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My dad has CKD stage 4.
Hi, I’m so glad to have found this group. My dad has been told today that his kidney disease has gone from stage 3 to stage 4. The doctor said that he thinks my dad will need dialysis in up to a year if things continue. He is 56 and a smoker. I and all the family are absolutely devastated and doing our
Hi, I’m so glad to have found this group. My dad has been told today that his kidney disease has gone from stage 3 to stage 4. The doctor said that he thinks my dad will need dialysis in up to a year if things continue. He is 56 and a smoker. I and all the family are absolutely devastated and doing our
Danidan25
in
Kidney Dialysis
5 years ago
I'm new here
I'm nearing renal failure again & have no wish to restart dialysis. The few loved ones that I've told did not take it well & I'm feeling a bit selfish. I can't seem to find the right way to explain that this is my choice while trying to also comfort them. Any one have any words of wisdom?
I'm nearing renal failure again & have no wish to restart dialysis. The few loved ones that I've told did not take it well & I'm feeling a bit selfish. I can't seem to find the right way to explain that this is my choice while trying to also comfort them. Any one have any words of wisdom?
theresathomas
in
Kidney Dialysis
5 years ago
Starting PD dialysis
Can anyone tell me what to expect with PD dialysis? I am close to starting dialysis. Does your hair fall out and does your skin blister? Thank you.
Can anyone tell me what to expect with PD dialysis? I am close to starting dialysis. Does your hair fall out and does your skin blister? Thank you.
huskiesarenumberone
in
Early CKD Support
5 years ago
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My mom is needing a kidney
My mother has been on dialysis for 4 years. I am needing help to get it out there that we are needing living donor. Can someone help me ?
My mother has been on dialysis for 4 years. I am needing help to get it out there that we are needing living donor. Can someone help me ?
erica406
in
Kidney Disease
5 years ago
I’m Worried
Last Year March 1 2019 To Be Precise, My Hypertensive Daddy Was Very Sick. We Got To The Hospital. The Doctors ran a test on him, his urinalysis was ok. But his ultrasound showed “diminished corticomedullary” and They Said It Was CKD and his Egfr was 35. Then He Did Dialysis Once And After 3 Months
Last Year March 1 2019 To Be Precise, My Hypertensive Daddy Was Very Sick. We Got To The Hospital. The Doctors ran a test on him, his urinalysis was ok. But his ultrasound showed “diminished corticomedullary” and They Said It Was CKD and his Egfr was 35. Then He Did Dialysis Once And After 3 Months
xyz96211
in
Kidney Disease
5 years ago
First Face-to-Face With Other CKD Patients
I am a 76 yr old, live alone woman who has long prided myself on my independence. The CKD stage 3 diagnosis in 2019 left me feeling very alone and frightened. Both pcp and nephrologist seemed unconcerned about my CKD and I knew no one else with renal problems. After many hours and weeks spent searching
I am a 76 yr old, live alone woman who has long prided myself on my independence. The CKD stage 3 diagnosis in 2019 left me feeling very alone and frightened. Both pcp and nephrologist seemed unconcerned about my CKD and I knew no one else with renal problems. After many hours and weeks spent searching
FlowerPreciousLover
in
Kidney Disease
5 years ago
FSGS
Been on dialysis for about 10 years now I'm 33 lost my kidneys when I was 21 had a transplant off my sister that lasted 2 years but had more bother then good as my illness came back in the new kidney then I was told I couldn't have another kidney as my FSGS will just kill any kidney they transplant anyone
Been on dialysis for about 10 years now I'm 33 lost my kidneys when I was 21 had a transplant off my sister that lasted 2 years but had more bother then good as my illness came back in the new kidney then I was told I couldn't have another kidney as my FSGS will just kill any kidney they transplant anyone
Cave2
in
Kidney Dialysis
5 years ago
What we're the physical symptoms that told you it was time to start dialysis?
