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Venous ulcer compression system
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Stem Cell Transplant
I'm celebrating three years of partial remission after two years of treatment with little or no change. I feel like I've been given the gift of three additional years of life. If the opportunity is given...take it and run. Still feeling well and back to being my very busy involved self.
I'm celebrating three years of partial remission after two years of treatment with little or no change. I feel like I've been given the gift of three additional years of life. If the opportunity is given...take it and run. Still feeling well and back to being my very busy involved self.
jc--rb--2--0
in
Myeloma America Support
10 years ago
Blood Stem Cell Transplant
Hi I m a 46 year old woman diagnosed with Cll in April 2014 with 17p deletion. I have been in watchful Waiting but now doctors have suggested I take Imbrivica and prepare to have a stem cell blood transplant because I am young and not showing symptoms. Has anyone had a stem cell blood transplant? What
Hi I m a 46 year old woman diagnosed with Cll in April 2014 with 17p deletion. I have been in watchful Waiting but now doctors have suggested I take Imbrivica and prepare to have a stem cell blood transplant because I am young and not showing symptoms. Has anyone had a stem cell blood transplant? What
Jameelah
in
CLL Support
10 years ago
Introducing Myself
Hi, My name is Kim Marrelli. I was diagnosed with Myeloma 4 years ago. I am considered high risk with t(4:14) (MMSET/FGFR/IGH). To be honest, I only partially understand what all that means. In the past, I have been teated with Revlimid, Velcade, Kyprolis, Pomalyst and the ever popular, Dexamethasone
Hi, My name is Kim Marrelli. I was diagnosed with Myeloma 4 years ago. I am considered high risk with t(4:14) (MMSET/FGFR/IGH). To be honest, I only partially understand what all that means. In the past, I have been teated with Revlimid, Velcade, Kyprolis, Pomalyst and the ever popular, Dexamethasone
KimMarr
in
Myeloma America Support
10 years ago
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My husband had a letter from the DWP today to say that his DLA is being stopped as he currently doesn't score a high enough mark on their points system for PIP. Along with losing DLA, he also has to send back his Blue Badge. FYI: My husband was diagnosed with Multiple Myeloma (blood cancer) in August
My husband had a letter from the DWP today to say that his DLA is being stopped as he currently doesn't score a high enough mark on their points system for PIP. Along with losing DLA, he also has to send back his Blue Badge. FYI: My husband was diagnosed with Multiple Myeloma (blood cancer) in August
Amanda1234
in
PMRGCAuk
10 years ago
Mouth ulcers
I am on 22.5 mtx a week and I folic acid tablet. All fine. Joints good. But have a terrible mouth ulcer that I have had for three weeks and shows no sign of going away. Is this the mtx causing it. If so does anyone have any tips for me? It is so sore and dragging me down!
I am on 22.5 mtx a week and I folic acid tablet. All fine. Joints good. But have a terrible mouth ulcer that I have had for three weeks and shows no sign of going away. Is this the mtx causing it. If so does anyone have any tips for me? It is so sore and dragging me down!
Nildesperandum
in
NRAS
10 years ago
Reaction to contrast dye in CT Scan?
Has anyone had a reaction to the contrast dye used when having a CT scan? I had a scan on Thursday the first I'd had since being diagnosed with Lymphoedema and wearing knee high compression tights. Staff were aware of my condition and the only advice given was to drink fluids before hand and stop
Has anyone had a reaction to the contrast dye used when having a CT scan? I had a scan on Thursday the first I'd had since being diagnosed with Lymphoedema and wearing knee high compression tights. Staff were aware of my condition and the only advice given was to drink fluids before hand and stop
Zezes-nan
in
LSN
10 years ago
mouth ulcer
I have a painful mouth ulcer under my tongue and am on mtx, sulfasalazine and have a systemic steroid injection approx. every 8 weeks, I know that mouth ulcers are a side effect, but should I contact the GP or just treat it? don't want to appear that I am overreacting to GP, I have ongoing issues with
I have a painful mouth ulcer under my tongue and am on mtx, sulfasalazine and have a systemic steroid injection approx. every 8 weeks, I know that mouth ulcers are a side effect, but should I contact the GP or just treat it? don't want to appear that I am overreacting to GP, I have ongoing issues with
Shelley04
in
NRAS
10 years ago
Please tell me this eventually sucks less? - Endometriosis.
