symptoms made clearer

[Corneater]

maybe I should make my conditions clearer. intussusception is when the lining of the bowel folds back on itself and makes an inverted U shape which then makes it very difficult for anything to pass through the bowel unless it is very soft, so making constipation or blockages , Like a tyre inner tube going inside itself. (Or so I’ve been told). A rectocoele is a prolapse of the rectum (the end part of the bowel) which makes it bulge and where the poo can get stuck unless it’s very soft. Sorry, I should have made this clearer, but I’d be really interested to hear if anyone else has these problems.

[Gold22]

Hi I have a rectocele due to giving birth. It makes opening my bowels very difficult unless like you say it is very soft but even then soft poo can get stuck in the bulge and irritate all day. A pelvic physio told me to push against the area between the rectum and the vagina when opening my bowels this does help.

[Corneater in reply to Gold22]

Thanks for the reply Gold 22. I’ve tried that exercise and sometimes it works but not always. I have enemas every other day which is the only way I can go and which a bowel specialist put me on. All 3 of my conditions stop me “going” and it seems this method is all I can do. Certainly not ideal but I’m thinking better than a colostomy bag which a specialist also suggested. I do sometimes have days when I feel ok but am much weaker than I ever was. Hope your exercises continue to help.

[edwangy]

I have exactly the same, plus severe narrowing of colon due to divericular disease. I have to take linoclotide every morning so I can ' go' but it gives me watery stools and cramps . I have no alternative, docs won't operate saying surgery could make it worse, I think I've just been fobbed off because of huge waiting lists

[Corneater in reply to edwangy]

Hi Edwangy, sorry to hear you have the same problems. I’ve been told by a bowel surgeon that she’d never perform the surgery for rectocoele again as it left her patient in permanent pain for life! So I’m not pushing it. I think when there’s more than one thing wrong in the bowel it’s a nightmare to try and get it right. I have been put on an enema system which I do every other day and so can sometimes have near normal days but I’m very tired most of the time but also I can’t sleep because of anxiety as I have pancreatic cysts so tiredness probably due to this. I’ve tried Linaclotide as well but my guts still filled up and after 5 days of nothing moving I had to have laxido and enema again as I was so scared of getting blocked again.

[edwangy in reply to Corneater]

Horrible isn't it. Problem with me is I am in permanent pain anyway, I can't sleep at night either so I'm always exhausted. I just wish I could have one day without pain, no painkillers work.

[loveyourbunny]

Oh yes I do. I remember straining one day, many years ago, when I felt something 'pop' in my right iliac fossa. There was instant pain and I knew then that I had done some damage. I checked the web and found interception . I also have a rectocele so I can feel for you.I don't deal with the Doctors anymore as I find all they do is offer some chemical med which rarely deal with the cause, and often more problems arise after surgical interventions. Worrying too much, and stressing out trying to get help from the NHS etc exacerbates most conditions anyway. Having to take toxic 'chemicals forever damages kidneys, liver and immune system. Most plant medications are not toxic and are well tolerated with no side effects. Worrying, fear and continual stress situations are the real killer and made me so much worse over the years I have now given up. I don't think they want to cure anything because they would run our of patients and the drugs companies would go out of business, they are the real culprits I fear. Hope this doesn't offend anyone! 80 yrs retired herbalist and psychology counsellor. PS I also use medical astrology which is fantastic for individual diagnoses. Kay

[Corneater in reply to loveyourbunny]

Thanks for that love your bunny. I agree entirely with everything you say. I’ve also been prescribed loads of meds which make things worse. I’m now trying to see a nutritionist who has been recommended to me. It will cost me but what is more valuable than your health? I used to have an excellent GP who listened to me for an hour once! I couldn’t believe how much he was trying to sort me out, but he’s now left the practice and gone to work abroad so I’m back to just having IBS according to the other GPs. The good one referred me for a full body scan where they eventually found pancreatic cysts. (IPMNs in the branch duct) and these worry me. I think I accept my bowel condition now and just get on with the enemas, though I wish things were different. My local hospital who did the first scan weren’t going to do any follow up MRCPs for this but I pushed and was very upset so now I should have a further scan in October and also a phone consultation with a gastroenterologist which will be the first I’ve had since this trouble started. I just don’t want pancreatic cancer (does anybody!). I know that worrying is the worst thing for me and I try to be proactive but sometimes I’m just too exhausted and then it’s a downward spiral. I’m only on Laxido and Mintec now as meds (oh and also Ovestin HRT cream twice weekly) and drink lots of herbal teas including Matcha green. I welcome any advice you may have.

[kay-os]

i will happhappilly give you all I know and have found out re body health can you email me at [e-mail]

[Corneater in reply to kay-os]

No offence love your bunny, but I’d rather not give my e mail address as it could open me up to contacts I don’t want. Could you not put your info on this secure site. Thanks anyway

[loveyourbunny]

Sorry for delay in reply. I am very disabled now COPD on oxygen all the time. and it takes much energy typing any way. My 'alternative' approach to health, disease etc doe not always please authorities and has often been 'wiped' . We are monitored I believe and that's why I prefer private email. . Your response re using my email tells me that may be you are too fearful to take any advice I may offer, and I can't spend the energy for nothing. I live alone no family and no physical help anywhere. NHS shut me out because of what I know. Bad times for many now and I believe that fear was the real virus. I refused vaccination and I didn't get the disease. Stress and struggle with life as it has become and no help is 'killing' me. Remember what it was like when we were young! None of the can't do this, can't say that stuff. Well I can and I do😁😂. Good luck

[Corneater in reply to loveyourbunny]

Sorry for my delay in replying. I am so sorry to hear of your circumstances and understand your reluctance to expressing your self on this site. I will possibly contact you by e -mail eventually. I’ve taken so long to reply because I too have had a very bad week. I took some valerian and camomile tea (an ordinary supermarket tea bag) a week ago and still have not recovered from it. Although I still woke in the night during the day it made me very very sleepy. I thought that at least it worked so I had another mug the following night. I certainly slept then and couldn’t wake up. I tried to go out with my husband to try and walk it off but it was impossible. I am very slowly getting over it and having googled the side effects of valerian I find it can affect a very small percentage of people in this way. I then asked google if people with Ehlers Danlos can be affected with bad reactions to “medications” as I react badly to many drugs that aren’t supposed to give side effects and lo and behold it seems EDS people are much more susceptible to being intolerant of drugs. I now have to convince a GP of my findings. I was diagnosed with EDS in 2017 but the doctor who diagnosed me has since retired. I am now on the almost impossible quest of trying to get a DNA test for this as I know EDS, in one of its many forms, can affect the gut. I have tried a few drugs given to me by the original doctor I saw but they made me worse and I’ve had no more advice/tests regarding EDS since 2017/18. There looks to be only 2 centres in the country who may be able to help with this with a 12 month waiting list for a first appointment. One of the symptoms of EDS is chronic fatigue and I’ve had this for years. I’m sorry you’re not getting any physical help and feel you must be entitled to some. Do try again to get some help, surely they cannot refuse you with COPD.