FSGS

[Cave2]

Been on dialysis for about 10 years now I'm 33 lost my kidneys when I was 21 had a transplant off my sister that lasted 2 years but had more bother then good as my illness came back in the new kidney then I was told I couldn't have another kidney as my FSGS will just kill any kidney they transplant anyone else on hear with FSGS

[WYOAnne NKF Ambassador]

Yes, I too was diagnosed with FSGS. I had a transplant from a deceased donor 20 years ago. I am living strong with a stable creatinine of 0.9.

I think that is BS that they won't give you another kidney because of the FSGS! Where did you have your transplant? Have you checked with them lately?

[Cave2 in reply to WYOAnne]

I had it done at the QE hospital and it's been years since I sat down with a doctor to discuss anything i just go to my unit for my dialysis did you have no problems with your new kidney i had to have plasma exchange to try get it to work I could wee but the new kidney just made me feel really ill from start to finished

[WYOAnne NKF Ambassador in reply to Cave2]

I was very lucky! My kidney started working right on the operating table. All of my problems at first were getting my body to tolerate the immunosuppressants and steroids I had to take. I never had a rejection episode and my kidney just keeps "chugging" along. My transplant was in the US at the University of Wisconsin transplant center in Madison, WI in 1999.

[Cave2 in reply to WYOAnne]

Mine didnt work at first they put me on a machine that does plasma exchange and after so long my kidney starting work and I started pass urine but every day I lost more and more kidney function

[nh1966]

I have FSGS too. During the transplant work up I was told that there was a good % that the FSGS could return in the transplanted organ. I have not had a transplant yet. They are studying a treatment to help prevent the return of FSGS in transplanted kidneys. I would take to your Dr. again or maybe talk with another transplant hospital.

[Cave2 in reply to nh1966]

I will be asking questions now I'm only 33 so if there any chance I could have another transplant i would jump at the chance i hope everything goes to plan with you

[Arleendodson]

I don’t know what dkd is. We can pass away about two weeks ago he was on dialysis and then got a kidney . then she fell in December and broke her arm into places to visit in. She said that she kept falling off don’t know why and her husband found herin the bathroom so sad.I think it would be easier for her or she have a quick right to 67 and you’re older than me. We met at UCLA in 1992. I was on dialysis 6 months and then got a transplant which lasted 23 years but then I got pneuammonia and it affecting mykidney so I’ve been on dialysis for five yearsi also dont know what fsgs is? Arleen good luck