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Cladribine for MS
I have started Cladribine injection recently. I have change from Ocrelizumab.I would like to know the positive effect of cladribine on my mobility.
I have started Cladribine injection recently. I have change from Ocrelizumab.I would like to know the positive effect of cladribine on my mobility.
Sanoosh
in
My MSAA Community
2 years ago
MAOI for depression in Parkinson’s
I’ve been through everything for my Parkinson’s depression and anxiety anhedonia disorder but nothing touches it. Recently started Rasagiline which I’ve been on for about a month but not feeling anything from it. Next suggestion from my neuro psychiatrist is moclobimide but I read it doesn’t increase
I’ve been through everything for my Parkinson’s depression and anxiety anhedonia disorder but nothing touches it. Recently started Rasagiline which I’ve been on for about a month but not feeling anything from it. Next suggestion from my neuro psychiatrist is moclobimide but I read it doesn’t increase
Schofield81
in
Cure Parkinson's
2 years ago
Non Medical Sleep aid
I found something that helps my sleep. According to my sleep tracker, I am setting new records in the quality of my sleep! What changed? I bought a sleep mask. It was less than $20... Amazon. I became addicted on day 1. It is amazing how something so simple could help so much. I know we
I found something that helps my sleep. According to my sleep tracker, I am setting new records in the quality of my sleep! What changed? I bought a sleep mask. It was less than $20... Amazon. I became addicted on day 1. It is amazing how something so simple could help so much. I know we
WideBody
in
Restless Legs Syndrome
2 years ago
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For those on Lupron experiencing fatigue…
I have been on intermittent Lupron for over ten years after biological reoccurrence after robotic prostatectomy. Fortunately it has worked well to keep my psa in check but fatigue and general loss of stamina has kept me from engaging in many physical activities I used to enjoy. FORTUNATELY I have been
I have been on intermittent Lupron for over ten years after biological reoccurrence after robotic prostatectomy. Fortunately it has worked well to keep my psa in check but fatigue and general loss of stamina has kept me from engaging in many physical activities I used to enjoy. FORTUNATELY I have been
keys2life
in
Advanced Prostate Cancer
2 years ago
LDN Dosing for Cancer - General Guide
For an adult cancer patient who has “no evidence of disease” and wants to use LDN as recurrence prevention, I generally set a target dose of 2mg – 4.5mg. I start at 2mg and gradually increase to 3mg then 4mg then 4.5mg as tolerated. I use bedtime dosing as long as sleep is ok prior to starting LDN.
For an adult cancer patient who has “no evidence of disease” and wants to use LDN as recurrence prevention, I generally set a target dose of 2mg – 4.5mg. I start at 2mg and gradually increase to 3mg then 4mg then 4.5mg as tolerated. I use bedtime dosing as long as sleep is ok prior to starting LDN.
Shewulf
Administrator
in
LDN Research Trust
2 years ago
Can people with Hashimotos thyroid condition safely take Modafinil safely?
Can people with Hashimotos thyroid condition safely take Modafinil safely?
Can people with Hashimotos thyroid condition safely take Modafinil safely?
Biker1666
in
Thyroid UK
2 years ago
help please, migraine meds
does anyone know if migraleve is contra-indicated with T3? I know I'm OK with T4 but: paracetamol, codeine phosphate & buclizine hydrochloride, anyone? @helvella ? sorry to tag just can't find info
does anyone know if migraleve is contra-indicated with T3? I know I'm OK with T4 but: paracetamol, codeine phosphate & buclizine hydrochloride, anyone? @helvella ? sorry to tag just can't find info
turquoisea7
in
Thyroid UK
2 years ago
Adalimumab
I have RA and Parkinson’s and noticed after starting Adalimumab that my tremors, cramps and stiffness has increased. Any thoughts anyone?
I have RA and Parkinson’s and noticed after starting Adalimumab that my tremors, cramps and stiffness has increased. Any thoughts anyone?
Tickles1960
in
NRAS
2 years ago
Sleep
Hi, I vaguely recall someone discussing Nytol herbal sleep aid tablets a while ago, there are green boxes & blue boxes & someone recommended one of these but I can't remember which one was considered more useful when suffering with Tinnutis & poor sleep???Any help much appreciated
Hi, I vaguely recall someone discussing Nytol herbal sleep aid tablets a while ago, there are green boxes & blue boxes & someone recommended one of these but I can't remember which one was considered more useful when suffering with Tinnutis & poor sleep???Any help much appreciated
Tia4
in
Tinnitus UK
2 years ago
Ibrutnib, HBP, RLS, and insomnia issues
I'm an 80 year old male and have been on ibrutinib for the past 18 months. The ocologist approved my request to reduce my treatment to 2 doses per day but has so far refused my request for an additional reduction to one a day. I've lived a healthy lifestyle so ibrutinib is the only medication I've been
I'm an 80 year old male and have been on ibrutinib for the past 18 months. The ocologist approved my request to reduce my treatment to 2 doses per day but has so far refused my request for an additional reduction to one a day. I've lived a healthy lifestyle so ibrutinib is the only medication I've been
sportage21
in
CLL Support
2 years ago
is this too many?
