.0% L Optimal (75-200) Adequate (50-<75) Insufficient (25-<50) Deficient (
Hello, I have my blood test results from Blue Horizon Vitamin D (25 OH) 47 (50-200) -2.0% L Optimal (75-200) Adequate (50-<75) Insufficient (25-<50) Deficient (
sabby-c
in
Thyroid UK
4 months ago
Hurray, iron panel worked at last! In last 3 wks ferritin been 85, 110,now 59, could anyone possibly please advise if ok to take iron?
HiSo pleased to have an iron panel work after so many attempts last yr, worked 2nd attempt:) Just to recap please, had another b12 loading dose end March. Ferritin 48, then dropped 37 mid June (nhs) End July(pinprick thyroid test)=85 1wk ltr(iron panel)=110 1wk ltr(I.p.retest)=59.9 Crp consistently
HiSo pleased to have an iron panel work after so many attempts last yr, worked 2nd attempt:) Just to recap please, had another b12 loading dose end March. Ferritin 48, then dropped 37 mid June (nhs) End July(pinprick thyroid test)=85 1wk ltr(iron panel)=110 1wk ltr(I.p.retest)=59.9 Crp consistently
Jo5454
in
Thyroid UK
1 month ago
Daughters bloods, saga continues and I'm Not Happy
Following on from previous posts , many posts think I can absolutely without doubt or hesitation say I am absolutely F&%@ing fuming. Gp's had asked for repeat bloods again, I kept telling them to follow NICE guidelines and that B12 shouldn't be tested once treatment started, they consistently ignored
Following on from previous posts , many posts think I can absolutely without doubt or hesitation say I am absolutely F&%@ing fuming. Gp's had asked for repeat bloods again, I kept telling them to follow NICE guidelines and that B12 shouldn't be tested once treatment started, they consistently ignored
Polo22
in
Pernicious Anaemia Society
4 months ago
I'm always confused
I don't understand if you should or shouldn't take folate if you have low b12
I don't understand if you should or shouldn't take folate if you have low b12
Popcorn12345
in
Pernicious Anaemia Society
7 months ago
Back to square one
My Dr checked my thyroid levels with some other blood tests without me knowing, so I had taken my T4 (50mcg) about an hour before! Based on the results, she said I was now fine and took me off the medication. I tried to argue saying it needed to be before my meds and she said that was wrong. I had always
My Dr checked my thyroid levels with some other blood tests without me knowing, so I had taken my T4 (50mcg) about an hour before! Based on the results, she said I was now fine and took me off the medication. I tried to argue saying it needed to be before my meds and she said that was wrong. I had always
BethH77
in
Thyroid UK
7 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
7 months ago
Feeling fatigued & confused about blood tests
Morning everyone Would appreciate feedback Felt fatigued & overwhelmed at times, seen a much improvement with my gut since following a strict gluten & diary free diet which this sight has recommended. Confused about thyroid results though especially with antibodies being high Currently taking
Morning everyone Would appreciate feedback Felt fatigued & overwhelmed at times, seen a much improvement with my gut since following a strict gluten & diary free diet which this sight has recommended. Confused about thyroid results though especially with antibodies being high Currently taking
Aniba
in
Thyroid UK
4 months ago
B12 thyroid
Hi, I am new to the PA site. I was diagnosed with under active thyroid in 2021 which I’m still struggling daily with. I have peripheral neuropathy in legs and can’t walk far at all and I’ve just turned 40. My B12 at the time of thyroid diagnosed with not being on any supplements was 379.8 (197-
Hi, I am new to the PA site. I was diagnosed with under active thyroid in 2021 which I’m still struggling daily with. I have peripheral neuropathy in legs and can’t walk far at all and I’ve just turned 40. My B12 at the time of thyroid diagnosed with not being on any supplements was 379.8 (197-
Denny39
in
Pernicious Anaemia Society
11 months ago
Monitor My Health iron test - lack of ranges
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
Bearo
in
Thyroid UK
7 months ago
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