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I injured my fistula, it's clotted, do you recommend having it removed?
I had my transplant a year and half ago but I haven't used this fistula since 2005 because I was on peritoneal dialysis. I was working out with my usual routine but I added a little extra weight and more sets then two days later we had a work day at my church then that night I noticed pain in my upper
I had my transplant a year and half ago but I haven't used this fistula since 2005 because I was on peritoneal dialysis. I was working out with my usual routine but I added a little extra weight and more sets then two days later we had a work day at my church then that night I noticed pain in my upper
Hidden
in
Kidney Transplant Patient Support
6 years ago
NO ONE KNOWS YOU LIKE YOU - Tips for taking ownership of your healthcare.
Another strong article on how you can begin to take charge of your health and your healthcare team. Good basic information and ideas for you if dealing not only with a chronic illness but any concern you have about your upcoming appointment. It is 4:58 pm, just minutes from your doctors' appointment
Another strong article on how you can begin to take charge of your health and your healthcare team. Good basic information and ideas for you if dealing not only with a chronic illness but any concern you have about your upcoming appointment. It is 4:58 pm, just minutes from your doctors' appointment
Hidden
in
Kidney Disease
6 years ago
vasculitis
I have had it since 2016....on retuxin.....vasculitis killed my kidneys...on dialysis now....a lot of mussle pain and nerve damage...got it in all three sizes of the vassels...extrembly painfull....
I have had it since 2016....on retuxin.....vasculitis killed my kidneys...on dialysis now....a lot of mussle pain and nerve damage...got it in all three sizes of the vassels...extrembly painfull....
glendalafitte
in
Vasculitis UK
6 years ago
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COPD and BRONCHIOTASIS
I was in a Chemically induced coma for several weeks, when I came to and on top of my other illnesses i was diagnosed with bronchiotasis, the doctor was smiling when she told me the news, as if she was telling i won the lottery. Maybe she did not want to scare me as I already have, high blood pressure
I was in a Chemically induced coma for several weeks, when I came to and on top of my other illnesses i was diagnosed with bronchiotasis, the doctor was smiling when she told me the news, as if she was telling i won the lottery. Maybe she did not want to scare me as I already have, high blood pressure
garci39767
in
Lung Conditions Community Forum
6 years ago
ckd 4 and alport syndrome
First time posting! I was diagnosed with proteinuria 20 years ago. I have taken meds ever since. In the last 2 years my kidneys have declined and I now have a GFR of 21. Dr. says next time I will register with transplant unit. I have changed my diet to be low potassium, but my dr hasn't said anything
First time posting! I was diagnosed with proteinuria 20 years ago. I have taken meds ever since. In the last 2 years my kidneys have declined and I now have a GFR of 21. Dr. says next time I will register with transplant unit. I have changed my diet to be low potassium, but my dr hasn't said anything
wendythemom
in
Early CKD Support
6 years ago
Low blood pressure after treatments
I have been on hemodialysis for a little over 3 months, and I have started having a problem with low blood pressure at the end of each treatment. My systolic is usually in the 80s and diastolic in the 50s or sometimes even the 40s. The clinic won't let me go unless my systolic is 100 or above. Usually
I have been on hemodialysis for a little over 3 months, and I have started having a problem with low blood pressure at the end of each treatment. My systolic is usually in the 80s and diastolic in the 50s or sometimes even the 40s. The clinic won't let me go unless my systolic is 100 or above. Usually
lincoln53
NKF Ambassador
in
Kidney Dialysis
6 years ago
What to eat?
Hello again. I was told by my doctor of the foods not to eat? It includes everything... I have high potassium,phosphorus,and my creatine is at 17. I go to dialysis 2times a week..my liquid is under control...can anyone give me tips on what to eat? And lower creatine
Hello again. I was told by my doctor of the foods not to eat? It includes everything... I have high potassium,phosphorus,and my creatine is at 17. I go to dialysis 2times a week..my liquid is under control...can anyone give me tips on what to eat? And lower creatine
Newatdis
in
Dialysis Support
6 years ago
Blown vein
Hi. I'm new at this and i've been on dialysis for 6month now. And during all that time i have never had a blown vein during dialysis...well it happened 2 days ago...the wierd part about it was that i got a big lump on my shoulder over my heart..that concerned me....it slowly going away now..but i want
Hi. I'm new at this and i've been on dialysis for 6month now. And during all that time i have never had a blown vein during dialysis...well it happened 2 days ago...the wierd part about it was that i got a big lump on my shoulder over my heart..that concerned me....it slowly going away now..but i want
Newatdis
in
Dialysis Support
6 years ago
Prolia
Dear all, are there dialysis patients who also use prolia? My specialist wants to prescribe it for my osteoporosis. please let me know.
Dear all, are there dialysis patients who also use prolia? My specialist wants to prescribe it for my osteoporosis. please let me know.
Giralda
in
Bone Health and Osteoporosis UK
6 years ago
Does supplementary insurance help?
