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Newbie
Hi At age 32 I had a triple negative tumour removed (lumpectomy) followed by chemo and radiotherapy. Fast forward 31 years I have just had a mastectomy after I had an oestrogen positive tumour. No chemo needed-phew! The op was 3 weeks ago & I still have a large haematoma that has already been drained
Hi At age 32 I had a triple negative tumour removed (lumpectomy) followed by chemo and radiotherapy. Fast forward 31 years I have just had a mastectomy after I had an oestrogen positive tumour. No chemo needed-phew! The op was 3 weeks ago & I still have a large haematoma that has already been drained
sissjg
in
SHARE Breast Cancer Support
1 year ago
Must manage your own healthcare
Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now tell everyone I know that women cannot rely on mammograms to find breast cancer. Must do regular self exams. Had double mastectomy and found macrometatastisis
Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now tell everyone I know that women cannot rely on mammograms to find breast cancer. Must do regular self exams. Had double mastectomy and found macrometatastisis
B17865
in
SHARE Metastatic Breast Cancer
1 year ago
Given new 500mg Hydroxycarbamide tablets today!?
Evening all, Was on Pegasus injections for over a year which ended up with a repeat side effect of pneumonia. Came off for 2 months & now have been prescribed 500mg Hydroxycarbamide Any advice would be greatly appreciated What time of day is best to take my 2 tablet dose? Thanks in advance Grant
Evening all, Was on Pegasus injections for over a year which ended up with a repeat side effect of pneumonia. Came off for 2 months & now have been prescribed 500mg Hydroxycarbamide Any advice would be greatly appreciated What time of day is best to take my 2 tablet dose? Thanks in advance Grant
Pappafraser
in
MPN Voice
1 year ago
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Radiotherapy only as treatment
Hi. Found a tumour (stage 2) in my oesophagus in Feb. Unable to have surgery so just had 4 weeks of Radiotherapy. Anyone here had similar? Thanks
Hi. Found a tumour (stage 2) in my oesophagus in Feb. Unable to have surgery so just had 4 weeks of Radiotherapy. Anyone here had similar? Thanks
CliveT
in
Oesophageal & Gastric Cancer
1 year ago
Complex ovarian cyst surgery
I have had this complex 2 cm cyst on my left ovary for 14 years now. It was under observation with periodic ulatrasounds. Now as I’ve entered menopause last year, I really think that surgery is my best option. I don’t have a family history of breast or ovarian cancer, but there were other cancers on
I have had this complex 2 cm cyst on my left ovary for 14 years now. It was under observation with periodic ulatrasounds. Now as I’ve entered menopause last year, I really think that surgery is my best option. I don’t have a family history of breast or ovarian cancer, but there were other cancers on
Annie2609
in
My Ovacome
1 year ago
Recent diagnosis of Ductal Invasive Breast Cancer
Hi everyone I was diagnosed with Ductal Invasive BC on the 11th July 2023. The lump was spotted on a CT scan which I had on the 5th June this year for an unrelated matter. I was lucky that it was picked up. I was referred to the Breast clinic for a mammogram on the 20th June which resulted in several
Hi everyone I was diagnosed with Ductal Invasive BC on the 11th July 2023. The lump was spotted on a CT scan which I had on the 5th June this year for an unrelated matter. I was lucky that it was picked up. I was referred to the Breast clinic for a mammogram on the 20th June which resulted in several
Nutlover
in
My Breast Cancer Community
1 year ago
Dental extraction
It never rains……… Have had a herniated disc for the past four weeks with the dreaded sciatica accompanying it with glee but despite that I have felt better having gone back on my Filgotinib JAK after being off it after a month of bronchitis in April on antibiotics. However, and here’s the rub, the back
It never rains……… Have had a herniated disc for the past four weeks with the dreaded sciatica accompanying it with glee but despite that I have felt better having gone back on my Filgotinib JAK after being off it after a month of bronchitis in April on antibiotics. However, and here’s the rub, the back
Amnesiac3637
in
NRAS
1 year ago
A little change
I haven't written for a while as busy getting our new home in order and taming the jungle of a garden. I'm loving living in the Scottish Highlands with so much to explore.I've been stable for some time on letrozole and ibrance 125mg. I have a lovely oncologist in Inverness and support from the Macmillan
I haven't written for a while as busy getting our new home in order and taming the jungle of a garden. I'm loving living in the Scottish Highlands with so much to explore.I've been stable for some time on letrozole and ibrance 125mg. I have a lovely oncologist in Inverness and support from the Macmillan
Beryl71
in
SHARE Metastatic Breast Cancer
1 year ago
Starting again after cancer....
