Experiences with

Urso

Did you ever begin Urso again and what damage, if any, did it do to your liver?

hi guys has anybody had their Fibroscan scores improved after taking urso? eleni

Dr. wants to supplement my URSO with it. I take 1000mg a day of URSO, but my ALP level is still elevated. 178. The side effects of this drug scare the heck out of me! As of now. All blood work is normal, except ALP. Ultrasound is good, and Fibroscan was great.

I have been on Urso since my diagnosis. I take 600 mg daily. I had lab a week ago & don't have the results but I decided to quit the Urso. My liver enzymes has never gotten anywhere near normal. They have come down. I'm just stopping the Urso for a few months & then have lab drawn.

[/i] [i]Some take the at night, as this may help eliminate your feelings of nausea since you are sleeping.[/i] [i]ALWAYS make sure you are taking the right dose of when you get to your prescribed dose.

I started methotrexate a few weeks ago and I’m trying to get used to that, and now I’ve been told after many years of dodging it, that I have to start urso as my alk phos has been elevated all year and I have a large risk of severe fibrosis.

Hi Just wondering if anyone stopped their Urso for a week to see if it helped with stomach issues. I've been on it now for 2 years and my numbers are all good since last August.

I’ve just started 80mg of elafribnor with a 1000mg of Urso also… Just wondered if anyone has had any good results with it thanks

Does anyone in the UK know if the secondary drug that can be used with Urso, called Livdelzi, is available yet in the UK? And if so, is it available on a regular NHS prescription?

Hi, I was diagnosed with PBC last year and am on urso, I have no symptoms and keep well and would like to go abroad on holiday this year. Two companies I've tried to get a quote from have refused me , I also have asthma which is really well controlled.

I was diagnosed with PBC in September and started Urso thereafter. My bloods have all come back to normal range so I guess I’m an Urso responder which is great.

I went a year without taking Urso, due to no medical coverage. I lost 30lbs but have been back on Urso now a year and gained some back. I am understanding from the comments Urso and Ocaliva has side effects of weight gain, correct? Also, the fatigue is bad in morning and evenings.

hi everybody, in April I started second line therapy as my alp wasn’t comeing down enough with urso, in march my alp was 465 October went down too 292 I then had my dose upped too the maximum 10mg just had my bloods come back today and alp 281!!! So dishearten it hasn’t come down more!!!!

Luckily Urso has helped bring down my Alc Phosphatase and kept it below 200. I do experience fatigue and gastrointestinal problems however I have not developed any itching issues. My question would be for other males with PBC; have you developed the itching problems associated with PBC?

Hi all, does the PBC itch come from the PBC or the urso? Does the itch come and go? Are there things that can trigger the itch? Thanks in advance for your feedback. 🩷

I posted the following yesterday (since deleted the post as reposting now): I started on Urso 2 months ago for suspected PBC.

Diagnosed with Pbc last Feb through routine blood test, very high LFT'S, no symptoms, ultrasound normal, fibroscan 7.5, after taking urso within 3 weeks bloods were all normal except Alp was 135, Consultant said I probably had a mild case which I was very pleased about, I have been getting bloods done

I was diagnosed with PBC 12 years ago & I have responded well to Urso. I now have hypothyroidism & NAFLD. My question to the group is whether others suffer from extremely dry skin & what product would you recommend or you have found to be effective on extremely dry skin.

I have PBC and respond well to Urso. I am taking a holiday and need travel insurance. Any recommendations will be much appreciated

Also my weight is 50 kilos taking 250mg of Urso 3 times a day equivalent to 750 mg. for so many years, my specialist reduced my Urso to 500mg a day, told me my liver is ok. Is 500 enough for my weight? Thanks for any opinion, suggestion. Take care, be well. From, Barotac Nuevo