Search
Search
About
Log in
Join
Experiences with
Urso
Posts
Communities
1,425 public posts
Filter results
New to the group but not PBC
Wasn't able to take
urso
but did well for nearly a decade. Had liver transplant in 2016 and now have (probably) recurrence. Basically I've run the gambit and going for round 2. Everyone have a great day!
Wasn't able to take
urso
but did well for nearly a decade. Had liver transplant in 2016 and now have (probably) recurrence. Basically I've run the gambit and going for round 2. Everyone have a great day!
OdinsMom
in
PBCers Organization
6 years ago
Question about elastograph ultrasound result
I'm taking the correct dose of
Urso
since November. My question is: Are there standards for kPA values that can stage the fibrosis? I read a research article that gave much higher levels.
I'm taking the correct dose of
Urso
since November. My question is: Are there standards for kPA values that can stage the fibrosis? I read a research article that gave much higher levels.
lilygrower
in
PBC Foundation
6 years ago
New
Urso
didn’t lower alp much so was discontinued. Now have very watery diarrhea for several weeks. Pain under right ribs and cramps. No gallbladder Anyone able to relate? Help
Urso
didn’t lower alp much so was discontinued. Now have very watery diarrhea for several weeks. Pain under right ribs and cramps. No gallbladder Anyone able to relate? Help
Candicelynnc
in
PBC Foundation
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Antibiotics and blood test
Hello friends, I am with
urso
since my diagnosis 2 years ago ,have my blood test each 3 months and all was slowly being OK but in my last test my liver enzymes are rising up dramatically, also the Alcaline P and bilirrubin are slighty elevated.
Hello friends, I am with
urso
since my diagnosis 2 years ago ,have my blood test each 3 months and all was slowly being OK but in my last test my liver enzymes are rising up dramatically, also the Alcaline P and bilirrubin are slighty elevated.
Germania
in
PBC Foundation
6 years ago
Well....... Now what?
Albu... 3.5 After 30 days on 5mg Ocaliva &
URSO
My numbers aren't bad but I'm disappointed becsuse OCA didn't normalize my alk-phos. My numbers back in Oct. last year had spiked prompting my doctors to put me on Ocaliva. They took me off of my RA drug Sulfasalazine and my numbers when back down.
Albu... 3.5 After 30 days on 5mg Ocaliva &
URSO
My numbers aren't bad but I'm disappointed becsuse OCA didn't normalize my alk-phos. My numbers back in Oct. last year had spiked prompting my doctors to put me on Ocaliva. They took me off of my RA drug Sulfasalazine and my numbers when back down.
Ktltel
in
PBC Foundation
6 years ago
Mri results and official diagnosis
Starting
Urso
2x a day at first for a week then 3x a day moving fed after that. He says he is hoping after a month to see the numbers moving down . If so we will continue with dose, see him 3 math intervals for blood draws and 2x a year ultrasounds.
Starting
Urso
2x a day at first for a week then 3x a day moving fed after that. He says he is hoping after a month to see the numbers moving down . If so we will continue with dose, see him 3 math intervals for blood draws and 2x a year ultrasounds.
tnchikadee
in
PBC Foundation
6 years ago
Burning eyes
Hi everyone I have a question....I have always had dry eyes but since I have been on
Urso
my eyes start burning anytime they get “wet”. Crying, yawning, or using my eye drops. Has anyone experienced this? Not sure if it’s something I should go see the doc about or just wait for my apt in April.
Hi everyone I have a question....I have always had dry eyes but since I have been on
Urso
my eyes start burning anytime they get “wet”. Crying, yawning, or using my eye drops. Has anyone experienced this? Not sure if it’s something I should go see the doc about or just wait for my apt in April.
Rottiemommy
in
PBC Foundation
6 years ago
Appointment with Gastro today
I am currently on
Urso
since Dec 24th alsong with Hydroxy for my Sjogrens Syndrome.
I am currently on
Urso
since Dec 24th alsong with Hydroxy for my Sjogrens Syndrome.
Shashwoo
in
PBC Foundation
6 years ago
Anyone else have their PBC itch stop?
Still take
URSO
.
Still take
URSO
.
kp1234
in
PBC Foundation
6 years ago
Am I rejecting Urso
Has anyone ever rejected
Urso
after 2 years because of stomach/digestive issues
Has anyone ever rejected
Urso
after 2 years because of stomach/digestive issues
Jennyhadenough
in
PBC Foundation
6 years ago
Natural treatment for PBC?
A lot of questions: Okay, reading here is making me overcome my aversion to taking
URSO
, especially since I was diagnosed 6 years ago and for the past three weeks my liver has been aching a lot, right under that lowest front right rib.
