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Here for Support
Hey I'm Jen i'm new to this. My Mom has stage 5 kidney failure. She starts dialysis very soon and i guess the procedure beforehand. I'm just here for support because this has been very difficult.
Hey I'm Jen i'm new to this. My Mom has stage 5 kidney failure. She starts dialysis very soon and i guess the procedure beforehand. I'm just here for support because this has been very difficult.
Mrsflowers88
in
Kidney Disease
4 years ago
Alternating between wanting to scream and shout and wanting to curl up in a corner and bawl my eyes out
Am busy alternating between wanting to scream and shout and wanting to curl up in a corner and bawl my eyes out. Was diagnosed in July last year with Lupus (it was "stumbled across" whilst the medical profession tried to work out why my left index finger had been swollen for over 12 months) This was
Am busy alternating between wanting to scream and shout and wanting to curl up in a corner and bawl my eyes out. Was diagnosed in July last year with Lupus (it was "stumbled across" whilst the medical profession tried to work out why my left index finger had been swollen for over 12 months) This was
pattypatchwork
in
LUPUS UK
4 years ago
Kidney Ultrasounds and other tests....Lessons to learn from
Folks, I was diagnosed with CHRONIC KIDNEY DISEASE (!) by my PCP just over three years ago with a creatinine-based eGFR of 55. I'm 61 years old. Of course, I flipped out...and I mean REALLY flipped out. Can't even begin to estimate how many DAYS (not hours) I've spent researching the internet about
Folks, I was diagnosed with CHRONIC KIDNEY DISEASE (!) by my PCP just over three years ago with a creatinine-based eGFR of 55. I'm 61 years old. Of course, I flipped out...and I mean REALLY flipped out. Can't even begin to estimate how many DAYS (not hours) I've spent researching the internet about
Marvin8
in
Early CKD Support
4 years ago
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Anoushica shares her journey of lupus to kidney failure
Hi All, Here I chat to a fellow kidney person - it was filmed over 2 years ago so there is of course an ongoing story for Anoushica's next chapter and indeed mine! (hint: it's all good!). Especially for younger people going through this journey, I hope it inspires you and you feel comforted to know we
Hi All, Here I chat to a fellow kidney person - it was filmed over 2 years ago so there is of course an ongoing story for Anoushica's next chapter and indeed mine! (hint: it's all good!). Especially for younger people going through this journey, I hope it inspires you and you feel comforted to know we
WhollyAligned
in
Dialysis Support
4 years ago
To Eat Meat or Not to Eat Meat: That is the question.
Ok, so I was going through the modules of KidneySchool.org and ran across this: "But What About a Low Protein Diet? If you have chronic kidney disease, your doctor may suggest a low protein diet. Some doctors believe that eating less protein may help the kidneys work a little longer. But doctors do
Ok, so I was going through the modules of KidneySchool.org and ran across this: "But What About a Low Protein Diet? If you have chronic kidney disease, your doctor may suggest a low protein diet. Some doctors believe that eating less protein may help the kidneys work a little longer. But doctors do
RonZone
in
Dialysis Support
4 years ago
New Consultant cont
Well the visit to the renal consultant went well, he's going to speak with my lupus consultant to see if he still wants to see me and continue to liaise with him regarding my lupus and how it's doing or not doing. Looking like most blood results are heading in the right direction which is good, so it
Well the visit to the renal consultant went well, he's going to speak with my lupus consultant to see if he still wants to see me and continue to liaise with him regarding my lupus and how it's doing or not doing. Looking like most blood results are heading in the right direction which is good, so it
Hidden
in
LUPUS UK
4 years ago
KIDNEY DONOR ASSISTANCE
LOOKING FOR KIDNEY DONOR FOR LOISE, 62 YEARS . SAVE HER LIFE Loise suffers from a kidney failure and she was put on dialysis, which she attends a local hospital thrice a week. Through this, she has positive changes and much improvement. it has been our family desire to have our mother Loise undergo
LOOKING FOR KIDNEY DONOR FOR LOISE, 62 YEARS . SAVE HER LIFE Loise suffers from a kidney failure and she was put on dialysis, which she attends a local hospital thrice a week. Through this, she has positive changes and much improvement. it has been our family desire to have our mother Loise undergo
Phinehas
in
Kidney Transplant
4 years ago
EHIC Card
Reading between the lines I sometimes get the impression that some people think the EHIC card negates the need for travel insurance with the EU, Norway, Switzerland and some other counties. It most certainly does not as it only covers emergency treatment although some treatments like dialysis can be
Reading between the lines I sometimes get the impression that some people think the EHIC card negates the need for travel insurance with the EU, Norway, Switzerland and some other counties. It most certainly does not as it only covers emergency treatment although some treatments like dialysis can be
MichaelJH
Heart Star
in
British Heart Foundation
4 years ago
In there an equivalence in Europe for the Carol Mattix Award ?
