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Urso
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Happy with first follow up labs
Hi everyone Just wanted to share my first follow up labs, enzymes are going down after 2 months on
urso
.
Hi everyone Just wanted to share my first follow up labs, enzymes are going down after 2 months on
urso
.
Sona_akb
in
PBC Foundation
6 years ago
The Itch
Once I stop the tablets or should say ran out I went back by this time the doc had rang my consultant and he said I may have to change from the
Urso
Ive been taking but in the mean time to carry on with the anti histamines until I see consultant next month.
Once I stop the tablets or should say ran out I went back by this time the doc had rang my consultant and he said I may have to change from the
Urso
Ive been taking but in the mean time to carry on with the anti histamines until I see consultant next month.
Jude1
in
PBC Foundation
6 years ago
Urso not working?
I started
Urso
November 7, and just had first labs to check. The alk. phos. level went up by over 25 points!! Has anyone else had this happen? Thanks, Lilygrower
I started
Urso
November 7, and just had first labs to check. The alk. phos. level went up by over 25 points!! Has anyone else had this happen? Thanks, Lilygrower
lilygrower
in
PBC Foundation
6 years ago
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Cholesterol rising
Taking
urso
300 mg 2x a day. My alt and ast are now within normal range and my all pho’s is 161. But....my cholesterol is up to 250. I eat well and have never had cholesterol issues before. Can it bE related to the disease or the
urso
?
Taking
urso
300 mg 2x a day. My alt and ast are now within normal range and my all pho’s is 161. But....my cholesterol is up to 250. I eat well and have never had cholesterol issues before. Can it bE related to the disease or the
urso
?
jplitt
in
PBC Foundation
6 years ago
Specialist referral
My main concern is that I’m not responding to
URSO
...the only times my numbers come down is when I take my herbal tincture, but my GP refuses to acknowledge that it’s the herbal working not the
URSO
. Best wishes and Happy New Year to everyone. Hilary xx
My main concern is that I’m not responding to
URSO
...the only times my numbers come down is when I take my herbal tincture, but my GP refuses to acknowledge that it’s the herbal working not the
URSO
. Best wishes and Happy New Year to everyone. Hilary xx
Hils67
in
PBC Foundation
6 years ago
Urso and rapid weight gain
I was diagnosed with PBC in October and have been on
urso
for about 10 weeks now. In the last 10 weeks, I seem to have gained a lot of weight quite quickly. I'm almost 14lbs heavier than I was before starting
urso
, and this is starting to worry me - I can't keep gaining at this rate!
I was diagnosed with PBC in October and have been on
urso
for about 10 weeks now. In the last 10 weeks, I seem to have gained a lot of weight quite quickly. I'm almost 14lbs heavier than I was before starting
urso
, and this is starting to worry me - I can't keep gaining at this rate!
Rachie34
in
PBC Foundation
6 years ago
URSO in Spain
Hi I’m hoping to rent long term in Spain I take
URSO
and have yearly appointments. Is there anybody on here living in Spain who takes
URSO
and if so how much does it cost. I’m 68. Thanks in advance
Hi I’m hoping to rent long term in Spain I take
URSO
and have yearly appointments. Is there anybody on here living in Spain who takes
URSO
and if so how much does it cost. I’m 68. Thanks in advance
kingsnorth
in
PBC Foundation
6 years ago
Hypothyroidism
I’m not on
URSO
because I’m allergic to it so fighting this disease all on my own bodies defences. And Happy New Year all J
I’m not on
URSO
because I’m allergic to it so fighting this disease all on my own bodies defences. And Happy New Year all J
Jeanb47
in
PBC Foundation
6 years ago
Newly Diagnosed PBC & SS
I was dx with PCB on Christmas Eve and put on
Urso
250mg three times a day. Prediagnosed I was suffering so bad with tiredness, I mean you could count backwards from 5 and I would be asleep. I had to have naps and early nights.
I was dx with PCB on Christmas Eve and put on
Urso
250mg three times a day. Prediagnosed I was suffering so bad with tiredness, I mean you could count backwards from 5 and I would be asleep. I had to have naps and early nights.
Shashwoo
in
PBC Foundation
6 years ago
LACK OF APPETITE
I take
urso
x 4 tablets per day, get fatigue, dry eyes and mouth and occasional bouts of itching but my alkaline phosphates have improved a lot since being on
URSO
. Does anyone else have lack of appetite?
I take
urso
x 4 tablets per day, get fatigue, dry eyes and mouth and occasional bouts of itching but my alkaline phosphates have improved a lot since being on
URSO
. Does anyone else have lack of appetite?
pbcdisease
in
PBC Foundation
6 years ago
New to the group but not PBC.
