Tirosint

[Da52]

I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause.

I see that Tirosint is quite pure but not sure if this can be sourced in the UK.

can anyone give me information on this please.

i have been tested gif coeliac but it was negative. I am experiencing lots of gut issues and am reacting to lots of foods.

[helvella Administrator Thyroid UK]

Tirosint (and Tirosint SOL) are not usually available in the UK.

It is technically possible to prescribe them - but they would be "Specials" and likely cost a fortune. (By which, I mean several hundred pounds for 28 capsules. More than the $250 or so it would cost to buy from the USA privately!)

There is a considerable amount of glycerol in the current liquid products - 3780 milligrams per 5 millilitre medicine spoonful. Although not in itself harmful, that can have a significant effect on the digestive system, microbiome, etc. They also contain preservatives (which the Tirosint products do not).

The least expensive way of getting hold of Tirosint would appear to be if you you could get a prescription written by a doctor with prescribing rights in, say, Germany. (Not a UK prescription which is no longer recognised in EU countries.) You could then obtain products from a German pharmacy at German retail prices. But that would all be private - not NHS.

helvella's medicines documents (UK and Rest of the World) can be found here:

helvella - Thyroid Hormone Medicines

helvella has created, and tries to maintain, documents containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world.

This link takes you to a page which has direct links to the documents from Dropbox and Google Drive, and QR codes to make it easy to access from phones.

The UK document contains up-to-date versions of the Summary Matrix for tablets, oral solutions and liothyronine available in the UK.

helvella.blogspot.com/p/hel...

[Da52 in reply to helvella]

How would I source a doctor and prescription Tirosint in Germany? Thanks

[helvella Administrator Thyroid UK in reply to Da52]

I suspect you can't - or it would be very difficult. But a small number of doctors practising in the UK do have German prescribing rights.

However, I do not know any of them, nor how you would even start to find one.

If you do find one, there are many, many German pharmacies who supply the UK but since brexit it has not been as straightforward.

Indeed, if a private prescription is even something you might be able to get, Roseway or another pharmacy might be able to help:

thyroiduk.org/get-support/t...

(Roseway even offer a prescribing service. But don't get too excited - they are very above board and careful and the cost might be more than you can manage.)

[Fusk1 in reply to Da52]

Just take a trip to Greece, you can take as many as you want without prescription....I just don't know how you can take them with you back to the UK......

[helvella Administrator Thyroid UK in reply to Fusk1]

Fusk1,

How much does Tirosint cost in Greece?

Do you also get Tirosint SOL?

It is legal for individuals in the UK to buy and bring in most medicines (except Controlled Drugs) for their own use.

There is no legal limit on quantity but you can imagine customs querying large amounts based on suspicion of supplying others.

helvella - Personal Importation of Prescription-only Medicines

Details of the legal and cost issues that apply to personal importation of medicines.

helvella.blogspot.com/p/hel...

[Fusk1 in reply to helvella]

I take tirosint 100μg and it costs 8, 37 euros. I usually take it without prescription cause it's cheaper than be prescribed by my endo and have to pay for the visit.

[Fusk1 in reply to Fusk1]

I just take the capsules, I'm not sure if tirosint SOL is available in Greece....

[Fusk1 in reply to Fusk1]

I just take the capsules, I'm not sure if tirosint SOL is available in Greece....

[helvella Administrator Thyroid UK in reply to Fusk1]

Thank you.

Every country for which I have seen prices, they are the same for every dosage!

[helvella Administrator Thyroid UK in reply to helvella]

Just checked prices in one pharmacy in Germany - and while they are close to the same for all dosages - they do vary few percent.

[Da52 in reply to Fusk1]

Thanks

[LucyYoga in reply to Da52]

I have a great thyroid specialist based in Ireland with European prescribing licence- I get my Thybon T3 from a pharmacy in Germany that o send his prescriptions to. I can pm you his details if you like…

[Da52 in reply to LucyYoga]

Thanks, how would that work for me in England, is he a private specialist?

[LucyYoga in reply to Da52]

I live in UK - he is private and consults via zoom

[Da52]

is it Tirosint you have Lucy?