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Anyone Working on Dialysis?
I'm 57 and have stage 4 CKD. They have found no "official" cause. I have T2 diabetes, but it is considered in control (or it was until they stopped my metformin) and I have no other diabetes related conditions. I have lived without a colon for 27 years and am often dehydrated. On July 4, 2020 I got a
I'm 57 and have stage 4 CKD. They have found no "official" cause. I have T2 diabetes, but it is considered in control (or it was until they stopped my metformin) and I have no other diabetes related conditions. I have lived without a colon for 27 years and am often dehydrated. On July 4, 2020 I got a
barbara55109
in
Kidney Disease
4 years ago
I need my bestfriend to live love an laugh
My best friend is on home dialysis an has been for 2 1/2 years. She needs a transplant but we really dont know how to go about making that happen for her. We know someone that said they would donate to her but there is always something stopping that from happening. We understand the life changes an
My best friend is on home dialysis an has been for 2 1/2 years. She needs a transplant but we really dont know how to go about making that happen for her. We know someone that said they would donate to her but there is always something stopping that from happening. We understand the life changes an
Wanda_Pamela
in
Kidney Transplant
4 years ago
Dialysis patient from Turkey
Dear All I was a dialysis nurse in Turkey for 8 years but when I move to London unfortunately I have to give up my job :( So I know everything about the dialysis and what’s the feeling like and now my dad start to receive dialysis treatment in turkey plus he has cancer :( I m 32 weeks pregnant and single
Dear All I was a dialysis nurse in Turkey for 8 years but when I move to London unfortunately I have to give up my job :( So I know everything about the dialysis and what’s the feeling like and now my dad start to receive dialysis treatment in turkey plus he has cancer :( I m 32 weeks pregnant and single
Rana79
in
Dialysis Support
4 years ago
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Hemodialysis
Hello my name is Briana I would like to know if does anyone do hemodialysis at home ? If you do could you explain to me how the process goes. I see a dialysis surgeon and I would like to know what it like for you , and how come you didn't want to go to the dialysis center. Thank you for your time and
Hello my name is Briana I would like to know if does anyone do hemodialysis at home ? If you do could you explain to me how the process goes. I see a dialysis surgeon and I would like to know what it like for you , and how come you didn't want to go to the dialysis center. Thank you for your time and
Quita55
in
Kidney Dialysis
4 years ago
Kidney donation request
I am in need of a kidney donor. I am Sri, undergoing Dialysis 3 times a week. I am young dad of two and whole sole bread earner for my family. Please inform me if you are capable of donating. I live in Seattle, US. I can provide more details for the for anyone who is interested in donating.
I am in need of a kidney donor. I am Sri, undergoing Dialysis 3 times a week. I am young dad of two and whole sole bread earner for my family. Please inform me if you are capable of donating. I live in Seattle, US. I can provide more details for the for anyone who is interested in donating.
kidney4sri
in
Kidney Donation
4 years ago
Leg pain
Hi. I just started dialysis 1 week ago. I have fluid overload. My legs hurt so much. Do any of you have any suggestions for the pain?
Hi. I just started dialysis 1 week ago. I have fluid overload. My legs hurt so much. Do any of you have any suggestions for the pain?
