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Vitamin B12 deficiency
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Polyneuropathy and vitamin B 12
I have had polyneuropathy for some time and I have tried B12 recently and it seems to me to help a lot. I put this to the test accidentally by running out and was surprised by how much the pain increased. Not expensive and worth trying.
I have had polyneuropathy for some time and I have tried B12 recently and it seems to me to help a lot. I put this to the test accidentally by running out and was surprised by how much the pain increased. Not expensive and worth trying.
Shonkie
in
FieryBones - RA Community
8 months ago
Regulating speed of healing
This has only become an issue with injecting 4+ times a day with two injections of B12 1 mg in a solution of 1mg/ml. Prior to that my body was starving for B12 which is a very different experience. The experience was a using up my B12 roller coaster. I inject two different forms in each injection and
This has only become an issue with injecting 4+ times a day with two injections of B12 1 mg in a solution of 1mg/ml. Prior to that my body was starving for B12 which is a very different experience. The experience was a using up my B12 roller coaster. I inject two different forms in each injection and
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Wits end
I need some advice please. I am currently on 300mg of pregabalin and one codeine tablet a day but this has stopped working. I struggle to get to sleep and when I do I am woken after 1 - 2 hours with restless legs and sometimes arms. I am at my wits end with exhaustion. I had a full blood count recently
I need some advice please. I am currently on 300mg of pregabalin and one codeine tablet a day but this has stopped working. I struggle to get to sleep and when I do I am woken after 1 - 2 hours with restless legs and sometimes arms. I am at my wits end with exhaustion. I had a full blood count recently
Carolinetidy
in
Restless Legs Syndrome
2 months ago
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Questions for Endocrinologist
Today is the day, I am finally seeing an endocrinologist. Any suggestions of things to ask? Trying to be optimistic about the appointment but quietly cautious. Below are the questions I have so far: - FT3 measurement to ensure adequate conversion - Pregnancy monitoring and appropriate FT4 and TSH levels
Today is the day, I am finally seeing an endocrinologist. Any suggestions of things to ask? Trying to be optimistic about the appointment but quietly cautious. Below are the questions I have so far: - FT3 measurement to ensure adequate conversion - Pregnancy monitoring and appropriate FT4 and TSH levels
Curious123
in
Thyroid UK
2 months ago
B12 injections
good morning all I have just received a email saying I will no longer be getting my b12 injection which I was having every 2 months and will be put on cyanocobalamin 100 micro grams taken daily. This feels me with dread as I really feel the need of the injection when it’s due why is this being stopped
good morning all I have just received a email saying I will no longer be getting my b12 injection which I was having every 2 months and will be put on cyanocobalamin 100 micro grams taken daily. This feels me with dread as I really feel the need of the injection when it’s due why is this being stopped
Paulallen73
in
Thyroid UK
8 months ago
Post-private GP update
Evening. A few people asked me to post an update following on from my visit to a private GP today. Well, it certainly wasn’t what I’d expected, which is to say I hadn’t expected much to happen other than another another blood test being needed and possibly a plan of action. What actually happened
Evening. A few people asked me to post an update following on from my visit to a private GP today. Well, it certainly wasn’t what I’d expected, which is to say I hadn’t expected much to happen other than another another blood test being needed and possibly a plan of action. What actually happened
TheMudRunner
in
Thyroid UK
2 months ago
Cutie Face Number Two
Hello Forum FriendsJust popping into show you these beautiful 'cutie faces' of a proud new Mum with her baby. The little one is Kobo a month old Gelada Monkey that's been born at Yorkshire Wildlife Park as part of a special breeding program. I hope you like them , you are all as well as possible and
Hello Forum FriendsJust popping into show you these beautiful 'cutie faces' of a proud new Mum with her baby. The little one is Kobo a month old Gelada Monkey that's been born at Yorkshire Wildlife Park as part of a special breeding program. I hope you like them , you are all as well as possible and
misty14
in
LUPUS UK
2 months ago
Prescribed levothyroxine at last!
After a long struggle, you know how it goes... I have finally been offered a trial of levothyroxine by a GP. My Medichecks results in 2020 were ignored by my GP (serum TSH 6 range 0.7-4.2) plus presence of large amount of antibodies. NHS ones kept coming back 'normal'. A different GP agreed to
After a long struggle, you know how it goes... I have finally been offered a trial of levothyroxine by a GP. My Medichecks results in 2020 were ignored by my GP (serum TSH 6 range 0.7-4.2) plus presence of large amount of antibodies. NHS ones kept coming back 'normal'. A different GP agreed to
Sleepysparrow
in
Thyroid UK
3 months ago
Malabsorption of drugs?
I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.
I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.
Chickens44
in
Pernicious Anaemia Society
2 months ago
Pattern of Improved Supplementation and Results of 5 day Trial
Current Trial (5 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. The most recent improvement in my self
Current Trial (5 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. The most recent improvement in my self
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
History of continued low and fluctuating iron levels - advice?
