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Experiences with
Vitamin B12 deficiency
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My B12 Stuffy Head
This came to me in part from my collaboration with Wwwdot utilizing PM. My B12 Stuffy Head is now my sign that I need more B12 which for me is more frequent injections which results in higher amounts in a 24 hour period. My sign for years was pain that was probably not necessary at the levels I experienced
This came to me in part from my collaboration with Wwwdot utilizing PM. My B12 Stuffy Head is now my sign that I need more B12 which for me is more frequent injections which results in higher amounts in a 24 hour period. My sign for years was pain that was probably not necessary at the levels I experienced
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
A Missed Goal
I made a goal of making it to the winter solstice without being sun energy deprived. I failed. I did not know I was failing until there were two days in New Hampshire USA that were 4.5 degrees with no wind to speak of. I got two days of good sun and then crashed for three days. Part of the reason
I made a goal of making it to the winter solstice without being sun energy deprived. I failed. I did not know I was failing until there were two days in New Hampshire USA that were 4.5 degrees with no wind to speak of. I got two days of good sun and then crashed for three days. Part of the reason
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
B12 def and itchy skin?
Can B12 deficency / pernicious anaemia cause itchy skin.
Can B12 deficency / pernicious anaemia cause itchy skin.
Whiskymack
in
Pernicious Anaemia Society
5 months ago
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B12 stored in liver ?
Hi I'm getting a little confused and trying to understand what is actually measured with blood tests... Does a serum Total B12 reflect what is or isn't stored in the liver at the time of the test or just what is circulating ? Does an Active B12 test measure the store differently, is the store in
Hi I'm getting a little confused and trying to understand what is actually measured with blood tests... Does a serum Total B12 reflect what is or isn't stored in the liver at the time of the test or just what is circulating ? Does an Active B12 test measure the store differently, is the store in
Spritze
in
Thyroid UK
5 months ago
Hi I've just had 2 injections this week and my head and vision seem weird is this normal?
Gpw 65 my gp has just stated to arrange b12 jabs after pestering for best part of 3 years
Gpw 65 my gp has just stated to arrange b12 jabs after pestering for best part of 3 years
gpw61
in
Pernicious Anaemia Society
5 months ago
B12 Frequency
Hi Guys I want to share with you an incredible success story which I hope will offer hope and inspire.. A year ago I was diagnosed with PA - barely able to function at 106 ng/L. I started loading doses followed by EOD self injection and spent most of December 2022 to February 2023 in bed in pain,
Hi Guys I want to share with you an incredible success story which I hope will offer hope and inspire.. A year ago I was diagnosed with PA - barely able to function at 106 ng/L. I started loading doses followed by EOD self injection and spent most of December 2022 to February 2023 in bed in pain,
Wwwdot
in
Pernicious Anaemia Society
5 months ago
90 Days In.
I decided after consideration of safety and what is known or thought to be true about the treatment of B12 along with my experiences to test my hypothesis that more frequent injections might be superior to other trials I had done. And that no one had any information on increasing frequency that I
I decided after consideration of safety and what is known or thought to be true about the treatment of B12 along with my experiences to test my hypothesis that more frequent injections might be superior to other trials I had done. And that no one had any information on increasing frequency that I
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
My B12 Debit Card.
I stole the concept from someone who shared they had a cash account for B12. I was well overdrawn 3 years ago and paid a stiff penalty. 😀 It was issued in the womb by my anorexic mother. It is not a numerical account and is no longer based on actual B12 rather available energy as I heal. I can draw
I stole the concept from someone who shared they had a cash account for B12. I was well overdrawn 3 years ago and paid a stiff penalty. 😀 It was issued in the womb by my anorexic mother. It is not a numerical account and is no longer based on actual B12 rather available energy as I heal. I can draw
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Help with blood test results, please
Just received my blood test results as have been feeling really rubbish lately and cannot lose a single 1lb - in fact it just keeps creeping on. I am exhausted from trying and getting nowhere. And also just generally exhausted! :) Could do with your expertise please: TSH 5.13 miu/L (0.27-4.2) FT4
Just received my blood test results as have been feeling really rubbish lately and cannot lose a single 1lb - in fact it just keeps creeping on. I am exhausted from trying and getting nowhere. And also just generally exhausted! :) Could do with your expertise please: TSH 5.13 miu/L (0.27-4.2) FT4
Partiallythere
in
Thyroid UK
5 months ago
Looking for a methyl and adenosyl injection mix
Can anyone advise please. I’d prefer one without preservatives too As I keep saying, I’m new to this and at first I liked the idea of Biosciences B12 powder because it has no excipients. I also like the fact that methyl is one of, If not the most, bioavailable. However, the more I read the more it sounds
Can anyone advise please. I’d prefer one without preservatives too As I keep saying, I’m new to this and at first I liked the idea of Biosciences B12 powder because it has no excipients. I also like the fact that methyl is one of, If not the most, bioavailable. However, the more I read the more it sounds
Noelnoel
in
Pernicious Anaemia Society
5 months ago
Vitamin B12
Looks like I have an abnormal B12 reading on a recent Blood test, anyone else had this and follow up injections ? Regards
Looks like I have an abnormal B12 reading on a recent Blood test, anyone else had this and follow up injections ? Regards
Prada47
in
British Heart Foundation
5 months ago
B12 vials in Latin stores in the U.S.A.
