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AMD - Cancelled Injections, Sight Deteriorated, Visit Hospital VS Covid19
Hi Mum is 90 years old with Glaucoma and AMD Her sight has deteroriated in last 4 weeks. Trying to weigh up the risks of not seeing a specialist VS risk of Covid19. She has a lung condition - hence is very unlinkely to survive covid19 She was diagnosed with Glaucoma and AMD about 4 years ago Taking drops
Hi Mum is 90 years old with Glaucoma and AMD Her sight has deteroriated in last 4 weeks. Trying to weigh up the risks of not seeing a specialist VS risk of Covid19. She has a lung condition - hence is very unlinkely to survive covid19 She was diagnosed with Glaucoma and AMD about 4 years ago Taking drops
ColinKin
in
Macular Society
4 years ago
Egg Freezing / Fertilty Advice?
Hi everyone. I've recently been diagnosed with endo via ultrasound/MRI. Considered to be stage 4, including large bilateral endometriomas. My treatment was delayed by Covid-19 so I am awaiting cystectomy etc. My AMH levels when tested were I believe just within 'acceptable' range, but I am aware surgery
Hi everyone. I've recently been diagnosed with endo via ultrasound/MRI. Considered to be stage 4, including large bilateral endometriomas. My treatment was delayed by Covid-19 so I am awaiting cystectomy etc. My AMH levels when tested were I believe just within 'acceptable' range, but I am aware surgery
Noodle31
in
Fertility Network UK
4 years ago
Avastin
I have been on carboplatin paclitaxel and bevacizumab had surgery after 3cycles once recovered from surgery had another 3 cycles starting next week I will be on bevacizumab only every 3 weeks otherwise known as avastin. CT scan booked for May don't know if I ned yet. My question is to others similar
I have been on carboplatin paclitaxel and bevacizumab had surgery after 3cycles once recovered from surgery had another 3 cycles starting next week I will be on bevacizumab only every 3 weeks otherwise known as avastin. CT scan booked for May don't know if I ned yet. My question is to others similar
Madmolly
in
My Ovacome
4 years ago
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Food parcels
Good morning. I have registered with the Government website and they have given my name to the supermarkets and so ASDA have now given me a regular weekly home delivery slot. Great. However, the government site must link into these weekly food parcels that DEFRA are doing and so today I've had a box
Good morning. I have registered with the Government website and they have given my name to the supermarkets and so ASDA have now given me a regular weekly home delivery slot. Great. However, the government site must link into these weekly food parcels that DEFRA are doing and so today I've had a box
GinnyE
in
NRAS
4 years ago
Joint flare ups
Hello everyone hope you’re safe and well? My sister and I seem to follow the same patterns heathwise, so we compare notes unfortunately she’s in Devon and I’m in the North East. We are both hypothyroid and she takes 175 thyroxine per day and I 150. It seems to be more or less right. BUT we both have
Hello everyone hope you’re safe and well? My sister and I seem to follow the same patterns heathwise, so we compare notes unfortunately she’s in Devon and I’m in the North East. We are both hypothyroid and she takes 175 thyroxine per day and I 150. It seems to be more or less right. BUT we both have
Trying-hard
in
Thyroid UK
4 years ago
Sjögren’s syndrome?
Just wondering if anyone has any experience of Sjögren’s syndrome? I was diagnosed ( due to symptoms, high CRP and rapid response to steroids) with GCA in January of this year. I have been tapering for the last 2 months or so. During this time I’ve also been diagnosed with glaucoma - I went to the optician
Just wondering if anyone has any experience of Sjögren’s syndrome? I was diagnosed ( due to symptoms, high CRP and rapid response to steroids) with GCA in January of this year. I have been tapering for the last 2 months or so. During this time I’ve also been diagnosed with glaucoma - I went to the optician
Phoenix51
in
PMRGCAuk
4 years ago
EMDR App ?