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
Starseed56
in
Thyroid UK
2 months ago
Recently diagnosed with pernicious anaemia
Uk 49 yrs old ...over the years ive been back and forth to drs as been tired and and have been told iron deficient and taken tablets but july 23 after i visited drs and seen a nurse as i was severely lethargic and had jaundice she got me booked me into ambulatory care in hospital were I went every
Uk 49 yrs old ...over the years ive been back and forth to drs as been tired and and have been told iron deficient and taken tablets but july 23 after i visited drs and seen a nurse as i was severely lethargic and had jaundice she got me booked me into ambulatory care in hospital were I went every
Tay10r
in
Pernicious Anaemia Society
8 months ago
Macrocytic Anemia?
Hi, I am posting here for my Mom. She had blood work every year with perfect results until last year in September when the Hemoglobin/RBC/Hemocrit started dropping. She never had anemia before. In March of this year MCV and MCH started going up and be higher then normal. I took her to a hematologist
Hi, I am posting here for my Mom. She had blood work every year with perfect results until last year in September when the Hemoglobin/RBC/Hemocrit started dropping. She never had anemia before. In March of this year MCV and MCH started going up and be higher then normal. I took her to a hematologist
Simonapo
in
Pernicious Anaemia Society
2 months ago
Loading dose now complete and...drum roll
Last of the 6 jabs was two days ago. I've had some "standard" improvements and some unexpected ones. First thing I noticed was that the half moons on my fingernails started to reappear (they've been missing for ages). Mainly my thumbs but they're coming back on a couple of other digits as well. Sadly
Last of the 6 jabs was two days ago. I've had some "standard" improvements and some unexpected ones. First thing I noticed was that the half moons on my fingernails started to reappear (they've been missing for ages). Mainly my thumbs but they're coming back on a couple of other digits as well. Sadly
Onefish
in
Pernicious Anaemia Society
9 months ago
Need help with latest results
Hi, I have had a thyroid test recently with other blood results. Anyone make sense of them? It’s been a nightmare getting hold of the NHS Endo and the admin team . I’ve posted on here before with previous results and have been reffred to 2 different endos now who siply keep saying that ‘I’m fine and
Hi, I have had a thyroid test recently with other blood results. Anyone make sense of them? It’s been a nightmare getting hold of the NHS Endo and the admin team . I’ve posted on here before with previous results and have been reffred to 2 different endos now who siply keep saying that ‘I’m fine and
santiagomark
in
Thyroid UK
2 months ago
Supplementing Ferritin/ Folate advice.Hello friends. I have been supplementing B12 for some time. But since
advice.Hello friends. I have been supplementing B12 for some time. But since getting a recent blood test done. I noticed that my Ferritin and Folate were a bit low in range.Ferritin. 166ng/ml [30-26] Folate >20ng/ml [>3.9]. Do you think it would be ok to supplement
advice.Hello friends. I have been supplementing B12 for some time. But since getting a recent blood test done. I noticed that my Ferritin and Folate were a bit low in range.Ferritin. 166ng/ml [30-26] Folate >20ng/ml [>3.9]. Do you think it would be ok to supplement
Everdean
in
Pernicious Anaemia Society
2 months ago
Bodfeld apotheke
hi all, l have been ordering vitamin B12 Depot Hydroxocobalaminacetat 1mg/1ml ampules every two years or so for my daughter, I usually get 10 boxes of 10 at a time, last time I ordered them was in 2021 from Bodfled chemist in Germany. Just tried to place my usual order but can find uk on shipping list
hi all, l have been ordering vitamin B12 Depot Hydroxocobalaminacetat 1mg/1ml ampules every two years or so for my daughter, I usually get 10 boxes of 10 at a time, last time I ordered them was in 2021 from Bodfled chemist in Germany. Just tried to place my usual order but can find uk on shipping list
weaverdee
in
Pernicious Anaemia Society
9 months ago
Elevated Vitamin B 12
i am embarrassed to write this ,,,my bloods cam back after six months of Urso and my ALP went from 385 to 175, AST and ALT are now normal. I was so excited…..then i saw my Vitamin V 12 result. ULN here is 652…mine was 1101. I was taking a very high supplement of 10 000 mcg/day! I also eat a lot of
i am embarrassed to write this ,,,my bloods cam back after six months of Urso and my ALP went from 385 to 175, AST and ALT are now normal. I was so excited…..then i saw my Vitamin V 12 result. ULN here is 652…mine was 1101. I was taking a very high supplement of 10 000 mcg/day! I also eat a lot of
Gaspereaux
in
British Liver Trust
2 months ago
Exhausted still after B12 injection.
I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take. I did mention it to the nurse when I had my last injection
I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take. I did mention it to the nurse when I had my last injection
Dolly260
in
Pernicious Anaemia Society
2 months ago
Update with Vit B12 & Folate results
Hi, I posted a little while ago with recent Thyroid results. SlowDragonsuggested I come back with some other results once I had them. I'm not diagnosed with a Thyroid issue as of yet. These results are following an appointment with an NHS Endocrinologist. I didn't think about him taking bloods at
Hi, I posted a little while ago with recent Thyroid results. SlowDragonsuggested I come back with some other results once I had them. I'm not diagnosed with a Thyroid issue as of yet. These results are following an appointment with an NHS Endocrinologist. I didn't think about him taking bloods at
Sunnyyellowlady
in
Thyroid UK
2 months ago
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