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Little update
I’ve been having some jaw and tooth pain lately so I begrudgingly brought myself to the dentist. My least favorite place to be. I hadn’t been to a dentist in years but for once that’s actually my choice. I hated my old dentist and vowed never to go to the dentist again after my parents told me they thought
I’ve been having some jaw and tooth pain lately so I begrudgingly brought myself to the dentist. My least favorite place to be. I hadn’t been to a dentist in years but for once that’s actually my choice. I hated my old dentist and vowed never to go to the dentist again after my parents told me they thought
Ccrowlu
in
NRAS
5 years ago
Very bad taste in my mouth
Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experience, but for 3-4 weeks it’s been a lot worse. I’ve recently had a lot of stress, can this be a factor? It seems to hit about an hour or so after eating. I’ve been managing it somewhat by watching diet, taking Tums, and
Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experience, but for 3-4 weeks it’s been a lot worse. I’ve recently had a lot of stress, can this be a factor? It seems to hit about an hour or so after eating. I’ve been managing it somewhat by watching diet, taking Tums, and
Mstiles
in
PMRGCAuk
5 years ago
Very bad taste in my mouth
Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experience, but for 3-4 weeks it’s been a lot worse. I’ve recently had a lot of stress, can this be a factor? It seems to hit about an hour or so after eating. I’ve been managing it somewhat by watching diet, taking Tums, and
Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experience, but for 3-4 weeks it’s been a lot worse. I’ve recently had a lot of stress, can this be a factor? It seems to hit about an hour or so after eating. I’ve been managing it somewhat by watching diet, taking Tums, and
Mstiles
in
PMRGCAuk
5 years ago
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Pv with mouth ulcers using peg interferon
I have had mouth ulcers over a month (white blister on right side of the tongue and marks inside cheek). Stopped peg interferon 45 dosage so my mouth can heal recently Last Tuesday suppose to be my day to inject myself. 4 weeks break. How long can it take to heal my mouth? Right now using cordyol toothpaste
I have had mouth ulcers over a month (white blister on right side of the tongue and marks inside cheek). Stopped peg interferon 45 dosage so my mouth can heal recently Last Tuesday suppose to be my day to inject myself. 4 weeks break. How long can it take to heal my mouth? Right now using cordyol toothpaste
Zar77
in
MPN Voice
5 years ago
Anyone have Sjorgen's or dry mouth too?
I know PBC and Sjorgen's tend to go hand in hand so this might help someone else. I was at the Mayo Clinic last week and it was suggested I may have Sjorgen's too. He also said PBC alone can cause dry mouth. I have a very dry mouth, dry eyes, etc. My teeth are brittle, they just started cracking in
I know PBC and Sjorgen's tend to go hand in hand so this might help someone else. I was at the Mayo Clinic last week and it was suggested I may have Sjorgen's too. He also said PBC alone can cause dry mouth. I have a very dry mouth, dry eyes, etc. My teeth are brittle, they just started cracking in
IAmTheGlue
in
PBC Foundation
5 years ago
Cold Sores
I was diagnosed in 2010 with CLL and on W&W. I am now troubled with persistant cold sores on my nose or mouth. Tried the usual creams but still come back. Does any one have the same problem?
I was diagnosed in 2010 with CLL and on W&W. I am now troubled with persistant cold sores on my nose or mouth. Tried the usual creams but still come back. Does any one have the same problem?
AdaYoung
in
CLL Support
5 years ago
27 days today
Hallo! Just a quick catch up on the no smoking. It’s 27 days today and I’m doing okay. Something I have had which is getting better was a sore mouth after giving up .... sore gums, ulcers, sensitive teeth. I read that this is really normal and the blood flow coming back etc. It has got heaps better
Hallo! Just a quick catch up on the no smoking. It’s 27 days today and I’m doing okay. Something I have had which is getting better was a sore mouth after giving up .... sore gums, ulcers, sensitive teeth. I read that this is really normal and the blood flow coming back etc. It has got heaps better
Stacey48
9 Months Smoke Free
in
No Smoking Day
5 years ago
Sores back of throat
Hi guys I was Diagnosed with SLE exactly a year ago I’m on plaquenil ans methrotrexate and steroids but I keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or drink my gp said she thought they were ulcers due to lupus and gave me some throat spray does anyone
Hi guys I was Diagnosed with SLE exactly a year ago I’m on plaquenil ans methrotrexate and steroids but I keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or drink my gp said she thought they were ulcers due to lupus and gave me some throat spray does anyone
Sammymoat1986
in
LUPUS UK
5 years ago
HOUSTON WE HAVE A PROBLEM
I have had RA since 2016. I was on Gollimumab for the last 9 months. I have had a dry mouth and eyes for a few years now but since January this year it has got progressively worse. By March it was intolerable with ulcers, a smooth tongue, loss of taste, unable to eat normal foods only soft diet and
I have had RA since 2016. I was on Gollimumab for the last 9 months. I have had a dry mouth and eyes for a few years now but since January this year it has got progressively worse. By March it was intolerable with ulcers, a smooth tongue, loss of taste, unable to eat normal foods only soft diet and
fantail
in
NRAS
5 years ago
Ulcers on tonsils killing my morale
Has anyone suffered with huge white ulcers on their lower tonsils? Went doctors and she took a quick look and said tonsillitis. Had what looked like lots of them now I am left with 1 on either tonsil. I can't work, eat, sleep and I'm feeling down. No energy, constant sharp shooting pains on both sides
Has anyone suffered with huge white ulcers on their lower tonsils? Went doctors and she took a quick look and said tonsillitis. Had what looked like lots of them now I am left with 1 on either tonsil. I can't work, eat, sleep and I'm feeling down. No energy, constant sharp shooting pains on both sides
