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Urso
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Will I see specialist forever?
I went on
Urso
when I was pregnant and I had obstetric cholestasis then but came off it after birth. My liver results have been up and down over the years. I’m starting to feel like what’s the point seeing the dr? Why do I see him anymore?
I went on
Urso
when I was pregnant and I had obstetric cholestasis then but came off it after birth. My liver results have been up and down over the years. I’m starting to feel like what’s the point seeing the dr? Why do I see him anymore?
Lauralee851
in
PBC Foundation
2 years ago
Tablet or capsule
I've taken
Urso
tablets for 10 years now. I just received the Medicare Part D formulary for 2022 and
Urso
tablets are no longer covered. However
Urso
capsules are covered. Does anyone take the capsules?
I've taken
Urso
tablets for 10 years now. I just received the Medicare Part D formulary for 2022 and
Urso
tablets are no longer covered. However
Urso
capsules are covered. Does anyone take the capsules?
Susn
in
PBC Foundation
3 years ago
Confused and freaking out
I was diagnosed in around 2010, and have generally responded well to
Urso
, with my LFT results usually being either normal or not far above normal.
I was diagnosed in around 2010, and have generally responded well to
Urso
, with my LFT results usually being either normal or not far above normal.
Smarties18
in
PBC Foundation
3 years ago
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Acid ursodeoxycholic and Fenofibrate for PBC
An internist suggested that mixing the
urso
with fenofibrate has shown good results for patients with PBC. I was recently diagnosed with PBC overlap AIH. Are any of you talking it together? Any insight that you could share with me?
An internist suggested that mixing the
urso
with fenofibrate has shown good results for patients with PBC. I was recently diagnosed with PBC overlap AIH. Are any of you talking it together? Any insight that you could share with me?
KikiMilena
in
PBC Foundation
3 years ago
Low blood platelets
I am an
Urso
responder. My last blood test showed my ALP in normal range and ALT slightly high. I was very pleased but I now have slightly low platelets 126, norm 150. I don't understand why I can have a normal ALP and then this happen.
I am an
Urso
responder. My last blood test showed my ALP in normal range and ALT slightly high. I was very pleased but I now have slightly low platelets 126, norm 150. I don't understand why I can have a normal ALP and then this happen.
Beatrice110924
in
PBC Foundation
3 years ago
PBC fatigue vaccine question
Urso
worked at first, then they had to increase the dose. Ocaliva was added a couple of years ago. I find my exhausted bad days are becoming more frequent and find this discouraging. Just wondering how others have faired after the vaccine. I’m absolutely terrified to get it. Thanks in advance.
Urso
worked at first, then they had to increase the dose. Ocaliva was added a couple of years ago. I find my exhausted bad days are becoming more frequent and find this discouraging. Just wondering how others have faired after the vaccine. I’m absolutely terrified to get it. Thanks in advance.
pbcgirl
in
PBC Foundation
3 years ago
elevated ALP ALT AST
for 2 week but went back on it a week before my recent blood work. my question is could the 2 weeks made such a difference or is
urso
not working anymore?
for 2 week but went back on it a week before my recent blood work. my question is could the 2 weeks made such a difference or is
urso
not working anymore?
azzurra
in
PBC Foundation
3 years ago
Positive pregnancy stories
I am currently on 750mg
urso
daily. I don't have any symptoms. I have a little boy who is 2 and we would really like to add one more to our family. I'd love to hear some positive pregnancy stories from those who were diagnosed pre conception. I think I need a bit of hope!
I am currently on 750mg
urso
daily. I don't have any symptoms. I have a little boy who is 2 and we would really like to add one more to our family. I'd love to hear some positive pregnancy stories from those who were diagnosed pre conception. I think I need a bit of hope!
Dawn118
in
PBC Foundation
2 years ago
Bezafibrate combined with Urso
Iv been on
Urso
now for 2 yrs but alp still high at 238 and GGT 115 so my consultant recommends I start this to see if it works. Fingers crossed . Hope you are all well x
Iv been on
Urso
now for 2 yrs but alp still high at 238 and GGT 115 so my consultant recommends I start this to see if it works. Fingers crossed . Hope you are all well x
Cody23
in
PBC Foundation
3 years ago
Hello friends, Just curious on symptoms I have been having since starting Urso 7 months ago.
