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New to the group and looking for advice
Hi My son was 5 in March and we have been dealing with issues since he was 6 months old. Hes always had issues with going to the toilet and would prefer to stand to go instead of sitting down. Hes been prescribed both Movicol and Laxido in the past and both resulted in him having accidents all day every
Hi My son was 5 in March and we have been dealing with issues since he was 6 months old. Hes always had issues with going to the toilet and would prefer to stand to go instead of sitting down. Hes been prescribed both Movicol and Laxido in the past and both resulted in him having accidents all day every
daniellejarrett2017
in
ERIC
4 years ago
New here: prolapsed rectum and straining to do soft poos??
Sorry for long post and lots of poo details! My son suddenly started wetting the bed nearly every night a few weeks ago (he's nearly 7). He's had a few wet nights in the past but we'd never worried about it before. No UTI, so we started with an alarm. Then we realised he had been/was having soiling
Sorry for long post and lots of poo details! My son suddenly started wetting the bed nearly every night a few weeks ago (he's nearly 7). He's had a few wet nights in the past but we'd never worried about it before. No UTI, so we started with an alarm. Then we realised he had been/was having soiling
aliums26
in
ERIC
4 years ago
My Dad Tracheostomy failed again
What was a good day yesterday where we managed to get smile and a kiss for the kids. Today his was agitated and uncomfortable and he managed to pull his feeding tube and the trach was leaking, he back in the ventilator and in light sedation. Tomorrow they hope to review it and may redo the Tracheostomy
What was a good day yesterday where we managed to get smile and a kiss for the kids. Today his was agitated and uncomfortable and he managed to pull his feeding tube and the trach was leaking, he back in the ventilator and in light sedation. Tomorrow they hope to review it and may redo the Tracheostomy
avnipiro
in
ICUsteps
4 years ago
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Ibrutinib and Rivaroxaban
Hi, into my seventh week of Ibrutinib when I experienced chest pain on exertion also A-fib happening more frequently. Ended up in CCU in local hospital. Had an Angiogram and discovered mild coronary plague . Now on rivaroxaban but taken off Ibrutinib. Four days later lymph nodes swelling and sore. Have
Hi, into my seventh week of Ibrutinib when I experienced chest pain on exertion also A-fib happening more frequently. Ended up in CCU in local hospital. Had an Angiogram and discovered mild coronary plague . Now on rivaroxaban but taken off Ibrutinib. Four days later lymph nodes swelling and sore. Have
Abc123qaz
in
CLL Support
4 years ago
Fluoxetine and serotonin
My wife has been taking fluoxetine 60mg for severe anxiety after learning she has stomach cancer. She also takes lorazepam and propranolol. For the last three weeks she has woken frightened and unable to get up and function at all until about 4pm and even then she is scared. She shakes and has palpitations
My wife has been taking fluoxetine 60mg for severe anxiety after learning she has stomach cancer. She also takes lorazepam and propranolol. For the last three weeks she has woken frightened and unable to get up and function at all until about 4pm and even then she is scared. She shakes and has palpitations
Photoguy61
in
Anxiety Support
4 years ago
Should I or should I not
Okay so I’ve obviously been obsessing over two things lately and they have made my anxiety spiral out of control.. One, being my heart because I get heart pains and it freaks me out daily. Second, being my leg cramp- my mind goes to DVT and I think I’m gonna drop dead any second of everyday. I don’t
Okay so I’ve obviously been obsessing over two things lately and they have made my anxiety spiral out of control.. One, being my heart because I get heart pains and it freaks me out daily. Second, being my leg cramp- my mind goes to DVT and I think I’m gonna drop dead any second of everyday. I don’t
anon99
in
Anxiety Support
4 years ago
Now Dealing With a DVT Clot
About a week ago noticed my foot swelled a bit and attributed it to inactivity. But when I took a shower the thigh was swelled and tight. Contacted the MO and he immediately scheduled a Doppler of my leg. Two hours later I was getting the Doppler. Diagnosis DVT left groin area. Lesson learned don’t