Hello everyone, Because my doctor only prescribed ONE B12 injection every TWO months, I started self-injecting. At first, I was worried about where and how to buy unprescribed B12. I was lucky to already have a dozen "insulin syringes" with already attached needles. Then, an older Latina lady at work
Hello everyone, Because my doctor only prescribed ONE B12 injection every TWO months, I started self-injecting. At first, I was worried about where and how to buy unprescribed B12. I was lucky to already have a dozen "insulin syringes" with already attached needles. Then, an older Latina lady at work
GreenTamales
in
Pernicious Anaemia Society
5 months ago
B12 and recent cold.
Hi everyone, I hope you are all well. Has anyone had similar experience? I have had this cold and cough that is going around for over a week. I feel exhausted and my gastric issues have flared up. Is this the cold or has it depleted my b12 levels? I have 10 weekly injections.Many thanks
Hi everyone, I hope you are all well. Has anyone had similar experience? I have had this cold and cough that is going around for over a week. I feel exhausted and my gastric issues have flared up. Is this the cold or has it depleted my b12 levels? I have 10 weekly injections.Many thanks
Mrsmr
in
Pernicious Anaemia Society
5 months ago
Rebranding
I have written here often that I am self-treating with the assumption I experienced life-long B12 deficiency and transcobalamin issues. I am rebranding that I experienced Life Long Non-functioning B12 cellular deficiency at varying degrees the most recent the most severe for reasons unknown. I can
I have written here often that I am self-treating with the assumption I experienced life-long B12 deficiency and transcobalamin issues. I am rebranding that I experienced Life Long Non-functioning B12 cellular deficiency at varying degrees the most recent the most severe for reasons unknown. I can
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Picking Brains
Took daughter for some blood tests this morning and had a discussion with phlebotomist, B12, auto immune stuff, etc. I have told her about HealthUnlocked and asked her to look it up as there are lots of forums. What saddened me most is how anxious she was about B12. I mentioned PA and she said she
Took daughter for some blood tests this morning and had a discussion with phlebotomist, B12, auto immune stuff, etc. I have told her about HealthUnlocked and asked her to look it up as there are lots of forums. What saddened me most is how anxious she was about B12. I mentioned PA and she said she
Polo22
in
Pernicious Anaemia Society
5 months ago
Low iron
I have an iron count of between 29 and 33 from 2021 to now on a range of 11-360. For the last six months I've been taking a supplement to boost the serum iron level and the level has dropped from 33 to 31. I think I'm anaemic for symptomatic reasons. I SI EOD and have done for a year. My health is beginning
I have an iron count of between 29 and 33 from 2021 to now on a range of 11-360. For the last six months I've been taking a supplement to boost the serum iron level and the level has dropped from 33 to 31. I think I'm anaemic for symptomatic reasons. I SI EOD and have done for a year. My health is beginning
Orchard33
in
Pernicious Anaemia Society
3 months ago
very long story…. Need support.
Since a young age, I have had hyperthyroidism. I was treated with carbimazole for years and in 2021 I had radioactive therapy (a radioactive table) for my thyroid. This ended up killing it and now I am on level thyroxine. When I first got diagnosed with hypothyroidism, I believe my TSH was 60-ISH. Since
Since a young age, I have had hyperthyroidism. I was treated with carbimazole for years and in 2021 I had radioactive therapy (a radioactive table) for my thyroid. This ended up killing it and now I am on level thyroxine. When I first got diagnosed with hypothyroidism, I believe my TSH was 60-ISH. Since
Angie10116
in
Thyroid UK
5 months ago
no better no T3 no idea
in this weather thyroid is awful cant get T3 at all easily feel cold n ill -- iron tablets make no difference b12 supplements not much difference what a life .......best to those decrepid like me at 43 years old after 20 years thyroid isssues
in this weather thyroid is awful cant get T3 at all easily feel cold n ill -- iron tablets make no difference b12 supplements not much difference what a life .......best to those decrepid like me at 43 years old after 20 years thyroid isssues
Vasiliki99
in
Thyroid UK
5 months ago
Rheumatologist Visit after 9 months
Hi its been a couple of months since my last post and my mums skin flap has healed really well and thankfully apart from the usual bruises there have been no more incidents. She is looking well and has even lost a bit of weight which she is delighted with. Our concern at moment is she is still feeling
Hi its been a couple of months since my last post and my mums skin flap has healed really well and thankfully apart from the usual bruises there have been no more incidents. She is looking well and has even lost a bit of weight which she is delighted with. Our concern at moment is she is still feeling
Buchanan16
in
PMRGCAuk
5 months ago
Itchy Rash Help Please!
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Urbanski
in
Thyroid UK
5 months ago
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