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GCA Misdiagnosed Blind In One Eye
I’m writing this on behalf of my mum who’s 74 and just lost her sight in one eye to misdiagnosed GCA. She started with a terrible headache out of the blue in a March which didn’t go away.,she noticed a pronounced vein on her temple. She contacted her Gp (pre lockdown) and went in to see her and was
I’m writing this on behalf of my mum who’s 74 and just lost her sight in one eye to misdiagnosed GCA. She started with a terrible headache out of the blue in a March which didn’t go away.,she noticed a pronounced vein on her temple. She contacted her Gp (pre lockdown) and went in to see her and was
Alij10
in
PMRGCAuk
4 years ago
Ocular hypertension
Ocular hypertension is an eye pressure of greater than 21 mm Hg. Yesterday I found that I had 23 mm Hg eye pressure, and I wonder if it is related to ET or Hydroxyurea? Anyone deal with this? Thank you all.
Ocular hypertension is an eye pressure of greater than 21 mm Hg. Yesterday I found that I had 23 mm Hg eye pressure, and I wonder if it is related to ET or Hydroxyurea? Anyone deal with this? Thank you all.
krotsida
in
MPN Voice
4 years ago
Burning Skin
I have been doing so well on NDT since February 2019 TSH - 0.46 (0.3 - 4.5) FT4 - 16.4 (12 - 22) FT3 - 5.7 (3.1 - 6.8) but on 28 April I was taken into hospital with quick onset glaucoma. I was given a drip to bring down the pressure that evening and had to go back the following morning for laser
I have been doing so well on NDT since February 2019 TSH - 0.46 (0.3 - 4.5) FT4 - 16.4 (12 - 22) FT3 - 5.7 (3.1 - 6.8) but on 28 April I was taken into hospital with quick onset glaucoma. I was given a drip to bring down the pressure that evening and had to go back the following morning for laser
nightingale-56
in
Thyroid UK
4 years ago
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methotrexate and a dry mouth
I have been taking 7.5mg methotrexate weekly plus folic acid x 6 days a week for mild R.A. I have always had some issues with a dry mouth at night but this seems to be getting worse. It is so bad some nights that I frequently wake up with the whole of my mouth and tongue completely dry. I drink water
I have been taking 7.5mg methotrexate weekly plus folic acid x 6 days a week for mild R.A. I have always had some issues with a dry mouth at night but this seems to be getting worse. It is so bad some nights that I frequently wake up with the whole of my mouth and tongue completely dry. I drink water
angelanewport10
in
NRAS
4 years ago
Preliminary research info on Covid-19 in rheumatology patients
Hello all, I just saw a tweet about the findings from the Covid-19 Global Rheumatology Alliance. I'll paste part of the 'Key Messages' section here as it explains better than I can: "Due to underlying immune system dysfunction and the common use of immunosuppressants, there is concern about poorer
Hello all, I just saw a tweet about the findings from the Covid-19 Global Rheumatology Alliance. I'll paste part of the 'Key Messages' section here as it explains better than I can: "Due to underlying immune system dysfunction and the common use of immunosuppressants, there is concern about poorer
dawkin_S
in
NRAS
4 years ago
Church Straus symptoms
I have many symptoms of churg strays but blood tests negative.Late onset severe asthma digestive problems sinus problems joint muscle pain eye problems loss of taste n smell heart problems etc.Any advice plz rgds
I have many symptoms of churg strays but blood tests negative.Late onset severe asthma digestive problems sinus problems joint muscle pain eye problems loss of taste n smell heart problems etc.Any advice plz rgds
torfruda
in
Vasculitis UK
4 years ago
Another bright SPARK
As I write , I am newly brim full of BIIB054 after 2 months missed due to "le confinement" as the lockdown is called in France. Nice to be back with my team. And to get topped up. Mrs WTP is convinced things became worse when the perfusions stopped, although after a confusing few weeks dabbling with
As I write , I am newly brim full of BIIB054 after 2 months missed due to "le confinement" as the lockdown is called in France. Nice to be back with my team. And to get topped up. Mrs WTP is convinced things became worse when the perfusions stopped, although after a confusing few weeks dabbling with
WinnieThePoo
in
Cure Parkinson's
4 years ago
Blurry vision and headache
I suffer with a squint in my right eye, which causes a lot of symptoms. I had an operation when I was 9, but it's all gone down hill. I've woken up with blurry vision in my right eye and an extreme headache when looking around. Anyone have any ideas what this could be?.
I suffer with a squint in my right eye, which causes a lot of symptoms. I had an operation when I was 9, but it's all gone down hill. I've woken up with blurry vision in my right eye and an extreme headache when looking around. Anyone have any ideas what this could be?.
Animallover09
in
National Migraine Centre
4 years ago
Steam Cell Update
Patients who were the first to receive a new treatment for wet age-related macular degeneration (AMD) derived from stem cells in 2015 have maintained improvements in their vision five years on. In 2018 it was reported that the first patients to receive a new treatment derived from stem cells had gone
Patients who were the first to receive a new treatment for wet age-related macular degeneration (AMD) derived from stem cells in 2015 have maintained improvements in their vision five years on. In 2018 it was reported that the first patients to receive a new treatment derived from stem cells had gone
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
Myo and D Chiro Inositol for Hashimotos
Hi all I’d really appreciate your thoughts. I was diagnosed with Hashimotos around 6 years ago after gradually becoming very unwell with Hypo symptoms. Two years ago I found out the Hashimotos had destroyed my ovarian reserve and after a number of false starts and two rounds of IVF my consultant advised
Hi all I’d really appreciate your thoughts. I was diagnosed with Hashimotos around 6 years ago after gradually becoming very unwell with Hypo symptoms. Two years ago I found out the Hashimotos had destroyed my ovarian reserve and after a number of false starts and two rounds of IVF my consultant advised
sazzle2680
in
Thyroid UK
4 years ago
Dry very itchy eyes
I think I have posted for advice re. eye problem before and for a time was taking Hycosan, hycosan extra and hycosan night which provided quite a bit of ease. However no longer working...anyone got any other suggestions?, opticians only dealing with emergencies at present.