I have just worked out that since I was prescribed Verapamil, middle of June 2023, as a Pip, I have had 12 Af episodes when I have taken the pip (which sorts me out) I know I have had shorter af episodes since being on nebivolol, not reaching a high rate - I think the highest has been 138, maybe 142
I have just worked out that since I was prescribed Verapamil, middle of June 2023, as a Pip, I have had 12 Af episodes when I have taken the pip (which sorts me out) I know I have had shorter af episodes since being on nebivolol, not reaching a high rate - I think the highest has been 138, maybe 142
Tilly1957
in
AF Association
2 years ago
Trihexyphenidyl medication for PD
Hello, my husband with tremor dominant PD has been prescribed Trihexyphenidly (aka Artane, Trihexane and Tritane) by his neurologists to try and reduce his tremors. He is currently on Madopar and its not really helping. Does anyone have any experience with this drug? Many thanks.
Hello, my husband with tremor dominant PD has been prescribed Trihexyphenidly (aka Artane, Trihexane and Tritane) by his neurologists to try and reduce his tremors. He is currently on Madopar and its not really helping. Does anyone have any experience with this drug? Many thanks.
lingfield222
in
Cure Parkinson's
2 years ago
Sleeping aid with Afib.
Just curious to see what you folks that have problems going to sleep have been prescribed to help and not affect your Afib. I've tried, Benadryl, valarian, clemastine, and meletonin and they either aggravate my afib or just don't work. I might need to have a doctor call in a prescription as the over
Just curious to see what you folks that have problems going to sleep have been prescribed to help and not affect your Afib. I've tried, Benadryl, valarian, clemastine, and meletonin and they either aggravate my afib or just don't work. I might need to have a doctor call in a prescription as the over
riffjack846
in
AF Association
2 years ago
Duloxetine
Hi.I've just been given Duloxetine for my Anxiety and Depression. I have been feeling poorly for a long time, with so many different things wrong, gastric trouble, shaking, no interest, so very tired the list I endless, in the end I contacted my doctor. I didn't want a strong Antidepressant, so he
Hi.I've just been given Duloxetine for my Anxiety and Depression. I have been feeling poorly for a long time, with so many different things wrong, gastric trouble, shaking, no interest, so very tired the list I endless, in the end I contacted my doctor. I didn't want a strong Antidepressant, so he
Janlyn1953
in
Anxiety Support
2 years ago
Can modafinil treat Parkinson's?
Parkinson’s disease drugs may cause daytime sleepiness. Some people experience sleep attacks, during which they suddenly feel intensely tired or even fall asleep. Because modafinil is a stimulant, it can help people feel more awake and alert. Some also experience a heightened sense of focus on the
Parkinson’s disease drugs may cause daytime sleepiness. Some people experience sleep attacks, during which they suddenly feel intensely tired or even fall asleep. Because modafinil is a stimulant, it can help people feel more awake and alert. Some also experience a heightened sense of focus on the
Farooqji
in
Cure Parkinson's
2 years ago
12 weeks on Adalimumab, lots of pain and fatigue. Feeling depressed.
Hi everyone, can anyone offer any words or comfort or advice please?I was told at the beginning that this would change my life. A few weeks back I visited rheumatology and I said that I was dissatisfied with the drug, they told me to give it longer. I feel so down.
Hi everyone, can anyone offer any words or comfort or advice please?I was told at the beginning that this would change my life. A few weeks back I visited rheumatology and I said that I was dissatisfied with the drug, they told me to give it longer. I feel so down.
Comeonpeeps
in
NRAS
2 years ago
Thought of the day - B12 paradox
Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high
Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high
Pickle500
in
Pernicious Anaemia Society
2 years ago
Sleep Study and Sleep Cycle app
I had mentioned earlier that I was having a sleep study last of December, the artic blast that hit the US made travel impossible. So I plan to reschedule once they are back in office. I didn't think I snored but the Sleep Cycle says I do lol. Wondered if anyone has used it, I find it helpful with
I had mentioned earlier that I was having a sleep study last of December, the artic blast that hit the US made travel impossible. So I plan to reschedule once they are back in office. I didn't think I snored but the Sleep Cycle says I do lol. Wondered if anyone has used it, I find it helpful with
Opie__
in
Restless Legs Syndrome
2 years ago
Recommendation
I need advice under standing how to take my meds and supplements. I take omeprazole, (for gerd) Losartan 12.5 mg.(Blood pressure) Allegra 180mg ((Allergy) Multi Vitamin, B12 1000mg, zinc 50mg, Gentle Iron 25 mg, 1200 mg of Gabapentin, I also take a sleep aid either Tylenol PM, Advil PM, or Trazodone
I need advice under standing how to take my meds and supplements. I take omeprazole, (for gerd) Losartan 12.5 mg.(Blood pressure) Allegra 180mg ((Allergy) Multi Vitamin, B12 1000mg, zinc 50mg, Gentle Iron 25 mg, 1200 mg of Gabapentin, I also take a sleep aid either Tylenol PM, Advil PM, or Trazodone
Courtroad
in
Restless Legs Syndrome
2 years ago
Amyloidosis
Has anyone been diagnosed with Amyloidosis of the heart which is causing Afib permanently? How are they being treated, etc?
Has anyone been diagnosed with Amyloidosis of the heart which is causing Afib permanently? How are they being treated, etc?
Flimmeri
in
AF Association
2 years ago
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