I had a nephrology appt today. Albumin dropped from 3.2 to 3.0, largely because of family stress issues that caused me to lose my appetite. GFR 11. How did you know it was time to start dialysis? What physical symptoms were you experiencing?
I had a nephrology appt today. Albumin dropped from 3.2 to 3.0, largely because of family stress issues that caused me to lose my appetite. GFR 11. How did you know it was time to start dialysis? What physical symptoms were you experiencing?
ILMA54
in
Kidney Dialysis
5 years ago
Thrilled to have been introduced to this phenomenally important and lifesaving section of this website! :)
Hi, I just saw this post on this section of the cite which is so exciting to see. This was my first reply , " Thank you for this info. This is the first one I saw on this Healthy Eating section of this cite. I don't have COPD but I do know dairy had a huge effect on mucous developing in my lungs during
Hi, I just saw this post on this section of the cite which is so exciting to see. This was my first reply , " Thank you for this info. This is the first one I saw on this Healthy Eating section of this cite. I don't have COPD but I do know dairy had a huge effect on mucous developing in my lungs during
EYatNKFSvdMYLIF
in
Healthy Eating
5 years ago
Nephrotic Syndrome
I am new to this community. I would like advise on Nephrotic Syndrome. What can you positively do to improve nephrotic syndrome ? Following two Rituximab infusions, I am on dialysis since 8 months. My albumin has improved. Can I come off dialysis if the neprotic syndrome improves? I am not diabetic
I am new to this community. I would like advise on Nephrotic Syndrome. What can you positively do to improve nephrotic syndrome ? Following two Rituximab infusions, I am on dialysis since 8 months. My albumin has improved. Can I come off dialysis if the neprotic syndrome improves? I am not diabetic
Potuar
in
Kidney Dialysis
5 years ago
Scared to death
I need dialysis. I have extreme needle fobia and cant cope with the fear. I'm getting consumed with anxiety and fear. I have had to take a leave of absence from work I am so distraught over this. Can someone please help me
I need dialysis. I have extreme needle fobia and cant cope with the fear. I'm getting consumed with anxiety and fear. I have had to take a leave of absence from work I am so distraught over this. Can someone please help me
Guinapig
in
Kidney Disease
5 years ago
LIVING WELL WITH DIALYSIS
Hi Everyone! I am a 60 YO Male living in Redmond, WA. I immigrated to the US in 1980 from Alexandria, Egypt. I was 20 years old and have been living since in the USA which I consider my new homeland. I have been on Dialysis for the past 5 years. My kidney failure came about after I had a major heart
Hi Everyone! I am a 60 YO Male living in Redmond, WA. I immigrated to the US in 1980 from Alexandria, Egypt. I was 20 years old and have been living since in the USA which I consider my new homeland. I have been on Dialysis for the past 5 years. My kidney failure came about after I had a major heart
RamsesIII
in
Kidney Disease
5 years ago
LIVING HAPPY ON DIALYSIS
Hi Everyone! I am a 60 YO Male living in Redmond, WA and have been on Dialysis for the past 5 years. My kidney failure came about after I had a major heart attack and my heart stopped for 4 1/2 minutes, unbeknown to me, I guess my kidney was already in bad condition and all it took to fail is those few
Hi Everyone! I am a 60 YO Male living in Redmond, WA and have been on Dialysis for the past 5 years. My kidney failure came about after I had a major heart attack and my heart stopped for 4 1/2 minutes, unbeknown to me, I guess my kidney was already in bad condition and all it took to fail is those few
RamsesIII
in
Kidney Dialysis
5 years ago
Worried
Hello, I ordered my own blood work because I have a fear of doctors. My GFR is 78. It should be 99. My potassium level is 4.2 (range 3.5-5.0). So I guess I have stage 2 CKD. Now I'm afraid to eat potassium so for the last 3 days I have only been eating white rice, oatmeal, an occasional egg, and iceberg
Hello, I ordered my own blood work because I have a fear of doctors. My GFR is 78. It should be 99. My potassium level is 4.2 (range 3.5-5.0). So I guess I have stage 2 CKD. Now I'm afraid to eat potassium so for the last 3 days I have only been eating white rice, oatmeal, an occasional egg, and iceberg
kat208
in
Kidney Disease
5 years ago
Anyone in Stage 4 with a fistula?
