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Vitamin B12 deficiency
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Getting there, but slowly
More blood tests back now but still don't have all the figures. Serum immunoglobulins all normal Coeliac screen - negative Ferritin 197 (range 13-150) Transferrin saturation 38% (15-45) He's not happy about this even though it's "normal" Homocysteine - normal IFA - still negative Gastric parietal antibodies
More blood tests back now but still don't have all the figures. Serum immunoglobulins all normal Coeliac screen - negative Ferritin 197 (range 13-150) Transferrin saturation 38% (15-45) He's not happy about this even though it's "normal" Homocysteine - normal IFA - still negative Gastric parietal antibodies
Onefish
in
Pernicious Anaemia Society
9 months ago
Functional B12 deficiency
Hi, I have been around a long time and read every day. I have a hard time understanding what a functional deficiency mean. In my case just a few injections brought my MMA and homocysteine down very quickly. Is that a functional deficiency? Seems like I would understand this by now. I have never
Hi, I have been around a long time and read every day. I have a hard time understanding what a functional deficiency mean. In my case just a few injections brought my MMA and homocysteine down very quickly. Is that a functional deficiency? Seems like I would understand this by now. I have never
EiCa
in
Pernicious Anaemia Society
9 months ago
Back to square one
My Dr checked my thyroid levels with some other blood tests without me knowing, so I had taken my T4 (50mcg) about an hour before! Based on the results, she said I was now fine and took me off the medication. I tried to argue saying it needed to be before my meds and she said that was wrong. I had always
My Dr checked my thyroid levels with some other blood tests without me knowing, so I had taken my T4 (50mcg) about an hour before! Based on the results, she said I was now fine and took me off the medication. I tried to argue saying it needed to be before my meds and she said that was wrong. I had always
BethH77
in
Thyroid UK
4 months ago
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Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
4 months ago
bronchiectisis
hi all , I’m just after a bit of advice . I was diagnosed with this in 2018 - had loads of tests and also have mild asthma . I’m not on any meds only pump when needed which isn’t very often I find it burns and doesn’t really help at all , as I can bring the mucus up on my own . I used it yesterday
hi all , I’m just after a bit of advice . I was diagnosed with this in 2018 - had loads of tests and also have mild asthma . I’m not on any meds only pump when needed which isn’t very often I find it burns and doesn’t really help at all , as I can bring the mucus up on my own . I used it yesterday
Bitxi
in
Lung Conditions Community Forum
9 months ago
Methylcobalamin vs Hydroxocobalamin ?
Does anyone else find they do better on methylcobalamin than hydroxocobalamin? I've done some major googling but not been able to find out much and would like to ask if anyone has had the same experience as me? I started SI for years with Methylcobalamin and was doing great. When stocks became impossible
Does anyone else find they do better on methylcobalamin than hydroxocobalamin? I've done some major googling but not been able to find out much and would like to ask if anyone has had the same experience as me? I started SI for years with Methylcobalamin and was doing great. When stocks became impossible
pipple
in
Pernicious Anaemia Society
9 months ago
advice please
recently been advised that my B12 is normal and waiting to see a neurologist 23 weeks waiting list I was on injections until March and everything was fine I was told nhs was stopping B12 injections and I had to have tablets which didn’t work, I returned to the doctor to and got a one off injection in
recently been advised that my B12 is normal and waiting to see a neurologist 23 weeks waiting list I was on injections until March and everything was fine I was told nhs was stopping B12 injections and I had to have tablets which didn’t work, I returned to the doctor to and got a one off injection in
Imcn1960
in
Pernicious Anaemia Society
9 months ago
Methylfolate dose for B12 injections
Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try methylfolate. However, there seems no information on the recommended dose for supporting injections. Is anyone else on it, and how much do you take
Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try methylfolate. However, there seems no information on the recommended dose for supporting injections. Is anyone else on it, and how much do you take
MindfulSquirrel
in
Pernicious Anaemia Society
4 months ago
B1 Thiamine
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
sons bloods
my 17 year old son has been very depressed, anxious and suicidal. He has vitiligo Here are his blood results. B12 =226 (201-914) folate =7 ( 3-20) TSH 2.73 ( 0.38-5.53) T4 10.4 ( 7.90-14.40). He probably has undiagnosed autism and has been diagnosed with dyspraxia.He has been struggling with recall
my 17 year old son has been very depressed, anxious and suicidal. He has vitiligo Here are his blood results. B12 =226 (201-914) folate =7 ( 3-20) TSH 2.73 ( 0.38-5.53) T4 10.4 ( 7.90-14.40). He probably has undiagnosed autism and has been diagnosed with dyspraxia.He has been struggling with recall
Hectorsmum2
in
Pernicious Anaemia Society
4 months ago
NICE guidelines
Just had someone at my surgery call to say I haven’t had b12 for years (needless to say untrue) and so cannot receive my usual injection. I have explained that you don’t test B12 while receiving B12 and that the guidelines should be read. I mentioned that the new guidelines are due and should be read
Just had someone at my surgery call to say I haven’t had b12 for years (needless to say untrue) and so cannot receive my usual injection. I have explained that you don’t test B12 while receiving B12 and that the guidelines should be read. I mentioned that the new guidelines are due and should be read
RoseFlowerDew
in
Pernicious Anaemia Society
9 months ago
Still having symptoms of hypothyroidism despite medication - any advice?