So, graduation day was Feb 24, 2020. After which I ran and ran, got up to 3 half marathons. This January - diagnosis of cancer. Now it's almost August, and I have completed my treatments of Chemo and Radiotherapy. I am down to 12 stone from 14+. I am also still weak as a kitten, suffering
So, graduation day was Feb 24, 2020. After which I ran and ran, got up to 3 half marathons. This January - diagnosis of cancer. Now it's almost August, and I have completed my treatments of Chemo and Radiotherapy. I am down to 12 stone from 14+. I am also still weak as a kitten, suffering
layzellm
Graduate
in
Couch to 5K
1 year ago
Insurance headache
Hi All, I was diagnosed with AN in March 2022 at a referral to the hospital following a health check up in December 2021 during which a difference in my hearing between left and right ear was detected. AN measured 11x13 mm on MRI scan and I was referred to skullbase surgeon who recommended watch and
Hi All, I was diagnosed with AN in March 2022 at a referral to the hospital following a health check up in December 2021 during which a difference in my hearing between left and right ear was detected. AN measured 11x13 mm on MRI scan and I was referred to skullbase surgeon who recommended watch and
roland0302
in
Acoustic Neuroma Support
1 year ago
basal cell carcinom
I just had basal cell carcinoma removed from my scrotum. I believe this was a result of seed radiation and beam radiation for my prostate cancer on2008
I just had basal cell carcinoma removed from my scrotum. I believe this was a result of seed radiation and beam radiation for my prostate cancer on2008
rogerwegner
in
Advanced Prostate Cancer
1 year ago
just diagnosed with CKD stage 3.
hi all I have been on this sight for my husband who had prostate cancer and robotic prostatectomy 4 years ago. Due to very slight rise in PSA they did a Pet scan which showed kidney cancer, what a shock no symptoms at all, apparently until late stages there is no symptoms. Anyway he has had Nephrectomy
hi all I have been on this sight for my husband who had prostate cancer and robotic prostatectomy 4 years ago. Due to very slight rise in PSA they did a Pet scan which showed kidney cancer, what a shock no symptoms at all, apparently until late stages there is no symptoms. Anyway he has had Nephrectomy
Willowdene
in
Early CKD Support
1 year ago
flu symptoms with aps / stroke history
it’s my first time getting flu since my stroke a year ago. As an aps (and stroke) patient from my understanding of the condition, I am not immunosuppressed. But my flu whilst I haven’t had high fevers. I have felt my original stroke side effects come back - eg vestibular dizziness and it’s made the
it’s my first time getting flu since my stroke a year ago. As an aps (and stroke) patient from my understanding of the condition, I am not immunosuppressed. But my flu whilst I haven’t had high fevers. I have felt my original stroke side effects come back - eg vestibular dizziness and it’s made the
Sand1985
in
Hughes Syndrome APS Forum
1 year ago
bronchiastasis
hi I have bronchiastasis and new to it even though consultant thinks I’ve probably had it since childhood, I also have brittle asthma ( fingers crossed, been under control for years). Since 2019 I’ve had double pneumonia 3 times, sepsis twice and currently sat on a ward waiting for a scan for a possible
hi I have bronchiastasis and new to it even though consultant thinks I’ve probably had it since childhood, I also have brittle asthma ( fingers crossed, been under control for years). Since 2019 I’ve had double pneumonia 3 times, sepsis twice and currently sat on a ward waiting for a scan for a possible
Numptybrain
in
Lung Conditions Community Forum
1 year ago
Update after consultation w/Royal Marsden