LibbyDoodle
in
Kidney Dialysis
4 years ago
Stage 4 ckd with Congestive Heart Failure
I was in the hospital last month for my CHF. Lungs were filling with fluid and couldn't breathe. I am 47 years old. They checked my kidney function as I also have CKD. My eGFR was at 23 and ejection fraction of the heart at 22% They took me off my Lisinopril because of my kidneys and replaced it with
I was in the hospital last month for my CHF. Lungs were filling with fluid and couldn't breathe. I am 47 years old. They checked my kidney function as I also have CKD. My eGFR was at 23 and ejection fraction of the heart at 22% They took me off my Lisinopril because of my kidneys and replaced it with
thomascald
in
Kidney Disease
4 years ago
Miracles do happen 🙏🏻 Tony - Covid19: 1-0
Hi everyone, I’ve been meaning to write this post for days, but life is very hectic at the moment!! So after 117 days in hospital Tony is finally home! Tony is 31yrs old, previously fit and absolutely healthy, no underlying health conditions. He spent 93 days in ICU, 10 days in a normal ward, and 14
Hi everyone, I’ve been meaning to write this post for days, but life is very hectic at the moment!! So after 117 days in hospital Tony is finally home! Tony is 31yrs old, previously fit and absolutely healthy, no underlying health conditions. He spent 93 days in ICU, 10 days in a normal ward, and 14
MarthaKos
in
ICUsteps
4 years ago
Miracles do happen 🙏🏻 Tony - Covid19: 1-0
Hi everyone, I’ve been meaning to write this post for days, but life is very hectic at the moment!! So after 117 days in hospital Tony is finally home! Tony is 31yrs old, previously fit and absolutely healthy, no underlying health conditions. He spent 93 days in ICU, 10 days in a normal ward, and 14
Hi everyone, I’ve been meaning to write this post for days, but life is very hectic at the moment!! So after 117 days in hospital Tony is finally home! Tony is 31yrs old, previously fit and absolutely healthy, no underlying health conditions. He spent 93 days in ICU, 10 days in a normal ward, and 14
MarthaKos
in
ICUsteps
4 years ago
Dialysis and nutrition ideas for newbie
I’m new here and rather intimidated by all the changes we are facing with my husband beginning dialysis. Looking for ideas, recipes, seasoning tips for diabetic dialysis, sources for low sodium products, including snacks. Are there any sources for pre-made meals? What apps are useful and simple to
I’m new here and rather intimidated by all the changes we are facing with my husband beginning dialysis. Looking for ideas, recipes, seasoning tips for diabetic dialysis, sources for low sodium products, including snacks. Are there any sources for pre-made meals? What apps are useful and simple to
GramCope
in
Kidney Disease
4 years ago
Dialysis Unit Too Cold
My husband has been on dialysis for 21 years and it didn’t just happen, it came from doing what was right and listening to his body. He knows when he has infections on board and the doctors listen to him and treat him for it before it gets worse. His problem now is a certain technician that’s going through
My husband has been on dialysis for 21 years and it didn’t just happen, it came from doing what was right and listening to his body. He knows when he has infections on board and the doctors listen to him and treat him for it before it gets worse. His problem now is a certain technician that’s going through
JEanes55
in
Kidney Dialysis
4 years ago
Anxiety and vent weaning? Also a novel of my moms icu experience
Long story but I will try to make this as short as I can. My mom has been on the ventilator for 3 months. She ended up in the hospital having trouble breathing and she had a low heart rate. She had to to get put on the ventilator. She was getting better, got off of the ventilator and out of the ICU but
Long story but I will try to make this as short as I can. My mom has been on the ventilator for 3 months. She ended up in the hospital having trouble breathing and she had a low heart rate. She had to to get put on the ventilator. She was getting better, got off of the ventilator and out of the ICU but
Alexa319
in
ICUsteps
4 years ago
WOULD NEVER ASK SOMEONE TO DONATE A KIDNEY FOR ME!
Haven't been on in awhile. While doing the testing to get on transplant list, a suspicious mass in right kidney was found. Had to get an MRI and then CT Biopsy which showed renal cell crcinoma. Because of Corona Virus couldn't have surgery for 3 month. The surgeon took out my right kidney on 07/
Haven't been on in awhile. While doing the testing to get on transplant list, a suspicious mass in right kidney was found. Had to get an MRI and then CT Biopsy which showed renal cell crcinoma. Because of Corona Virus couldn't have surgery for 3 month. The surgeon took out my right kidney on 07/
SadMad
in
Kidney Disease
4 years ago
Husband beat covid - home after 123 days.