I've had horrific periods since they first started. It was a blight all through secondary school. Midway through college I was put on the pill and then eventually the implant for the pain etc (I didn't want to use the pill as contraception as my memory is crap). They did tests and couldn't find any cysts
I've had horrific periods since they first started. It was a blight all through secondary school. Midway through college I was put on the pill and then eventually the implant for the pain etc (I didn't want to use the pill as contraception as my memory is crap). They did tests and couldn't find any cysts
Wishsprite
in
Endometriosis UK
10 years ago
Tried lots of oral drugs, where do i go now?
I was diagnosed three years ago with RA. Started on methetrexate, developed terrible mouth ulcers when i got to 8 pills a week. Started lefloridimide and lost hair. Then started a half dose (10 mg daily) of lefloridimide and 4 pills methetrexate weekly and that worked great on my RA symptoms without
I was diagnosed three years ago with RA. Started on methetrexate, developed terrible mouth ulcers when i got to 8 pills a week. Started lefloridimide and lost hair. Then started a half dose (10 mg daily) of lefloridimide and 4 pills methetrexate weekly and that worked great on my RA symptoms without
mainstreet
in
NRAS
10 years ago
Cimzia/methotrexate/hydroxy = coldsores and mouth sores
I am quite used to my mouth shedding skin and having an occasional sore inside my mouth but since starting Cimzia a few months ago, am getting a recurring coldsore and more mouth sores than before (on the positive side, my joints feel much better, as do my energy levels). I am due to see rheumatology
I am quite used to my mouth shedding skin and having an occasional sore inside my mouth but since starting Cimzia a few months ago, am getting a recurring coldsore and more mouth sores than before (on the positive side, my joints feel much better, as do my energy levels). I am due to see rheumatology
Annielou
in
NRAS
10 years ago
Rapid Generation of Virus-Specific T Cells Helps Fight Off Infection in Immunocompromised Patients
The lengthy, complex, and costly process required to produce target specific T-Cells to fight cancers and viruses is a huge barrier that needs to be overcome if this technique is ever going to be more than a laboratory curiosity that benefits only a select few patients. Despite this, researchers continue
The lengthy, complex, and costly process required to produce target specific T-Cells to fight cancers and viruses is a huge barrier that needs to be overcome if this technique is ever going to be more than a laboratory curiosity that benefits only a select few patients. Despite this, researchers continue
AussieNeil
Partner
in
CLL Support
10 years ago
Help with mouth ulcers! I have taken methetrexate for over 1 1/2 years without any mouth ulcers. Then a few started popping up. I upped my 1
Mg folic acid to 2 mg daily. I used magic mouth wash and a dental paste. I finally went off the mtx because they were awful. Been off for 5 weeks and they are worse then when i was on it. Has then happened to anyone? I'm still doing the mouth rinse and paste but they are awful. Any suggestions?
Mg folic acid to 2 mg daily. I used magic mouth wash and a dental paste. I finally went off the mtx because they were awful. Been off for 5 weeks and they are worse then when i was on it. Has then happened to anyone? I'm still doing the mouth rinse and paste but they are awful. Any suggestions?
mainstreet
in
NRAS
10 years ago
Bone marrow transplant with MF
I have been recently diagnosed with MF and am in the initial phase (being treated with PEGASYS). In your recent MF leaflet the article appears to indicated that a bone marrow transplant is a 'last resort' ('not commonly recommended'.... advanced disease). My hermatologist here in France appears to want
I have been recently diagnosed with MF and am in the initial phase (being treated with PEGASYS). In your recent MF leaflet the article appears to indicated that a bone marrow transplant is a 'last resort' ('not commonly recommended'.... advanced disease). My hermatologist here in France appears to want
crapaud
in
MPN Voice
10 years ago
Any suggestions for a painful mouth on Methotrexate?
