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Traumatic macular hole
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Actemra problems.
My husband has been on Actemra for about two months and hasn't had any of the side affects that have been mentioned so far. However, he is ta king it because he has GCA and it was suggested it would help him get off some of the prednisone he is taking 25g when we started. He's down to 19g now but he
My husband has been on Actemra for about two months and hasn't had any of the side affects that have been mentioned so far. However, he is ta king it because he has GCA and it was suggested it would help him get off some of the prednisone he is taking 25g when we started. He's down to 19g now but he
Wilson1952
in
PMRGCAuk
1 year ago
partner trouble waking up
my partner 5 weeks ago had a massive bleed on the brain stroke in which she had to have part of her skull removed to relieve pressure . She has been off of sedation for roughly 2 weeks they have put her on a tracheotomy tube she has had a lot of movement in her right leg and limited movement in her right
my partner 5 weeks ago had a massive bleed on the brain stroke in which she had to have part of her skull removed to relieve pressure . She has been off of sedation for roughly 2 weeks they have put her on a tracheotomy tube she has had a lot of movement in her right leg and limited movement in her right
Arsenalfan1986
in
ICUsteps
1 year ago
Webinar: Charles Bonnet Syndrome
Dr Jasleen K Jolly, from the Vision and Eye Research Institute at Anglia Ruskin University, joins us tonight for our next My Macular and Me webinar to discuss her latest research on Charles Bonnet syndrome. The research has been split into two studies, the first uses an MRI to observe the activity levels
Dr Jasleen K Jolly, from the Vision and Eye Research Institute at Anglia Ruskin University, joins us tonight for our next My Macular and Me webinar to discuss her latest research on Charles Bonnet syndrome. The research has been split into two studies, the first uses an MRI to observe the activity levels
Carol_MacularSociety
Partner
in
Macular Society
11 months ago
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ET /Hydroxycarbamide Low JAK2 levels
Morning everyone, Help! I was diagnosed with ET in 2013 and my platelet levels were stable and under 600 during this time and I just took asprin. When I reached 60, after much discussion, I began a low dose of Hydroxy to counteract the increased risk of clotting due to my age. JAK2 was confirmed at
Morning everyone, Help! I was diagnosed with ET in 2013 and my platelet levels were stable and under 600 during this time and I just took asprin. When I reached 60, after much discussion, I began a low dose of Hydroxy to counteract the increased risk of clotting due to my age. JAK2 was confirmed at
Cassandra61
in
MPN Voice
1 year ago
A Few Words About Atherosclerosis And A Potential Remedy
The main cause of death in the world is cardiovascular disease (CVD) and Atherosclerosis is considered a main cause of CVD. I have previously written about the use of melatonin to prevent or treat CVD here: https://healthunlocked.com/cure-parkinsons/posts/145548262/cardiovascular-disease-cvd-parkinsons-disease-pd-and-melatonin
The main cause of death in the world is cardiovascular disease (CVD) and Atherosclerosis is considered a main cause of CVD. I have previously written about the use of melatonin to prevent or treat CVD here: https://healthunlocked.com/cure-parkinsons/posts/145548262/cardiovascular-disease-cvd-parkinsons-disease-pd-and-melatonin
chartist
in
Cure Parkinson's
1 year ago
Varicose Veins
I've developed varicose veins just below my knee on one leg. I've had some permanent bruising on the same leg that the consultant says not to worry about for several years. Do I need to be bothered about the bumpy veins, or should I get it checked out? They e been there a while, some are colourless,
I've developed varicose veins just below my knee on one leg. I've had some permanent bruising on the same leg that the consultant says not to worry about for several years. Do I need to be bothered about the bumpy veins, or should I get it checked out? They e been there a while, some are colourless,
Tannyah
in
Hughes Syndrome APS Forum
1 year ago
Vabysmo or Eylea
Hi All, I need an urgent advice from the experts here. My father's dry amd has recently progressed to wet and we have been advised to get an Anti VEGF injection. He has advanced glaucoma as well and this is his only working eye (left). The other eye is already affected by glaucoma (90-95%). We are
Hi All, I need an urgent advice from the experts here. My father's dry amd has recently progressed to wet and we have been advised to get an Anti VEGF injection. He has advanced glaucoma as well and this is his only working eye (left). The other eye is already affected by glaucoma (90-95%). We are
VikPa
in
Macular Society
4 months ago
speech and language therapy
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
Maychristine
in
Headway
1 year ago
Patient diaries
Can anyone explain why two separate ICU nurses would each write an entry in my husband's ICU Patient Diary - one to say he was dying and one to tell him he was dead? Why would anyone do something so unkind addressing him by name when he had been unconscious for a week and was on a ventilator? Plus
Can anyone explain why two separate ICU nurses would each write an entry in my husband's ICU Patient Diary - one to say he was dying and one to tell him he was dead? Why would anyone do something so unkind addressing him by name when he had been unconscious for a week and was on a ventilator? Plus
YDHicu
in
ICUsteps
1 year ago
Alternative to Anticoagulation?