My previously fit, active, healthy 59 year old husband was admitted to ICU on 4th of April with covid. After 17 weeks in hospital we welcomed him home yesterday. He was in ICU for 9 weeks (6 weeks on a ventilator), had a tracheostomy, took a month to wake up after sedation was stopped, had a major trachey
My previously fit, active, healthy 59 year old husband was admitted to ICU on 4th of April with covid. After 17 weeks in hospital we welcomed him home yesterday. He was in ICU for 9 weeks (6 weeks on a ventilator), had a tracheostomy, took a month to wake up after sedation was stopped, had a major trachey
Malletus
in
ICUsteps
4 years ago
Heparin free dialysis?
Hi, I hope all is well. This week, my dear mom has started encountering blood clots in her dialysis filter. She already receives small doses of heparin to prevent clots due to being mostly immobile; however, there is a concern if they give her more heparin that could lead to some seriously bad bleeding
Hi, I hope all is well. This week, my dear mom has started encountering blood clots in her dialysis filter. She already receives small doses of heparin to prevent clots due to being mostly immobile; however, there is a concern if they give her more heparin that could lead to some seriously bad bleeding
ChrissyJames
in
ICUsteps
4 years ago
Big thank you
I am overwhelmed at the response to my question re dialysis or supportive care. The sharing you all did re your personal situations was inspiring and thought provoking. What a generous community. I thought I knew what I wanted but now see that much more research and study needs to be done by myself
I am overwhelmed at the response to my question re dialysis or supportive care. The sharing you all did re your personal situations was inspiring and thought provoking. What a generous community. I thought I knew what I wanted but now see that much more research and study needs to be done by myself
Wescott
in
Kidney Disease
4 years ago
Dialysis or supportive care
I am female, 72 years old with high b.p. and type 2 diabetes. My gfr is 17. Although not needing dialysis yet my kidney team has been providing me with great info on dialysis and supportive non dialysis. At this point, I am leaning toward non dialysis. I am wondering if anyone in this forum
I am female, 72 years old with high b.p. and type 2 diabetes. My gfr is 17. Although not needing dialysis yet my kidney team has been providing me with great info on dialysis and supportive non dialysis. At this point, I am leaning toward non dialysis. I am wondering if anyone in this forum
Wescott
in
Kidney Disease
4 years ago
I'm new to all this - Holidays doing PD
My husband has just started peritoneal dialysis. We hope to have a holiday in France next year but I feel concerned in case he gets an infection and needs to go to hospital. Can anyone recommend a good travel insurance company?
My husband has just started peritoneal dialysis. We hope to have a holiday in France next year but I feel concerned in case he gets an infection and needs to go to hospital. Can anyone recommend a good travel insurance company?
Choggers
in
Kidney Dialysis
4 years ago
Ckd and ammonia smell
When my level was in the low 30s and high 20s my sweat smelled awful. Like ammonia or cat pee. I don’t know if it’s because my level has fallen below 20 or diet or meds but now it doesn’t have a smell. Now it’s just excessive like Ive been out in the rain, just soaks thru all my clothes. Have to change
When my level was in the low 30s and high 20s my sweat smelled awful. Like ammonia or cat pee. I don’t know if it’s because my level has fallen below 20 or diet or meds but now it doesn’t have a smell. Now it’s just excessive like Ive been out in the rain, just soaks thru all my clothes. Have to change
Mcsnacks
in
Kidney Disease
4 years ago
CKD with ANEMIA and STARTING RETACRIT
Hi everyone, I'm new here but certainly not new to CKD. The anemia started in 2008 and would come and go and attributed it to working for a cancer physician where getting lunch on a heavy chemotherapy patient day was next to impossible, and sometimes leaving work at a decent hour was out of the question
Hi everyone, I'm new here but certainly not new to CKD. The anemia started in 2008 and would come and go and attributed it to working for a cancer physician where getting lunch on a heavy chemotherapy patient day was next to impossible, and sometimes leaving work at a decent hour was out of the question
Ladyboomer
in
Kidney Disease
4 years ago
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