I ask this because my transplant center is not in-network for Humana Advantage & I overheard someone in the Dr.'s office say (they heard) it would be better. There is the additional cost to consider & whether or not I am considered pre-existing. Dialysis 1 year, diabetes, anemia. Any hope for help
I ask this because my transplant center is not in-network for Humana Advantage & I overheard someone in the Dr.'s office say (they heard) it would be better. There is the additional cost to consider & whether or not I am considered pre-existing. Dialysis 1 year, diabetes, anemia. Any hope for help
cynlee01
in
Kidney Transplant
6 years ago
Kidney lung and blood infection after bypass surgery
Hello mates This is urgent please do reply. My father 64 yr old had blocked artery bypass surgery before 2 weeks.he is DIABETIC He developed high creatine 4.1 in kidneys, it means kidneys are infected and doctor suggest dialysis. So my question is is it really necessary and what is the risk in it for
Hello mates This is urgent please do reply. My father 64 yr old had blocked artery bypass surgery before 2 weeks.he is DIABETIC He developed high creatine 4.1 in kidneys, it means kidneys are infected and doctor suggest dialysis. So my question is is it really necessary and what is the risk in it for
Hemalpanchal
in
ICUsteps
6 years ago
Peritoneal Dialysis : Leg pain and Back pain
My Father is undergoing Peritoneal Dialysis for the last 1 Year and Half and he is having leg pain and back pain... He is 66 Years old can anyone share your advise on how to get rid of this and live a simple healthy life
My Father is undergoing Peritoneal Dialysis for the last 1 Year and Half and he is having leg pain and back pain... He is 66 Years old can anyone share your advise on how to get rid of this and live a simple healthy life
Balaji1981
in
Kidney Dialysis
6 years ago
Getting Ready For a Fistula, am nervous, any advice?
I had a ultrasound of both arms and passed for a fistula but was told by the surgeon it could take up to 3 hours on anesthesia. I thought it was just numbing the area; how wrong was I! According to the surgeon, if one area isn't good he goes to another part of the arm until he finds a good vein and
I had a ultrasound of both arms and passed for a fistula but was told by the surgeon it could take up to 3 hours on anesthesia. I thought it was just numbing the area; how wrong was I! According to the surgeon, if one area isn't good he goes to another part of the arm until he finds a good vein and
jdapja
in
Kidney Disease
6 years ago
The whole finding a living donor process is a JOKE!!!
What I guess aggravates me the most about being in the position that I am in, is that when you are looking for a donor it is all up to the PATIENT to find a person to donate to you and there is absolutely NOOO incentive to the donor to donate. For example, everyone in healthcare is making money off you
What I guess aggravates me the most about being in the position that I am in, is that when you are looking for a donor it is all up to the PATIENT to find a person to donate to you and there is absolutely NOOO incentive to the donor to donate. For example, everyone in healthcare is making money off you
RUKIDNEYME
in
Kidney Transplant Patient Support
6 years ago
The whole finding a living donor process is a JOKE!!!
What I guess aggravates me the most about being in the position that I am in, is that when you are looking for a donor it is all up to the PATIENT to find a person to donate to you and there is absolutely NOOO incentive to the donor to donate. For example, everyone in healthcare is making money off you
What I guess aggravates me the most about being in the position that I am in, is that when you are looking for a donor it is all up to the PATIENT to find a person to donate to you and there is absolutely NOOO incentive to the donor to donate. For example, everyone in healthcare is making money off you
RUKIDNEYME
in
Power2Save Transplant Community
6 years ago
The whole finding a living donor process is a JOKE!!!
What I guess aggravates me the most about being in the position that I am in, is that when you are looking for a donor it is all up to the PATIENT to find a person to donate to you and there is absolutely NOOO incentive to the donor to donate. For example, everyone in healthcare is making money off you
What I guess aggravates me the most about being in the position that I am in, is that when you are looking for a donor it is all up to the PATIENT to find a person to donate to you and there is absolutely NOOO incentive to the donor to donate. For example, everyone in healthcare is making money off you
RUKIDNEYME
in
Kidney Transplant
6 years ago
Worried
Legs and feet are very swollen. left leg worse. esrd. not on dialysis yet. worried about CHF, Do i go to ER for this matter.
Legs and feet are very swollen. left leg worse. esrd. not on dialysis yet. worried about CHF, Do i go to ER for this matter.
rascal01
in
Kidney Dialysis
6 years ago
Fatigue from PKD has finally hit
Severe fatigue from stage 4 PKD, 16% gfr has finally struck, actually I just had my blood drawn again but don't have the numbers yet. Exhaustion has set in. All I want to do is sleep, but life has to go on, work etc. I just wanted to hear about others experience as I have managed well until now, it
Severe fatigue from stage 4 PKD, 16% gfr has finally struck, actually I just had my blood drawn again but don't have the numbers yet. Exhaustion has set in. All I want to do is sleep, but life has to go on, work etc. I just wanted to hear about others experience as I have managed well until now, it
Frankie24
in
Kidney Disease
6 years ago
Tolvaptan
Has anyone been prescribed Tolvaptan to delay dialysis? It was just approved last week in the US for PKD. Was wondering how you feel on it or about it. In the US it's called Jynarque. Any feedback appreciated
Has anyone been prescribed Tolvaptan to delay dialysis? It was just approved last week in the US for PKD. Was wondering how you feel on it or about it. In the US it's called Jynarque. Any feedback appreciated
Bunkin
in
Early CKD Support
6 years ago
Hello Everyone
I’m Yat I’ve been on dialysis 8yrs I’ve done peritoneal dialysis and Hemo I currently on Hemo (Monday Wednesday Friday) I have a graft in my left thigh. I wanna make New Friends?
I’m Yat I’ve been on dialysis 8yrs I’ve done peritoneal dialysis and Hemo I currently on Hemo (Monday Wednesday Friday) I have a graft in my left thigh. I wanna make New Friends?
Yat83
in
Kidney Dialysis
6 years ago
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