Hello I’m at Stage 4 found out because I went to see a specialist for resistant hypertension and he asked me if anyone talked to me and I said no. He was upset that the kidney specialist I saw did tell me and he had to explain everything to me about dialysis and fistula. He say he can lower my pressure
Hello I’m at Stage 4 found out because I went to see a specialist for resistant hypertension and he asked me if anyone talked to me and I said no. He was upset that the kidney specialist I saw did tell me and he had to explain everything to me about dialysis and fistula. He say he can lower my pressure
civin76
in
Early CKD Support
5 years ago
KIDNEY FRIENDLY COOKING WEBINAR
I just signed up for this American Kidney Fund webinar scheduled for February 19th. I've included the link here if anyone else is interested. These webinars are helpful, whether you are new to CKD or a veteran, on or off dialysis, a transplant recipient or not. It's about an hour in length and you
I just signed up for this American Kidney Fund webinar scheduled for February 19th. I've included the link here if anyone else is interested. These webinars are helpful, whether you are new to CKD or a veteran, on or off dialysis, a transplant recipient or not. It's about an hour in length and you
Hidden
in
Kidney Disease
5 years ago
technology for the generation of new kidney tissue
sounds promising - https://tinyurl.com/ts23bzj - research on rats -An innovative study led by Prof. Benjamin Dekel of Sheba Medical Center could make dialysis a defunct treatment through the development of advanced technology that allows for the generation of new kidney tissue to replace damaged tissue
sounds promising - https://tinyurl.com/ts23bzj - research on rats -An innovative study led by Prof. Benjamin Dekel of Sheba Medical Center could make dialysis a defunct treatment through the development of advanced technology that allows for the generation of new kidney tissue to replace damaged tissue
Allank
in
Kidney Disease
5 years ago
How long can I be on PD
I'm new here. I'm at 13%, will start PD sometime in the not-to-distant future. Attended a class at a local dialysis center. They recommend Fresenius PD. How long can you be on PD before it doesn't work anymore? I do not like the idea of having to have the fistula in my arm, so if I can put that off for
I'm new here. I'm at 13%, will start PD sometime in the not-to-distant future. Attended a class at a local dialysis center. They recommend Fresenius PD. How long can you be on PD before it doesn't work anymore? I do not like the idea of having to have the fistula in my arm, so if I can put that off for
RonZone
in
Kidney Dialysis
5 years ago
Badly in need advise/ support for alternative method not to go on dialysis.
I am very much worried on my husbands condition , his doctor is trying to get him on dialysis so i am really in need to get help for alternative medicine if there is anyone who can extend help to us. I would really appreciate y'all if given suggestions. Thanks a lot
I am very much worried on my husbands condition , his doctor is trying to get him on dialysis so i am really in need to get help for alternative medicine if there is anyone who can extend help to us. I would really appreciate y'all if given suggestions. Thanks a lot
Loveyoumore2354
in
Kidney Disease
5 years ago
Diet Suggestions for Stage 5 CKD
Goodday, i have CKD stage 5, recently diagnosed. i have started Peritoneal dialysis and would really like to look deeper into perfecting my diet plan. I would like to know what others with the same condition have done or if they willing to share their eating plans that have given good results.
Goodday, i have CKD stage 5, recently diagnosed. i have started Peritoneal dialysis and would really like to look deeper into perfecting my diet plan. I would like to know what others with the same condition have done or if they willing to share their eating plans that have given good results.
CS2020
in
Kidney Disease
5 years ago
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