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Best protein supplement powder on dialysis
Hi Just wanted to check which protein supplement powder is best for dialysis patients. I have been using Nephro HP powder. Any better alternative?
Hi Just wanted to check which protein supplement powder is best for dialysis patients. I have been using Nephro HP powder. Any better alternative?
ashok5085
in
Kidney Transplant
2 years ago
Urgent-start peritoneal dialysis
Interesting info I had not seen before. Not sure I would wait till this is required, but for folks caught off guard, it might be an option. https://www.healio.com/news/nephrology/20220306/speaker-urgentstart-peritoneal-dialysis-feasible-costefficient-with-support-system
Interesting info I had not seen before. Not sure I would wait till this is required, but for folks caught off guard, it might be an option. https://www.healio.com/news/nephrology/20220306/speaker-urgentstart-peritoneal-dialysis-feasible-costefficient-with-support-system
RonZone
in
Kidney Disease
2 years ago
The Queen is too tired to lift her crown
I'm feeling tired thinking about the next two weeks. I have so much to do and so little time . If you don't hear from me much after this week, it's because of school. I've been tired in general. I'm trying to think if it is no more than usual. Is increased tiredness obvious or will it become more when
I'm feeling tired thinking about the next two weeks. I have so much to do and so little time . If you don't hear from me much after this week, it's because of school. I've been tired in general. I'm trying to think if it is no more than usual. Is increased tiredness obvious or will it become more when
HipHopQueen
in
Kidney Dialysis
2 years ago
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Medical ID Bracelet
After transplant or while on dialysis does anyone have a medical ID bracelet? Like the kinds that alert if you have a severe allergy or the like and are not able to communicate? If so, where did you get it?
After transplant or while on dialysis does anyone have a medical ID bracelet? Like the kinds that alert if you have a severe allergy or the like and are not able to communicate? If so, where did you get it?
horsie63
in
Kidney Transplant
2 years ago
8 Activities to Try During Dialysis
Dialysis sessions can take upwards of 12 hours a week. We have some ways to help you pass the time. For more information, visit: https://www.kidney.org/newsletter/8-activities-to-try-during-dialysis
Dialysis sessions can take upwards of 12 hours a week. We have some ways to help you pass the time. For more information, visit: https://www.kidney.org/newsletter/8-activities-to-try-during-dialysis
JackieJ_NKF
Partner
in
Kidney Dialysis
2 years ago
Fistula question
I'm not in dialysis but I have a question.can you shower once it's healed and set or are you stuck washing your self in the sink from then on?
I'm not in dialysis but I have a question.can you shower once it's healed and set or are you stuck washing your self in the sink from then on?
S_dillow
in
Kidney Disease
2 years ago
Dialysis
I am getting my fistula fitted next week for dialysis. I have finally accepted that this is the next step. My gfr is at 9% but I feel the best, I felt in 7 years, since diagnosed 😳😳. Just wondering how people felt physically after starting dialysis? Do you put on weight, have more energy etc. I have
I am getting my fistula fitted next week for dialysis. I have finally accepted that this is the next step. My gfr is at 9% but I feel the best, I felt in 7 years, since diagnosed 😳😳. Just wondering how people felt physically after starting dialysis? Do you put on weight, have more energy etc. I have
Ziggydoodah
in
Kidney Disease
2 years ago
Kidney transplant podcast: Benji's Story
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
bethedifference
in
Kidney Transplant
2 years ago
Am I not taking my Stage 4 CKD seriously enough?
Maybe I'm in denial, I don't know. My "helpful" friend keeps sending me articles and info on Stage 4 CKD. Probably because he's worried about me. Most of the medical articles and others have charts for prognosis based on age and CKD Stage. For Stage 4, over age 55 or 60, they say prognosis of life expectancy
Maybe I'm in denial, I don't know. My "helpful" friend keeps sending me articles and info on Stage 4 CKD. Probably because he's worried about me. Most of the medical articles and others have charts for prognosis based on age and CKD Stage. For Stage 4, over age 55 or 60, they say prognosis of life expectancy
Sophiebun11
in
Kidney Disease
2 years ago
Low kidney function
Hi my husbands kidneys are at 18% and the dr has told him he needs a urgent scan, and that he have to look at his options be it transplant or dialysis, I'm worried about it all , he gets so tired he's 71 this year Any advice please
Hi my husbands kidneys are at 18% and the dr has told him he needs a urgent scan, and that he have to look at his options be it transplant or dialysis, I'm worried about it all , he gets so tired he's 71 this year Any advice please
joannieandmike
in
Kidney Dialysis
2 years ago
Low kidney function
My husband ckd his kidneys are at 18% and his kidney dr has told him she wants a face to face appointment next week and he's waiting for a urgent scan on them, dr has told him he may need to weigh up the options ,does that mean a transplant or dialysis
My husband ckd his kidneys are at 18% and his kidney dr has told him she wants a face to face appointment next week and he's waiting for a urgent scan on them, dr has told him he may need to weigh up the options ,does that mean a transplant or dialysis
joannieandmike
in
NRAS
2 years ago
Just need some support
Hello all, my son is 7. He was born with CKD, he's currently in stage 2. He has reflux grade 5 bilateral, hydrophronesis bilateral, hyperkalemia, distended bladder, urinary retention and chronic constipation. They all kind of play off of each other and are either all controlled and keep his function
Hello all, my son is 7. He was born with CKD, he's currently in stage 2. He has reflux grade 5 bilateral, hydrophronesis bilateral, hyperkalemia, distended bladder, urinary retention and chronic constipation. They all kind of play off of each other and are either all controlled and keep his function
Turtlepower88
in
Parents of Children with Kidney Disease
2 years ago
Mucus is the cause of disease
If you don't want to end up on dialysis, read the mucusless diet healing system. Mucus forming foods is the cause of nearly all disease. There's also a Facebook support group.
