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Experiences with
Vitamin B12 deficiency
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Fuming, daughter so ill
So was so hopeful before Christmas when daughters Doc suddenly px'd B12 loading doses and referred to Alder Hey for further investigations to cover all bases. After 6 th jab end December was told she would have to wait till end of March for next jab. I had contacted surgery Monday to ask if her next
So was so hopeful before Christmas when daughters Doc suddenly px'd B12 loading doses and referred to Alder Hey for further investigations to cover all bases. After 6 th jab end December was told she would have to wait till end of March for next jab. I had contacted surgery Monday to ask if her next
Polo22
in
Pernicious Anaemia Society
5 months ago
FUMING, Bloody GP's
posting as otherwise I will wind up having a hissy fit. Not really a thyroid issue but just shows how poor the system is. Had a smear December 14th, had had some niggling worries so thought right sort it out. Phoned GP's to ask for signposting to appropriate service. I was told we'll book you in
posting as otherwise I will wind up having a hissy fit. Not really a thyroid issue but just shows how poor the system is. Had a smear December 14th, had had some niggling worries so thought right sort it out. Phoned GP's to ask for signposting to appropriate service. I was told we'll book you in
Polo22
in
Thyroid UK
5 months ago
Rheumy exam/USA major university medical system - disappointed
I have severe RA - much joint damage in hands & feet. Good results with Rinvoq. Yesterday, I visited rheumy for 6 mth visit. I have been suffering with swollen ankles & major chronic fatigue. Tried prednisone, B12 - no relief. Rheumy did no physical exam. I showed her my ankles, hands & feet. She
I have severe RA - much joint damage in hands & feet. Good results with Rinvoq. Yesterday, I visited rheumy for 6 mth visit. I have been suffering with swollen ankles & major chronic fatigue. Tried prednisone, B12 - no relief. Rheumy did no physical exam. I showed her my ankles, hands & feet. She
Hisue
in
NRAS
5 months ago
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Advice on recent tests please
Hi I've just had my results of recent tests back as follows:T4 14.5 pmol/L range 9 - 19 pmol/L TSH 5.3 miu/L range 0.35 - 4.94 miu/L Previous from 4 Dec 2023 T4 10.5 TSH 6.9 Had a text message from the surgery saying thyroid levels are improving test again in 2 to 3 months. Advice on next steps
Hi I've just had my results of recent tests back as follows:T4 14.5 pmol/L range 9 - 19 pmol/L TSH 5.3 miu/L range 0.35 - 4.94 miu/L Previous from 4 Dec 2023 T4 10.5 TSH 6.9 Had a text message from the surgery saying thyroid levels are improving test again in 2 to 3 months. Advice on next steps
Cabbages123
in
Thyroid UK
5 months ago
Active b12 levels normal - can it still be PA??
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
Buying Hydroxocobalamin in Spain
Hello, my GP did allow me a prescription (usually an annual one) but this time on 5 ampoules.. oh well. I'm off to Gran Canaria tomorrow, paddle boarding! I wonder if B12 can be bought OTC there? If I don't have enough B12, I become wobbly and fall of my board ;)
Hello, my GP did allow me a prescription (usually an annual one) but this time on 5 ampoules.. oh well. I'm off to Gran Canaria tomorrow, paddle boarding! I wonder if B12 can be bought OTC there? If I don't have enough B12, I become wobbly and fall of my board ;)
pinkpaddleboarder
in
Pernicious Anaemia Society
5 months ago
B12 or Menopause?
In Dec I was diagnosed with B12 deficiency <148 and low folate <2.2. I had 6 loading doses into the beginning of January plus a month of folic acid and felt better quite quickly. Since then I have felt worse again so I had another blood test last week. My b12 is now 559 which is normal and folate is
In Dec I was diagnosed with B12 deficiency <148 and low folate <2.2. I had 6 loading doses into the beginning of January plus a month of folic acid and felt better quite quickly. Since then I have felt worse again so I had another blood test last week. My b12 is now 559 which is normal and folate is
UpsyDaisy2
in
Pernicious Anaemia Society
5 months ago
CKD 2/low WBC count
Recent labs indicate low wbc. Feeling dizzy, lightheaded, more fatigued than usual, headache, palpitations, more insomnia. BP has fallen to 100/60, p 50-60's. Have held bp med couple times for too low bp.Read that leukopenia and B-12 deficiency can contribute to Anemia. All other labs good. Still considered
Recent labs indicate low wbc. Feeling dizzy, lightheaded, more fatigued than usual, headache, palpitations, more insomnia. BP has fallen to 100/60, p 50-60's. Have held bp med couple times for too low bp.Read that leukopenia and B-12 deficiency can contribute to Anemia. All other labs good. Still considered
Dana66CKD
in
Kidney Disease
5 months ago
Has Anyone Watched The Film?
Whilst looking online elsewhere at B12 issues I came across a film (American) which on further investigation was a dramatisation of Sally Pacholok’s book ‘It Could Be B12’. The film was simply called ‘Sally Pacholok’. It’s on YouTube. It wouldn’t have won any Oscars but it still does a good job of
Whilst looking online elsewhere at B12 issues I came across a film (American) which on further investigation was a dramatisation of Sally Pacholok’s book ‘It Could Be B12’. The film was simply called ‘Sally Pacholok’. It’s on YouTube. It wouldn’t have won any Oscars but it still does a good job of
B12again
in
Pernicious Anaemia Society
5 months ago
I have ALL of the symptoms of PA and it is ruining my life. My GPs won't look further.
