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Experiences with
Total hysterectomy
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Constipation & Deep infiltrating endo any tips?
Due to see endo specialist for the first time in August, originally meant to have
total
hysterectomy
for other issues however as soon as deep endo showed up now discharged from generalised gynae and going to be seeing specialist centre who Ive been told will do the hysterectomy and a bowel surgeon present
Due to see endo specialist for the first time in August, originally meant to have
total
hysterectomy
for other issues however as soon as deep endo showed up now discharged from generalised gynae and going to be seeing specialist centre who Ive been told will do the hysterectomy and a bowel surgeon present
Menopausal7
in
Endometriosis UK
12 days ago
Pain relief. How do advocate for myself?
I'm currently on the waiting list for a
total
hysterectomy
for stage 4 and will be my 4th op. I've been on strong opioid pain meds for 11 years using them to varying degrees depending on my level. I've tried everything that's ever been offered but now I'm done.
I'm currently on the waiting list for a
total
hysterectomy
for stage 4 and will be my 4th op. I've been on strong opioid pain meds for 11 years using them to varying degrees depending on my level. I've tried everything that's ever been offered but now I'm done.
KM1986
in
Endometriosis UK
3 months ago
post hysterectomy issues?
I’ve just had a
total
hysterectomy
because I had cancer. The surgeons assistant said there was a LOT of endometriosis stuck to everything. They had never diagnosed this (or indeed a second completely different cancerous tumour on my ovary) so now I’m thinking… what about the endometriosis?
I’ve just had a
total
hysterectomy
because I had cancer. The surgeons assistant said there was a LOT of endometriosis stuck to everything. They had never diagnosed this (or indeed a second completely different cancerous tumour on my ovary) so now I’m thinking… what about the endometriosis?
Kazzacupcake
in
Endometriosis UK
8 months ago
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Exhausted
I'm still recovering from
total
hysterectomy
because of cancer and on treatment for a cuti I've had 4 years. Obviously hormones have crashed as i had to come of hrt I feel cold one minute then hot flushes with sweats. Could this be Thyroid/adrenal gland problem?
I'm still recovering from
total
hysterectomy
because of cancer and on treatment for a cuti I've had 4 years. Obviously hormones have crashed as i had to come of hrt I feel cold one minute then hot flushes with sweats. Could this be Thyroid/adrenal gland problem?
France92
in
Thyroid UK
9 months ago
Prostrap & dry eye
I was considering hysterectomy for endo and Pmdd but now I’m scared my eyes would be like this forever if I have a
total
hysterectomy
with ovary removal? Any advice / experiences?
I was considering hysterectomy for endo and Pmdd but now I’m scared my eyes would be like this forever if I have a
total
hysterectomy
with ovary removal? Any advice / experiences?
CrochetCrayola
in
Endometriosis UK
6 months ago
swollen hands 8 weeks after total Hysterectomy?
hi, just wondering if anyone experienced the same ?if so is there anything can be done or taken ? Iam 8 weeks in recovery from extensive surgery , in surgical menopause now as everything was removed .Never in my life had swollen fingers / hands but I can’t wear my rings on either hands anymore ,I haven
hi, just wondering if anyone experienced the same ?if so is there anything can be done or taken ? Iam 8 weeks in recovery from extensive surgery , in surgical menopause now as everything was removed .Never in my life had swollen fingers / hands but I can’t wear my rings on either hands anymore ,I haven
K2023
in
Endometriosis UK
9 months ago
I have questions about Tamoxifen, aka Hormonal Therapy
I have had 6 rounds of Chemo, & a
total
hysterectomy
. I've been doing Avastin since January 2022. Currently my CA-125 is a 43, elevated above the 35 Cancer marker. But my oncologist is monitoring me very closely with Ct-Scans every 3 months.
I have had 6 rounds of Chemo, & a
total
hysterectomy
. I've been doing Avastin since January 2022. Currently my CA-125 is a 43, elevated above the 35 Cancer marker. But my oncologist is monitoring me very closely with Ct-Scans every 3 months.
gta03
in
SHARE Ovarian Cancer Support
5 months ago
Covid
Although it’s been grim I feel reassured that I have coped as it’s only 14 weeks since I had a
total
hysterectomy
for uterine cancer.
Although it’s been grim I feel reassured that I have coped as it’s only 14 weeks since I had a
total
hysterectomy
for uterine cancer.
Wesleygrange2a
in
MPN Voice
7 months ago
surgery ready
So I’m on the countdown to my
total
hysterectomy
on 5th October. Had the pre op tests and book of a tick box questionnaire.
So I’m on the countdown to my
total
hysterectomy
on 5th October. Had the pre op tests and book of a tick box questionnaire.
MrsPaddingtonBear
in
Endometriosis UK
7 months ago
diagnosis process
They’ve warned they sometimes struggle to get the fluid off to test and if that’s the case they will go straight ahead and do a
total
hysterectomy
. There’s also a 2 week wait for results if they are able to do a biopsy. So not really any further forward re. Diagnosis.
