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Experiences with
Vitamin B12 deficiency
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lower back pain
hi all, I have experienced lower back pain / sciatica for the last 12 months. I was diagnosed with PA 14 years ago after investigation into my dropping Ferritin levels. I have B12 injections every 12 weeks and have been fine in the interim.. However I have not had any blood tests until last week and
hi all, I have experienced lower back pain / sciatica for the last 12 months. I was diagnosed with PA 14 years ago after investigation into my dropping Ferritin levels. I have B12 injections every 12 weeks and have been fine in the interim.. However I have not had any blood tests until last week and
Badmintoner
in
Pernicious Anaemia Society
5 months ago
Keep taking the tablets!
I've just been down to the G.P. for my freebie B12 jab. (s.i. at home weekly) I told her that I've been feeling really tired lately, like I did before my P.A. diagnosis, when I was very anemic. So she says, ah, go and buy some B12 tablets from the chemist, that will make you feel better! Cue the lecture
I've just been down to the G.P. for my freebie B12 jab. (s.i. at home weekly) I told her that I've been feeling really tired lately, like I did before my P.A. diagnosis, when I was very anemic. So she says, ah, go and buy some B12 tablets from the chemist, that will make you feel better! Cue the lecture
topazrat
in
Pernicious Anaemia Society
5 months ago
Improved?
Had investigations for right ear polyp that had been present for over 20 years but making routine ear micro suctioning difficult (long standing over production of ear wax). Had hearing test but waited for results (October 2023). Went to concert 3rd Nov and mistakenly did not wear ear plugs. Very loud
Had investigations for right ear polyp that had been present for over 20 years but making routine ear micro suctioning difficult (long standing over production of ear wax). Had hearing test but waited for results (October 2023). Went to concert 3rd Nov and mistakenly did not wear ear plugs. Very loud
GlenM12
in
Tinnitus UK
5 months ago
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Update on first visit with Neurologist
Well, finally landed on my feet with this neurologist. Her name is Dr.Phillips, she is in Dartmouth, Nova Scotia, Canada for anyone out here seeking a neurologist. For those not familiar with the health system structure in Canada, one can ONLY get in to see a Neurologist with a referral form a first
Well, finally landed on my feet with this neurologist. Her name is Dr.Phillips, she is in Dartmouth, Nova Scotia, Canada for anyone out here seeking a neurologist. For those not familiar with the health system structure in Canada, one can ONLY get in to see a Neurologist with a referral form a first
Kejimkujik
in
Restless Legs Syndrome
5 months ago
Results of 14 day trial.
20 days ago I started a 14 days trial of 1.5 mg of methylcobalamin and 0.5 mg adenosylcobalamin 5 times a day and setting an alarm to inject in the night. The result was positive and I am 6 days into another trial which is positive. As expected with improved self treatment I experienced a short up
20 days ago I started a 14 days trial of 1.5 mg of methylcobalamin and 0.5 mg adenosylcobalamin 5 times a day and setting an alarm to inject in the night. The result was positive and I am 6 days into another trial which is positive. As expected with improved self treatment I experienced a short up
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Requesting advise for chronic inflammation and iron deficiency anemia
My wife is having a nagging health issue that is still unidentified, only visible thing is I have chronic inflammation and iron deficiency anemia but my other tests are normal like Ana test, HPLC TEST, LDH, LFT, KFT, cholesterol, thyroid, hba1c and fasting blood suger everything is normal only lower
My wife is having a nagging health issue that is still unidentified, only visible thing is I have chronic inflammation and iron deficiency anemia but my other tests are normal like Ana test, HPLC TEST, LDH, LFT, KFT, cholesterol, thyroid, hba1c and fasting blood suger everything is normal only lower
Orco
in
Women's Health
5 months ago
RLS Blood test results, complex and in French...
Hello everyone. I've just had blood test results back, seeking more info on my chronic / extreme RLS. I was tested for iron panels, inflammation markers, B12 + B9 and a few other things. The results are in French (I live in France) and quite complex. Im posting here in the vague hope that there
Hello everyone. I've just had blood test results back, seeking more info on my chronic / extreme RLS. I was tested for iron panels, inflammation markers, B12 + B9 and a few other things. The results are in French (I live in France) and quite complex. Im posting here in the vague hope that there
Cabinman
in
Restless Legs Syndrome
5 months ago
Loose Woman
Today Colleen talked about fatigue She was told the menopause. Is a vegan. Told pre diabetic type 2 I've emailed loose women as a good platform. Was her B12 tested .? Even if it was tested it should've been stated /discussed on the programme as very relevant to the topic ! Hope I get a reply
Today Colleen talked about fatigue She was told the menopause. Is a vegan. Told pre diabetic type 2 I've emailed loose women as a good platform. Was her B12 tested .? Even if it was tested it should've been stated /discussed on the programme as very relevant to the topic ! Hope I get a reply
Nackapan
in
Pernicious Anaemia Society
5 months ago
PA and Metformin
Hi Brains Trust! As of a visit to my GP this morning, I'm staring down the barrel of Type 2 diabetes and, whilst having already begun to implement a diet/exercise regime, I was wondering what effect metformin might have on my B12 levels as I'm already SI every 2-3 weeks, depending on symptoms. I know
Hi Brains Trust! As of a visit to my GP this morning, I'm staring down the barrel of Type 2 diabetes and, whilst having already begun to implement a diet/exercise regime, I was wondering what effect metformin might have on my B12 levels as I'm already SI every 2-3 weeks, depending on symptoms. I know
Suzibelle
in
Pernicious Anaemia Society
5 months ago
GP discussion re too much B12
I administer my adult daughters B12 monthly due to her having been misdiagnosed with MS and having peripheral neuropathy. Her GP finally agreed to see her face to face but insisted on blood tests first and has now called her in to discuss her high levels!!? She is anxious about the appointment and I
I administer my adult daughters B12 monthly due to her having been misdiagnosed with MS and having peripheral neuropathy. Her GP finally agreed to see her face to face but insisted on blood tests first and has now called her in to discuss her high levels!!? She is anxious about the appointment and I
pinkpaddleboarder
in
Pernicious Anaemia Society
5 months ago
Anyone else been given Aristo Thyroxine
HI, My last lot of Thyroxine is the Brand Aristo. I have not taken it before, so I am giving it a try. I can't take Teva as it makes me very poorly. I had been feeling really good, I had a blood test and got my results the beginning of January and they were okay. I am also not due my next b12
HI, My last lot of Thyroxine is the Brand Aristo. I have not taken it before, so I am giving it a try. I can't take Teva as it makes me very poorly. I had been feeling really good, I had a blood test and got my results the beginning of January and they were okay. I am also not due my next b12
rosie61
in
Thyroid UK
5 months ago
Body Temperature Regulation.