I know one is not supposed to do EMDR on their own, but does anyone know of any online apps that can be used while this pandemic is going on? Thanks.
I know one is not supposed to do EMDR on their own, but does anyone know of any online apps that can be used while this pandemic is going on? Thanks.
Hidden
in
Heal My PTSD
4 years ago
Positive hospital experience.
I just wanted to write a POSITIVE comment. I live in a rural area where there are not many cases of Covid 19 I know but last night I had to go to NHS 24 at the local hospital because of a sore eye and sore jaw and I was very aware that having polymyalgia it could be GCA. The place was empty- the staff
I just wanted to write a POSITIVE comment. I live in a rural area where there are not many cases of Covid 19 I know but last night I had to go to NHS 24 at the local hospital because of a sore eye and sore jaw and I was very aware that having polymyalgia it could be GCA. The place was empty- the staff
Bubble56
in
PMRGCAuk
4 years ago
Energy Boost L-Lysine
The question is L-Lysine 1000mg , Is it harmful with ADT (Lupron) . I am at .7 PSA with T-10 . Will it give me extra energy before a work out ?Is anybody using it ? Thank you
The question is L-Lysine 1000mg , Is it harmful with ADT (Lupron) . I am at .7 PSA with T-10 . Will it give me extra energy before a work out ?Is anybody using it ? Thank you
Sun1115
in
Advanced Prostate Cancer
4 years ago
COVID-19 and Immune System Disorders
I had my quarterly visit with my neurologist as "telemedicine" last Friday. It was a bit challenging as the technology was quite buggy on both sides, but we were finally able to do it with her seeing me and me just hearing her. I told her that my husband and I both had the virus and were amongst the
I had my quarterly visit with my neurologist as "telemedicine" last Friday. It was a bit challenging as the technology was quite buggy on both sides, but we were finally able to do it with her seeing me and me just hearing her. I told her that my husband and I both had the virus and were amongst the
elaineinqueens
in
My MSAA Community
4 years ago
Blurred vision.
Hiya everybody. Last week (Sunday) I was playing on my PlayStation which I haven’t done for a few years as when I did play on a game concentration was difficult and fatigue would take over in the early years of my recovery.. anyway.. I was playing for a couple of hours in my bedroom and decided to
Hiya everybody. Last week (Sunday) I was playing on my PlayStation which I haven’t done for a few years as when I did play on a game concentration was difficult and fatigue would take over in the early years of my recovery.. anyway.. I was playing for a couple of hours in my bedroom and decided to
Wazza84
in
Headway
4 years ago
Blepharitis
Hi I'm new to the site but have had SLE for 35 years. Recently been diagnosed with blepharitis which my lovely optician thought might be linked to my SLE. Has anyone else got this irritating (in so many ways) condition which is aggravated at the moment by the tree pollen. I am using Hycosan Extra eye
Hi I'm new to the site but have had SLE for 35 years. Recently been diagnosed with blepharitis which my lovely optician thought might be linked to my SLE. Has anyone else got this irritating (in so many ways) condition which is aggravated at the moment by the tree pollen. I am using Hycosan Extra eye
Larks0ng
in
LUPUS UK
4 years ago
Not mine but thought provoking.
I talked to a man today I talked with a man today, an 80+-year-old man. I asked him if there was anything I can get him while this Coronavirus scare was gripping America. He simply smiled, looked away and said: "Let me tell you what I need! I need to believe in, at some point, this country my generation
I talked to a man today I talked with a man today, an 80+-year-old man. I asked him if there was anything I can get him while this Coronavirus scare was gripping America. He simply smiled, looked away and said: "Let me tell you what I need! I need to believe in, at some point, this country my generation
TexasLawman
in
My MSAA Community
4 years ago
Wrinkly and " Jagged looking lips"
Hello all, trust you're all keeping well and staying safe☺️! Is there anyone out there who could give me advise on what i could do to my lips. Got both Scleroderma and Raynauds, It all began in 2016. My lips amongst other issues became thinner and wrinkly. Now they are looking so "jagged", and i feel
Hello all, trust you're all keeping well and staying safe☺️! Is there anyone out there who could give me advise on what i could do to my lips. Got both Scleroderma and Raynauds, It all began in 2016. My lips amongst other issues became thinner and wrinkly. Now they are looking so "jagged", and i feel
eembee1
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Double Vision
Aaacckkk! My double vision is driving me crazy. I can see close up but about 1 foot and everything doubles. Had a biopsy done Thurs to verify GCA. The blood test came back inconclusive. Any of you get rid of the double vision?
