Experiences with

Urso

I have been on Urso since my diagnosis. I take 600 mg daily. I had lab a week ago & don't have the results but I decided to quit the Urso. My liver enzymes has never gotten anywhere near normal. They have come down. I'm just stopping the Urso for a few months & then have lab drawn.

[/i] [i]Some take the at night, as this may help eliminate your feelings of nausea since you are sleeping.[/i] [i]ALWAYS make sure you are taking the right dose of when you get to your prescribed dose.

I started methotrexate a few weeks ago and I’m trying to get used to that, and now I’ve been told after many years of dodging it, that I have to start urso as my alk phos has been elevated all year and I have a large risk of severe fibrosis.

Hi Just wondering if anyone stopped their Urso for a week to see if it helped with stomach issues. I've been on it now for 2 years and my numbers are all good since last August.

Does anyone in the UK know if the secondary drug that can be used with Urso, called Livdelzi, is available yet in the UK? And if so, is it available on a regular NHS prescription?

I went a year without taking Urso, due to no medical coverage. I lost 30lbs but have been back on Urso now a year and gained some back. I am understanding from the comments Urso and Ocaliva has side effects of weight gain, correct? Also, the fatigue is bad in morning and evenings.

I was diagnosed with PBC in September and started Urso thereafter. My bloods have all come back to normal range so I guess I’m an Urso responder which is great.

I have PBC and respond well to Urso. I am taking a holiday and need travel insurance. Any recommendations will be much appreciated

I posted the following yesterday (since deleted the post as reposting now): I started on Urso 2 months ago for suspected PBC.

Also my weight is 50 kilos taking 250mg of Urso 3 times a day equivalent to 750 mg. for so many years, my specialist reduced my Urso to 500mg a day, told me my liver is ok. Is 500 enough for my weight? Thanks for any opinion, suggestion. Take care, be well. From, Barotac Nuevo

Hi all, does the PBC itch come from the PBC or the urso? Does the itch come and go? Are there things that can trigger the itch? Thanks in advance for your feedback. 🩷

Does anyone get bloating either with their pbc or urso?

Did any of you gain weight after starting on Urso? I feel like since I started Urso, my weight has been creeping up and I feel "puffy" and my clothes seem to be snugger then usual.

[i]For the most part physicians have given up to a year to decide if you are a responder or not -- has the Urso decreased your numbers significantly in that time period.[/i] [i]According to Dr.

hi everybody, in April I started second line therapy as my alp wasn’t comeing down enough with urso, in march my alp was 465 October went down too 292 I then had my dose upped too the maximum 10mg just had my bloods come back today and alp 281!!! So dishearten it hasn’t come down more!!!!

I was diagnosed with PBC 12 years ago & I have responded well to Urso. I now have hypothyroidism & NAFLD. My question to the group is whether others suffer from extremely dry skin & what product would you recommend or you have found to be effective on extremely dry skin.

Over 2 years on Urso and my ALP is in the normal range. Ultrasounds show an unremarkable liver. Yet I experience periodic feelings of despair and panic at having this disease … and I think I’m one of the more fortunate individuals, so then I feel guilty for how I feel.

i’ve been on Urso for about two years now with good results and bringing my numbers back to the normal range. In the last year, I’ve been dealing with significant anxiety and I’ve not had this before.

i.e. " Am I a responder to Urso?" "Am I a non responder?" Don't just reply 'yes' when he asks if you are taking your Urso. He said that if you ask very specific questions, then the doctor can't just glaze over an answer as they often do. He has to answer your very direct question.

Luckily Urso has helped bring down my Alc Phosphatase and kept it below 200. I do experience fatigue and gastrointestinal problems however I have not developed any itching issues. My question would be for other males with PBC; have you developed the itching problems associated with PBC?