This is very new and exciting. Just a case history for now, but apparently they have done a Left Atrial Appendage (LAA)Closure during an RF catheter ablation procedure, guided by 3D printing technology! As many of you know, there now exist several devices like Watchman and Amulet that are inserted
This is very new and exciting. Just a case history for now, but apparently they have done a Left Atrial Appendage (LAA)Closure during an RF catheter ablation procedure, guided by 3D printing technology! As many of you know, there now exist several devices like Watchman and Amulet that are inserted
mjames1
in
Atrial Fibrillation Support
1 year ago
belimumab
hello, I have my first belimumab injection next week. Does anyone have any tips? I’m a bit nervous because I had a different biologic years ago for cancer treatment and found it pretty hard going.
hello, I have my first belimumab injection next week. Does anyone have any tips? I’m a bit nervous because I had a different biologic years ago for cancer treatment and found it pretty hard going.
Fernlife
in
LUPUS UK
1 year ago
Blood pressure treatment - Irbesartan
Hi all, Its me again with yet another problem. I have Jak 2 positive ET controlled on hydroxycarbamide, aspirin and rivaroxaban. I went to GP to-day to get sun spots on my face treated with liquid nitrogen and whilst there he discussed with me my borderline/raised blood pressure. He decided to start
Hi all, Its me again with yet another problem. I have Jak 2 positive ET controlled on hydroxycarbamide, aspirin and rivaroxaban. I went to GP to-day to get sun spots on my face treated with liquid nitrogen and whilst there he discussed with me my borderline/raised blood pressure. He decided to start
Jelbea
in
MPN Voice
1 year ago
Cotton fibre
Does anyone know of anyone who has suffered through lung disease caused by working in the textile industry,byssinosis, copd.
Does anyone know of anyone who has suffered through lung disease caused by working in the textile industry,byssinosis, copd.
UptheTicks
in
Lung Conditions Community Forum
1 year ago
Finishing with Actemra
Hi everybody, once again I'm asking a question of you all before I see my Rheumo. In a few weeks I will have been on Actemra injections for 18 months. I managed to finish taking Pred 7 months ago after a 12 month stint with no relapses. I consider myself to be very lucky so far. I would like to
Hi everybody, once again I'm asking a question of you all before I see my Rheumo. In a few weeks I will have been on Actemra injections for 18 months. I managed to finish taking Pred 7 months ago after a 12 month stint with no relapses. I consider myself to be very lucky so far. I would like to
MarksPoint
in
PMRGCAuk
1 year ago
ANTICOAGULANTS UNDER 65
Hi everyone , hope you are all ticking regular, its great when we are, so, on to my question, following from another post regarding anti- coagulants and chads score of 0 for under 65 year olds in PAF , but, has anyone with above criteria suffered a stroke, horrible question, sorry to ask this ,but it
Hi everyone , hope you are all ticking regular, its great when we are, so, on to my question, following from another post regarding anti- coagulants and chads score of 0 for under 65 year olds in PAF , but, has anyone with above criteria suffered a stroke, horrible question, sorry to ask this ,but it
Tomred
in
Atrial Fibrillation Support
1 year ago
Woo hoo I've finally smashed it!
Set off at 7am, still 18C, can you believe it? I told myself this was just another run and if it was too warm to go the distance, well the graduation run would still be there for another day. A few minutes in and I've hit my happy pace. My music was calming overlaid by beautiful birdsong. Then the 15
Set off at 7am, still 18C, can you believe it? I told myself this was just another run and if it was too warm to go the distance, well the graduation run would still be there for another day. A few minutes in and I've hit my happy pace. My music was calming overlaid by beautiful birdsong. Then the 15
Sax64
Graduate
in
Couch to 5K
1 year ago
Info onActemra
Hi everyone, I was diagnosed with GCA Dec 21 and put on 65mg Pred. Then March 22 I started Actemra weekly injections. I have been very fortunate so far as I tapered and stopped Pred in Dec 22 but still taking Actemra shots - fortnightly now. My question is how long have others had to take Actemra
Hi everyone, I was diagnosed with GCA Dec 21 and put on 65mg Pred. Then March 22 I started Actemra weekly injections. I have been very fortunate so far as I tapered and stopped Pred in Dec 22 but still taking Actemra shots - fortnightly now. My question is how long have others had to take Actemra
MarksPoint
in
PMRGCAuk
1 year ago
home hemodialysis
I need tips on finding a caregiver to administer at home dialysis for my mother in law.
I need tips on finding a caregiver to administer at home dialysis for my mother in law.
Lil609
in
Kidney Dialysis
1 year ago
C-PTSD?
I'm looking at a potential C-PTSD diagnosis with abandonment issues. Any advice/experiences/general knowledge anyone has would be SUPER appreciated.
I'm looking at a potential C-PTSD diagnosis with abandonment issues. Any advice/experiences/general knowledge anyone has would be SUPER appreciated.
applejax7
in
Heal My PTSD
1 year ago
Hydroxycarbamide & muscle pain
has anyone with ET JAK2+?and taking Hydroxycarbamide found that after being on HU they have started getting muscle pain especially in upper back? I was put on Hydroxycarbamide due to age but I didn’t have any symptoms at all and no thrombotic events. I’d be interested to know those of you who have
has anyone with ET JAK2+?and taking Hydroxycarbamide found that after being on HU they have started getting muscle pain especially in upper back? I was put on Hydroxycarbamide due to age but I didn’t have any symptoms at all and no thrombotic events. I’d be interested to know those of you who have
130396
in
MPN Voice
1 year ago
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