Hi everyone, I’m new here. I’m 30 years old and I started having right upper abdomen pain about 18 months ago. To cut a very long story short I have now had a tentative diagnosis of VOD/SOD following many scans and liver biopsy. I am in pain every day but my LFTs are all normal and I don’t have ascites (yet? Touch wood). I keep being told that my condition is very rare as there is no obvious cause for my illness. I haven’t had bone marrow transplant or drunk any strange herbal teas which are the two main causes! It is apparently chronic VOD and not Budd Chiari although at this point the docs are so confused that it’s anyones guess. They are not planning on doing anything and just monitoring me. I feel like my whole life is now uncertain, me and my husband wanted to start a family but I don’t know if it’s safe. I have been given no guidelines and no advice. I feel completely lost and I can’t find anyone else with this diagnosis. I also have coeliac disease and family history of haematchromatosis but this is apparently unrelated. Any help or advice would be much appreciated! Thank you.