I am currently in the midlands (mid 30s) and have been on b12 injections for probably almost 9 years now. I am on 8 weekly but self inject around once a week which seems to work for me.
I am going to be moving as the title says to Newport in Wales before the end of the year and just wondered whether anyone had any experiences, preferably good, with GPs here. Any that anyone recommends?
I am also under Rheumatology for Arthritis and take medication for this also, but currently in a battle with them as I don’t think medication is right and they do.
Obviously moving means I’m going to have to move everything so starting to prepare to have to fight again with all new docs but thought I’d ask if anyone can recommend anyone first.
My issue is nothing ever really shows up on my bloods for either condition. My arthritis only showed up because of an ultrasound, and although my b12 levels were low at 172 when diagnosed, I didn’t have parietal cell antibodies or IFA.
Thanks
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Bowtruckle
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There are two PAS support groups in Wales...useful places to swap information eg helpful GP practices.
Scroll down page in next link to see list of groups and dates of next meetings.
I cannot find B12 deficiency guidelines for any of the Welsh Health Boards online so the best way to access these is probably to submit a FOI (Freedom of Information) request to Aneurin Bevan Health Board asking which B12 deficiency guidelines they use and for a link to or copy of them.
Might also be worth contacting the local MP and the local MS (Member of the Senedd) if you still can't get hold of them. Health is a devolved matter in Wales.
There are several links specific to Wales I think will be useful in the thread I started about Patient Safety.
Yes I have been a member of the PAS since I was diagnosed, but didnt realise it was based in Bridgend. I actually went to University in Carmarthen so it is lovely to be moving back down that way.
I suppose it was more if there are specific GP surgeries that were better to sign up with (or avoid) rather than specific doctors per se. I think its also more knowing what I am going to be facing so I can mentally prepare myself. 😂
I'll definitely look at all this later tonight, (busy day at work today) and I'll update especially once the move has happened.
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