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Feeling a little disillusioned about TTFD and High Dose Thiamine (HDT):
My opinion: You can watch videos that say other B1’s are better; they are more powerful; they cross the BBB; etc. but you cannot find much (if any) info on long-term positive results [success stories]. Best to leave Benfothiamine, TTFD, Sulbutiamine, etc. alone and stay with what works for other people
My opinion: You can watch videos that say other B1’s are better; they are more powerful; they cross the BBB; etc. but you cannot find much (if any) info on long-term positive results [success stories]. Best to leave Benfothiamine, TTFD, Sulbutiamine, etc. alone and stay with what works for other people
Gcf51
in
Cure Parkinson's
9 months ago
Facet joints
Hi,I recently went to see a consultant. I have a.10 year history of l5/s1 disc protrusion. Pain has changed the last few years and has been more in the facet joints. I have had 2 lots of facet injections over the last 2 years however had a bad flare up about 5 months ago which I am still recovering
Hi,I recently went to see a consultant. I have a.10 year history of l5/s1 disc protrusion. Pain has changed the last few years and has been more in the facet joints. I have had 2 lots of facet injections over the last 2 years however had a bad flare up about 5 months ago which I am still recovering
AMS_1
in
Pain Concern
3 months ago
v non-invasive treatment may offer significant relief to and restore gait function in patients with neurological disorders
To this end, the clinical researchers from Japan recruited twenty-three patients with PD or Parkinson’s syndrome. All study participants were randomly assigned to receive either the active treatment or a “sham” treatment that mimics the active treatment but does not offer any therapeutic benefit.
To this end, the clinical researchers from Japan recruited twenty-three patients with PD or Parkinson’s syndrome. All study participants were randomly assigned to receive either the active treatment or a “sham” treatment that mimics the active treatment but does not offer any therapeutic benefit.
Farooqji
in
Cure Parkinson's
10 months ago
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iron lab results 10 weeks post iron infusion
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
SleeplessinNC
in
Restless Legs Syndrome
3 months ago
WARNING: LIoyds_Direct_
I just received an email which appeared to be from
LIoyds_Direct_
The subject: [i]
Take control of your NHS prescriptions, with free delivery or collection
[/i] I have included an image of how the email looks in my email program (Outlook). This is some form of scam or malware delivery.
I just received an email which appeared to be from
LIoyds_Direct_
The subject: [i]
Take control of your NHS prescriptions, with free delivery or collection
[/i] I have included an image of how the email looks in my email program (Outlook). This is some form of scam or malware delivery.
helvella
Thyroid UK
in
Thyroid UK
8 months ago
Heartened to know I am not alone in the struggles caused by pramipexole
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
SleeplessinNC
in
Restless Legs Syndrome
3 months ago
VENETOCLAX-RITUBIMAX SIDE EFFECTS
Has anyone experienced neurological side effects, like some
loss
of
vision
, feeling shaky, chills, and poor coordination while writing, after the second infusion of RITUBIMAX? Please describe as I am paniqued about such unexpected experiences. THANK YOU 🤔
Has anyone experienced neurological side effects, like some
loss
of
vision
, feeling shaky, chills, and poor coordination while writing, after the second infusion of RITUBIMAX? Please describe as I am paniqued about such unexpected experiences. THANK YOU 🤔
unairdefamille
in
CLL Support
5 months ago
Narrow angles
The optician worried me alot by said sudden clouser would lead to
vision
loss
.
The optician worried me alot by said sudden clouser would lead to
vision
loss
.
AmberAmbi128
in
Glaucoma UK
1 year ago
My journey
I wanted to share some things that have helped me over the years since my weight loss surgery in 2017. When I started this journey I had ballooned to 312 pounds on my 5'7" Frame. I was, and still am, an emotional eater...struggle with it every day.....what I've found that has helped me the most is
I wanted to share some things that have helped me over the years since my weight loss surgery in 2017. When I started this journey I had ballooned to 312 pounds on my 5'7" Frame. I was, and still am, an emotional eater...struggle with it every day.....what I've found that has helped me the most is
mizzou7016
Visitor
in
Weight Loss Support
6 months ago
Advice
I am 65, recently diagnosed, no C/L medication so far. I just read this, An anticholinergic medication may be recommended to reduce symptoms of bothersome tremor in people with Parkinson disease under age 70 who do not have significant akinesia or difficulty walking. There are several anticholinergic
I am 65, recently diagnosed, no C/L medication so far. I just read this, An anticholinergic medication may be recommended to reduce symptoms of bothersome tremor in people with Parkinson disease under age 70 who do not have significant akinesia or difficulty walking. There are several anticholinergic
Patitou
in
Cure Parkinson's
10 months ago
Denosumab vs Bisphosphonates
Dear all, I will keep this brief so that I don't bore anyone! I am 55 yr female, and to my horror, fractured T12 out of the blue one morning two and a half years ago. Little did I think it was a fracture, so I walked and went to the gym for 4 days. This is with evolving neurological signs. Anyway,
Dear all, I will keep this brief so that I don't bore anyone! I am 55 yr female, and to my horror, fractured T12 out of the blue one morning two and a half years ago. Little did I think it was a fracture, so I walked and went to the gym for 4 days. This is with evolving neurological signs. Anyway,
emersee
in
Bone Health and Osteoporosis UK
4 months ago
Different is good
Hello everyone, (sorry this is a long one) I have been a little silent on here as I'm trying to take a break from everything social media, if you will. It's been so many years since I've felt like "me" that I don't even know what that means anymore. The past few years I have grown to be okay with just
Hello everyone, (sorry this is a long one) I have been a little silent on here as I'm trying to take a break from everything social media, if you will. It's been so many years since I've felt like "me" that I don't even know what that means anymore. The past few years I have grown to be okay with just
mosti001
in
Anxiety and Depression Support
7 months ago
bariatric surgery
I’m having bariatric surgery in January. I’m currently on a high dose of levothyroxine (175mcg] and am wondering how I keep track of appropriate dosage when losing a stone a month.
