Haven't been on in awhile. While doing the testing to get on transplant list, a suspicious mass in right kidney was found. Had to get an MRI and then CT Biopsy which showed renal cell crcinoma. Because of Corona Virus couldn't have surgery for 3 month. The surgeon took out my right kidney on 07/10/2020 which when I woke was the worst pain I had ever been in in my life. I ended up needing oxygen and was transferred to the ICU. They thought the narcotic pain meds had caused the breathing problems. On 07/13/2020 a chest catheter was put in and I am now on dialysis MWF. Of course all this trigger my anxiety disorder and can't even mention catheterization for urine until I could pee on my own. I have never been so vulnerable and just tried to sleep as much as I could. I was released on 07/17/2020 and anxiety and depression started. They had messed with my meds but my NP put me on an additional anxiety med. On 07/30/2020 the surgeon told me the mass was benign which is good but now no right kidney and on dialysis. I had panic attacks and just tried to get thru each day and now on 08/09/2020 I am feeling like myself. Last Saturday/Sunday had swelling and pain in neck above catheter and went to ER and was giving muscle relaxers. A Vascular US last Monday showed a small DVT in my neck so I am now on bloodthinners. I get a second surgery on 08/25/2020 for AVF in my left arm. The one done in February clotted before could even feel a thrill. My lower arm still is numb at times. The surgeon is putting me on the transplant list but I am in no hurry for more pain. Hemodialysis is OK. Most of the time my blood is cleaned with no volume overload as I try to stick to 36 ounces of fluid and still produce urine. I do notice that on the days I have dialysis it is so hard to get to sleep and I have to take something to finely get to sleep.
So how has everyoneelses summer been?
Written by
SadMad
To view profiles and participate in discussions please or .
Glad to know you're doing okay in spite of all the medical issues.
Compared to your situation mine pales in comparison. I lost one of my dogs early in July and rescued/adopted a yellow lab puppy. That should explain how my last month has gone.
Tomorrow is my quarterly appointment with the nephrologist. I'm not expecting any surprises.
My summer has been boring in comparison to yours. I’m glad to hear things are calming down some for you now. And it sounds like you are finding hemodialysis to be workable. I certainly hope so.
I’m also awaiting a deceased donor kidney. I was officially placed on the transplant wait list on January 10, 2020. They said it would be 2 to 2 1/2 years before I should expect a deceased donor kidney. That was before COVID 19 though. I don’t know what COVID will do to wait list times.
My goodness i hope you're aware of how strong you are. Not only did you battle multiple medical crises, you also tackled some serious mental health issues. Good for you. And, I'm so pleased to know that things are going better for you now. Its no fun at all when our bodies backfire on us. Im hoping you have some peace now and are able to continue with your own daily plans. I'm going to remember the strength you've shown throughout all this and hope i can do the same when needed. Lots of love
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
CKD on PD DIALYSIS 
Finally dialysis..
33 year old mother with GFR fluctuation between 16 & 19%, preparing for transplant whilst trying to increase GFR through vegi/vegan diet. 
ESRD Treatment Choices Model report
New to the community!
