LIVING WELL WITH DIALYSIS: Hi Everyone! I am... - Kidney Disease

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LIVING WELL WITH DIALYSIS

RamsesIII profile image
9 Replies

Hi Everyone! I am a 60 YO Male living in Redmond, WA. I immigrated to the US in 1980 from Alexandria, Egypt. I was 20 years old and have been living since in the USA which I consider my new homeland.

I have been on Dialysis for the past 5 years. My kidney failure came about after I had a major heart attack and my heart stopped for 4 1/2 minutes, unbeknown to me, I guess my kidney was already in bad condition and all it took to fail is those few minutes of no blood circulation. Since February 2015 I started Dialysis, first at the hospital which I was in after a triple bypass for 1 full year.

I lost my wife in 2012 after less than 1-year fight with brain cancer. Leaving me a precious daughter who is now 25 years old and working as a teacher.

And after leaving the hospital and until now I have been doing my dialysis at a Dialysis Center. lately and up to a few months ago, I started skipping dialysis as well as shortening some of my treatments to 2 1/2 hours instead of 4 hours, which lead me to a few hospital trips due to high Potassium levels which had put my heart into the danger of heart attacks! Those hospital trips finally sank in me, and more important my daughter who had made sure that I always go to my dialysis appointments and making sure that I stay all full 4 hours treatments.

Now and starting in October 2019, I have not skipped even once my dialysis and did not short any of my dialysis treatments and have been always staying the full 4 hours treatments!

I can not describe enough how, going to dialysis and getting full treatments, have made in my life! When I was skipping I was always tired and fatigued, I some days was sleeping 12 hours and more per day! And feeling depressed and having anxiety.

Now, that I am religiously going to my treatments, I am feeling very energetic like I have never been, happier, and without any depression or anxiety and on top of that being able to work full time as I am still working, as I enjoy working. I am a Sales Vice President and consultant to many companies.

Finally, my advise if you are on Dialysis do not skip your Dialysis treatments and do not shorten your treatments which would make you live happier and, long and full of energy.

I would love to hear from you so please write to me.

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RamsesIII
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9 Replies
AnneEG profile image
AnneEG

Hello Ramses. Welcome to this site. I live alone in Scotland and wish I could meet some people here with this condition. It terrifies me!

My daughter lives in Dubai and her boyfriend is Egyptian. I want her to come home for support but she refuses and it really upsets me. She works for Emirates as cabin crew.

Glad you're doing well. Can I ask what kind of dialysis you're on .

RamsesIII profile image
RamsesIII in reply toAnneEG

Hi Anne,

It is nice to hear from you. Currently, I am on Hemodialysis, I go to a dialysis center 3 times a week for 4 hours each time. I have been doing this since the beginning of 2016. Recently my work has been picking up and it is becoming hard to leave everything to go to dialysis, therefore, I am considering doing Peritoneal Dialysis (PD) as it will work better for me with my work schedule and also much more convenient, especially on snowy days.

My peritoneal will be done 5 days a week, each time it will start when I go to sleep and work all night. And, I will still have to go to the Dialysis center once a month to do all the blood work to check on the efficiency of the PD as well as check on all related blood matters as well as my INR.

Do you like your daughter's boyfriend? Do you get along? As for your daughter refusing to get back to the UK, just give her time as she is excited with her work as a cabin crew flying to all different countries, and, above all, she is still young, just give it some time and she will get tired of flying, tired of the odd hours of work and tired from the work as you know a cabin crew on the commercial airlines is really a tiring job have been to stand up sometimes on most the flight running up and down those narrow isles...

Just be patient and give it some time. Enjoy the quietness of your house and having home all to yourself and try to find things to do which would make you happy example a stroll in the park, going to the library and pick a nice book to read and a chance to see and be seen, go to the malls to do some window shopping, etc...

By the way, my name is: MONI NASSAR and I live in Redmond, Washington State home of Microsoft. I lived in London from 1978 to 1981 after that I moved to the USA.

Those few years in London are probably the BEST years of my life! and if it was not so hard to earn a decent income or get a nice job, I probably would have still been living for good in England. I lived in High street Kensington in a nice and quaint flat. I was young and energetic, and, worked all kinds of works from waiter to chef to the restaurant's manager and hotel front desk, etc...

Oh my GOD, I wrote a lot to you, and, I hope I did not cause you any headaches.

Please stay in touch and let me know what kind of dialysis are you on and how is it going with your dialysis? Cheers!

AnneEG profile image
AnneEG in reply toRamsesIII

Nice to hear from you. I'm not on dialysis yet as stage 3. I'm terrified of this disease and getting dialysis. Do you have a fistula and if so were there any problems? I'm also very scared of giving blood and getting the results in case they find something bad. I'm a wimp. You seem very calm about it all. Wish I could be like that but I feel my whole world has been turned upside down .

I'm not too keen on Ahmed as he goes into terrible moods with Hannah which is not too good and he treats her like a servant.

Kensington High Street very posh! I worked in London for several years.

Ps my name is Sheila.

RamsesIII profile image
RamsesIII in reply toAnneEG

I discuss any man who treats his lady but as a Gentleman, treating her nicely and putting her on a high and a distinctive pedestal. To me, women are the fruits of life and should be treated with the utmost respect! What a JERK! Trust me your daughter will leave him very soon. Let her go to the end of this experience so that she learns from it.

I do have a fistula, I got it done in April 2015, and SO FAR I did not have any problems with it. I wish for you not to have to go on dialysis. I tell you the main reason I seem very calm is that I am really calm. And, you can ask me hows did I get to be so calm, let me tell you After my wife passed away, I lost a friend, a sister and a wife and I went on a drinking binge and smoking as much as 3 packs per day and eating a lot until I got to be 245 LBS! and within a couple of years of this lifestyle, I got my first heart attack ion November 2014 kand I got a stint inserted in me and 2 months later I had a massive heart attack which put me in the hospital for almost 1 year, and, during which I was under an induced coma for 4 months! as the doctors were very worried that if I moved or moved any part of me I could get another heart attack! then stayed in the hospital for another 3 months after which, I was sent to live in a rehab center as I lost mass muscles and overall I lost 100 lbs.! also, I had to learn how to speak, walk climb stairs and a bunch of Occupational Therapy and Physical Therapy. then I got home finally 1 year since I left home!! And, if I learned one thing from all of this is that THERE IS NOTHING IN THIS WORLD WORTH GETTING UPSET OR DEPRESSED ABOUT! Be positive about what you are going thru, I mean so far you did not need any dialysis and I pray for you to not get to need dialysis.

And, if the worth happen where you would need dialysis, trust me it is not the end of the world. and, there are many ways to cope with it. Anyhow, I am here for you ready to talk with you anytime, and, ready to answer any questions you might have as well as offer you all the support you may need,

Cheers, talk to you later.

AnneEG profile image
AnneEG

Ps. sorry to hear about your wife.

Jayhawker profile image
Jayhawker

Glad to hear how well you’re doing on HD dialysis now! I’ll be interested to hear what you think about PD dialysis if you shift to it.

Jayhawker

daxielovinglady profile image
daxielovinglady

Hello Moni, So sorry to hear about your wife, you have had a tough time, your journey is an inspiration to us all. Thank you & take care.

KidneyCoach profile image
KidneyCoachNKF Ambassador

No, dialysis is not the end of the world. I've traveled, worked, raised my family and welcomed 10 grandkids into the world.

Let us know how PD works for you. I'm about to enter my 19th year on dialysis. Blessings

itzmich profile image
itzmich

Thank you for sharing your story. I am so happy to hear that your experience with dialysis was a positive one.

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