About a week ago noticed my foot swelled a bit and attributed it to inactivity. But when I took a shower the thigh was swelled and tight. Contacted the MO and he immediately scheduled a Doppler of my leg. Two hours later I was getting the Doppler. Diagnosis DVT left groin area. Lesson learned don’t
Hex40
in
Advanced Prostate Cancer
4 years ago
Technology / Privacy (Part 2)
Part 1; To the point... can someone watch and video you through your i-Pad or i-Phone’s camera. The question took on a new sense of urgency last night so the reasoning for my question will follow shortly!!! Trying to make a short story out of a novel but (whats left of) my mind is just spinning out of
Part 1; To the point... can someone watch and video you through your i-Pad or i-Phone’s camera. The question took on a new sense of urgency last night so the reasoning for my question will follow shortly!!! Trying to make a short story out of a novel but (whats left of) my mind is just spinning out of
Jimhoy
in
Advanced Prostate Cancer
4 years ago
Memory Lane Jar
I just wanted to share this wonderful idea! My daughter presented a "Memory Jar" to my Mom yesterday; I have to say it was an absolute home run! All of the grandchildren wrote 10 individual memories to share with Mom, and they were written on colored scrolls, wrapped with a ribbon and placed in the
I just wanted to share this wonderful idea! My daughter presented a "Memory Jar" to my Mom yesterday; I have to say it was an absolute home run! All of the grandchildren wrote 10 individual memories to share with Mom, and they were written on colored scrolls, wrapped with a ribbon and placed in the
bazooka111
in
PSP Association
4 years ago
Team uses imaging to study ways the heart is affected by coronavirus.
Vanderbilt University Medical Center investigators are using imaging and diagnostic pathology to examine postmortem hearts donated by victims of COVID-19. They are looking for blood clots, vascular damage and inflammation to gain a better understanding of how the coronavirus that causes COVID-19 affects
Vanderbilt University Medical Center investigators are using imaging and diagnostic pathology to examine postmortem hearts donated by victims of COVID-19. They are looking for blood clots, vascular damage and inflammation to gain a better understanding of how the coronavirus that causes COVID-19 affects
2greys
in
Lung Conditions Community Forum
4 years ago
Possible PTSD?
So, I’ve never officially been diagnosed, and I’m not sure what exactly to deem this situation. I live with my biological father, and there is a dark history behind it, to which I don’t want to discuss yet. Earlier today, he started screaming about something; I was in the next room, and I don’t remember
So, I’ve never officially been diagnosed, and I’m not sure what exactly to deem this situation. I live with my biological father, and there is a dark history behind it, to which I don’t want to discuss yet. Earlier today, he started screaming about something; I was in the next room, and I don’t remember
AmbieNicole
in
Anxiety and Depression Support
4 years ago
Breathing abnormalities in Parkinsons
Several different patterns of breathing abnormality may be found in PD: Upper airway obstruction (UAO) has been reported in a third of people with PD. The most common manifestation of UAO is soft speech, which itself may affect up to 70% of people with PD. Two types of UAO have been described: (i)
Several different patterns of breathing abnormality may be found in PD: Upper airway obstruction (UAO) has been reported in a third of people with PD. The most common manifestation of UAO is soft speech, which itself may affect up to 70% of people with PD. Two types of UAO have been described: (i)
Hidden
in
Cure Parkinson's
4 years ago
Coronavirus Experience with APS
This is all anecdotal (i.e. my experience), but it may be of interest. I have primary APS (stroke, DVT, kidney clots, cerebral infarcts). INR = 3-4 + hydroxychloroquine. I got coronavirus (confirmed test result). Admitted into hospital following seizures, high temp >100, breathing difficulties, low
This is all anecdotal (i.e. my experience), but it may be of interest. I have primary APS (stroke, DVT, kidney clots, cerebral infarcts). INR = 3-4 + hydroxychloroquine. I got coronavirus (confirmed test result). Admitted into hospital following seizures, high temp >100, breathing difficulties, low
Hidden
in
Hughes Syndrome APS Forum
4 years ago
Pleurx catheter?