I’m having bariatric surgery in January. I’m currently on a high dose of levothyroxine (175mcg] and am wondering how I keep track of appropriate dosage when losing a stone a month.
Emuflea
in
Thyroid UK
7 months ago
Sacroiliac joint fusion
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
eeeee
in
Pelvic Pain Support Network
5 months ago
Bariatric surgery, what do you think?
I've been thinking about doing a stomach reduction surgery (gastric sleeve) because I can't lose weight. Since I have problems with my thyroid (RAI ablation in 2012) I gained 25 kg(90 kg in the past and now I've 115/1,87 cm)), I have tried all the treatments(ndt, synthetic) that have not yielded results
I've been thinking about doing a stomach reduction surgery (gastric sleeve) because I can't lose weight. Since I have problems with my thyroid (RAI ablation in 2012) I gained 25 kg(90 kg in the past and now I've 115/1,87 cm)), I have tried all the treatments(ndt, synthetic) that have not yielded results
adin
in
Thyroid UK
7 months ago
Anyone had spinal fusion on T10-12?
I have severe osteoporosis and kyphosis from breaking T10-T12 and wondered if anyone has had this? They're recommending a spinal fusion to fix this or otherwise to live in a brace forever hoping the kyphosis curve won't progress any more than it already has. I'm wondering which is the better option if
I have severe osteoporosis and kyphosis from breaking T10-T12 and wondered if anyone has had this? They're recommending a spinal fusion to fix this or otherwise to live in a brace forever hoping the kyphosis curve won't progress any more than it already has. I'm wondering which is the better option if
Hidden
in
Pain Concern
6 months ago
remission then Rituxan again
I have had RA for 23 years. I actually went into remission 3 1/2 years ago and stopped Rituxan and methotrexate during that time. Then I get my second Covid and the Ra returned. I am back on Rituxan but it doesn’t seem to be slowing the Rituxan. Since I have not had the drugs in my body how long
I have had RA for 23 years. I actually went into remission 3 1/2 years ago and stopped Rituxan and methotrexate during that time. Then I get my second Covid and the Ra returned. I am back on Rituxan but it doesn’t seem to be slowing the Rituxan. Since I have not had the drugs in my body how long
Marycullen
in
NRAS
11 months ago
Does spinal fusion help take away severe pain from kyphosis due to broken vertebrae? (T10-T12)
My doctor is saying that I need to get a spinal fusion because I broke T10 through T12 back in 2011 so over 12 years ago and it is caused severe phasis due to my osteoporosis and from never getting it surgically dealt with at the time. I'm working on getting my bones stronger and he saying that if I
My doctor is saying that I need to get a spinal fusion because I broke T10 through T12 back in 2011 so over 12 years ago and it is caused severe phasis due to my osteoporosis and from never getting it surgically dealt with at the time. I'm working on getting my bones stronger and he saying that if I
Hidden
in
Pain Concern
6 months ago
DEGENERATIVE DISC DISEASE, FORAMINA STENOSIS, FAILED BACK SURGERY
Helo, can anyone advise me on the way forward. I have a degeneration disc at L5S1 which herniated massively. I was having severe lower back pain and some nerve pain in the right leg. I had a discectomy surgery in 2016. After the surgery, my back pain got worse and i started having bilateral tingling
Helo, can anyone advise me on the way forward. I have a degeneration disc at L5S1 which herniated massively. I was having severe lower back pain and some nerve pain in the right leg. I had a discectomy surgery in 2016. After the surgery, my back pain got worse and i started having bilateral tingling
Nnabuike
in
Pain Concern
6 months ago
Vitamin D dosing advice on this website
Hi All, I have only in the last year picked up on the need to build beyond the most basic levels of vit D - my blood test in March 2023 showed a level of 50 which is not seen as problematic but insufficient for optimal health. I have read the advice here which seems very sound and there is a lot of
Hi All, I have only in the last year picked up on the need to build beyond the most basic levels of vit D - my blood test in March 2023 showed a level of 50 which is not seen as problematic but insufficient for optimal health. I have read the advice here which seems very sound and there is a lot of
Danielj1
in
Thyroid UK
7 months ago
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