Search
Search
About
Log in
Join
Experiences with
Venous ulcer compression system
Posts
Communities
947 public posts
Filter results
Decision, decision
I have been on zoladex for nearly 9 months and I have been told that I can't have anymore due to bone density. Even though it didn't take all my symptoms away it helped loads and I feel better than I have for the past year. I have been told that I can either have the hormonal coil (I have had 2 of these
I have been on zoladex for nearly 9 months and I have been told that I can't have anymore due to bone density. Even though it didn't take all my symptoms away it helped loads and I feel better than I have for the past year. I have been told that I can either have the hormonal coil (I have had 2 of these
Sarahjhill
in
Endometriosis UK
8 years ago
Share your experience with stem cell transplant (bone marrow transplantation)
Please share to let others know what to expect or better inform their decision making with their doctor hey....
Please share to let others know what to expect or better inform their decision making with their doctor hey....
SimoneHU
HealthUnlocked
in
Myeloma Warriors
8 years ago
stem cell transplant
Good morning, has anyone tried stem cell transplant. I have applied and been accepted. I have stiffness, cant walk most of the time. I am so looking forward to being able to walk, less meds etc. Please respond if you have had this procedure. The neurologist I was going to told me several times' There
Good morning, has anyone tried stem cell transplant. I have applied and been accepted. I have stiffness, cant walk most of the time. I am so looking forward to being able to walk, less meds etc. Please respond if you have had this procedure. The neurologist I was going to told me several times' There
Kathleen
in
Cure Parkinson's
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
MPN Voice Patients’ Forum – Inverness
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Mazcd
MPNVoice
in
MPN Voice
8 years ago
Oral thrush
Since I was on antibiotics for a chest infection back in March, with regularly taking clenil, I have had outbreaks of oral thrush. Though I don't always have plaques, I can sort of feel it most or all of the time. Just now I am on large doses of symbicort, so I still will need to keep on top of it.
Since I was on antibiotics for a chest infection back in March, with regularly taking clenil, I have had outbreaks of oral thrush. Though I don't always have plaques, I can sort of feel it most or all of the time. Just now I am on large doses of symbicort, so I still will need to keep on top of it.
Wheezycat
in
Asthma Community Forum
8 years ago
How do you cope with work/family?
I was diagnosed with Vasovagal Syncope almost 6 years ago, when I was pregnant. The doctors didn't want to give me any medication as they weren't sure how it would affect my baby, so I spent my entire pregnancy in bed as everytime I stood up I fainted. It seemed to dissapear for nearly three years and
I was diagnosed with Vasovagal Syncope almost 6 years ago, when I was pregnant. The doctors didn't want to give me any medication as they weren't sure how it would affect my baby, so I spent my entire pregnancy in bed as everytime I stood up I fainted. It seemed to dissapear for nearly three years and
HollysRose
in
STARS
8 years ago
Licorice root & food triggers
Has anyone ever tried to follow up a roybd of prednisone with licorice root (DGC tablets) ? I tried colchicine with out success. Now I'm on azothiaprine (4wks) waiting for the full effects (8-12 wks) to see if it will work. My main problem is mouth ulcers (when that flats my joints do too), since February
Has anyone ever tried to follow up a roybd of prednisone with licorice root (DGC tablets) ? I tried colchicine with out success. Now I'm on azothiaprine (4wks) waiting for the full effects (8-12 wks) to see if it will work. My main problem is mouth ulcers (when that flats my joints do too), since February
m82girlygirl
in
Behçet's UK
8 years ago
NHS England refusing second Stem Cell Transplants
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
bronx77
in
CLL Support
8 years ago
No surgery for me
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
knoxie
in
My Ovacome
8 years ago
My Myeloma
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongside my cancer treatment. An unrelated distraction. I am up to week 16. Hoping for a stem cell transplant in September, cheers to everyone. Bruce
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongside my cancer treatment. An unrelated distraction. I am up to week 16. Hoping for a stem cell transplant in September, cheers to everyone. Bruce
offthecush
in