Hi everyone, I'm new here. I heard about this great initiative from NKF who honors Home Dialysis Nurse for their initiatives and efforts to enhance the HHD patients' lives by helping them during the formation and proving them assistance in their daily life. Do anyone know if there is such award in
Hi everyone, I'm new here. I heard about this great initiative from NKF who honors Home Dialysis Nurse for their initiatives and efforts to enhance the HHD patients' lives by helping them during the formation and proving them assistance in their daily life. Do anyone know if there is such award in
Hidden
in
Kidney Disease
4 years ago
Stage 5 kidney disease , 81 years old and having serious problem in Dialysis
Hi, My father is 81 years old and was active, passing urine before he got to know that his creative level had reached to 9.2 . He has this issue in the past and was controlling it with medicine to keep it around 3. As doctor advised and we started dialysis but after 2 dialysis he is very fragile. Now
Hi, My father is 81 years old and was active, passing urine before he got to know that his creative level had reached to 9.2 . He has this issue in the past and was controlling it with medicine to keep it around 3. As doctor advised and we started dialysis but after 2 dialysis he is very fragile. Now
KCRG
in
Kidney Disease
5 years ago
New consultant
After all these years seeing my Lupus consultant I will see a kidney consultant on Thursday for the 1st time since starting dialysis. It'll be weird seeing someone else and talking predominantly about something else from now on rather than just how the lupus is doing. The plan was to alternate between
After all these years seeing my Lupus consultant I will see a kidney consultant on Thursday for the 1st time since starting dialysis. It'll be weird seeing someone else and talking predominantly about something else from now on rather than just how the lupus is doing. The plan was to alternate between
Hidden
in
LUPUS UK
5 years ago
Fibro referrals
Hello everyone! Does anyone else see a rheumatologist for their fibro? This is a bit of a long story so I’ll try and make it as brief as possible...... Diagnosed with rheumatoid arthritis from a bone scan “showing widespread inflammation”. Consultant Failed to send a letter to my GP informing of new
Hello everyone! Does anyone else see a rheumatologist for their fibro? This is a bit of a long story so I’ll try and make it as brief as possible...... Diagnosed with rheumatoid arthritis from a bone scan “showing widespread inflammation”. Consultant Failed to send a letter to my GP informing of new
Bloop45
in
Fibromyalgia Action UK
5 years ago
How Do I Handle My Severe Stress?
I'm new here. My husband has diabetes and kidney disease with projected dialysis beginning in 2 to 4 years. He's been on a low carb diet, lost a lot of weight, reduced his insulin significantly, when suddenly, almost overnight, his creatinine levels went bad. Now his blood pressure is very high (200
I'm new here. My husband has diabetes and kidney disease with projected dialysis beginning in 2 to 4 years. He's been on a low carb diet, lost a lot of weight, reduced his insulin significantly, when suddenly, almost overnight, his creatinine levels went bad. Now his blood pressure is very high (200
Darlenia
in
Kidney Dialysis
5 years ago
Medicare Part B
My question today is, I'm still on my employer provided Blue Cross/Blue Shield, but a lady at the local dialysis clinic said it would also be beneficial to sign up for medicare part B (I'm already on part A as I am 66 years old). What possible charges will Medicare part B cover that my Blue Cross Blue
My question today is, I'm still on my employer provided Blue Cross/Blue Shield, but a lady at the local dialysis clinic said it would also be beneficial to sign up for medicare part B (I'm already on part A as I am 66 years old). What possible charges will Medicare part B cover that my Blue Cross Blue
RonZone
in
Kidney Dialysis
5 years ago
Diabetic nephropathy
Hi all Iam 54 and diagnosed with diabetic nephropathy 3 years ago my eGfr was around 57 and the Dr said it's border line and not to worry much. All on a sudden within a year it dropped to 36and stayed for about 6months in the same range .in the meanwhile my BP shot up and my sugar was under control.never
Hi all Iam 54 and diagnosed with diabetic nephropathy 3 years ago my eGfr was around 57 and the Dr said it's border line and not to worry much. All on a sudden within a year it dropped to 36and stayed for about 6months in the same range .in the meanwhile my BP shot up and my sugar was under control.never
Antharyami
in
Kidney Disease
5 years ago
Glad you Don't Skip
I'm 53 with congenital kidney issues. Due to my mother having childhood diabetics I was born with just one kidney & a plethora of other urinary issues. As a child I was in & out of the hospital with UTI & other related illness. I understood at a young age that eventually my single kidney would give
I'm 53 with congenital kidney issues. Due to my mother having childhood diabetics I was born with just one kidney & a plethora of other urinary issues. As a child I was in & out of the hospital with UTI & other related illness. I understood at a young age that eventually my single kidney would give
Shelbert66
in
Kidney Dialysis
5 years ago
Keep moving and gaining strength on dialysis
hi all, I am a big fan of movement - for me I enjoy dance, long walks in nature and asana (the movement aspect of yoga which is just one aspect of what yoga is). As a yoga teacher and naturopathic nutritional therapist, I am so grateful to have the tools to really take care of myself. Here I share a
hi all, I am a big fan of movement - for me I enjoy dance, long walks in nature and asana (the movement aspect of yoga which is just one aspect of what yoga is). As a yoga teacher and naturopathic nutritional therapist, I am so grateful to have the tools to really take care of myself. Here I share a
WhollyAligned
in
Dialysis Support
5 years ago
Questions..
Hey all just came back to work and university which has been helping me distract myself. Thank you all for the kind messages. Now I have a question. My mom was told she had multifocal invasive breast cancer, and they also told us it was a rare type. Oncologist says it is kind of random how she was checked
Hey all just came back to work and university which has been helping me distract myself. Thank you all for the kind messages. Now I have a question. My mom was told she had multifocal invasive breast cancer, and they also told us it was a rare type. Oncologist says it is kind of random how she was checked
janeths466
in
SHARE Metastatic Breast Cancer
5 years ago
Question
Does dialysis remove psych meds out of your system when you have it or do they stay?
Does dialysis remove psych meds out of your system when you have it or do they stay?
S_dillow
in
Kidney Disease
5 years ago
Transportation
What do you wish transportation drivers would know about dialysis and/or your health?Tell us here via this survey link: https://www.surveymonkey.com/r/J2PLTJX
What do you wish transportation drivers would know about dialysis and/or your health?Tell us here via this survey link: https://www.surveymonkey.com/r/J2PLTJX
KelliC_NKF
in
Kidney Dialysis
5 years ago
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