After a recent increase in my Mtx, I have developed oral thrush and ulcers to my tongue. I am really struggling with the pain. Has anyone had any experience of this please?
After a recent increase in my Mtx, I have developed oral thrush and ulcers to my tongue. I am really struggling with the pain. Has anyone had any experience of this please?
Mazyanna
in
NRAS
10 years ago
GvHD of the lungs
Hi all I am new to this site. I am not posting about myself but about my 32 year old brother. 9 years ago he had a stem cell transplant to treat leukaemia (I was his donor), which has been in remission ever since. We have been lucky enough to have 9 good years during which time he has worked full time
Hi all I am new to this site. I am not posting about myself but about my 32 year old brother. 9 years ago he had a stem cell transplant to treat leukaemia (I was his donor), which has been in remission ever since. We have been lucky enough to have 9 good years during which time he has worked full time
elliemh
in
Lung Conditions Community Forum
10 years ago
newly diagnosed
hi i was diagnosed today with bechets its been queried for a while but now confirmed a bit daunting so any advice would be great from anyone that also has this disease. it all started really as a child with mouth ulcers after mouth ulcers and as i got older the ulcers got more and more persistant and
hi i was diagnosed today with bechets its been queried for a while but now confirmed a bit daunting so any advice would be great from anyone that also has this disease. it all started really as a child with mouth ulcers after mouth ulcers and as i got older the ulcers got more and more persistant and
shirley63_
in
Behçet's UK
10 years ago
Skin redness after removing compression stocking?
Hi everyone! I have a nagging doubt and as I don't know anyone with this condition, I'm reaching out to you to see if you can help. I'm relatively new to this condition and I'm still in the process of working my way to a proper diagnosis and will be having a lymphoscintigraphy next week. My left foot
Hi everyone! I have a nagging doubt and as I don't know anyone with this condition, I'm reaching out to you to see if you can help. I'm relatively new to this condition and I'm still in the process of working my way to a proper diagnosis and will be having a lymphoscintigraphy next week. My left foot
Chiquitita
in
LSN
10 years ago
Caelyx
Hi guys, if anyone out there has had caelyx, or is on it, experienced mouth ulcers? And the horrible taste that comes with it? I'm just getting over it but have another treatment this week. I have x 4 to go after this one. Any help would be great tks. Tess.
Hi guys, if anyone out there has had caelyx, or is on it, experienced mouth ulcers? And the horrible taste that comes with it? I'm just getting over it but have another treatment this week. I have x 4 to go after this one. Any help would be great tks. Tess.
cupakediva75
in
My Ovacome
10 years ago
German treatment of lymphoedema.
Do you know anything about german treatment? If you do, do you prefer still italian ( I belive it's english also) rather than german? All I know about it is that in Germany and Sweden, I guess, they prefer hard compression therapy, lymphatic drainage and at the end pneumatic massage. After this treatment
Do you know anything about german treatment? If you do, do you prefer still italian ( I belive it's english also) rather than german? All I know about it is that in Germany and Sweden, I guess, they prefer hard compression therapy, lymphatic drainage and at the end pneumatic massage. After this treatment
Aleksleg
in
LSN
10 years ago
Is anybody else troubled by sore mouth/tongue and loss of taste?
I have Raynauds and Scleroderma and just recently have been troubled by altered sensation in my mouth. It feels as if I have scalded my mouth (which I haven't) - tongue and mouth are sore and I haven't much sense of taste. I have been having reflux problems lately where my usual meds are not controlling
I have Raynauds and Scleroderma and just recently have been troubled by altered sensation in my mouth. It feels as if I have scalded my mouth (which I haven't) - tongue and mouth are sore and I haven't much sense of taste. I have been having reflux problems lately where my usual meds are not controlling
nannysue1950
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
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