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Experiences with
Venous ulcer compression system
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behcets and fatigue
Hi everyone! Do you find that when you have several mouth ulcers in your mouth you get more fatigued/brain fog? Not sure if the ulcers are causing the fatigue, I feel they could - or it could be an overall flare up where ulcers + fatigue just so happen to be happening at the same time
Hi everyone! Do you find that when you have several mouth ulcers in your mouth you get more fatigued/brain fog? Not sure if the ulcers are causing the fatigue, I feel they could - or it could be an overall flare up where ulcers + fatigue just so happen to be happening at the same time
jaquarius
in
Behçet's UK
9 months ago
Canker Sores/Mouth ulcer
Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August- last tablet was taken in The beginning of September from the antibiotics) While on antibiotics- I developed ulcers inside my lower inner lip
Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August- last tablet was taken in The beginning of September from the antibiotics) While on antibiotics- I developed ulcers inside my lower inner lip
Tramezzini
in
PBC Foundation
10 months ago
Mouth ulcers with GCA and prednisone?
Has anyone experienced problems with persistent mouth ulcers? These have become more frequent as I have reduced my prednisone dosage. I am now down to 6.5 mg prednisone (I have GCA) and have about five ulcers in my mouth right now which is quite painful. I am wondering if anyone has any advice as to
Has anyone experienced problems with persistent mouth ulcers? These have become more frequent as I have reduced my prednisone dosage. I am now down to 6.5 mg prednisone (I have GCA) and have about five ulcers in my mouth right now which is quite painful. I am wondering if anyone has any advice as to
Charkha
in
PMRGCAuk
1 year ago
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sjogrens
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Samanthaann
in
PBC Foundation
1 year ago
DRY MOUTH/ HORRIBLE TASTE
Hi Everyone , December I had puffy red right cheek , sore to touch , no cold, no earache, but my face ached. Had my eyes checked all ok, saw GP , gave me some nose drops, didnt work , he said thought it might be my sinuses , i did suffer with sinus issues 60 years ago , but in my memory seemed
Hi Everyone , December I had puffy red right cheek , sore to touch , no cold, no earache, but my face ached. Had my eyes checked all ok, saw GP , gave me some nose drops, didnt work , he said thought it might be my sinuses , i did suffer with sinus issues 60 years ago , but in my memory seemed
TGSHJ71
in
LUPUS UK
1 year ago
Implant or Injections
I am 21 diagnosed endo laparoscopy last year & had hormonal coil which is due for removal in December (I think it was containing my pain but now it isn’t)My pain is increasing dramatically so consultant has recommended implant or injections when coil is removed. I’m wondering how I am supposed to decide
I am 21 diagnosed endo laparoscopy last year & had hormonal coil which is due for removal in December (I think it was containing my pain but now it isn’t)My pain is increasing dramatically so consultant has recommended implant or injections when coil is removed. I’m wondering how I am supposed to decide
BT20
in
Endometriosis UK
1 year ago
ulcers and boils ???
Hi Can anyone inform me please , do you get mouth ulcers , sores & boils up nose & a runny nose , as if you’ve got a constant cold with PmR ? I go through boxes and boxes of tissues !
Hi Can anyone inform me please , do you get mouth ulcers , sores & boils up nose & a runny nose , as if you’ve got a constant cold with PmR ? I go through boxes and boxes of tissues !
TedTheMaineCoon
in
PMRGCAuk
1 year ago
Autologous Cell Transplants - Promising Clinical Trial Getting Underway
August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment
August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment
Shorebirdsotherhalf
in
Cure Parkinson's
8 days ago
horrible taste in mouth, nothing tastes good
After looking in my mouth, my GP said, I think you have thrush. A dentist had said an X-ray showed no tooth infection was causing the bad taste. GP prescribed nystatin. After taking it the bad taste is worse than ever, especially in the morning, and the area behind my top and bottom teeth feels
After looking in my mouth, my GP said, I think you have thrush. A dentist had said an X-ray showed no tooth infection was causing the bad taste. GP prescribed nystatin. After taking it the bad taste is worse than ever, especially in the morning, and the area behind my top and bottom teeth feels
Mstiles
in
PMRGCAuk
1 year ago
What is your experience with oral thrush and nystatin?
I’m experiencing a bad taste in my mouth that’s affecting my taste of food and sometimes feeling like there’s a lump in my throat when swallowing. . My GP looked in my mouth and said “you may have thrush”. She prescribed Nystatin. I don’t have the white plaques that bleed, etc., just
I’m experiencing a bad taste in my mouth that’s affecting my taste of food and sometimes feeling like there’s a lump in my throat when swallowing. . My GP looked in my mouth and said “you may have thrush”. She prescribed Nystatin. I don’t have the white plaques that bleed, etc., just
Mstiles
in
PMRGCAuk
1 year ago
mouth ulcers
anyone have mouth ulcers on tongue whilst taking hydroxycarbamide ? I have ET jak 2 Painful mouth ulcers on my tongue. Any suggestions how to treat ? Thanks Hazel
anyone have mouth ulcers on tongue whilst taking hydroxycarbamide ? I have ET jak 2 Painful mouth ulcers on my tongue. Any suggestions how to treat ? Thanks Hazel
HazeBlue
in
MPN Voice
1 year ago
Mouth ulcers
Hello does anyone else or us there any link between hashimotos and mouth ulcers and cold sores. I suffer terribly from both. Particularly if I've drank too much alcohol or run down or have pmt. My mouth ulcers can be terrible and struggle to eat/drink. It normally happens after damaging my mouth
Hello does anyone else or us there any link between hashimotos and mouth ulcers and cold sores. I suffer terribly from both. Particularly if I've drank too much alcohol or run down or have pmt. My mouth ulcers can be terrible and struggle to eat/drink. It normally happens after damaging my mouth
Billy2023
in
Thyroid UK
1 year ago
11 months Post SCT
I’ve been wanting to update my Stem Cell Transplant journey with good news and today I was going to post that, instead I’ve been told that a lot of my lymph nodes are enlarged again. It’s so disappointing to say the least, not what I was expecting as I feel quite well and most of the GVHD issues have
I’ve been wanting to update my Stem Cell Transplant journey with good news and today I was going to post that, instead I’ve been told that a lot of my lymph nodes are enlarged again. It’s so disappointing to say the least, not what I was expecting as I feel quite well and most of the GVHD issues have
Billarina
in
CLL Support
25 days ago
SCT journey update No.4
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
LFCLove
in
MPN Voice
1 month ago
ASXL1 mutation 39% Worried about MF turning into leukemia
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
merlisa
in
Fight MPN
1 month ago
Continued Journey
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
FiArt12X
in
CLL Support
2 months ago
Continued Journey
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
FiArt12X
in
CLL Support
2 months ago
Myelofibrosis- GVHD graft, versus, host, disease.
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
2 months ago
Myelofibrosis - GVHD - graft, versus, host, disease
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
2 months ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
dwolden
in
CLL Support
2 months ago
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