Body Temperature Regulation. - Pernicious Anaemi...

Pernicious Anaemia Society

32,661 members24,044 posts

Body Temperature Regulation.

WIZARD6787 profile image
4 Replies

How body temperature regulation made it in the symptoms list of the neurological effects of B12 deficiency I have not yet come across.

I have experienced body temperature regulation issues my whole life. It results in mild hypothermia.

I am well versed in the physicians and nurses understanding of hypothermia and heat exhaustion which they explain with the glee of a child who can tell the difference between a horse and a cow and now their knowledge is complete.

Just google it and you will be up to speed on their expertise. In practice they confuse hypothermia with exposure and do not trust the measurement of temperature. And there is the feeling that if it is just out of range there license/wonderfulness means they can ignore those that designed the range in all cases.

Makes me angry when checkbox monkeys do not even follow the checkboxes.

Hypothermia is not caused by cold rather than extremes of temperature. It is easier to get hypothermia in the heat.

I have had three instances where I was in the emergency room and the machine was not working. The last time knowing the expertise of scientific measurement by physicians and nurses I asked that my temperature be taken in my ear and was treated with a saline solution. Problem solved. Likely they did not learn anything and went back to their training which they often believe god called them to be trained in that way.

So my issues with body temperature regulation have been solved this winter. 3 mg of B12 5 times a day including setting an alarm to get up in the night and 100 mg of P-5-P.

So this is how I mitigated the under-sulimepentation and non-diagnosis of B12 deficiency.

The result of mild hypothermia is chills with no fever, body aches, stuffy head, dry cough and congestion with little mucus. Feels like if you were to drill a hole in your head and drain it than you would feel better. Like many neurological symptoms this is more likely to happen when I have less light and sun energy and more often at night.

It is often mistaken for a cold. The common cold is caused by a virus and there is no medical evidence there can be any other cause.

No medical evidence means your tests are all within range and your symptoms do not exist or you are mentally ill. This comes from a demographic that has 5 to 3 times the suicide rate of the general population. The reason for such a high rate is they are more wonderful, not that they are ill. According to their self diagnosis.

So the way I mitigated the mild hypothermia in the winter was to get my body warm. Go figure. The best was to walk outside and get cold and then get warm. This is possible above freezing and down to -7 degrees celsius as long as there was not much wind. It is key to be cold, just trying to stay warm was ineffective.

When that was not available I learned to be aware when my body temperature was fluctuating. That is different than being cold although it felt like being cold in the winter.

Taking a hot shower and then getting in bed if done soon enough worked.

I used an electric blanket for an hour sometimes and that was effective.

The key was to stop my body temperature from fluctuating abnormally by being cold then warm. It was not about getting or staying warm!!!!

It was key to know it was happening and not listen to those that preach.

When I stayed outside all day it was not an issue as I got cold then got warm.

As soon as the ice leaves I will write about how I used to mitigate my body temperature in the summer. Hint I get cold then warm in the lake until I became so B12 deficient even a physician could measure it.

It seems to be working out that what I used to do to mitigate the neurological symptoms is now healing. Thing is the effect now is different and not wonderful. I did Tia Chi yesterday and it caused a bit of a down turn which I see has healing eventually.

Mitigating brings relief and now doing the same thing seems to be healing eventually. I pace to heal, not to live my life. Not interested in that methodology.

Related is when my feet got really cold then warm and the nerves came back to transmitting it hurt Not blood flow. I had no idea the pain I experienced was extreme and was not normal until it became normal. In a weird way it is kinda fun.

Written by
WIZARD6787 profile image
WIZARD6787
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Narwhal10 profile image
Narwhal10

Just anatomy Wizard6787,

The lateral spinothalamic tract is responsible for pain and temperature. P.A./B12D can cause demyelination then the fast-conducting myelinated A delta fibres can be impacted. Also, in the cardiovascular system, blood vessels dilate and contract for thermoregulation.

If you tell someone in hot weather to drink a hot drink to cool down, they think you are bonkers but it is the physiology of how a ‘healthy body’ will respond.

Good to hear you have found what works for you.

WIZARD6787 profile image
WIZARD6787 in reply toNarwhal10

I figured that out at age 10. Taught many people since then.

It is more likely the hypothalamus as if it was a demyelination issue my solve would not have any effect.

bookish profile image
bookish

What an incredibly interesting and informative post, thank you. I've been aware of struggling with temperature regulation (feel ill at either extreme and can't always tell which I am - too hot or too cold) since having a partial thyroidectomy, so I thought for years that it was due to that, at least partly. I had other underactive thyroid symptoms but normal tests for most of that time. I also lost the ability to sweat, which has partly resolved, but not back to my early excessive level. Thyroid hormone levels started to drop, to the point where I saw an endo, but by then I'd realised that it was probably also the B12/folate and they had started to go back to acceptable levels with vast amounts of oral supplements. Whilst not quite as cold as I was, it is not by much. Now I have a small fibre neuropathy diagnosis (made with thermal threshold testing) - small A delta and C fibres - so am trying to rule out reversible causes - B12/folate being one possible, especially given my family history. Dr Chandy said that lack of B12 could affect myelin outer of pituitary and therefore produce spurious thyroid levels - sometimes too high, sometimes too low (central/secondary hypo most commonly). As we have had evidence of both hypo and hyper in B12D and PA family members, this interested me. But you are spot on about fluctuation, because that is exactly what I am doing, I cannot regulate. The knowledge that you have managed to resolve this with your regular B12 regime is just brilliant and gives me hope. Meanwhile I shall try to mitigate for cold for a shorter time so that I don't go too far in the opposite direction! Thanks again

WIZARD6787 profile image
WIZARD6787

I mismis-wrote my current trial as the one that resolved my temperature regulation. It actually resolved on 1mg of methylcobalamin and 1mg of adenosylcobalamin with 100 mg of 5-P-5-P.

My current trial I started 5 days ago.

Not what you're looking for?

You may also like...

Body Temperature Regulation

So I was thinking back to earlier in the year prior to my b12d diagnosis (159) when I went from my...

low body temperature

Hello, I have pernicious anaemia (15+ years), I had a B12 injection on Thursday. I've always "felt...

Regulating Body Temperature

Hi all, I've had PA for a year and I also have thyroid issues. Both are being treated...
NJMommy profile image

Temperature

Can someone please give me accurate temperature needed to keep boxes of B12 usable? I keep mine...
jaybirdxNHM profile image

Is it ok to self-inject everyday when starting treatment?

Hello all. Just yesterday I gave myself an injection of B12 - that was my first sslf injection of...
Fleecie profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.