Tolvaptan: Has anyone been prescribed... - Early CKD Support

Early CKD Support

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Tolvaptan

Bunkin profile image
7 Replies

Has anyone been prescribed Tolvaptan to delay dialysis? It was just approved last week in the US for PKD. Was wondering how you feel on it or about it. In the US it's called Jynarque. Any feedback appreciated

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Bunkin profile image
Bunkin
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7 Replies
SN23 profile image
SN23

Yes Bunkin heard about the drug and it’s good results from CMaxwell78. I think she participated in the trial too. Please check out her post in ‘Kidney Disease.’ Hope the drug helps you too🙏

Bunkin profile image
Bunkin in reply toSN23

Thank you. Haven't decided yet but leaning that way.

Bunkin profile image
Bunkin in reply toBunkin

Can't find that person. Maybe I'm looking in the wrong place. Any suggestions?

SN23 profile image
SN23

cmaxwell78 She is in the “kidney disease” community. And is an NKF ambassador. If you scroll down to your communities and choose kidney disease you can reach her.

All the very best

Bunkin profile image
Bunkin

Thanks

motolas profile image
motolas

I looked at some literature that indicate could lead to liver problems

I would not recommend taking any newly FDA approved drug for at least a year as clinical trials have a very limited population

Side effects of many new drugs are not fully seen until thousands or million doses.

Bunkin profile image
Bunkin

It's actually not a new drug just new for PKD, but I have decided against it. Don't want to cause any problems for my liver. Thank you for your response!

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