I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The trigger was a marginally raised PSA (now 4.4) and some evidence on more bone mets, failing Enzalutamide and being offered a course of chemo (which
I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The trigger was a marginally raised PSA (now 4.4) and some evidence on more bone mets, failing Enzalutamide and being offered a course of chemo (which
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
Seeking options/opinions
I hope you look back on previous posts and background. Finished Pluvicto in spring 23. Started out fine but went sideways. By mid May, psa and alk were on rise. MO suggested going to Xofigo but hemoglobin numbers were too low, sub 7, got transfusion. Decided to rechallenge with taxotere. (Zytiga worked
I hope you look back on previous posts and background. Finished Pluvicto in spring 23. Started out fine but went sideways. By mid May, psa and alk were on rise. MO suggested going to Xofigo but hemoglobin numbers were too low, sub 7, got transfusion. Decided to rechallenge with taxotere. (Zytiga worked
RunThru
in
Advanced Prostate Cancer
1 year ago
second opinion doc recommendations- outside of India
Hi everyone, My father’s PCa stage 4 has advanced to small cell carcinoma of liver. Want to consult doctors (experts in this particular mutation of PCa) outside of India. Please suggest who is the best in your opinion? Thanks. Wishing good health to everyone!
Hi everyone, My father’s PCa stage 4 has advanced to small cell carcinoma of liver. Want to consult doctors (experts in this particular mutation of PCa) outside of India. Please suggest who is the best in your opinion? Thanks. Wishing good health to everyone!
A-rat-22
in
Advanced Prostate Cancer
1 year ago
Potential immunotherapy for MBC
Hello ladies, it is my first post, I am writing from a small country in Europe, and I felt very grateful in the past months to discover your stories, since I've been diagnosed with de novo MBC (bone mets in spine and pelvis) this January, being aged 33. It gave me a lot of knowledge about my disease,
Hello ladies, it is my first post, I am writing from a small country in Europe, and I felt very grateful in the past months to discover your stories, since I've been diagnosed with de novo MBC (bone mets in spine and pelvis) this January, being aged 33. It gave me a lot of knowledge about my disease,
Any1989
in
SHARE Metastatic Breast Cancer
1 year ago
Hemorrhoid treatment after Brachytherapy for Prostate Cancer
I was being treated for Hemorrhoids 2 years ago when I learned that I needed to have treatment for prostate cancer. I decided on HDR Brachytherapy. When I informed my colorectal surgeon that I would by getting radiation treatment, he told me that he could not treat my remaining hemorrhoids, since the
I was being treated for Hemorrhoids 2 years ago when I learned that I needed to have treatment for prostate cancer. I decided on HDR Brachytherapy. When I informed my colorectal surgeon that I would by getting radiation treatment, he told me that he could not treat my remaining hemorrhoids, since the
PopCubby
in
Prostate Cancer Network
1 year ago
Kennel cough vaccine dilemma
My wife recently took my dog to the vets for his annual booster and kennel cough vaccine. As I am immunocompromised I am aware that there is a very small risk to myself as the kennel cough vaccine is live. I also understood (maybe incorrectly) that if my dog did not have the vaccine and were to subsequently
My wife recently took my dog to the vets for his annual booster and kennel cough vaccine. As I am immunocompromised I am aware that there is a very small risk to myself as the kennel cough vaccine is live. I also understood (maybe incorrectly) that if my dog did not have the vaccine and were to subsequently
Hightower62
in
NRAS
1 year ago
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