If you don't want to end up on dialysis, read the mucusless diet healing system. Mucus forming foods is the cause of nearly all disease. There's also a Facebook support group.
shaun8
in
Kidney Disease
2 years ago
9 year old daughter on PD dialysis after covid killed her kidneys.
Hello, does anyone else have a child on PD Dialysis covid killed my daughters kidney function & we are on PD Dialysis waiting for a transplant in 5-6 months time. It would be great to chat to someone else who is dealing with a PD Dialysis we are 7 days a week 9 hours a night. Its exhausting emotionally
Hello, does anyone else have a child on PD Dialysis covid killed my daughters kidney function & we are on PD Dialysis waiting for a transplant in 5-6 months time. It would be great to chat to someone else who is dealing with a PD Dialysis we are 7 days a week 9 hours a night. Its exhausting emotionally
Mand0816
in
Kidney Dialysis
2 years ago
Dandelion Tea Good or Bad?
Has anyone used Organic Dandelion Tea? It's supposed to be good for detox of kidneys and liver. I'm stage 5 CKD, not on dialysis, take BP meds and on waitlist for kidney. I want to try this, but not sure if I should. I've read it can be good and sometimes also bad for CKD.
Has anyone used Organic Dandelion Tea? It's supposed to be good for detox of kidneys and liver. I'm stage 5 CKD, not on dialysis, take BP meds and on waitlist for kidney. I want to try this, but not sure if I should. I've read it can be good and sometimes also bad for CKD.
Hawaiilover
in
Kidney Disease
2 years ago
Help with recovering from ICU
Help with support about seeing the room you was in ICU Hi. I was ICU for about 7 weeks and most of it I was in Coma. I have terrible memories of it and wanted to speak to someone about it. I am going through the hospital support but it’s very slow moving. I do want to clear my head but I feel that it
Help with support about seeing the room you was in ICU Hi. I was ICU for about 7 weeks and most of it I was in Coma. I have terrible memories of it and wanted to speak to someone about it. I am going through the hospital support but it’s very slow moving. I do want to clear my head but I feel that it
IA2022
in
ICUsteps
2 years ago
How do you diet when you have CKD?
Hey guys. My dad is on his 3rd year of Hemodialysis. CKD stage 5. He's a 50 years old obese and is getting worse. It's like the dialysis isn't helping his body to get rid of his fluid intake. That is however, it is very difficult for him to limit his water intake to 1 liter per day because we live in
Hey guys. My dad is on his 3rd year of Hemodialysis. CKD stage 5. He's a 50 years old obese and is getting worse. It's like the dialysis isn't helping his body to get rid of his fluid intake. That is however, it is very difficult for him to limit his water intake to 1 liter per day because we live in
acaellapes
in
Kidney Disease
2 years ago
Creatinine vs. CystatinC eGFR
I saw my nephro yesterday and asked for a cystatin C test. Now I've got two eGFRs. One is 25 and one is 36. Which is most accurate? All the articles I've found go over my head. I found one that said the margin of error for both tests was high. My eGFR based on creatinine rose from my low of 5 to
I saw my nephro yesterday and asked for a cystatin C test. Now I've got two eGFRs. One is 25 and one is 36. Which is most accurate? All the articles I've found go over my head. I found one that said the margin of error for both tests was high. My eGFR based on creatinine rose from my low of 5 to
barbara55109
in
Kidney Disease
2 years ago
Does anyone else have a horseshoe kidney?
Is there anyone else on this site or does anyone even know anyone who has a horseshoe kidney? There are no support groups or even doctors who have a clue. I am not a candidate for transplant due to the way this is formed. They said once I go on dialysis I am pretty much numbered as short timing it.
Is there anyone else on this site or does anyone even know anyone who has a horseshoe kidney? There are no support groups or even doctors who have a clue. I am not a candidate for transplant due to the way this is formed. They said once I go on dialysis I am pretty much numbered as short timing it.
dreamwalker1016
in
Kidney Disease
2 years ago
PKD ESRD on dialysis 4 years
Hi everyone, I have PKD and ESRD, I have been on dialysis for four years. The first year on hemodialysis in center which I hated ! I then switched to peritoneal dialysis which I loved and felt great on ! Unfortunately it stopped working this past fall and I became very ill and now I am back on in
Hi everyone, I have PKD and ESRD, I have been on dialysis for four years. The first year on hemodialysis in center which I hated ! I then switched to peritoneal dialysis which I loved and felt great on ! Unfortunately it stopped working this past fall and I became very ill and now I am back on in
Frankie24
in
Kidney Disease
2 years ago
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