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Vitamin B12 deficiency
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Imerslund-Gräsbeck one to know about
https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me. He said the intrinsic factor antibody test was 95% accurate. So I retorted maybe I was one of the 5%! "That would be very unlikely." About 5
https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me. He said the intrinsic factor antibody test was 95% accurate. So I retorted maybe I was one of the 5%! "That would be very unlikely." About 5
Oneash
in
Pernicious Anaemia Society
5 months ago
New Concept?
I just finished a successful 14 day trial. Injecting 2 mg 5 times a day including setting an alarm is a different world for me and trials are definitave in 14 days not like when I was under supplementing and it was 30 days and I was pretty sure the trial was positive. I made a rational increase of
I just finished a successful 14 day trial. Injecting 2 mg 5 times a day including setting an alarm is a different world for me and trials are definitave in 14 days not like when I was under supplementing and it was 30 days and I was pretty sure the trial was positive. I made a rational increase of
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Tiredness
Hi, Can anyone help please. I am under Haemotology at the hospital for active monitoring as a bone marrow biopsy showed I have Weinstrom M( a type of Lymphoma) I have a three monthly B12 inj and am on 75 mcg of Levothyroxine for my thyroid. My bloods last week at the Haemotology dept showed all my bloodwork
Hi, Can anyone help please. I am under Haemotology at the hospital for active monitoring as a bone marrow biopsy showed I have Weinstrom M( a type of Lymphoma) I have a three monthly B12 inj and am on 75 mcg of Levothyroxine for my thyroid. My bloods last week at the Haemotology dept showed all my bloodwork
PamBow
in
Thyroid UK
5 months ago
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diabetes & B12 Deficiency
Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better. I’ve had all the classic symptoms. I’ve had the 6 loading doses, 2 further jabs at 6 weeks apart and I’m now on a 4 weekly regime with the UK
Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better. I’ve had all the classic symptoms. I’ve had the 6 loading doses, 2 further jabs at 6 weeks apart and I’m now on a 4 weekly regime with the UK
Pa234aw
in
Pernicious Anaemia Society
5 months ago
B12 injections out of stock for a long time
My last post was regarding this but I don’t know what date that was. Versandapo.de and Apohealth.de have been out of stock with the Panpharma B12 for a long time. I have given my email address to Versandapo and they said they will contact me when back in stock but it’s been a couple of months (since
My last post was regarding this but I don’t know what date that was. Versandapo.de and Apohealth.de have been out of stock with the Panpharma B12 for a long time. I have given my email address to Versandapo and they said they will contact me when back in stock but it’s been a couple of months (since
Ryaan
in
Pernicious Anaemia Society
5 months ago
B12 over 4000 with injections, any need to worry?
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Bertiepuss
in
Pernicious Anaemia Society
5 months ago
Courage
There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a projection of others fears which I do not have. It only took about 6 months for me to firmly establish that those in the medicial field were very comfortable
There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a projection of others fears which I do not have. It only took about 6 months for me to firmly establish that those in the medicial field were very comfortable
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Which Brand B12 NHS injections please ?
My NHS surgery use Gerot Lannach and boy do they sting ! 😲 Had a conversation with the nurse doing the injection today, who is more than happy (.......to the point of being over excited ! ) to fight on our behalf to change to a different, non stinging brand, if I can give her some suggestions of what
My NHS surgery use Gerot Lannach and boy do they sting ! 😲 Had a conversation with the nurse doing the injection today, who is more than happy (.......to the point of being over excited ! ) to fight on our behalf to change to a different, non stinging brand, if I can give her some suggestions of what
Spritze
in
Pernicious Anaemia Society
5 months ago
Flying with b12 medication
Good evening, Just wondering, if a person ever needs to travel (fly) with their b12 medication... Is that fine? Has anyone had any issues with that? Thank you, S
Good evening, Just wondering, if a person ever needs to travel (fly) with their b12 medication... Is that fine? Has anyone had any issues with that? Thank you, S
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
A positive tale...so far
Hi all, I wanted to share a positive story of B12 deficiency diagnosis and treatment. My GP started me on loading doses in mid December after a serum B12 result of 202. Since then I've had every blood test under the sun which have all showed normal. Meanwhile he kept me on twice weekly injections after
Hi all, I wanted to share a positive story of B12 deficiency diagnosis and treatment. My GP started me on loading doses in mid December after a serum B12 result of 202. Since then I've had every blood test under the sun which have all showed normal. Meanwhile he kept me on twice weekly injections after
Myoldcat
in