I think I have posted for advice re. eye problem before and for a time was taking Hycosan, hycosan extra and hycosan night which provided quite a bit of ease. However no longer working...anyone got any other suggestions?, opticians only dealing with emergencies at present.
foxglove
in
Thyroid UK
4 years ago
Stem Cell Research Webinar
World-leading eye researcher Professor Pete Coffey, who is investigating the use of stem cells to treat age-related macular degeneration, will be hosting a webinar today to talk about the groundbreaking project. The London Project to Cure Blindness is a partnership between Professor Pete Coffey from
World-leading eye researcher Professor Pete Coffey, who is investigating the use of stem cells to treat age-related macular degeneration, will be hosting a webinar today to talk about the groundbreaking project. The London Project to Cure Blindness is a partnership between Professor Pete Coffey from
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
I’m not gonna just give up
Hi all. Well isn’t life a strange oddity. One and a half months ago I lost my home,my wife and my step kids.i was with her and the kids for eight years.married 5 years this April.the day just came and went with out even a thought of what a magical day it was back then. Any way,so I’ve been made homeless
Hi all. Well isn’t life a strange oddity. One and a half months ago I lost my home,my wife and my step kids.i was with her and the kids for eight years.married 5 years this April.the day just came and went with out even a thought of what a magical day it was back then. Any way,so I’ve been made homeless
Tiggerakafidgity
in
Mental Health Support
4 years ago
Worried about latest decision made by new consultant
Hi I have been taken off hydroxy I was on 200mg daily. Recent optician appointment show macular degeneration in both eyes. Went to see hospital and told to stop by rheumatologist still waiting on seeing eye clinic told 4 to 6 month wait really worried as really breathless since stopping them. Heart rhythm
Hi I have been taken off hydroxy I was on 200mg daily. Recent optician appointment show macular degeneration in both eyes. Went to see hospital and told to stop by rheumatologist still waiting on seeing eye clinic told 4 to 6 month wait really worried as really breathless since stopping them. Heart rhythm
lilliebetfairies
in
LUPUS UK
4 years ago
Intra-muscular depo-madrone injection
I have had an intramuscular 120mg depo-medrol injection to treat newly diagnosed rheumatoid arthritis affecting my hands and wrists as a “test” before starting DMARDS. Can anyone shed any light on what as a “test” means, how long it takes to work and how long any relief may last?
I have had an intramuscular 120mg depo-medrol injection to treat newly diagnosed rheumatoid arthritis affecting my hands and wrists as a “test” before starting DMARDS. Can anyone shed any light on what as a “test” means, how long it takes to work and how long any relief may last?
sp22
in
Thyroid UK
4 years ago
App will reduce high risk of falls during and after Lockdown.
A free app has been developed at The University of Manchester to help reduce the high risk of falls and physical decline in older people self-isolating during the COVID-19 Lockdown. When used, the evidence based app - called Keep-On-Keep-Up- will help reduce the thousands of injuries – which are often
A free app has been developed at The University of Manchester to help reduce the high risk of falls and physical decline in older people self-isolating during the COVID-19 Lockdown. When used, the evidence based app - called Keep-On-Keep-Up- will help reduce the thousands of injuries – which are often
2greys
in
Lung Conditions Community Forum
4 years ago
1st Buserelin injection!!
Hey girls, so I’ve started down reg today and it’s gone a bit red and rashy where I’ve injected! Is this normal? I’m panicking I’m allergic now 😫 xx
Hey girls, so I’ve started down reg today and it’s gone a bit red and rashy where I’ve injected! Is this normal? I’m panicking I’m allergic now 😫 xx
Mrsmc2019
in
Fertility Network UK
4 years ago
Injection Update
Hi Everyone. Today I went for my injection which is every 2 months. Precautions were tighter than last visit. This time I had to ware a mask. I hated it, it seemed so difficult to breath. Cannot imagine having to work all day wearing a mask. Last visit I only had injection but this time I had
Hi Everyone. Today I went for my injection which is every 2 months. Precautions were tighter than last visit. This time I had to ware a mask. I hated it, it seemed so difficult to breath. Cannot imagine having to work all day wearing a mask. Last visit I only had injection but this time I had
Bobbie915
in
Macular Society
4 years ago
Emdr for Real Event OCD
Has anyone ever done EMDR for Real Event OCD? I did something to someone years ago that I simply cannot forgive myself for though they have forgiven me. I think about it daily and it was over a year ago. Thanks!
Has anyone ever done EMDR for Real Event OCD? I did something to someone years ago that I simply cannot forgive myself for though they have forgiven me. I think about it daily and it was over a year ago. Thanks!
Hidden
in
My OCD Community
4 years ago
Sjogrens Diagnosis
Hi all 😊 I am undergoing tests for suspected Sjogrens, am due third set of blood tests at end of June. Symptoms are dry eyes, blurred vision( some of the time) dry mouth, burning skin predominantly in legs ( occasionally just burning in random places) all symptoms much worse after exposure to sunlight
Hi all 😊 I am undergoing tests for suspected Sjogrens, am due third set of blood tests at end of June. Symptoms are dry eyes, blurred vision( some of the time) dry mouth, burning skin predominantly in legs ( occasionally just burning in random places) all symptoms much worse after exposure to sunlight
Maloo19
in
Thyroid UK
4 years ago
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