Myeloma America Support
8 years ago
End of an Era (July 7, 2016)
Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell transplant story that started 8 years ago and ended with a rejected graft and a quick relapse. I am officially now and probably have been for years
Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell transplant story that started 8 years ago and ended with a rejected graft and a quick relapse. I am officially now and probably have been for years
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Mouth ulcers
Anyone else get really painful mouth ulcers? I've had them on an off for years, way before I'd even ever heard of Lupus. Monday evening I could feel I was coming down with them, by Tuesday morning I had ulcers down the back of my throat. I went to the doctor and he just looked and said 'oh I don't know
Anyone else get really painful mouth ulcers? I've had them on an off for years, way before I'd even ever heard of Lupus. Monday evening I could feel I was coming down with them, by Tuesday morning I had ulcers down the back of my throat. I went to the doctor and he just looked and said 'oh I don't know
Nikki246
in
LUPUS UK
8 years ago
Need a bit of cheering up
hi ladies feeling a bit of a wobble coming on. A potted history to date. 2011 diagnosed oc surgery then 6 rounds carbo taxol. Staged 1c grade 2 mucinous ardenocarcinoma. 2014 recurred pelvic wall same site surgery not all got out. No chemo refused radio therapy due to bowel complications during surgery
hi ladies feeling a bit of a wobble coming on. A potted history to date. 2011 diagnosed oc surgery then 6 rounds carbo taxol. Staged 1c grade 2 mucinous ardenocarcinoma. 2014 recurred pelvic wall same site surgery not all got out. No chemo refused radio therapy due to bowel complications during surgery
knoxie42
in
My Ovacome
8 years ago
Ibrutinib/Imbruvica brings hope to stem cell transplant patients with chronic graft-versus-host-disease
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
AussieNeil
Partner
in
CLL Support
8 years ago
Thrush & mouth ulcers & Imuran
Hey everyone! I have had one thing after another for while! I was on colchicine for 9 weeks with no improvement. Now I've been switched to Imuran (on it now for just under a week) I had a bad finger injury and was on a few weeks of Augmentin for that. A few days ago Thrush started in my mouth (more
Hey everyone! I have had one thing after another for while! I was on colchicine for 9 weeks with no improvement. Now I've been switched to Imuran (on it now for just under a week) I had a bad finger injury and was on a few weeks of Augmentin for that. A few days ago Thrush started in my mouth (more
m82girlygirl
in
Behçet's UK
8 years ago
I’m new here ...just diagnosed with AMN
Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!! Here is my story. (sory for my english :)) Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation.
Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!! Here is my story. (sory for my english :)) Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation.
zane_a
in
AMN EASIER
8 years ago
Chemo done..scans tonight
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
momof12
in
CLL Support
8 years ago
how to cope with dry mouth at night
Hi...I dont often post asking for help but the dryness in my mouth at night is getting me down. I sleep with my mouth open, which doesnt help, and the dryness wakes me up I tried a free sample of xylitol tablets recently. You pop one (or two) in your mouth at night, its supposed to stick to your teeth
Hi...I dont often post asking for help but the dryness in my mouth at night is getting me down. I sleep with my mouth open, which doesnt help, and the dryness wakes me up I tried a free sample of xylitol tablets recently. You pop one (or two) in your mouth at night, its supposed to stick to your teeth
chrisj
in
LUPUS UK
8 years ago
SCT go ahead
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At
Jane65
in
MPN Voice
8 years ago
Myeloma relapse.
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. three years of quarterly blood work checks I was prepared for a stem cell transplant. Fortunately I used my own stem cells. Hospitalized for 3 weeks, full remission
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. three years of quarterly blood work checks I was prepared for a stem cell transplant. Fortunately I used my own stem cells. Hospitalized for 3 weeks, full remission
MargaretG
in
Myeloma America Support
8 years ago
1
...
34
35
36
...
48
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
MPN Voice
138 results
CLL Support
131 results
LUPUS UK
69 results
View top 10 communities
Sort by
Most Relevant
Newest