Happy with first follow up labs: Hi everyone... - PBC Foundation

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Happy with first follow up labs

Sona_akb profile image
43 Replies

Hi everyone

Just wanted to share my first follow up labs, enzymes are going down after 2 months on urso.

AST was 80, now is 50

ALT was 100, now 60

ALP was 265, now is 148 ( normal range up to 105)

GGT was 195, now is 60 (normal range up to 35)

Couldn’t be happier and will give myself a cheat meal 😍😍😍

Love you all

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Sona_akb profile image
Sona_akb
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43 Replies
Ktltel profile image
Ktltel

How awesome!! 👏👏👏👏👏👍

Stella😊

Sona_akb profile image
Sona_akb in reply to Ktltel

Hi dear Stella, how’s going on yours?

Also wanted to add bad results of cholesterol and LDL, both are high. I’m thin( 55kg ) and didn’t expect having hyperlipidemia

Ktltel profile image
Ktltel in reply to Sona_akb

Hello, so good to hear good news! I'll have labs in Feb. Waiting to get on Ocaliva. Feeling pretty good though. Don't have a clue what my enzymes are doing. 🙀

Sona_akb profile image
Sona_akb in reply to Ktltel

I wish they’d be as you want. So good to hear you feel good, that’s the thing that matters and not lab data.

4pjx__ profile image
4pjx__

Wow! Those are great labs!

Pam

ninjagirlwebb profile image
ninjagirlwebb

Looks like you are an urso responder so that is great! I expect your life to be the same as before diagnosis; only you have to take urso daily and see the doctor at regular intervals.

Carry on! Be happy!

Haley

Sona_akb profile image
Sona_akb

Thank you Haley🙏🏻🙏🏻 I wish same for you. I was so stressed to see if I’m responding or not. Although enzymes aren’t normal yet but this is a good progress I think.

ninjagirlwebb profile image
ninjagirlwebb

Sure! You might want to talk to your doctors about the high cholesterol issue. I am on statins to address that & hepatologist said it was perfectly safe to take it.

Haley

Sona_akb profile image
Sona_akb in reply to ninjagirlwebb

I think I may need statins. Sadly having high cholesterol in young age and Hopefully there’s a solution for high cholesterol. Even my grandma’s cholesterol is better than me. Lol

kimphoebe profile image
kimphoebe in reply to Sona_akb

Hi there

Good that your labs are good. Mine are normal now after 6 years of being abnormal but my cholesterol is slightly high, can I ask how high is yours

Sona_akb profile image
Sona_akb in reply to kimphoebe

Total cholesterol is 300🤦🏼‍♀️ And LDL 200

kimphoebe profile image
kimphoebe in reply to Sona_akb

Mine is 5.40 not sure how to read that if yours is 300. Different labs use different readings

Sona_akb profile image
Sona_akb in reply to kimphoebe

Mine upper limit is 200. I think laboratories use different scales.

ninjagirlwebb profile image
ninjagirlwebb in reply to Sona_akb

Definitely need to ask your doctors about the cholesterol issue. Think mine were lower than yours when hepatologist wanted me back on statins. I stopped the statins with approval from my PCP after my PBC diagnosis.

Haley

ninjagirlwebb profile image
ninjagirlwebb in reply to Sona_akb

Or you might want to try controlling it via diet & exercise first before taking meds.

Sona_akb profile image
Sona_akb in reply to ninjagirlwebb

I think it’s all about pbc, because I’m under weight and don’t use to eat so much. I’ll discuss it with my pcp

ninjagirlwebb profile image
ninjagirlwebb in reply to Sona_akb

You can be thin & still have high cholesterol. When I talk about diet, it is not about the amount of food you ingest. It is more focused on the quality of food you eat.

For example, even on cholesterol meds I continue to be diligent about what I eat. I avoid half & half or cream in my coffee & use almond milk instead. I seldom eat red meat.

My proteins consist of chicken breast, ground turkey, fish & pork tenderloin, tofu & beans. I eat lots of fruits & simply prepared vegetables.

I don’t drink sugar laden beverages & opt for sparkling water with lime or lemon & sometimes a splash of juice.