Pernicious Anaemia Society
5 months ago
Supplies of b12 injections
Hi everyone, hope you are all ok. I need to order some more b12, where is the best place to order it from at the moment. Many thanks🙏🙏
Hi everyone, hope you are all ok. I need to order some more b12, where is the best place to order it from at the moment. Many thanks🙏🙏
Mrsmr
in
Pernicious Anaemia Society
5 months ago
B12 loading dose
Hi I am diagnosed with MS Trigeminal Neuralgia and hughes syndrome I also had a stroke in the Pons 3 years ago I had a message from the GP this morning to say I have low B12 and need to have loading doses and they have made me an appointment with the nurse (absolutely no further information other than
Hi I am diagnosed with MS Trigeminal Neuralgia and hughes syndrome I also had a stroke in the Pons 3 years ago I had a message from the GP this morning to say I have low B12 and need to have loading doses and they have made me an appointment with the nurse (absolutely no further information other than
mully
in
Pernicious Anaemia Society
5 months ago
B12 Injections
Hi I wonder if anyone can tell me of their experiences of B12 injections I have just been told I am deficient in B12 and need too have some loading doses Did this cause a flare up of your MS I'm especially worried as I also have Trigeminal Neuralgia and fear the pain not being controlled Thanks
Hi I wonder if anyone can tell me of their experiences of B12 injections I have just been told I am deficient in B12 and need too have some loading doses Did this cause a flare up of your MS I'm especially worried as I also have Trigeminal Neuralgia and fear the pain not being controlled Thanks
mully
in
My MSAA Community
5 months ago
RBC advice
Hi everyone! I hope you are all doing better than yesterday and that tomorrow will be even better. I have been SI twice daily and taking all cofactors for around 9-10 months now along with 1100mg of gabapentin (unfortunately)and though I am feeling alive again in so many ways I am still struck every
Hi everyone! I hope you are all doing better than yesterday and that tomorrow will be even better. I have been SI twice daily and taking all cofactors for around 9-10 months now along with 1100mg of gabapentin (unfortunately)and though I am feeling alive again in so many ways I am still struck every
brenanddave
in
Pernicious Anaemia Society
5 months ago
Zentiva
Has anyone tried this???? .. . . . ZENTIVA Vitamin B 12 Lichtenstein Ampoules
Has anyone tried this???? .. . . . ZENTIVA Vitamin B 12 Lichtenstein Ampoules
OldmanD
in
Pernicious Anaemia Society
5 months ago
If taking B12 supps skew's PA Intrinsic Factor test, does it do the same for Gastric Parietal Cell AB too?
Hi Everyone, Im a bit out of my depth here and wondered if you could help please. Ive taken B Complex for nearly 25 years, I do wonder whether serum levels have always been scuppered, as I read again that to do a credible PA , MMA test I needed to be off B12 for minimum 4- 6 moths , possibly longer
Hi Everyone, Im a bit out of my depth here and wondered if you could help please. Ive taken B Complex for nearly 25 years, I do wonder whether serum levels have always been scuppered, as I read again that to do a credible PA , MMA test I needed to be off B12 for minimum 4- 6 moths , possibly longer
Gillybean1
in
Pernicious Anaemia Society
5 months ago
Neurological Symptoms of B12
Hi, I just wondered if anyone can confirm the neurological symptoms of B12 deficiency for me please. I'm currently fighting with the GP as I think I need more injections (I finished the 6 loading doses on Saturday the 17th) but he's said he's not sure what I'm describing are neurological. Symptoms
Hi, I just wondered if anyone can confirm the neurological symptoms of B12 deficiency for me please. I'm currently fighting with the GP as I think I need more injections (I finished the 6 loading doses on Saturday the 17th) but he's said he's not sure what I'm describing are neurological. Symptoms
Kma123
in
Pernicious Anaemia Society
5 months ago
b12 keeps dropping ferritin
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
MuppDog
in
Pernicious Anaemia Society
3 months ago
I know Nitrous Oxide can cause b12 deficiency, but could Nitrogen Dioxide do it too?
I had low b12, took ppi and h2 before Mt body crashed. But I also realised that we did an experiment in the labs I was working in, when my body began to feel awful, around the time I started PPIs (before my body totally crashed months later) I know Nitrous Oxide messes with b12... Does anyone know
I had low b12, took ppi and h2 before Mt body crashed. But I also realised that we did an experiment in the labs I was working in, when my body began to feel awful, around the time I started PPIs (before my body totally crashed months later) I know Nitrous Oxide messes with b12... Does anyone know
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
Masked pv?
Hi all, latest appointment today with my local hospital and back to the revolving door of doctors.The good news platelets still great 298 liver 's be behaving!!! eyes responding to drops. So problems fatigue and stomach upsets. So we are repeating iron tests and B12 apparently they are a bit low (
Hi all, latest appointment today with my local hospital and back to the revolving door of doctors.The good news platelets still great 298 liver 's be behaving!!! eyes responding to drops. So problems fatigue and stomach upsets. So we are repeating iron tests and B12 apparently they are a bit low (
Spanelmad
in
MPN Voice
5 months ago
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