just diagnosed with CKD stage 3.

[Willowdene]

hi all I have been on this sight for my husband who had prostate cancer and robotic prostatectomy 4 years ago. Due to very slight rise in PSA they did a Pet scan which showed kidney cancer, what a shock no symptoms at all, apparently until late stages there is no symptoms. Anyway he has had Nephrectomy and awaiting scan and blood results next week to ensure no cancer cells are anywhere else in body . Has been very well through out.

Now it’s me. I’m a fit 75 yr old lady exercise and only have thyroxine for hypothyroidism for many years . Recently had usual annual test for thyroxine levels and GP said my U&E showed I have chronic kidney disease stage 3, I’m shocked. He told me not to worry this is common as we get older and will monitor me every 6 months. My B/P is low I don’t drink smoke etc. of course I worry such a lot of information on internet says 4-6 years life expectancy. Considering I’m so active and no symptoms of anything it is depressing. My creatinine is 85 and GFR 58. I reckon my lab here rated me high stage 3 what do you all think?

I now wonder do I have to look at my diet.

Ricky do you have to change your diet with one kidney as my husband has no idea.? Can he carry on enjoying his food as before Nephrectomy.

Thank you all in anticipation

[userotc]

3 points:

1. "Internet says 4-6 years life expectancy". Wrong - as long as you make changes (below), CKD can be managed successfully. There's no relevant drugs for most - hence likely reason docs dont even tell you until CKD3 or beyond (a big mistake as YOU can do something!).

2. "Do I have to look at my diet?". Yes, probably. My mum has been CKD3 for many years (dad found out when checking her Patient Access online!). By following a Nutritional Therapy protocol (diet & lifestyle), she has almost doubled her eGFR to ~60 latest in the past ~6y. Also she found other health benefits eg weaned off blood pressure medication.

3. "Do you have to change your diet post-nephrectomy?" Not specifically because of 1 kidney but because it helps with CKD, as above. Mum also had a nephrectomy due to cancer ~6y ago and that spurred the nutrition and lifestyle change mentioned above.

So I recommend you BOTH see a qualified Nutritional Therapist that specialises in renal. All therapy should be personalised though potentially one of you may get some guidance for the other if the NT thinks appropriate and cost is an issue (2 for the price of one!).

I can send links to possible NTs from which to choose, if you wish to consider the above.

[Willowdene in reply to userotc]

Thank you very informative links to NTs helpful please

[userotc in reply to Willowdene]

2 links below for options, ideally CNHC registered too (option shown). Good luck!

practitioner-search.bant.or...

theanp.co.uk/member-directory/