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My next step in my journey after A&E visit - few questions for people who’s been diagnosed if poss?
How long was it untill they placed you on suitable medication after you met with the consultant and just an overall outline of what I have to come with the rheumatologist based on my results I have currently and my symptoms which are: Comes and goes : Red face
Ulcers
in mouth / lesions Circle patch
How long was it untill they placed you on suitable medication after you met with the consultant and just an overall outline of what I have to come with the rheumatologist based on my results I have currently and my symptoms which are: Comes and goes : Red face
Ulcers
in mouth / lesions Circle patch
Staceylouise90
in
LUPUS UK
5 years ago
Mouth ulcers
Hello good people of BLT.wondering has anybody had any issues with mouth
ulcers
post transplant as im thinking I’m getting them because of my immunosuppressant medication but could be wrong .paul
Hello good people of BLT.wondering has anybody had any issues with mouth
ulcers
post transplant as im thinking I’m getting them because of my immunosuppressant medication but could be wrong .paul
Popel
in
British Liver Trust
5 years ago
Advice please re excessive swelling and burned looking skin
I have had
ulcers
in my mouth , throat and groin which cleared up and we came away on holiday to North Wales on Saturday to de stress. Yesterday my feet swelled badly and started to burn. Today my lower legs and feet are so grossly swollen I cannot bend my feet, knocking me off balance.
I have had
ulcers
in my mouth , throat and groin which cleared up and we came away on holiday to North Wales on Saturday to de stress. Yesterday my feet swelled badly and started to burn. Today my lower legs and feet are so grossly swollen I cannot bend my feet, knocking me off balance.
CecilyParsley
in
LUPUS UK
5 years ago
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Fibroid and cyst found - think I have endo too, would love some advice and support as it’s scary!
Will cut a long story short, had a complicated medical history for the last 18 months, not helped by being misdiagnosed; diaphragmatic hernia that bowel looped through (botched op resulting in pneumonia and bilateral pulmonary embolisms), osophogitus and stomach
ulcers
just diagnosed and CT scan accidentally
Will cut a long story short, had a complicated medical history for the last 18 months, not helped by being misdiagnosed; diaphragmatic hernia that bowel looped through (botched op resulting in pneumonia and bilateral pulmonary embolisms), osophogitus and stomach
ulcers
just diagnosed and CT scan accidentally
Fungifips
in
Endometriosis UK
5 years ago
Looking for advice on meds and where to go next
I currently have 6
ulcers
in my mouth... everytime he’s tried to take me off this happens.. I’m getting frustrated. I’m also taking 1 60 mg tablet of Colchicine 1.5 50mg tablets of azathioprine and 10mg of folic acid once a week.
I currently have 6
ulcers
in my mouth... everytime he’s tried to take me off this happens.. I’m getting frustrated. I’m also taking 1 60 mg tablet of Colchicine 1.5 50mg tablets of azathioprine and 10mg of folic acid once a week.
Camp1997
in
Behçet's UK
5 years ago
Herpes??
This “herpes doctor” now did both a blood test and a swab test of the
ulcers
again and both came back positive with herpes. To me, there is no possibility of me ever getting herpes. I’ve read about the HSV virus being prevalent in Behçets
ulcers
and blood without it being herpes.
This “herpes doctor” now did both a blood test and a swab test of the
ulcers
again and both came back positive with herpes. To me, there is no possibility of me ever getting herpes. I’ve read about the HSV virus being prevalent in Behçets
ulcers
and blood without it being herpes.
Stin4
in
Behçet's UK
5 years ago
Low back pain and a rash
Mucocutaneous findings include balanitis circinata, circinate vulvitis, keratoderma blenorrhagicum, and oral
ulcers
. Patients occasionally have systemic features, including fever, weight loss, and fatigue.
Mucocutaneous findings include balanitis circinata, circinate vulvitis, keratoderma blenorrhagicum, and oral
ulcers
. Patients occasionally have systemic features, including fever, weight loss, and fatigue.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Mouth ulcers since progynova
Anyone else have mouth
ulcers
since starting progynova? I have lots all of a sudden and my mouth is killing 😩 xx
Anyone else have mouth
ulcers
since starting progynova? I have lots all of a sudden and my mouth is killing 😩 xx
Sunshineraye
in
Fertility Network UK
5 years ago
Mouth ulcers
Have you tried Gelclair, made by Helsinn? Economical to buy a bottle, use 15 ml mixed with 40 m water and wash it round your mouth, then spit out. Recommended for cancer patients, anyone on chemo, which includes Hydrea. Seems good to me.
Have you tried Gelclair, made by Helsinn? Economical to buy a bottle, use 15 ml mixed with 40 m water and wash it round your mouth, then spit out. Recommended for cancer patients, anyone on chemo, which includes Hydrea. Seems good to me.
lucieboo
in
MPN Voice
5 years ago
Little update
I’ve been having some jaw and tooth pain lately so I begrudgingly brought myself to the dentist. My least favorite place to be. I hadn’t been to a dentist in years but for once that’s actually my choice. I hated my old dentist and vowed never to go to the dentist again after my parents told me they thought
I’ve been having some jaw and tooth pain lately so I begrudgingly brought myself to the dentist. My least favorite place to be. I hadn’t been to a dentist in years but for once that’s actually my choice. I hated my old dentist and vowed never to go to the dentist again after my parents told me they thought
Ccrowlu
in
NRAS
5 years ago
What’s right what’s wrong
I was pretty chuffed because I didn’t appear to have any of the usual side effects, no nausea, no flu like symptoms 😊 However, I was plagued by constant
ulcers
, sometimes 8/9 at a time and the pain....arghh.
