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Provenge Underway
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Pmann
in
Advanced Prostate Cancer
10 months ago
STAGE 1C1 Grade 2
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Kscott10
in
My Ovacome
10 months ago
bile duct cancer
can anyone please tell me what liver enzymes including Ggt are elevated with bile duct cancer?
can anyone please tell me what liver enzymes including Ggt are elevated with bile duct cancer?
Watersk
in
British Liver Trust
8 months ago
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STAGE 1C1 Grade 2
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Kscott10
in
SHARE Ovarian Cancer Support
10 months ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
4 months ago
Prominent pathologist at Johns Hopkins on leave, facing bullying claims, WaPo, by Steve Thompson & Katie Shepherd, 10/22/23
Looks to be another case of professional success breeding professional arrogance and familial preference. Seems to be a lot of that going around these days - in all sectors of society. BTW, as a patient, my fav reader comment to the article is: "tell someone that they make a nice anecdote". * * *
Looks to be another case of professional success breeding professional arrogance and familial preference. Seems to be a lot of that going around these days - in all sectors of society. BTW, as a patient, my fav reader comment to the article is: "tell someone that they make a nice anecdote". * * *
CaptnMojoe
in
Fight Prostate Cancer
10 months ago
tumor in spleen
my husband is having his spleen out very soon due to 2 tumors. We won’t know for sure if they are cancer until pathology done. He had radiation plus Lupron and has been in remission 2 years. 4 + 4 Psa still non detectable. Tumors picked up on pet scan to check kidney. Radiologist has said rare
my husband is having his spleen out very soon due to 2 tumors. We won’t know for sure if they are cancer until pathology done. He had radiation plus Lupron and has been in remission 2 years. 4 + 4 Psa still non detectable. Tumors picked up on pet scan to check kidney. Radiologist has said rare
Ojsm
in
Advanced Prostate Cancer
10 months ago
Nearly 14 years on - time has flown.
On Friday 16th April 2010 I joined the Pernicious Anaemia Society and posted the following: “I was diagnosed with PA back in 1972 consequent upon having had surgery for a peptic ulcer in April 1959 at the tender age of 17. In those days I was not many years from having to be put on a diet of raw liver
On Friday 16th April 2010 I joined the Pernicious Anaemia Society and posted the following: “I was diagnosed with PA back in 1972 consequent upon having had surgery for a peptic ulcer in April 1959 at the tender age of 17. In those days I was not many years from having to be put on a diet of raw liver
clivealive
Forum Support
in
Pernicious Anaemia Society
8 months ago
Death of Dr. Joseph Chandy
Very sad news of the death of Dr. Chandy, who was a hero for his B12 deficient patients . He wrote , with Hugo Minney , a great book “Vitamin B12 deficiency in clinical practice”. ( Doctor , you gave me my life back) He stood up to the medical authorities in order to treat his B12 deficient patients
Very sad news of the death of Dr. Chandy, who was a hero for his B12 deficient patients . He wrote , with Hugo Minney , a great book “Vitamin B12 deficiency in clinical practice”. ( Doctor , you gave me my life back) He stood up to the medical authorities in order to treat his B12 deficient patients
wedgewood
in
Pernicious Anaemia Society
8 months ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
4 months ago
How effective is fenofibrate for itch?
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
Carly92
in
PBC Foundation
8 months ago
Weight, bloating, and itchy arms
After a long, tortuous fight to get diagnosed and treated with/for hypothyroidism, which was achieved almost entirely with the help and info from this forum, I think that my meds are now very close to perfect and my blood test results are continuing to improve. So thank you again to everyone. But I
After a long, tortuous fight to get diagnosed and treated with/for hypothyroidism, which was achieved almost entirely with the help and info from this forum, I think that my meds are now very close to perfect and my blood test results are continuing to improve. So thank you again to everyone. But I
noquitter
in
Thyroid UK
8 months ago
symptoms made clearer
maybe I should make my conditions clearer. intussusception is when the lining of the bowel folds back on itself and makes an inverted U shape which then makes it very difficult for anything to pass through the bowel unless it is very soft, so making constipation or blockages , Like a tyre inner
maybe I should make my conditions clearer. intussusception is when the lining of the bowel folds back on itself and makes an inverted U shape which then makes it very difficult for anything to pass through the bowel unless it is very soft, so making constipation or blockages , Like a tyre inner
Corneater
in
IBS Network
6 months ago
Feeling really low
I posted here a few weeks ago regarding having an MRI for ongoing back pain. The MRI only showed degenerative changes, but also picked up a small lymph gland outside the pelvis. I’ve had to wait 4 weeks for a CT scan and get the results tomorrow. My mind is playing tricks on me I’m thinking the worse
I posted here a few weeks ago regarding having an MRI for ongoing back pain. The MRI only showed degenerative changes, but also picked up a small lymph gland outside the pelvis. I’ve had to wait 4 weeks for a CT scan and get the results tomorrow. My mind is playing tricks on me I’m thinking the worse
Hota
in
My Ovacome
10 months ago
Octasa and Diarrhea
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Sma4fh
in
Crohn's and Colitis Support
8 months ago
Tirosint
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
Da52
in
Thyroid UK
8 months ago
Latest results.
Hi all. I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg. I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasn’t. My B12
Hi all. I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg. I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasn’t. My B12
Kebabalon
in
Thyroid UK
8 months ago
Bronchoscopy
Tomorrow I am having a bronchoscopy and it's obviously necessary since I have lung involvement with my breast cancer. I am having a little anxiety about this procedure. I have a DVT under my left armpit where one of the cancer mass is with numerous blood clots. The surgeon said I will be asleep. Can
Tomorrow I am having a bronchoscopy and it's obviously necessary since I have lung involvement with my breast cancer. I am having a little anxiety about this procedure. I have a DVT under my left armpit where one of the cancer mass is with numerous blood clots. The surgeon said I will be asleep. Can
monkeygirl62
in
SHARE Metastatic Breast Cancer
10 months ago
what is this exactly. ?
hi there. I have experienced the most intense pain ever to my righ thigh eventually spreading to my left leg also. I’m October 23 Doctors decided to fit a 7 inch titanium rod to the right femur as they believe that will provide support to the cancerous leg. I continue to have pain from the femur
hi there. I have experienced the most intense pain ever to my righ thigh eventually spreading to my left leg also. I’m October 23 Doctors decided to fit a 7 inch titanium rod to the right femur as they believe that will provide support to the cancerous leg. I continue to have pain from the femur
db1966
in
Advanced Prostate Cancer
10 months ago
Thank you
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
PWT1
in
My Ovacome
4 months ago
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