atkinsd
in
Behçet's UK
5 years ago
I think my husband has Behcet's
I think my husband has Behcet's. He has had recurring mouth ulcers since September 2017 (when we got back from our honeymoon). He probably has new a mouth ulcer every other week. He is from Middle eastern decent. Other symptom he has are skin lesions - had them before I met him, headaches which started
I think my husband has Behcet's. He has had recurring mouth ulcers since September 2017 (when we got back from our honeymoon). He probably has new a mouth ulcer every other week. He is from Middle eastern decent. Other symptom he has are skin lesions - had them before I met him, headaches which started
fatimaamir
in
Behçet's UK
5 years ago
cold sore
hello everyone can cold sores affect inside your mouth like your tonge ect ☹️ or could it be my anxiety playing up ☹️ xx
hello everyone can cold sores affect inside your mouth like your tonge ect ☹️ or could it be my anxiety playing up ☹️ xx
Shannon97
in
Anxiety Support
5 years ago
T-PLL or AITL - looking for treatment advice please
Hi there, I am new here but looking for treatment advice. My mother is diagnosed with either T-PLL or AITL, FISH showing p17 in 2/3 of cells. She has undergone 3 x Campath treatment with good results but now struggling with higher wbc and very swollen lymphs, mostly in legs/feet. It s causing pain and
Hi there, I am new here but looking for treatment advice. My mother is diagnosed with either T-PLL or AITL, FISH showing p17 in 2/3 of cells. She has undergone 3 x Campath treatment with good results but now struggling with higher wbc and very swollen lymphs, mostly in legs/feet. It s causing pain and
ingeanette
in
CLL Support
5 years ago
Mouth ulcers
Morning people. Hope you are all feeling positive today. I'm suffering with ulcers in my mouth due to methotrexate I think, any ideas how to soothe the pain in the them and possibly prevent them? X
Morning people. Hope you are all feeling positive today. I'm suffering with ulcers in my mouth due to methotrexate I think, any ideas how to soothe the pain in the them and possibly prevent them? X
FionaVanDieken
in
NRAS
5 years ago
Do I have Behcet's?
I have been trying for over 2 years (It will be 3 years in May) to figure out what my diagnosis should be. I don't fit any specific category but many of my symptoms do seem to fit Behcets. I don't however fit the profile. I'm 62 years old and mostly European descent. My first symptoms 3 years ago started
I have been trying for over 2 years (It will be 3 years in May) to figure out what my diagnosis should be. I don't fit any specific category but many of my symptoms do seem to fit Behcets. I don't however fit the profile. I'm 62 years old and mostly European descent. My first symptoms 3 years ago started
Dustydander
in
Behçet's UK
5 years ago
Sore lips and methotrexate
Hi Hope everybody's ok. Im on a metho & leuflunomide drug combination. I've been having a problem with my lips it's happened a few times now and just wondered if anybody's had anything similar? My lip swells and I get a single spot which then leaves a open sore. The sore is very deep takes weeks and
Hi Hope everybody's ok. Im on a metho & leuflunomide drug combination. I've been having a problem with my lips it's happened a few times now and just wondered if anybody's had anything similar? My lip swells and I get a single spot which then leaves a open sore. The sore is very deep takes weeks and
Dreamer85
in
NRAS
6 years ago
The common cold and nasal sores! Does it make them worse
When I’m sick all hell let’s loose, my body doesn’t seem to cope too well. Then there’s these nasal sores 😔 my nose is extremely painful right now, and I’m just wondering if the common cold increase nasal sores or if these sores are something else! I currently have swelling on the outside bit of the
When I’m sick all hell let’s loose, my body doesn’t seem to cope too well. Then there’s these nasal sores 😔 my nose is extremely painful right now, and I’m just wondering if the common cold increase nasal sores or if these sores are something else! I currently have swelling on the outside bit of the
Lisalou19
in
LUPUS UK
6 years ago
Ulcers ulcers ulcers
Bloody ulcers. Back of my nose, back of my mouth and in my throat. So sore, so painful. Tried difflam already and now some throat lozenges. Still sore. Hurts to swallow. Even just naturally without drinking. Miserable. Tell me something about your day. Thanks C
Bloody ulcers. Back of my nose, back of my mouth and in my throat. So sore, so painful. Tried difflam already and now some throat lozenges. Still sore. Hurts to swallow. Even just naturally without drinking. Miserable. Tell me something about your day. Thanks C
Papapickle
in
Behçet's UK
6 years ago
Anyone tried baking soda mouth rinse to relieve pain from BD mouth ulcer flares?
I've heard of rinsing with baking soda before but never used it. I get particularly sore ulcers on the very tip of the tongue, which impacts my ability to eat, drink, and speak. Appreciate any tips from people who've used a baking soda mixture, or indeed anything else they've found to work!
I've heard of rinsing with baking soda before but never used it. I get particularly sore ulcers on the very tip of the tongue, which impacts my ability to eat, drink, and speak. Appreciate any tips from people who've used a baking soda mixture, or indeed anything else they've found to work!
Dub123
in
Behçet's UK
6 years ago
White tongue
Hi I am on Humira and Metoject. 2 weeks ago I'd the flu jab ever since my IBS is bad and my mouth is covered inside my lips with cold sores, so I looked inside and to my horror my tongue was heavily coated in yellowy white and mouth ulcers. Rheumy nurse said buy nysatin but does it work and what will
Hi I am on Humira and Metoject. 2 weeks ago I'd the flu jab ever since my IBS is bad and my mouth is covered inside my lips with cold sores, so I looked inside and to my horror my tongue was heavily coated in yellowy white and mouth ulcers. Rheumy nurse said buy nysatin but does it work and what will
IV-cross
in
NRAS
6 years ago
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