Anyone get a horse voice about 10 minutes after taking their
Urso
dose? I take 250mg 3 times a day. I also get very sleepy for about 15 minutes after each dose, then all is good. =]
Anyone get a horse voice about 10 minutes after taking their
Urso
dose? I take 250mg 3 times a day. I also get very sleepy for about 15 minutes after each dose, then all is good. =]
Laurie62
in
PBC Foundation
3 years ago
Urso side effects?
Anyone on
URSO
experiencing oily skin since starting the medication?
Anyone on
URSO
experiencing oily skin since starting the medication?
Leeanne83
in
PBC Foundation
3 years ago
How long does URSO take to work PBC
Looking for a guide to how long it can taje for LFTs to return to normal whwn starting
URSO
Looking for a guide to how long it can taje for LFTs to return to normal whwn starting
URSO
sezzey
in
British Liver Trust
3 years ago
PBC, cirrhosis, and now fatty liver?
After I stopped taking that stuff and I started on
Urso
, my bloodwork returned to normal pretty quickly. But I guess the damage had been done. For quite awhile I had bad fatigue but that has become quite rare and I feel really good these days. I have ultrasounds twice a year.
After I stopped taking that stuff and I started on
Urso
, my bloodwork returned to normal pretty quickly. But I guess the damage had been done. For quite awhile I had bad fatigue but that has become quite rare and I feel really good these days. I have ultrasounds twice a year.
islandanonymous
in
British Liver Trust
3 years ago
New to PBC
My mum passed away at age 54 from liver failure, I have just started
urso
on Monday 250mgs twice a day is this the standard dose as it seems quite high??
My mum passed away at age 54 from liver failure, I have just started
urso
on Monday 250mgs twice a day is this the standard dose as it seems quite high??
Leeanne83
in
PBC Foundation
3 years ago
Newly diagnosed with PBC and starting Urso today
My GP referred me to a specialist who wrote to me to confirm it was PBC and said I needed to liaise with my doc to start on
Urso
.
My GP referred me to a specialist who wrote to me to confirm it was PBC and said I needed to liaise with my doc to start on
Urso
.
Aishah88
in
PBC Foundation
3 years ago
Newly diagnosed with PBC and starting Urso today
My GP referred me to a specialist who wrote to me to confirm it was PBC and said I needed to liaise with my doc to start on
Urso
.
My GP referred me to a specialist who wrote to me to confirm it was PBC and said I needed to liaise with my doc to start on
Urso
.
Aishah88
in
British Liver Trust
3 years ago
Life expectancy and impact of irregularities in taking Urso dose
I’m really bad at taking my
Urso
at regular intervals and expected dosage. How bad is it for my liver and how does it affect my life expectancy? What I have is Primary Biliary Cholangitis with an enlarged spleen.
I’m really bad at taking my
Urso
at regular intervals and expected dosage. How bad is it for my liver and how does it affect my life expectancy? What I have is Primary Biliary Cholangitis with an enlarged spleen.
pbclimbu
in
PBCers Organization
3 years ago
Life expectancy about onlyj
I was diagnosed and started on
Urso
in 2012 At that time being extremely sick since 2008 when my liver failed and kidneys and even heart. The country hospital being unable to diagnose me. I spent at least a year at home curled up with everything failing.
I was diagnosed and started on
Urso
in 2012 At that time being extremely sick since 2008 when my liver failed and kidneys and even heart. The country hospital being unable to diagnose me. I spent at least a year at home curled up with everything failing.
Deasimjay
in
PBC Foundation
3 years ago
Herbal Supplements
Doc wants to put me on
URSO
again but not sure if I can tolerate it, and I'm interested in possible herbal supplements that could help. Any suggestions will be greatly appreciated.
Doc wants to put me on
URSO
again but not sure if I can tolerate it, and I'm interested in possible herbal supplements that could help. Any suggestions will be greatly appreciated.
Legs8323
in
PBCers Organization
3 years ago
Voltarol
Hi there Does anyone know if it’s ok to use Voltarol Joint pain gel if you have PBC and are on
Urso
? Thanks
Hi there Does anyone know if it’s ok to use Voltarol Joint pain gel if you have PBC and are on
Urso
? Thanks
Aishah88
in
PBC Foundation
3 years ago
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