Aaacckkk! My double vision is driving me crazy. I can see close up but about 1 foot and everything doubles. Had a biopsy done Thurs to verify GCA. The blood test came back inconclusive. Any of you get rid of the double vision?
Hidden
in
PMRGCAuk
4 years ago
Sweet oil
Does anyone know if “sweet oil” dries in your ears or do you have to syringe it out 😭 mines mostly gone but i press a part of my ear and i can feel and hear the stickiness almost like a suction type of noise . And I don’t know if I should just wait it out or just use the hydrogen peroxide and then syringe
Does anyone know if “sweet oil” dries in your ears or do you have to syringe it out 😭 mines mostly gone but i press a part of my ear and i can feel and hear the stickiness almost like a suction type of noise . And I don’t know if I should just wait it out or just use the hydrogen peroxide and then syringe
nicky602279
in
Anxiety Support
4 years ago
More issues going on with mom :/ I understand if you guys are sick of me posting. I just have no one now. And I DO need support.
So, there was an incident I guess... My moms wife has Amazon Prime. She’s always let me use it. I ordered some speakers, along with a 2 year warranty but on my own credit card. I mean, I always use my own credit card because I’m buying stuff for me? Why would I use someone else’s credit card?? Anyway
So, there was an incident I guess... My moms wife has Amazon Prime. She’s always let me use it. I ordered some speakers, along with a 2 year warranty but on my own credit card. I mean, I always use my own credit card because I’m buying stuff for me? Why would I use someone else’s credit card?? Anyway
Ubud2021
in
Anxiety and Depression Support
4 years ago
Just visiting
The saying goes that if March comes in like a lion it goes out like a lamb and that has been certainly true this year . After a shockingly depressing wet winter and early spring ,down in Devon we are now bathed in glorious sunshine with warm winds from the south which I hope will bring the industrious
The saying goes that if March comes in like a lion it goes out like a lamb and that has been certainly true this year . After a shockingly depressing wet winter and early spring ,down in Devon we are now bathed in glorious sunshine with warm winds from the south which I hope will bring the industrious
Georgepa
in
PSP Association
4 years ago
l-Lysine
I have been diagnosed with shingles and recommended to take L-Lysine 500 mgs on an empty stomach. Will I still have to leave it an hour after I take my Levothyroxine before I take the L-Lysine? It was ask recommend to me to during apple cider vinegar on an empty stomach so I thought I’d take the L-Lysine
I have been diagnosed with shingles and recommended to take L-Lysine 500 mgs on an empty stomach. Will I still have to leave it an hour after I take my Levothyroxine before I take the L-Lysine? It was ask recommend to me to during apple cider vinegar on an empty stomach so I thought I’d take the L-Lysine
Citta
in
Thyroid UK
4 years ago
Community Eyecare Cataract and Surgical Centre - Watford
I have just been referred to this NHS service provider for my next Eylea injection (now that my private insurance will no longer fund treatment). It looks like this is a relatively new clinic and only very recently started providing wAMD treatment services. Please can anyone share their experiences with
I have just been referred to this NHS service provider for my next Eylea injection (now that my private insurance will no longer fund treatment). It looks like this is a relatively new clinic and only very recently started providing wAMD treatment services. Please can anyone share their experiences with
Mpatz
in
Macular Society
4 years ago
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