I wondered if anyone could please share their thoughts on my situation. I was diagnosed with subclinical hypothyroidism around 8 years ago, but didn’t have any symptoms (apart from some fatigue). Then, after contracting COVID in 2020, I began to have symptoms like 30-35lb weight gain (unexplained),
I wondered if anyone could please share their thoughts on my situation. I was diagnosed with subclinical hypothyroidism around 8 years ago, but didn’t have any symptoms (apart from some fatigue). Then, after contracting COVID in 2020, I began to have symptoms like 30-35lb weight gain (unexplained),
melissa-b
in
Thyroid UK
4 months ago
Doctor has asked to see me.......
I have been SI'ing for 6½ years now. I get some B12 on prescription, but just one a month. I buy the rest myself, and SI every 3 days. I put in my prescription last week and got a call today from the nurse. She said the doctor wants to see me to, and I quote, 'make sure I am doing it right'. I feel like
I have been SI'ing for 6½ years now. I get some B12 on prescription, but just one a month. I buy the rest myself, and SI every 3 days. I put in my prescription last week and got a call today from the nurse. She said the doctor wants to see me to, and I quote, 'make sure I am doing it right'. I feel like
BeachArt
in
Pernicious Anaemia Society
9 months ago
Bloating
What's the score with bloating and bowels with little or to much b12
What's the score with bloating and bowels with little or to much b12
Mozza127
in
Pernicious Anaemia Society
9 months ago
b12 and “liver storage”
Every time I think I have a handle on how this essential vitamin works, I read something and have to adjust my understanding. Has anyone read this? Enough to have a discussion about it? [u]
The Enterohepatic Circulation of Vitamin B12
[/u] My takeaway quotes were: “[i]The reabsorption of
Every time I think I have a handle on how this essential vitamin works, I read something and have to adjust my understanding. Has anyone read this? Enough to have a discussion about it? [u]
The Enterohepatic Circulation of Vitamin B12
[/u] My takeaway quotes were: “[i]The reabsorption of
PlatypusProfit8077
in
Pernicious Anaemia Society
2 days ago
B12 self injection
So we ordered some panpharma b12 injections which arrived yesterday. My partner has a b12 level of 123 with neurological symtoms and gp refuses to treat. I just got my results from my b12 test result last week a level of 202 which gp said was normal. Maybe this was abit stupid but as I have symptoms
So we ordered some panpharma b12 injections which arrived yesterday. My partner has a b12 level of 123 with neurological symtoms and gp refuses to treat. I just got my results from my b12 test result last week a level of 202 which gp said was normal. Maybe this was abit stupid but as I have symptoms
Nic878
in
Pernicious Anaemia Society
9 months ago
B supplement
Please could you advise me if it is OK to take Homocystix Plus as a B supplement? I have been taking Thorne Basic Plus and Nature's Best Vit B 12. However Vit B12 now over 500. I started flushing more and think I'm developing Rosacea . Looked online and found Niacin can be a factor in flushing. Also
Please could you advise me if it is OK to take Homocystix Plus as a B supplement? I have been taking Thorne Basic Plus and Nature's Best Vit B 12. However Vit B12 now over 500. I started flushing more and think I'm developing Rosacea . Looked online and found Niacin can be a factor in flushing. Also
Shellian
in
Thyroid UK
4 months ago
Would I absorb B12 in tablet form if I had PA?
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
WitchingHour2point0
in
Pernicious Anaemia Society
12 days ago
Better Understanding
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Help please
Can anyone recommend a b12 specialist in the south of England? And can burning in the buttocks be a symptom of b12 deficiency?
Can anyone recommend a b12 specialist in the south of England? And can burning in the buttocks be a symptom of b12 deficiency?
Popcorn12345
in
Pernicious Anaemia Society
17 days ago
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