I had a pleurodesis just under 3 months ago. It hasn't worked as I had hoped. I am not sure if I am a candidate for a pleurx catheter as it seems the fluid buildup in my lungs is slow, at least for the time being. I noticed that the fluid build up rapidly increases every third treatment after I have
I had a pleurodesis just under 3 months ago. It hasn't worked as I had hoped. I am not sure if I am a candidate for a pleurx catheter as it seems the fluid buildup in my lungs is slow, at least for the time being. I noticed that the fluid build up rapidly increases every third treatment after I have
Natsmb
in
My Ovacome
4 years ago
One last Attack at this
Plan of attack Just ordered Hemorrhoids Suppository Stool Softener Coconut Oil (gonna start cooking with this) 2l Water jug Got confirmation I'm back to work in 3 weeks so going to give this one last attack haven't tried stool softener before but anything I've read it should be like toothpaste consistency
Plan of attack Just ordered Hemorrhoids Suppository Stool Softener Coconut Oil (gonna start cooking with this) 2l Water jug Got confirmation I'm back to work in 3 weeks so going to give this one last attack haven't tried stool softener before but anything I've read it should be like toothpaste consistency
Hidden
in
IBS Network
4 years ago
Update on replies Re: Erythromelalgia
I am so very grateful to you all for your informative replies. Yesterday I had a phone call to come to Haematology at hospital straight away to examine my toe. I was seen by my Consultant's Registrar and after a second blood test, BP, pulse, ECG etc. on examination she said she thought it was a tiny
I am so very grateful to you all for your informative replies. Yesterday I had a phone call to come to Haematology at hospital straight away to examine my toe. I was seen by my Consultant's Registrar and after a second blood test, BP, pulse, ECG etc. on examination she said she thought it was a tiny
azaelea
in
MPN Voice
4 years ago
Nearly 9, bedwetting
Hi, my son has struggled with bed wetting on and off since he was 6. At this stage, his grandad died and he moved schools. Since then he's regularly wet the bed. Since lockdown, he has been better and had a few weeks dry, but this week he's been wet 5 nights in a row. Any suggestions? He's never had
Hi, my son has struggled with bed wetting on and off since he was 6. At this stage, his grandad died and he moved schools. Since then he's regularly wet the bed. Since lockdown, he has been better and had a few weeks dry, but this week he's been wet 5 nights in a row. Any suggestions? He's never had
Samson2020
in
ERIC
4 years ago
Statins and APS
Hi again guys , sorry I have another question! I have primary APS , touch wood as yet no clots etc and I had read statins are good for people with APS . My cholesterol is about 6 but typically I have some 'good ' cholesterol and a healthy diet ! I stopped taking statins , (tried 3 types) because they
Hi again guys , sorry I have another question! I have primary APS , touch wood as yet no clots etc and I had read statins are good for people with APS . My cholesterol is about 6 but typically I have some 'good ' cholesterol and a healthy diet ! I stopped taking statins , (tried 3 types) because they
Sevenstar
in
Hughes Syndrome APS Forum
4 years ago
COVID 19 and anticoagulants - ACUK launches first in the series of podcasts to help answer the questions we may all be thinking about now
Hosted by Eve Knight , the CEO and Co-founder of the Charity Anticoagulation UK. Eve is joined by Helen Williams, National Speciality Advisor for cardiovascular diseases fo NHS England. Watch the podcast at: https://youtu.be/Y9dyOGYlfZY Listen to our podcast at: https://open.spotify.com/show/514dRODlitYuOD2juhMlHE
Hosted by Eve Knight , the CEO and Co-founder of the Charity Anticoagulation UK. Eve is joined by Helen Williams, National Speciality Advisor for cardiovascular diseases fo NHS England. Watch the podcast at: https://youtu.be/Y9dyOGYlfZY Listen to our podcast at: https://open.spotify.com/show/514dRODlitYuOD2juhMlHE
Tillyclot
in
Anticoagulation Support
4 years ago
Palpatations and cold feet
Hope everyone is well. I've noticed in the last 3 weeks that whenever I have cold feet I start getting palpatations. I have to stop what I'm doing and lay down as I feel as if I'm going to pass out. If I can get a hot water bottle on my feet and warm them up I feel better. It only lasts till my feet
Hope everyone is well. I've noticed in the last 3 weeks that whenever I have cold feet I start getting palpatations. I have to stop what I'm doing and lay down as I feel as if I'm going to pass out. If I can get a hot water bottle on my feet and warm them up I feel better. It only lasts till my feet
Hatelupus
in
LUPUS UK
4 years ago
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