Haven't been on in awhile. While doing the testing to get on transplant list, a suspicious mass in right kidney was found. Had to get an MRI and then CT Biopsy which showed renal cell crcinoma. Because of Corona Virus couldn't have surgery for 3 month. The surgeon took out my right kidney on 07/10/2020 which when I woke was the worst pain I had ever been in in my life. I ended up needing oxygen and was transferred to the ICU. They thought the narcotic pain meds had caused the breathing problems. On 07/13/2020 a chest catheter was put in and I am now on dialysis MWF. Of course all this trigger my anxiety disorder and can't even mention catheterization for urine until I could pee on my own. I have never been so vulnerable and just tried to sleep as much as I could. I was released on 07/17/2020 and anxiety and depression started. They had messed with my meds but my NP put me on an additional anxiety med. On 07/30/2020 the surgeon told me the mass was benign which is good but now no right kidney and on dialysis. I had panic attacks and just tried to get thru each day and now on 08/09/2020 I am feeling like myself. Last Saturday/Sunday had swelling and pain in neck above catheter and went to ER and was giving muscle relaxers. A Vascular US last Monday showed a small DVT in my neck so I am now on bloodthinners. I get a second surgery on 08/25/2020 for AVF in my left arm. The one done in February clotted before could even feel a thrill. My lower arm still is numb at times. The surgeon is putting me on the transplant list but I am in no hurry for more pain. Hemodialysis is OK. Most of the time my blood is cleaned with no volume overload as I try to stick to 36 ounces of fluid and still produce urine. I do notice that on the days I have dialysis it is so hard to get to sleep and I have to take something to finely get to sleep.
So how has everyoneelses summer been?