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Experiences with
Vitamin B12 deficiency
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very long story…. Need support.
Since a young age, I have had hyperthyroidism. I was treated with carbimazole for years and in 2021 I had radioactive therapy (a radioactive table) for my thyroid. This ended up killing it and now I am on level thyroxine. When I first got diagnosed with hypothyroidism, I believe my TSH was 60-ISH. Since
Since a young age, I have had hyperthyroidism. I was treated with carbimazole for years and in 2021 I had radioactive therapy (a radioactive table) for my thyroid. This ended up killing it and now I am on level thyroxine. When I first got diagnosed with hypothyroidism, I believe my TSH was 60-ISH. Since
Angie10116
in
Thyroid UK
8 months ago
no better no T3 no idea
in this weather thyroid is awful cant get T3 at all easily feel cold n ill -- iron tablets make no difference b12 supplements not much difference what a life .......best to those decrepid like me at 43 years old after 20 years thyroid isssues
in this weather thyroid is awful cant get T3 at all easily feel cold n ill -- iron tablets make no difference b12 supplements not much difference what a life .......best to those decrepid like me at 43 years old after 20 years thyroid isssues
Vasiliki99
in
Thyroid UK
8 months ago
Rheumatologist Visit after 9 months
Hi its been a couple of months since my last post and my mums skin flap has healed really well and thankfully apart from the usual bruises there have been no more incidents. She is looking well and has even lost a bit of weight which she is delighted with. Our concern at moment is she is still feeling
Hi its been a couple of months since my last post and my mums skin flap has healed really well and thankfully apart from the usual bruises there have been no more incidents. She is looking well and has even lost a bit of weight which she is delighted with. Our concern at moment is she is still feeling
Buchanan16
in
PMRGCAuk
8 months ago
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carbimazole help
so the good news is that my bloods came back with lots of positives this time. My TPOAb has reduced to 57, after it was 178 in Feb. My TSH has woken up and is now in range! My vitamins are all in good order (thanks to supplements and advice from this forum). B12 has increased +200 since Feb! The only
so the good news is that my bloods came back with lots of positives this time. My TPOAb has reduced to 57, after it was 178 in Feb. My TSH has woken up and is now in range! My vitamins are all in good order (thanks to supplements and advice from this forum). B12 has increased +200 since Feb! The only
Hungryallthetimes
in
Thyroid UK
1 month ago
Itchy Rash Help Please!
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Urbanski
in
Thyroid UK
8 months ago
Would love help with my results
Hi there! I’d love some feedback on my most recent results. I started NDT (Erfa) treatment in February 2023. These are my results on two doses (90 mcg in the morning and 60 mcg in the afternoon). TSH 0.02 mU/L Reference Range: 0.27 to 4.20 mU/L Free T3 5.4 Reference Range: 3.1 to 6.8 pmol/L T4 Total
Hi there! I’d love some feedback on my most recent results. I started NDT (Erfa) treatment in February 2023. These are my results on two doses (90 mcg in the morning and 60 mcg in the afternoon). TSH 0.02 mU/L Reference Range: 0.27 to 4.20 mU/L Free T3 5.4 Reference Range: 3.1 to 6.8 pmol/L T4 Total
The-Wasp
in
Thyroid UK
8 months ago
Iron panel values - average and RLS indicated.
Iron values and units for RLS patients 1. Total or serum iron Units: micrograms per deciliter (ug/dL) Range: men 65-175 ug/dL Range: women 50-170 ug/dL Range: children: 50-120 ug/dL Recommended value for RLS patients: greater than 60 ug/dL (adults) 2. Per cent iron saturation Units: per cent
Iron values and units for RLS patients 1. Total or serum iron Units: micrograms per deciliter (ug/dL) Range: men 65-175 ug/dL Range: women 50-170 ug/dL Range: children: 50-120 ug/dL Recommended value for RLS patients: greater than 60 ug/dL (adults) 2. Per cent iron saturation Units: per cent
fritz34
in
Restless Legs Syndrome
5 months ago
Maybe helpful
I am not from the UK and am not familiar with the bureaucracy. It is my understanding that the protocol for the treatment and diagnosis of B12 written by the British National Formulary is actually written as guidelines for hematologists. If that is correct, a ploy to get medicial help is have in
I am not from the UK and am not familiar with the bureaucracy. It is my understanding that the protocol for the treatment and diagnosis of B12 written by the British National Formulary is actually written as guidelines for hematologists. If that is correct, a ploy to get medicial help is have in
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Help please with blood test results
Hi Everyone, Would appreciate some help on some blood test results please. I’m asking on behalf of my niece who was diagnosed with ME when she was a teenager. She is in her forties now and has had a range of health issues over her life. She has suffered many tummy issues and she believes she now has
Hi Everyone, Would appreciate some help on some blood test results please. I’m asking on behalf of my niece who was diagnosed with ME when she was a teenager. She is in her forties now and has had a range of health issues over her life. She has suffered many tummy issues and she believes she now has
Bookworm63
in
Thyroid UK
2 months ago
Medichecks new instructions?
I have just ordered a test from Medichecks and looking at the instrctions, this one seems new: Do not take biotin supplements for two days before this test, discuss this with your doctor if it is prescribed. Do not take vitamin B12 for two weeks prior to this test. If your B12 is prescribed ask your
I have just ordered a test from Medichecks and looking at the instrctions, this one seems new: Do not take biotin supplements for two days before this test, discuss this with your doctor if it is prescribed. Do not take vitamin B12 for two weeks prior to this test. If your B12 is prescribed ask your
dottyb09
in
Thyroid UK
8 months ago
Partners ALP gradually increasing.