They’ve warned they sometimes struggle to get the fluid off to test and if that’s the case they will go straight ahead and do a
total
hysterectomy
. There’s also a 2 week wait for results if they are able to do a biopsy. So not really any further forward re. Diagnosis.
Kerri1402
in
My Ovacome
8 months ago
Post Radiotherapy Fatigue
I had a
total
hysterectomy
with BSO late December followed by 25 days of external beam radiotherapy in March / April. I’m really struggling with fatigue/ low energy levels. Is this normal? I had hoped for sone improvement four and a half months post treatment.
I had a
total
hysterectomy
with BSO late December followed by 25 days of external beam radiotherapy in March / April. I’m really struggling with fatigue/ low energy levels. Is this normal? I had hoped for sone improvement four and a half months post treatment.
Fika500
in
SHARE Uterine Cancer Support
9 months ago
Painful Sex
On Friday my boyfriend and I had penetrative sex for the first time since probably at least a month before my
total
hysterectomy
4 months ago for Clear Cell OC Stage 2B We took it slowly and carefully and just at the point it all seemed to be going well I felt a sensation I find hard to describe, maybe
On Friday my boyfriend and I had penetrative sex for the first time since probably at least a month before my
total
hysterectomy
4 months ago for Clear Cell OC Stage 2B We took it slowly and carefully and just at the point it all seemed to be going well I felt a sensation I find hard to describe, maybe
Emcee71
in
My Ovacome
1 month ago
Prostap longer than 6 months?
The pill doesn’t work for me as it made me depressed so patches were a good choice I recently had a consultation with a gynae surgeon who immediately started talking about
total
hysterectomy
or oophrectomy. I don’t want this and really feel it’s radical.
The pill doesn’t work for me as it made me depressed so patches were a good choice I recently had a consultation with a gynae surgeon who immediately started talking about
total
hysterectomy
or oophrectomy. I don’t want this and really feel it’s radical.
Honeybeehappy
in
Endometriosis UK
7 months ago
update!
so after post a couple of days ago regarding I’ve finally been put on the list for
total
hysterectomy
, I got a phone call from the hospital yesterday. I have a date! 8 weeks time!
so after post a couple of days ago regarding I’ve finally been put on the list for
total
hysterectomy
, I got a phone call from the hospital yesterday. I have a date! 8 weeks time!
MrsPaddingtonBear
in
Endometriosis UK
9 months ago
Amitriptyline! Treatment for nerve damage.Anyone had this for nerve damage?
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and
total
hysterectomy
.The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and
total
hysterectomy
.The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
K2023
in
Endometriosis UK
8 months ago
Confused
I know I'll have to go through the menopause at some point but don't really see the point in swapping one set of symptoms for another for temporary relief at best. 3/
Total
hysterectomy
- Again, I'm sceptical that this will solve all my problems.
I know I'll have to go through the menopause at some point but don't really see the point in swapping one set of symptoms for another for temporary relief at best. 3/
Total
hysterectomy
- Again, I'm sceptical that this will solve all my problems.
Tulip1983
in
Endometriosis UK
7 months ago
Thank you for all the support and bye for now
I have been quite active on here for a few months telling my story of living with endo since I was very young until now at 57 waiting on an urgent list for the last year for
total
hysterectomy
and bowel resection to try and stop the damage and repeated painful pelvic infections the fast growing endo
I have been quite active on here for a few months telling my story of living with endo since I was very young until now at 57 waiting on an urgent list for the last year for
total
hysterectomy
and bowel resection to try and stop the damage and repeated painful pelvic infections the fast growing endo
Poppyg16
in
Endometriosis UK
22 days ago
At last!
Had my appointment at the hospital today and my consultant finally agreed after 20 horrible long years to put me on the list for a
total
hysterectomy
. Continuing Prostap and Evorell patches till then, but the papers are all signed. So relieved.
Had my appointment at the hospital today and my consultant finally agreed after 20 horrible long years to put me on the list for a
total
hysterectomy
. Continuing Prostap and Evorell patches till then, but the papers are all signed. So relieved.
MrsPaddingtonBear
in
Endometriosis UK
9 months ago
frustrated and frightened
I was due to have a
total
hysterectomy
, bowel resection and excision of any endo on Monday at a BSGE centre and have been cancelled last minute due to the junior doctors strike.
I was due to have a
total
hysterectomy
, bowel resection and excision of any endo on Monday at a BSGE centre and have been cancelled last minute due to the junior doctors strike.
Poppyg16
in
Endometriosis UK
2 months ago
post menopausal depression and anxiety
I had a
total
hysterectomy
which cured my early stage cancer - everything was removed including my ovaries. Has anyone else been left feeling deflated in post menopause?
I had a
total
hysterectomy
which cured my early stage cancer - everything was removed including my ovaries. Has anyone else been left feeling deflated in post menopause?
Lara1244
in
Menopause and Perimenopause Support
10 months ago
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