Hello, I have been suffering for a year with all of the symptoms of PA. My b12 levels have fallen from 550 to 280 within a year... my b12 tests come back low normal or normal and my GP doesn't believe me that I could still have PA - in the form of a functional b12 deficiency. They have been SO quick
Hello, I have been suffering for a year with all of the symptoms of PA. My b12 levels have fallen from 550 to 280 within a year... my b12 tests come back low normal or normal and my GP doesn't believe me that I could still have PA - in the form of a functional b12 deficiency. They have been SO quick
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
NHS in NI
There are some on here who are absolutely brilliant at advice. . . . Bookish, Narwhal just two of so many who take the time to answer often the same queries over and over. . . . . God Bless all here if it makes any odds. . . . . . The help I have received here has been a godsend But I know NI
There are some on here who are absolutely brilliant at advice. . . . Bookish, Narwhal just two of so many who take the time to answer often the same queries over and over. . . . . God Bless all here if it makes any odds. . . . . . The help I have received here has been a godsend But I know NI
OldmanD
in
Pernicious Anaemia Society
5 months ago
B12 order
Just thought I'd post this info,....All suppliers I tried today were out of the Panpharma b12 Depot ( Hydroxocobalamin ) so, I've ordered Panpharma Cynocobalamin from Apohealth .I was amazed how easy it was to pay them with PayPal plus delivery was only €4.22.....it quoted 3-5days delivery.....fingers
Just thought I'd post this info,....All suppliers I tried today were out of the Panpharma b12 Depot ( Hydroxocobalamin ) so, I've ordered Panpharma Cynocobalamin from Apohealth .I was amazed how easy it was to pay them with PayPal plus delivery was only €4.22.....it quoted 3-5days delivery.....fingers
WWWJAN
in
Pernicious Anaemia Society
5 months ago
10yo daughters results…HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Pernicious Anaemia Society
5 months ago
10yo daughters results HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Thyroid UK
5 months ago
Help please
Hi can anyone tell me....is there a difference between Hevert hydroxocobalamin B12 depot and Hevert B12 depot hydroxocobalamin acetate ....I am looking to place an order..thanks
Hi can anyone tell me....is there a difference between Hevert hydroxocobalamin B12 depot and Hevert B12 depot hydroxocobalamin acetate ....I am looking to place an order..thanks
WWWJAN
in
Pernicious Anaemia Society
5 months ago
B12 expiry date
I ordered from Germany last year, not realising the expiry date. I have 2 boxes of 10 ampoules that expired December 2023.. 😕 can I still use them.On a positive note I took a chance to call my GP surgery for a prescription it must be my lucky year, they said yes!! I had previously saved conversations
I ordered from Germany last year, not realising the expiry date. I have 2 boxes of 10 ampoules that expired December 2023.. 😕 can I still use them.On a positive note I took a chance to call my GP surgery for a prescription it must be my lucky year, they said yes!! I had previously saved conversations
pinkpaddleboarder
in
Pernicious Anaemia Society
5 months ago
Curious. . . . . Cobalamin Germany
I see people regularly ask where to get Cobalamin injectables and I see pharmacies mostly in Germany I also see all kinds of instructions about how to get the delivery address correct which seems a bit of an uphill battle for some I use Amazon.de. . . . . . Am I the only one . . . . Am I paying
I see people regularly ask where to get Cobalamin injectables and I see pharmacies mostly in Germany I also see all kinds of instructions about how to get the delivery address correct which seems a bit of an uphill battle for some I use Amazon.de. . . . . . Am I the only one . . . . Am I paying
OldmanD
in
Pernicious Anaemia Society
5 months ago
Why I now use Methylcobalamin rather than any other form.
I reviewed the medical field's rationale for prescribing whatever form they preferred and found the rationale based on retention times as established by the same method as medication with no regards to effectiveness of healing and therefore not credible. Same with amounts and frequency. It suits them
I reviewed the medical field's rationale for prescribing whatever form they preferred and found the rationale based on retention times as established by the same method as medication with no regards to effectiveness of healing and therefore not credible. Same with amounts and frequency. It suits them
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Alzheimer's drug - Panorama
Has anyone seen the recent Panorama programme on Lecanumab, the latest drug for Alzheimer's? The presenter reveals how the drug causes major side effects and brain enlargement. It is considered a step forward for Alzheimer's treatment but sadly only effective when caught at an early stage. To highlight
Has anyone seen the recent Panorama programme on Lecanumab, the latest drug for Alzheimer's? The presenter reveals how the drug causes major side effects and brain enlargement. It is considered a step forward for Alzheimer's treatment but sadly only effective when caught at an early stage. To highlight
Pickle500
in
Pernicious Anaemia Society
5 months ago
Ferritin and B12D/PA
Some time ago (on this forum?) I read that 80% of PA people had peripheral neuropathy and 20% did not. I have dizziness, brain fog and tinnitus but not PN. I believe the above are related to the central nervous system rather than the peripheral nervous system.What I'm discovering in my case is that the
Some time ago (on this forum?) I read that 80% of PA people had peripheral neuropathy and 20% did not. I have dizziness, brain fog and tinnitus but not PN. I believe the above are related to the central nervous system rather than the peripheral nervous system.What I'm discovering in my case is that the
Orchard33
in
Pernicious Anaemia Society
5 months ago
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