A lot of questions: Okay, reading here is making me overcome my aversion to taking
URSO
, especially since I was diagnosed 6 years ago and for the past three weeks my liver has been aching a lot, right under that lowest front right rib.
scthompson
in
PBC Foundation
6 years ago
Muscle Aches
I was diagnosed a year ago and been on
URSO
ever since, my lfts are now within range thankfully. My lfts had been raised slightly since 2015 but PBC wasn’t picked up even though l have lupus and sjogrens. I have mild fibrosis and mild scarring of my liver.
I was diagnosed a year ago and been on
URSO
ever since, my lfts are now within range thankfully. My lfts had been raised slightly since 2015 but PBC wasn’t picked up even though l have lupus and sjogrens. I have mild fibrosis and mild scarring of my liver.
kingsnorth
in
PBC Foundation
6 years ago
My Endocrinologist won’t refer me for my PBC
Got diagnosed 9 months ago through auto antibody tests, my doc is leaving the referral to my Endo and he doesn’t think I need
Urso
in until I have symptoms And he doesn’t feel it does anything anyway, I had early signed picked up through endoscopy to look at gall bladder and ducts in 2015 all liver
Got diagnosed 9 months ago through auto antibody tests, my doc is leaving the referral to my Endo and he doesn’t think I need
Urso
in until I have symptoms And he doesn’t feel it does anything anyway, I had early signed picked up through endoscopy to look at gall bladder and ducts in 2015 all liver
Joanneconnor
in
PBC Foundation
6 years ago
Meds put up
Hiya guys my
urso
has been increased today from 750 to 1000 a day. Is that a lot?
Hiya guys my
urso
has been increased today from 750 to 1000 a day. Is that a lot?
BabyK
in
PBC Foundation
6 years ago
Alp levels
I have been on
urso
for almost a year. My alp is still high. 225. Is this normal?
I have been on
urso
for almost a year. My alp is still high. 225. Is this normal?
Tootoot
in
PBC Foundation
6 years ago
Cost of urso. Where can I order it?
I live in the US. My insurance covers the Ursodiol and my cost had been $10 a month. It is still covered, but my cost jumped to $191!. I used a Good Rx coupon and got it down to $146, but that's just not sustainable. I take 300mg 2x's a day. Does anyone know of a reliable Canadian pharmacy from which
I live in the US. My insurance covers the Ursodiol and my cost had been $10 a month. It is still covered, but my cost jumped to $191!. I used a Good Rx coupon and got it down to $146, but that's just not sustainable. I take 300mg 2x's a day. Does anyone know of a reliable Canadian pharmacy from which
Triciawc
in
PBC Foundation
6 years ago
Does it matter what time of the day I take my medication?
I’m on
urso
and ocaliva. I started a year ago for not responding to
urso
. In the beginning I gradually increased ocaliva dose and had no symptoms. A few months ago I developed the itch people talk about. Nightmare!
I’m on
urso
and ocaliva. I started a year ago for not responding to
urso
. In the beginning I gradually increased ocaliva dose and had no symptoms. A few months ago I developed the itch people talk about. Nightmare!
Gilz1702
in
PBC Foundation
6 years ago
Ursodiol
Has anyone experienced problems with chemists getting your
urso
prescription? I have about 4 times now , it makes you anxious worrying if they will get the tablets in , I’ve been given eventually destolit ursodol. ( haven’t seen it before ) 150 mg. is this ok.?
Has anyone experienced problems with chemists getting your
urso
prescription? I have about 4 times now , it makes you anxious worrying if they will get the tablets in , I’ve been given eventually destolit ursodol. ( haven’t seen it before ) 150 mg. is this ok.?
Mrsfancypants
in
PBC Foundation
6 years ago
Experiences of Ocaliva
Also, do you take with
Urso
or instead of it? Best wishes Hilary 💕
Also, do you take with
Urso
or instead of it? Best wishes Hilary 💕
Hils67
in
PBC Foundation
6 years ago
PBC Stage 0, no medication
Am I the only one with PBC and not taking
URSO
? I'm only taking Vitamin D, magnesium citrate and zinc...every day. Thank you.
Am I the only one with PBC and not taking
URSO
? I'm only taking Vitamin D, magnesium citrate and zinc...every day. Thank you.
Beatris03
in
PBC Foundation
6 years ago
1
...
23
24
25
...
72
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1285 results
British Liver Trust
79 results
PBCers Organization
38 results
View top 10 communities
Sort by
Most Relevant
Newest