Young Adult Kidney Patients Doing PD Dialysis

[NapturallyChris]

Hi my name is Chris and I am looking to talk to other young adults whom do PD dialysis. I want to get tips from others on how to balance work, health, family and fun with the ever changing energy levels that come with being in end stage rebel failure.

[KelliC_NKF]

Hi Chris, welcome to the community! Thanks for sharing your post. How long have you been on PD?

[DB1334]

Chris I am 50, been on PD 6 months, I found making a list everyday is helpful for me, try and prioritize it and check things off as you get them done. Things at the bottom of a list I don’t have time for always go to the top of the next days list. Another tip I have is using paper plates and cooking on a grill. Grills heat up faster than an oven, usually cook faster and there is less clean up.

[3Kidneys]

Hi Chris: Can’t say I’m “young”, but I’m still in the work force! I work full time, and have been on PD this time around for a little over 2 years; I’ve also been on HD and had a kidney transplant (it lasted 9 years)! In all honesty I rarely miss work, I’ve found even if I get up of a morning feeling like crap, I still go into work (unless I’m running a fever for some reason). Usually, I start feeling better once I push myself a bit. Of course learning to juggle your schedule takes a little planning. It will depend on the hours you work, and the amount of hours you need to be on dialysis. Then you start working things in around them. For example I work M-F, 7am - 4 pm. I’m on the dialysis machine for 9.5 hours a night. I generally connect to my dialysis machine at 7pm; Sunday-Thursday night. Friday & Saturday nights are my late nights (I choose what time to connect) if I want to go out wito be with friends and family, as I don’t have to be up at a certain time or be at work early. Some nights I’m totally exhausted, but I listen to my body and get to bed early. But in saying this, PD does NOT make me near as tired/drained as HD did and a less restrictive diet too Let me know if you have any questions that I can help you with.

[Annandale1 in reply to 3Kidneys]

My Husband will be starting PD dialysis in a week and he is scared and nervous.Not a diabetic. Controlled BP. Very concerned about his day to day living. Any advice.

[3Kidneys in reply to Annandale1]

There’s really nothing to be nervous about, it’s easy to learn. I understand we are all scared of the unknown. The main thing you need to know and remember about PD is cleanliness. Keep your work area, storage area, and most importantly yourself (hands & wear a mask) anytime setting up/connecting or disconnecting. I do most everything I want to, but in saying that I listen to my body. If I’m exhausted, I’ll rest. As I said earlier I work full time, I’m a grandmother of 5. I alone am responsible for my medical care as my husband passed away two years ago.

[Readingrainbow]

I’m not sure how young I have to be to answer, but I’ll try. I did PD from 29-33. At the time my nephew was a high school and then college football player. It wasn’t hard to manage until my prescribed time inched up to 12 hours. I learned to say no to some things and arrange other events around my dialysis. My family was super supportive and my friends made more stops at my house rather than us always going out. Yeah, it sucks, but priorities trump being dead and those were my choices.

[Phoenix011918]

Hi Chris, I found that life was more normal when doing PD, also you don’t have the up and downs with energy that you have when doing Hemo. With PD you will have more time to spend with your family and you are able to work a regular day without missing a lot of work especially once you’re done with training. I was still able to travel and enjoy life with my family and friends. You do have to get used to the alarms that sometimes go off at night but you are still able to function. It was the best choice that I could have made. Hemo took so much more out of me and when I wasn’t in center I was too tired to do much else. The thought of doing PD can be overwhelming but once you get a routine down it’s not bad at all. If you want to be more active and have a schedule close to pre dialysis PD is the way to go!!! Good Luck!!!

[JeLamichelle]

Hello Chris my name is Je’La. I was diagnosed with MCKD at age 16 but my kidneys did not fail me until I became 20 . I started dialysis at age 21 , December 2017 . I do CAPD & I loveeee it well it just gives me control over this burden . I work , and I am in college to become a RN #CLASS2020 . Lol . Honestly you just have to know that you can do this once you get that in your mind you will become unstoppable my friend . You will feel like you can’t some days but understand this is your life & you only get one so DO NOT GIVE UP ON YOURSELF & do everything that makes you happy !

[Alex9679]

I just turned 38 and I must say I am on pd since January of 2018. I feel by just listening to your team they get get you to feel at your best. While some days are great others can be challenging. Just need to stay positive and keep busy. I work full time and also go to school full time.

[03139476840]

Can any body tell about Fenugreek seeds and Black seeds, could it be consumed by an ESRD (Kidney Failed) patient ?