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Has anyone else experienced olfactory hallucinations? Phantosmia?
Im wondering if anyone else has experienced this. I’m really struggling to deal with this FND or whatever it is. Tonight I was laying in bed falling asleep to a Netflix show and I kept getting, in my right nostril, a really foul sewage like smell. I obviously got up smelled my bedding smelled my clothes
Im wondering if anyone else has experienced this. I’m really struggling to deal with this FND or whatever it is. Tonight I was laying in bed falling asleep to a Netflix show and I kept getting, in my right nostril, a really foul sewage like smell. I obviously got up smelled my bedding smelled my clothes
seamuspg
in
Functional Neurological Disorder - FND Hope
3 years ago
Anyone used Vitex (Agnus castus/chasteberry) and did it help or aggravate RLS?
Having heavy n prolonged periods so was researching solutions. Came across Vitex (to balance out hormones) but no idea if it's safe for RLS because when I googled Vitex RLS I read something about it affecting dopamine receptors? Has anyone used this for their periods or any other issue, or can advise
Having heavy n prolonged periods so was researching solutions. Came across Vitex (to balance out hormones) but no idea if it's safe for RLS because when I googled Vitex RLS I read something about it affecting dopamine receptors? Has anyone used this for their periods or any other issue, or can advise
ejaji
in
Restless Legs Syndrome
3 years ago
Progynova & Cyclogest in FET
Hello, I’m driving myself mad again so hoping someone can help! My clinic have said to stop progynova and cyclogest at 9 weeks. I can’t get my head around how I am going from 12mg progynova one day and then none the next day! They have agreed I can stay on cyclogest until 12 weeks but my anxiety is through
Hello, I’m driving myself mad again so hoping someone can help! My clinic have said to stop progynova and cyclogest at 9 weeks. I can’t get my head around how I am going from 12mg progynova one day and then none the next day! They have agreed I can stay on cyclogest until 12 weeks but my anxiety is through
Bobbins233218
in
Fertility Network UK
3 years ago
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'Checkup's'
Hi all I've not been here for a while, so apologies to one and all. I have been receiving PIP since October 2019. Yesterday (saturday) I received a 'brown envelope' asking to fill in my medical history, accumulate 'evidence' and send everything back to DWP or whoever they are by 29th December. I really
Hi all I've not been here for a while, so apologies to one and all. I have been receiving PIP since October 2019. Yesterday (saturday) I received a 'brown envelope' asking to fill in my medical history, accumulate 'evidence' and send everything back to DWP or whoever they are by 29th December. I really
Camhanaich
in
Fibromyalgia Action UK
3 years ago
Black Cohosh Research
In a post discussing hot flushes, a couple of members said they used black cohosh. When I started researching it, I was surprised to find research abstracts showing that it killed prostate cancer cells in vitro and in mouse models. I’d never heard of using it for hot flushes or a possible adjunct treatment
In a post discussing hot flushes, a couple of members said they used black cohosh. When I started researching it, I was surprised to find research abstracts showing that it killed prostate cancer cells in vitro and in mouse models. I’d never heard of using it for hot flushes or a possible adjunct treatment
Javelin18
in
Advanced Prostate Cancer
3 years ago
Nightmares
Morning ladies - For the last few nights I’ve had the most awful vivid nightmares, well actually night terrors and waking up screaming. Really distressing. I’ve been taking Letrozole and Niraparib since April but this is not listed as a side effect. Trouble falling asleep and staying asleep is listed
Morning ladies - For the last few nights I’ve had the most awful vivid nightmares, well actually night terrors and waking up screaming. Really distressing. I’ve been taking Letrozole and Niraparib since April but this is not listed as a side effect. Trouble falling asleep and staying asleep is listed
Robbo16
in
My Ovacome
3 years ago
Full Body Cryotherapy
Anyone have any research or stories about whole body cryotherapy and CLL? I tried a 3 minuet liquid nitrogen cryotherapy today. My thinking was cold supposedly induces DNA repair and I doubt cold could do any real harm. I searched the site but didn’t see anything directly addressing this type of
Anyone have any research or stories about whole body cryotherapy and CLL? I tried a 3 minuet liquid nitrogen cryotherapy today. My thinking was cold supposedly induces DNA repair and I doubt cold could do any real harm. I searched the site but didn’t see anything directly addressing this type of
Rando21
in
CLL Support
3 years ago
Mirapex pramipexole withdrawal taper
This is the 12th day after my second reduction in Mirapex. My first production was from 0.5 mg to 0.375 mg. I only had three bad days out of three weeks. But my second reduction went from 0.3752 mg to 0.25 mg and I am having serious difficulties - very serious difficulties. Do these usually go away after
This is the 12th day after my second reduction in Mirapex. My first production was from 0.5 mg to 0.375 mg. I only had three bad days out of three weeks. But my second reduction went from 0.3752 mg to 0.25 mg and I am having serious difficulties - very serious difficulties. Do these usually go away after
tagaxel
in
Restless Legs Syndrome
3 years ago
Considering Rapamycin
Rapamycin (aka Sirolimus) is a very interesting drug of diverse effects. It is being explored in early trials for PC because of positive effects demonstrated in cell cultures of PC cell lines and in animal model (mice). A phase I dosing study in human PC patients demonstrated a safe profile in moderate
Rapamycin (aka Sirolimus) is a very interesting drug of diverse effects. It is being explored in early trials for PC because of positive effects demonstrated in cell cultures of PC cell lines and in animal model (mice). A phase I dosing study in human PC patients demonstrated a safe profile in moderate
MateoBeach
in
Advanced Prostate Cancer
3 years ago
Random Twitches
Hi all, When I was first diagnosed with RLS a few years back, I was also sent on a sleep study which showed I suffer from PLMS in the night too. However, over the last month or two, I have been getting random twitches in my hands, legs and arms (mostly on the left side). I always assumed that PLMS
Hi all, When I was first diagnosed with RLS a few years back, I was also sent on a sleep study which showed I suffer from PLMS in the night too. However, over the last month or two, I have been getting random twitches in my hands, legs and arms (mostly on the left side). I always assumed that PLMS
Keaney27
in
Restless Legs Syndrome
3 years ago
Massage Therapy
This has been such a beautiful experience for Mom. She is so relaxed … hands, arms, shoulders, legs, and her most favorite is her scalp. In-home therapist is just what she needed.