How body temperature regulation made it in the symptoms list of the neurological effects of B12 deficiency I have not yet come across. I have experienced body temperature regulation issues my whole life. It results in mild hypothermia. I am well versed in the physicians and nurses understanding of
How body temperature regulation made it in the symptoms list of the neurological effects of B12 deficiency I have not yet come across. I have experienced body temperature regulation issues my whole life. It results in mild hypothermia. I am well versed in the physicians and nurses understanding of
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Did anyone get leg cramps after b12 injections?
I just started 1/6 of my loading doses on Monday and Monday evening I had muscle twitching and cramps in my legs, they subsided by the morning of Tuesday but I was wondering if anyone found this common after their injections? Also headaches? Thanks!
I just started 1/6 of my loading doses on Monday and Monday evening I had muscle twitching and cramps in my legs, they subsided by the morning of Tuesday but I was wondering if anyone found this common after their injections? Also headaches? Thanks!
Hellaheels
in
Pernicious Anaemia Society
5 months ago
have I over done b12 injections?
I’ve had 3 b12 injections as levels have been a little low. Active b12 119 pmol. Normally have regular periods but now haven’t had one in 6 weeks. Has anyone experienced this? What is the reasoning? Have had sore nipples for 2 weeks too. Not pregnant. If anyone has experienced this. How long did
I’ve had 3 b12 injections as levels have been a little low. Active b12 119 pmol. Normally have regular periods but now haven’t had one in 6 weeks. Has anyone experienced this? What is the reasoning? Have had sore nipples for 2 weeks too. Not pregnant. If anyone has experienced this. How long did
Coolcat12345
in
Pernicious Anaemia Society
5 months ago
EOD on the NHS?
I went for my first 4 weekly B12 injection at my GP surgery today. I was expecting some push back from the nurse but she gave the jab willingly. I asked if many people are getting 4 weekly or more frequent injections. Just 1. Me! I’m a bit of a novelty as everyone else is on 8 or 12 weeks. This
I went for my first 4 weekly B12 injection at my GP surgery today. I was expecting some push back from the nurse but she gave the jab willingly. I asked if many people are getting 4 weekly or more frequent injections. Just 1. Me! I’m a bit of a novelty as everyone else is on 8 or 12 weeks. This
Pa234aw
in
Pernicious Anaemia Society
5 months ago
Been on b12 injections for four months …
And I just went to the cinema for the first time in ten years!! I’ve been so ill (housebound and mostly in bed) for the last ten years with ‘ME’, that I honestly never thought that these would ever be possible again. V sore and tired now, but happy and slightly in shock. Even better, it was a date
And I just went to the cinema for the first time in ten years!! I’ve been so ill (housebound and mostly in bed) for the last ten years with ‘ME’, that I honestly never thought that these would ever be possible again. V sore and tired now, but happy and slightly in shock. Even better, it was a date
Pepperpots302
in
Pernicious Anaemia Society
5 months ago
b12 injection stopped period
I’ve had 3 b12 injections as levels have been a little low. Normally have regular periods but now haven’t had one in 6 weeks. Has anyone experienced this? What is the reasoning? Have had sore nipples for 2 weeks too. Not pregnant. If anyone has experienced this. How long did periods take to come
I’ve had 3 b12 injections as levels have been a little low. Normally have regular periods but now haven’t had one in 6 weeks. Has anyone experienced this? What is the reasoning? Have had sore nipples for 2 weeks too. Not pregnant. If anyone has experienced this. How long did periods take to come
Coolcat12345
in
Thyroid UK
5 months ago
B12 level help
I’ve been having symptoms of low b12 so I got my levels checked. They are 119 pmol. The lab where I got them taken says normal range is 25-170 so they said I am fine and in range but everywhere else states I am deficient and low. I had a b12 injection and instantly felt better. My question is
I’ve been having symptoms of low b12 so I got my levels checked. They are 119 pmol. The lab where I got them taken says normal range is 25-170 so they said I am fine and in range but everywhere else states I am deficient and low. I had a b12 injection and instantly felt better. My question is
Coolcat12345
in
Thyroid UK
5 months ago
Advice needed on thyroxine management
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
SarrahMay
in
Thyroid UK
5 months ago
I find this helpful.
Some do heal with minimal treatment. It is hard as there is no way to know how their life might be different with different treatment. I do not buy into it is established that it is about delay of treatment and or severity of symptoms. There is no basis for stating that as fact although it often
Some do heal with minimal treatment. It is hard as there is no way to know how their life might be different with different treatment. I do not buy into it is established that it is about delay of treatment and or severity of symptoms. There is no basis for stating that as fact although it often
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
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