Sona_akb profile image
Sona_akb in reply to ninjagirlwebb

Thank you for sharing your diet. I used to eat healthy cooked meat and chicken but now I try to cut out red meat. Except for red meat, I didn’t use to follow any unhealthy diet. Don’t know why so much cholesterol in my blood 😞

ninjagirlwebb profile image
ninjagirlwebb in reply to Sona_akb

It is also genetics despite healthy eating habits. Our livers also make cholesterol so basically all you can do is seek guidance from your doctor on how best to manage this.

Stay Well,

Haley

Sona_akb profile image
Sona_akb in reply to kimphoebe

Despite being thing and young, my lipids are too high. I don’t have any family history of hyperlipidemia.

periwinkle88 profile image
periwinkle88

Congratulations on the great results! A nice way to start off your new year.

Sona_akb profile image
Sona_akb in reply to periwinkle88

Thank you 🙏🏻

kiwivivr profile image
kiwivivr

Well done. 🤗

HealthyChik profile image
HealthyChik

So happy to hear you are responding! Just had mine rechecked after being on Urso for 3 months and all liver related labs are also within normal range now, except for ALP at 135. What a relief! Wishing you continued improvement and you deserve to celebrate!!🎉💕😀

Sona_akb profile image
Sona_akb in reply to HealthyChik

Thank you honey, I’m also happy about your great lab results.I wish my AST and ALT become normal too.

HealthyChik profile image
HealthyChik in reply to Sona_akb

I bet they will with a bit more time. You are off to a great start with Urso💕

Hils67 profile image
Hils67

That’s fantastic! So happy for you. 👏🏻👏🏻👏🏻 Xx

Sona_akb profile image
Sona_akb in reply to Hils67

Thank you 🙏🏻 ❤️❤️😘

Jules-S profile image
Jules-S

Fabulous, great to hear positive news! 😊

Sona_akb profile image
Sona_akb in reply to Jules-S

Thank you 🙏🏻 😍❤️😘

butterflyEi profile image
butterflyEi

great news

Sona_akb profile image
Sona_akb in reply to butterflyEi

Thank you my friend 🙏🏻😘

liver-bird profile image
liver-bird

Wonderful news that you are responding so well to urso. Look after yourself. ☺

Sona_akb profile image
Sona_akb in reply to liver-bird

Thank you honey ❤️🙏🏻

Yankeerose3 profile image
Yankeerose3

Awesome news 👏

Sona_akb profile image
Sona_akb in reply to Yankeerose3

Thank you 🙏🏻 ❤️😘

Jeanb47 profile image
Jeanb47

Great news for you.

That's the way to do it! Very pleased to hear, thanks for sharing.

Sona_akb profile image
Sona_akb in reply to

Thank you for your sweet words🙏🏻

in reply to Sona_akb

As far as sweet words go... and you mention treating yourself to a cheat meal in your post above... I can't cheat without suffering. Refined sugar always burns in my throat. And I still crave it unless I add sweetness to my main dish. eg a little dried or fresh fruit in salad, or less than a teaspoon of any of these - maple syrup, date syrup, pomegrante molasses, honey. That hint of sweet keeps me from wanting a great big hit of it. Only the best ones will do, because some may have refined sugar added, or artificial sweeteners. The bottles last ages because you need so little. I remind myself 'this isn't even cheating, it's what I should be having'!! I hope you try it and like it as much as I do.

Sona_akb profile image
Sona_akb in reply to

Thank you for sharing your gold experiences. When I say cheat meal the first thing that comes on my mind is a big dish of french fries 🍟 😍😍😍, but i couldn’t do it without feeling guilty so I ended up with a healthy cooked red meat.

I also love sweet taste and I use small tablespoon of organic honey with my tea in morning. I hope this is not too much !

in reply to Sona_akb

It would be too much for me but not for you it seems!! I'm happy for you that you enjoy it. If I had that much honey all at once I would want the same again in 5 minutes. That's what happens to me when I have more than a speck of anything sweet. I could probably manage that much spread out in smaller doses over the day without putting my blood-sugar up too far or fast but I wouldn't do it every day.

Sona_akb profile image
Sona_akb in reply to

❤️❤️ it’s good that you look after your body by managing your diet. You’re so wise and clever. Keep up the great work

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