I was pretty chuffed because I didn’t appear to have any of the usual side effects, no nausea, no flu like symptoms 😊 However, I was plagued by constant
ulcers
, sometimes 8/9 at a time and the pain....arghh.
Lauranorder
in
NRAS
5 years ago
Antiphospholipid Antibodies Overlapping in Isolated Neurological Syndrome and Multiple Sclerosis: Neurobiological Insights & Diagnostic . .
The pilot therapeutic trial RITAPS that was designed to evaluate the efficacy and safety of rituximab in non-criteria APS manifestations (cognitive dysfunction, thrombocytopenia, cardiac valve disease, skin
ulcers
, nephropathy) did not show significant improvement of aPL profiles but a beneficial effect
The pilot therapeutic trial RITAPS that was designed to evaluate the efficacy and safety of rituximab in non-criteria APS manifestations (cognitive dysfunction, thrombocytopenia, cardiac valve disease, skin
ulcers
, nephropathy) did not show significant improvement of aPL profiles but a beneficial effect
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Could it be Lupus ?
Just as a bit of background during a routine dental appointment my Dentist queried mouth
ulcers
on my palette and I said I was prone to this and they were painless. He said maybe mention to GP as could be Lupus.
Just as a bit of background during a routine dental appointment my Dentist queried mouth
ulcers
on my palette and I said I was prone to this and they were painless. He said maybe mention to GP as could be Lupus.
Loopy71
in
LUPUS UK
5 years ago
Mouth Ulcers/Cold Sores
Does anybody get mouth
ulcers
(cold sores) with their B12D? I was low on b12 (159) for many years and got cold sores frequently. I've been supplementing for 3.5 months heavily now and just got some new ones in my lip area and cheek.
Does anybody get mouth
ulcers
(cold sores) with their B12D? I was low on b12 (159) for many years and got cold sores frequently. I've been supplementing for 3.5 months heavily now and just got some new ones in my lip area and cheek.
lownskater52
in
Pernicious Anaemia Society
5 years ago
METHOTREXATE (MTX) TRIAL - UPDATE...
.), a more complete set of medication alternatives, as we MPNers only ever seem to have the same few options, and we do of course realise today that the preferred 'frontline' treatment of 'Hydroxycarbamideurea' (HU) comes with a unique set of unwanted side-effects like mouth and leg
ulcers
that will
.), a more complete set of medication alternatives, as we MPNers only ever seem to have the same few options, and we do of course realise today that the preferred 'frontline' treatment of 'Hydroxycarbamideurea' (HU) comes with a unique set of unwanted side-effects like mouth and leg
ulcers
that will
socrates_8
in
MPN Voice
5 years ago
Very bad taste in my mouth
Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experience, but for 3-4 weeks it’s been a lot worse. I’ve recently had a lot of stress, can this be a factor? It seems to hit about an hour or so after eating. I’ve been managing it somewhat by watching diet, taking Tums, and
Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experience, but for 3-4 weeks it’s been a lot worse. I’ve recently had a lot of stress, can this be a factor? It seems to hit about an hour or so after eating. I’ve been managing it somewhat by watching diet, taking Tums, and
Mstiles
in
PMRGCAuk
5 years ago
Very bad taste in my mouth
Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experience, but for 3-4 weeks it’s been a lot worse. I’ve recently had a lot of stress, can this be a factor? It seems to hit about an hour or so after eating. I’ve been managing it somewhat by watching diet, taking Tums, and
Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experience, but for 3-4 weeks it’s been a lot worse. I’ve recently had a lot of stress, can this be a factor? It seems to hit about an hour or so after eating. I’ve been managing it somewhat by watching diet, taking Tums, and
Mstiles
in
PMRGCAuk
5 years ago
How to increase or normalise acid levels in your stomach
I'm currently scratching my head trying to work out how to get some acidity into my stomach without actually ingesting anything, as this solution is out for me due to duodenal
ulcers
and chronic gastritis, which is in a permanent flare up.
I'm currently scratching my head trying to work out how to get some acidity into my stomach without actually ingesting anything, as this solution is out for me due to duodenal
ulcers
and chronic gastritis, which is in a permanent flare up.
expatkerry
in
Pernicious Anaemia Society
5 years ago
Hughes syndrome antiphospholipid syndrome
echocardiography or auscultation) to very severe, requiring cardiac surgery.[21]
Skin
Livedo reticularis
is an important feature of Hughes syndrome and a significant diagnostic clue.[22] In other patients, skin thrombosis – especially in the lower limbs – can lead to chronic leg
ulcers
echocardiography or auscultation) to very severe, requiring cardiac surgery.[21]
Skin
Livedo reticularis
is an important feature of Hughes syndrome and a significant diagnostic clue.[22] In other patients, skin thrombosis – especially in the lower limbs – can lead to chronic leg
ulcers
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Pv with mouth ulcers using peg interferon
I was told he will discuss going on lower dosage 22 mcg because of my
ulcers
when I go for my next appointment.
I was told he will discuss going on lower dosage 22 mcg because of my
ulcers
when I go for my next appointment.
Zar77
in
MPN Voice
5 years ago
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