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Vitamin B12
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Information about frequency of injection
Hi I posted about a sudden deterioration in my health after 4 years of successful self-injection eod, daily or twice a week (depending on how I was doing). My last post questioned whether it was due to a bad batch of B12 depot - unfortunately, using newly ordered B12 doesn't seem to be making an improvement
Hi I posted about a sudden deterioration in my health after 4 years of successful self-injection eod, daily or twice a week (depending on how I was doing). My last post questioned whether it was due to a bad batch of B12 depot - unfortunately, using newly ordered B12 doesn't seem to be making an improvement
LizWilsonpa
in
Pernicious Anaemia Society
6 days ago
Really severe rls plus mds
I recently was able to see my moms records. She has been told she has mds too. Also there is a problem with her blood levels. The doctors cant seem to get her blood levels to go up. She is taking a needle injection every other day. Last night i stayed up with her again cause it was so severe. Sometimes
I recently was able to see my moms records. She has been told she has mds too. Also there is a problem with her blood levels. The doctors cant seem to get her blood levels to go up. She is taking a needle injection every other day. Last night i stayed up with her again cause it was so severe. Sometimes
SevereRLS-4mom
in
Restless Legs Syndrome
6 days ago
Do I Poke The Bear?
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
Sparklingsunshine
in
Pernicious Anaemia Society
7 days ago
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Hebden Bridge Help Needed Please
Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak to be able to do them effectively as she is so unwell. Please contact me via Chat if you think you could help and I shall put you in touch with
Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak to be able to do them effectively as she is so unwell. Please contact me via Chat if you think you could help and I shall put you in touch with
Wwwdot
in
Pernicious Anaemia Society
7 days ago
Does anyone know anything about low SigA levels and links with b12 deficiency please?
Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my attention as on 2 previous tests, a stool and a saliva test, the SigA was included and very low both times which says can give rise to infections,allergies
Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my attention as on 2 previous tests, a stool and a saliva test, the SigA was included and very low both times which says can give rise to infections,allergies
Jo5454
in
Pernicious Anaemia Society
7 days ago
Dr. Mark Porter's B12 Times article
and Care Excellence (Nice) and is unlikely to hold much sway as the organisation finalises its first ever formal guidance on diagnosing and treating
vitamin
B12
deficiency.
and Care Excellence (Nice) and is unlikely to hold much sway as the organisation finalises its first ever formal guidance on diagnosing and treating
vitamin
B12
deficiency.
Sneedle
in
Pernicious Anaemia Society
9 months ago
Gastritis
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Doris11
in
Pernicious Anaemia Society
8 days ago
Help?
hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to find something rare that makes sense of all the symptoms but I think it’s just B12 and chronic low iron. She has me on 1x monthly hydrox injection
hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to find something rare that makes sense of all the symptoms but I think it’s just B12 and chronic low iron. She has me on 1x monthly hydrox injection
PlatypusProfit8077
in
Pernicious Anaemia Society
8 days ago
help please
Max is 23 Was 52 I tested negative to antibodies before the TPO etc I feel exhausted with bone pain Vit D 77
Vitamin
b12
max 799 Ferritin 60 I can’t even stand up
Max is 23 Was 52 I tested negative to antibodies before the TPO etc I feel exhausted with bone pain Vit D 77
Vitamin
b12
max 799 Ferritin 60 I can’t even stand up
Chouchou1234
in
Thyroid UK
1 year ago
Over or undermedicated on T3 mono?
Hi all,I need your help please. I'm on T3 mono since September, gradually rising the dose until i reached 60/65 mcg day, splitted in 3 doses. From then on, i have been feeling great for months, never felt so good in my life. But about 3 weeks ago i started to feel absolutely sick: water retention, puffy
Hi all,I need your help please. I'm on T3 mono since September, gradually rising the dose until i reached 60/65 mcg day, splitted in 3 doses. From then on, i have been feeling great for months, never felt so good in my life. But about 3 weeks ago i started to feel absolutely sick: water retention, puffy
Maty_82
in
Thyroid UK
9 days ago
T3 (Cytomel): How would you fit it in these results? Or would you? And all the mistakes I have made on this journey
Latest results (overjoyed to be finally here) - TSH .74 (.32 to 4) T4 14 (9 to 19) T3 4.2 (2.6 to 5.8) I am on 262.5 mcg levothyroxine (Note: In 50s so 50×5 & 1/4 of a 50) I feel what I would deem pleasantly okay. Always have felt the best on NDT, but I needed so much I could no longer afford it. And
Latest results (overjoyed to be finally here) - TSH .74 (.32 to 4) T4 14 (9 to 19) T3 4.2 (2.6 to 5.8) I am on 262.5 mcg levothyroxine (Note: In 50s so 50×5 & 1/4 of a 50) I feel what I would deem pleasantly okay. Always have felt the best on NDT, but I needed so much I could no longer afford it. And
Litatamon
in
Thyroid UK
10 days ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
10 days ago
Hypothyroidism and weightloss
Good morning everyone,I am hoping for some good news stories to keep me going. I have gained 2 1/2 stone since I developed hypothyroidism, and I am finding it so so difficult to shift it again even though my current dose of t4/t3 seems to work really well in other aspects (hypo tiredness gone, depression
Good morning everyone,I am hoping for some good news stories to keep me going. I have gained 2 1/2 stone since I developed hypothyroidism, and I am finding it so so difficult to shift it again even though my current dose of t4/t3 seems to work really well in other aspects (hypo tiredness gone, depression
flohal
in
Thyroid UK
10 days ago
Overton and B1
Current Trial (14 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warrnted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin
Current Trial (14 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warrnted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
11 days ago
Sciatica link to low b12?