This has been such a beautiful experience for Mom. She is so relaxed … hands, arms, shoulders, legs, and her most favorite is her scalp. In-home therapist is just what she needed.
bazooka111
in
PSP Association
3 years ago
Enlarged dilated pupils
Had a very scary episode yesterday two hours after taking my meds (1/2 senemit and eighth of tsp 99% mucuna) Started with blurred vision like there was grey smoke in the room. My pupils dilated so large as if I was a junkie. This lasted for about 4 hrs. Felt otherwise normal (apart from freaking out
Had a very scary episode yesterday two hours after taking my meds (1/2 senemit and eighth of tsp 99% mucuna) Started with blurred vision like there was grey smoke in the room. My pupils dilated so large as if I was a junkie. This lasted for about 4 hrs. Felt otherwise normal (apart from freaking out
saraoutwest
in
Cure Parkinson's
3 years ago
Took Crinone (vag) mistakenly instead of Progynova (vag
Hi everyone, I need you advise and guidance desperately :(. I started today with medication prep for FET and I took the first dose of Progynova orally at 9am but as medications had not arrived yet, I managed all in panic to open the med package and take quickly at 11:30 one dose of Crinone pessary (
Hi everyone, I need you advise and guidance desperately :(. I started today with medication prep for FET and I took the first dose of Progynova orally at 9am but as medications had not arrived yet, I managed all in panic to open the med package and take quickly at 11:30 one dose of Crinone pessary (
ValaI
in
Fertility Network UK
3 years ago
Penile Injection Therapy
I notice none of these medications are listed in Goodrx. Does anyone know how much they cost? What some of the plusses and minuses are in their use? "The three main types of medications used in penile injection therapy include: papaverine phentolamine prostaglandin E1 (PGE1) or alprostadil (Caverject
I notice none of these medications are listed in Goodrx. Does anyone know how much they cost? What some of the plusses and minuses are in their use? "The three main types of medications used in penile injection therapy include: papaverine phentolamine prostaglandin E1 (PGE1) or alprostadil (Caverject
cesces
in
Advanced Prostate Cancer
3 years ago
ME exercise therapy guidance scapped by Health watchdog Nice
[i]ME exercise therapy guidance scapped by Health watchdog Nice[/i]
[i]Victory for campaigners as graded exercise therapy they rated ‘harmful’ is taken off list of recommended treatments[/i] [i]A disputed therapy that encourages people with ME to gradually increase physical activity will no
[i]ME exercise therapy guidance scapped by Health watchdog Nice[/i]
[i]Victory for campaigners as graded exercise therapy they rated ‘harmful’ is taken off list of recommended treatments[/i] [i]A disputed therapy that encourages people with ME to gradually increase physical activity will no
helvella
Thyroid UK
in
Thyroid UK
3 years ago
MSA with Ambroxol HCL - a tentative success story!
Final edit update! Writing this 13/2/23. While our success with early ambroxol looked positive, her disease progression continued. At this point my guess is that it affects downstream symptoms, but only clinical trials will be able to say if it slows progression. Also, although it did greatly improve
Final edit update! Writing this 13/2/23. While our success with early ambroxol looked positive, her disease progression continued. At this point my guess is that it affects downstream symptoms, but only clinical trials will be able to say if it slows progression. Also, although it did greatly improve
Robb48
in
Cure Parkinson's
3 years ago
Can anyone recommend essential oils for depression, sleep difficulty and /or pain?
My wife has problems with depression and sometimes sleep difficulty and is taking medicine (she has thyroid problems as well). In addition to this, sometimes I massage her with natural hemp seed oil, which she found to be useful even for any aches and pain. However, I am finding it difficult to find
My wife has problems with depression and sometimes sleep difficulty and is taking medicine (she has thyroid problems as well). In addition to this, sometimes I massage her with natural hemp seed oil, which she found to be useful even for any aches and pain. However, I am finding it difficult to find
ghost_writer
in
Headway
3 years ago
Sleep Apnea very common with AF
Here's an interesting post about Sleep Apnea: https://www.medscape.com/viewarticle/961271?src= In a study of 188 patients with atrial fibrillation without a history of sleep apnea that all had home sleep studies. 82% had sleep apnea. Also treatment of sleep apnea cleared up night sweats and excessive
Here's an interesting post about Sleep Apnea: https://www.medscape.com/viewarticle/961271?src= In a study of 188 patients with atrial fibrillation without a history of sleep apnea that all had home sleep studies. 82% had sleep apnea. Also treatment of sleep apnea cleared up night sweats and excessive
MarkS
in
AF Association
3 years ago
Horizant for RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
halperinchen
in
Restless Legs Syndrome
3 years ago
The thyroid hormone converting enzyme human deiodinase 1 is inhibited by gold ions from inorganic salts, organic substances, ...
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
helvella
Thyroid UK
in
Thyroid UK
3 years ago
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