I am now on
Urso
Azithaprine and Ocaliva and off the Prednisone. Doing well. Muscle pains and foggy moments but keeping positive. I enjoy reading these posts, they are very helpful!! Thanks!!
I am now on
Urso
Azithaprine and Ocaliva and off the Prednisone. Doing well. Muscle pains and foggy moments but keeping positive. I enjoy reading these posts, they are very helpful!! Thanks!!
Chulachela
in
PBC Foundation
6 years ago
Kidney issues to do with PBC?
My thyroid medication seems a bit off (I also have under active thyroid), but the liver results were fine thankfully (
Urso
keeping everything normal). However Dr also mentioned something to do with my kidneys, and I’ll have to redo blood test in a month. Has anyone else had this?
My thyroid medication seems a bit off (I also have under active thyroid), but the liver results were fine thankfully (
Urso
keeping everything normal). However Dr also mentioned something to do with my kidneys, and I’ll have to redo blood test in a month. Has anyone else had this?
Mariontp
in
PBC Foundation
6 years ago
Herbal tincture and LFTs update
I’ve also just been on holiday and forgotten to take my
Urso
all week...and I’ve felt so normal. No itching, hardly any hot flushes. So I wonder if the
Urso
actually makes me feel rubbish?
I’ve also just been on holiday and forgotten to take my
Urso
all week...and I’ve felt so normal. No itching, hardly any hot flushes. So I wonder if the
Urso
actually makes me feel rubbish?
Hils67
in
PBC Foundation
6 years ago
Hypertension
I was diagnosed with PBC 8 years ago and doing ok on
Urso
. I am always very nervous about medications! Does anyone take daily medication for hypertension?
I was diagnosed with PBC 8 years ago and doing ok on
Urso
. I am always very nervous about medications! Does anyone take daily medication for hypertension?
Susn
in
PBC Foundation
6 years ago
Quick update on me, bloodwork
I went off ocaliva last month, staying on
urso
, at doctors suggestion. My ALP was essentially unchanged from the last test. I’m starting a fibrate this weekend, hoping I will respond to that.
I went off ocaliva last month, staying on
urso
, at doctors suggestion. My ALP was essentially unchanged from the last test. I’m starting a fibrate this weekend, hoping I will respond to that.
Ottley3
in
PBC Foundation
6 years ago
Holiday stress
They say I'm responding to
URSO
and I'm grateful..believe me..I am. it's just grieving for that super girl (me) who could "make things work" and not sweat. I'm humbled.
They say I'm responding to
URSO
and I'm grateful..believe me..I am. it's just grieving for that super girl (me) who could "make things work" and not sweat. I'm humbled.
EileenUSA
in
PBC Foundation
6 years ago
Results!
Got my blood test results yesterday and down to 130 from 180 so over the moon that the
urso
tablets are working after 3 months. Spoke to my specialist and she is happy about the results and she is a big fan of PBC Foundation and very supportive.
Got my blood test results yesterday and down to 130 from 180 so over the moon that the
urso
tablets are working after 3 months. Spoke to my specialist and she is happy about the results and she is a big fan of PBC Foundation and very supportive.
nunbrook
in
PBC Foundation
6 years ago
Urso dose
Hi everyone ❤️❤️ My hepatologist started
urso
with 1500mg/day. I’m 55kg. Isn’t it too much for me? Does anyone else take same dosage? Thank you
Hi everyone ❤️❤️ My hepatologist started
urso
with 1500mg/day. I’m 55kg. Isn’t it too much for me? Does anyone else take same dosage? Thank you
Sona_akb
in
PBC Foundation
6 years ago
Kidney pain/Kidney stones
I wasn't sure if it was PBC related or
Urso
related.It is sharp then goes away.My spouse gets frequent kidney stones so he thinks that is what it is.
I wasn't sure if it was PBC related or
Urso
related.It is sharp then goes away.My spouse gets frequent kidney stones so he thinks that is what it is.
PBCTracy
in
PBC Foundation
6 years ago
Diarrhea
Diagnosed 2 years ago and on
Urso
since diagnosed with no issues. Seems everything I eat just goes right through me.... ask my doc by message and of course his nurse answered but did not seem concerned..... could this mean I am worsening? 😢
Diagnosed 2 years ago and on
Urso
since diagnosed with no issues. Seems everything I eat just goes right through me.... ask my doc by message and of course his nurse answered but did not seem concerned..... could this mean I am worsening? 😢
Pamela4475
in
PBC Foundation
6 years ago
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