Hi all, My partner is in the interim of moving to NHS after being diagnosed with liver disease on private . He has hemochromatosis and the disease from this. His next appointment isn't until November and his last was in February. He and myself are worried as we've noticed his ALP has risen in the last
Hi all, My partner is in the interim of moving to NHS after being diagnosed with liver disease on private . He has hemochromatosis and the disease from this. His next appointment isn't until November and his last was in February. He and myself are worried as we've noticed his ALP has risen in the last
ARM8
in
British Liver Trust
2 months ago
Pregnancy loss, results confusing?
B12
deficiency
" Thank you for any insight you can share.
B12
deficiency
" Thank you for any insight you can share.
staceedin
in
Thyroid UK
1 year ago
Not feeling any better.
I have being taking, Liquid Drops 3000 mcg Methylcobalamin + Adenosylcobalamin. From Natures Way. It is in 3000 mcg per dropping under the tongue. I have tried tablet form Methylcobalamin also. There seems no improvement on my, balance, fatigue, feet cramps at night and numbness plus tingling in my right
I have being taking, Liquid Drops 3000 mcg Methylcobalamin + Adenosylcobalamin. From Natures Way. It is in 3000 mcg per dropping under the tongue. I have tried tablet form Methylcobalamin also. There seems no improvement on my, balance, fatigue, feet cramps at night and numbness plus tingling in my right
Natural1970
in
Pernicious Anaemia Society
2 months ago
Followed advice here, now need help with understanding results
Hi, I’ve learned more here in the last year or so than I’ve ever learned from doctors. I’ve also come to know that I’ve probably been on too low of a Synthroid dosage for far too long. I am hypothyroid with Hashimoto’s since 2005 or 2006. I had a goiter on my parathyroid and had surgery to remove
Hi, I’ve learned more here in the last year or so than I’ve ever learned from doctors. I’ve also come to know that I’ve probably been on too low of a Synthroid dosage for far too long. I am hypothyroid with Hashimoto’s since 2005 or 2006. I had a goiter on my parathyroid and had surgery to remove
Sunsetzzs
in
Thyroid UK
2 months ago
An error I forgot about.
A few months back I used a multi use vial after not having used it for an unknown time. I have sense come to understand that once the vial is open one should either use it up or throw it away. I use 90 days as my maximum length of time to use a vial once it is opened or mixed. I take tape and write
A few months back I used a multi use vial after not having used it for an unknown time. I have sense come to understand that once the vial is open one should either use it up or throw it away. I use 90 days as my maximum length of time to use a vial once it is opened or mixed. I take tape and write
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
self injecting problem
I posted before about fracturing my shoulder and couldn't self inject one handed, found out that the local pharmacist do B12 injections which solved my problem. Though I should point out I think they would adhere to the NICE recommendations of every 3 months and you obviously have to pay for it,
I posted before about fracturing my shoulder and couldn't self inject one handed, found out that the local pharmacist do B12 injections which solved my problem. Though I should point out I think they would adhere to the NICE recommendations of every 3 months and you obviously have to pay for it,
Angie47
in
Pernicious Anaemia Society
8 months ago
B12 expiry date
Hi all. I have around 20 vials of B12 and have just checked the expiry date. It is the end of this month! 🙄Is the expiry date fixed, or am I able to use them safely for a period of time after the expiry date? I assume the effectiveness of the B12 may be compromised after the expiry date? 🤔
Hi all. I have around 20 vials of B12 and have just checked the expiry date. It is the end of this month! 🙄Is the expiry date fixed, or am I able to use them safely for a period of time after the expiry date? I assume the effectiveness of the B12 may be compromised after the expiry date? 🤔
Wellington1
in
Pernicious Anaemia Society
8 months ago
Interesting
At least I think so. I have started to experience the pins and needles of Paresthesia. I have never experienced this symptom before. It does not worry me as it is likely the result of my healing with effective self treatment and it is reasonable to assume it will be resolved. I did make the error of
At least I think so. I have started to experience the pins and needles of Paresthesia. I have never experienced this symptom before. It does not worry me as it is likely the result of my healing with effective self treatment and it is reasonable to assume it will be resolved. I did make the error of
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Levothyroxine and vitamin - timings
Morning. I have taken my first dose of Levothyroxine this morning. I have a recollection of being told / reading about timing of taking other medication being important but can’t find it to refresh myself. Would someone be able to tell me when I am best to take my vitamins..? B12, B complex and D as
Morning. I have taken my first dose of Levothyroxine this morning. I have a recollection of being told / reading about timing of taking other medication being important but can’t find it to refresh myself. Would someone be able to tell me when I am best to take my vitamins..? B12, B complex and D as
TheMudRunner
in
Thyroid UK
2 months ago
How can you get homocysteine test on NHS
I’ve had an under active thyroid for many years and now I think may be B12 deficient too. Also have high blood pressure. I’ve been doing a lot of research recently and read about the importance of homocysteine. I had it tested privately about six years ago and it was at the “high end of normal” then
I’ve had an under active thyroid for many years and now I think may be B12 deficient too. Also have high blood pressure. I’ve been doing a lot of research recently and read about the importance of homocysteine. I had it tested privately about six years ago and it was at the “high end of normal” then
HighlandMo
in
Pernicious Anaemia Society
8 months ago
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