Hiya all,Does anyone have any experience of sciatica linked with inadequate amounts of b12 ? I usually have injections monthly ( self inject bi- monthly and have gp bi- monthly) I've heard it can be related but gp+ chiropractor say if my level is high (1000 last test) then nothing to do with it Thank
Hiya all,Does anyone have any experience of sciatica linked with inadequate amounts of b12 ? I usually have injections monthly ( self inject bi- monthly and have gp bi- monthly) I've heard it can be related but gp+ chiropractor say if my level is high (1000 last test) then nothing to do with it Thank
luckymaria
in
Pernicious Anaemia Society
11 days ago
Injection reactions?
Hello lovely people. I started SI three weeks ago and each time I'm left with a red, itchy patch of above the area I've injected into (not the actual injection site, but next to it where the needle will have deposited the B12 under my skin). Because I'm on EOD injections this means just when one stops
Hello lovely people. I started SI three weeks ago and each time I'm left with a red, itchy patch of above the area I've injected into (not the actual injection site, but next to it where the needle will have deposited the B12 under my skin). Because I'm on EOD injections this means just when one stops
ClaireWF1346
in
Pernicious Anaemia Society
12 days ago
Dosage
Hello everyone, can someone tell me how much B12 I should take to get my levels up to a reasonable standard - everything is in Ug and not sure what the relates to i.e. mg or mcg or IU's. Thanks for any help you can give me. A
Hello everyone, can someone tell me how much B12 I should take to get my levels up to a reasonable standard - everything is in Ug and not sure what the relates to i.e. mg or mcg or IU's. Thanks for any help you can give me. A
posthinking01
in
Pernicious Anaemia Society
12 days ago
Active B12 gone down
Hello, I have been on loading doses (initially from my GP and now SI) for 7 weeks and am slowly improving. My initial active B12 was 48.1 ng/L, serum 162. I was on daily oral B12 supplements at the time so my results were skewed. I know that blood tests after injections are considered pointless but
Hello, I have been on loading doses (initially from my GP and now SI) for 7 weeks and am slowly improving. My initial active B12 was 48.1 ng/L, serum 162. I was on daily oral B12 supplements at the time so my results were skewed. I know that blood tests after injections are considered pointless but
Maldeerum
in
Pernicious Anaemia Society
12 days ago
The effect of a B complex on raised liver enzymes with discomfort/pain
As mad as it sounds, every time I re start a B complex the liver pain returns I’ve had mildly raised liver enzymes with early morning liver discomfort, every single day for years but recently both have worsened and the discomfort became actual pain. However, on rising, the pain dissipates immediately
As mad as it sounds, every time I re start a B complex the liver pain returns I’ve had mildly raised liver enzymes with early morning liver discomfort, every single day for years but recently both have worsened and the discomfort became actual pain. However, on rising, the pain dissipates immediately
Noelnoel
in
Thyroid UK
13 days ago
Storing B12 Depot
Good morning again..... I have just received a parcel of Panpharma B12 Depot..my first..great emotion...........Thank you to those who have helped and encouraged me....I'm frightened and a little excited at the whole prospect of SI.......and maybe I'll feel better than I have for the last 8 years (at
Good morning again..... I have just received a parcel of Panpharma B12 Depot..my first..great emotion...........Thank you to those who have helped and encouraged me....I'm frightened and a little excited at the whole prospect of SI.......and maybe I'll feel better than I have for the last 8 years (at
edeuweed
in
Pernicious Anaemia Society
13 days ago
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